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Tapering problem
Hi I am now down to 3.5mg Again.I got some chest painThat's settled down but I feel soo weak and tired.Im having problems with my toes going numb on me too.Im raising them up at night time .I don't know what the Dr can do.I think it's a nerve thing.I have told him many times about the numbness.I get
Hi I am now down to 3.5mg Again.I got some chest painThat's settled down but I feel soo weak and tired.Im having problems with my toes going numb on me too.Im raising them up at night time .I don't know what the Dr can do.I think it's a nerve thing.I have told him many times about the numbness.I get
Raewynne
in
PMRGCAuk
5 months ago
Seeking advise about an implantable loop recorder.
I am a 72 year old male in good health. I had persistent AFIB for many years – probably caused by 40 years of alcoholism. Four years ago, I quit drinking after a mild stroke and began exercising religiously and adhering to a healthy diet. A little over a year ago I had an ablation done, and now I take
I am a 72 year old male in good health. I had persistent AFIB for many years – probably caused by 40 years of alcoholism. Four years ago, I quit drinking after a mild stroke and began exercising religiously and adhering to a healthy diet. A little over a year ago I had an ablation done, and now I take
kurtgv
in
AF Association
5 months ago
Rivaroxaban
Happy New Year everyone! Just wondering if anyone else has any side effects from Rivaroxaban? I'd been taking 20mg per day since 2017 with no noticeable side effects. I not only have AF but Bronchiectasis as well. Needed to put a sputum sample in for testing and carried this out in the usual way
Happy New Year everyone! Just wondering if anyone else has any side effects from Rivaroxaban? I'd been taking 20mg per day since 2017 with no noticeable side effects. I not only have AF but Bronchiectasis as well. Needed to put a sputum sample in for testing and carried this out in the usual way
PAP48
in
Lung Conditions Community Forum
5 months ago
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Demodex Blepharitis treatments?
Hello, all. Glaucoma diagnosed late 2019. Initially drops tolerated ok think Latanoprost plus other.After a while developed bad red eyes, itching. Tried various drops since including preservative free, had both cataracts done. Tablets Azetazoloimide? Worked well, not able stay on them! Stopped taking
Hello, all. Glaucoma diagnosed late 2019. Initially drops tolerated ok think Latanoprost plus other.After a while developed bad red eyes, itching. Tried various drops since including preservative free, had both cataracts done. Tablets Azetazoloimide? Worked well, not able stay on them! Stopped taking
TVTech
in
Glaucoma UK
5 months ago
Side effects of nefopam sweats
Recently been put on nefopam due to night pains because of hip and back pain. Does anyone else suffer sweats from nefopam? I'm trying to rule them out as on other meds too.
Recently been put on nefopam due to night pains because of hip and back pain. Does anyone else suffer sweats from nefopam? I'm trying to rule them out as on other meds too.
Jackieginger44
in
Pain Concern
3 months ago
PV and AMD?
I've had PV since 2015 and have been on Jakafi for 18 months. I've recently been diagnosed with age-related macular degeneration and have been treated with intravitreous avastin. I've seen some papers suggesting that AMD is more common for people with MPNs. Has anyone else had this experience? Steve
I've had PV since 2015 and have been on Jakafi for 18 months. I've recently been diagnosed with age-related macular degeneration and have been treated with intravitreous avastin. I've seen some papers suggesting that AMD is more common for people with MPNs. Has anyone else had this experience? Steve
sbs_patient
in
MPN Voice
5 months ago
angular cheilitis
I’ve suffer a lot from this I get it around 3/4 times a year but usually lasts about a week. I’m on my third week struggling with this and can’t find a lip balm or treatment. I heard Daktarin oral gel but it’s sold out everywhere and the pharmacy said they even finding it hard to get it in for people
I’ve suffer a lot from this I get it around 3/4 times a year but usually lasts about a week. I’m on my third week struggling with this and can’t find a lip balm or treatment. I heard Daktarin oral gel but it’s sold out everywhere and the pharmacy said they even finding it hard to get it in for people
Ladybitsandbobs
in
NRAS
5 months ago
Diagnosed today with an acoustic Neuroma.
Hi Everyone. I have just been told this morning that my MRI confirmed an acoustic neuroma. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
Hi Everyone. I have just been told this morning that my MRI confirmed an acoustic neuroma. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
Reddington__
in
Acoustic Neuroma Support
5 months ago
PIC - Punctate Inner Choroidopathy
Hi. I have just received a diagnosis for the above condition. I understand it’s extremely rare and would like to hear about other people’s experiences. I’m literally just on the journey and have had the first of 3 ‘rescue’ injections to prevent further sight loss. Would be good to connect with others
Hi. I have just received a diagnosis for the above condition. I understand it’s extremely rare and would like to hear about other people’s experiences. I’m literally just on the journey and have had the first of 3 ‘rescue’ injections to prevent further sight loss. Would be good to connect with others
Rome2023
in
Macular Society
5 months ago
small eyey
I don’t look like my eyes are normal size but the consultant says they are small, not deep and short ??? Says cataract op would be difficult when the time comes . Says further laser surgery not possible. has anyone else been told this ? I worries me for the future
I don’t look like my eyes are normal size but the consultant says they are small, not deep and short ??? Says cataract op would be difficult when the time comes . Says further laser surgery not possible. has anyone else been told this ? I worries me for the future
Sufitzy
in
Glaucoma UK
5 months ago
2.5 year old, suddenly bedwetting
Hi all, my 2.5 year old has been night potty trained for 5 months with max 2 or 3 wee accidents in that time, but suddenly started bedwetting practically every night for a Week.She has always struggled with infrequent poos, likely caused by withholding. My gp agrees the bedwetting is likely due to impacted
Hi all, my 2.5 year old has been night potty trained for 5 months with max 2 or 3 wee accidents in that time, but suddenly started bedwetting practically every night for a Week.She has always struggled with infrequent poos, likely caused by withholding. My gp agrees the bedwetting is likely due to impacted
Blando
in
ERIC
5 months ago
hand warming creams
hello So I’m a long term suffer from raynauds (secondary) keeping hands warm is a challenge. I’ve got various gloves and hand warms but there are times when I can’t wear gloves or when the gloves aren’t effective. I’ve seen various hand creams to at say they warm the hands but has anyone tried any and
hello So I’m a long term suffer from raynauds (secondary) keeping hands warm is a challenge. I’ve got various gloves and hand warms but there are times when I can’t wear gloves or when the gloves aren’t effective. I’ve seen various hand creams to at say they warm the hands but has anyone tried any and
Enjoyswalking
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
Further update Gallbladder removal
So I am home after a long day. Had to get up at 5am to be at hospital by 7am. All the usual preps and questions then operation took place at 10am. Because I have an LBBB (No underlying heart issues) They were extra careful with monitoring so had an extra canula thingy in my inner wrist to monitor heart
So I am home after a long day. Had to get up at 5am to be at hospital by 7am. All the usual preps and questions then operation took place at 10am. Because I have an LBBB (No underlying heart issues) They were extra careful with monitoring so had an extra canula thingy in my inner wrist to monitor heart
Manderson27
in
British Liver Trust
5 months ago
Fostair - lactose-free?
I just had a telephone consult with my respiratory consultant. As the steroid in my Seretide inhaler is thought likely to be the cause of my recently diagnosed adrenal insufficiency, he proposes to switch me from Seretide to Fostair as the steroid in that is less potent. I am seeing conflicting information
I just had a telephone consult with my respiratory consultant. As the steroid in my Seretide inhaler is thought likely to be the cause of my recently diagnosed adrenal insufficiency, he proposes to switch me from Seretide to Fostair as the steroid in that is less potent. I am seeing conflicting information
JumpJiving
in
Asthma Community Forum
5 months ago
Varicose veins with scleroderma
Are there any other LSSc people out there also suffering from varicose veins? At my last check up with Royal Free I pointed out lots of new burst veins/ thread veins in my legs. They said it as early varicose veins, but they would ask my GP to refer me to vascular specialist close to me. RF implied
Are there any other LSSc people out there also suffering from varicose veins? At my last check up with Royal Free I pointed out lots of new burst veins/ thread veins in my legs. They said it as early varicose veins, but they would ask my GP to refer me to vascular specialist close to me. RF implied
LadyTrundle
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
Hashi symptoms still or tired/dry eyes?
Hey everyone, Still on my journey to "optimal" health and lab's whilst having Hashimoto's. Diagnosed 18 month ago. I have a strange one for you, or, not so strange, right now I'm not sure. So, currently on 162.5mcg of Levo and 10 mcg of Lio. I would say symptom wise I am feeling the best I have in
Hey everyone, Still on my journey to "optimal" health and lab's whilst having Hashimoto's. Diagnosed 18 month ago. I have a strange one for you, or, not so strange, right now I'm not sure. So, currently on 162.5mcg of Levo and 10 mcg of Lio. I would say symptom wise I am feeling the best I have in
dexterholland91
in
Thyroid UK
5 months ago
An enquiry about the evidence base regarding anticoagulants - my reply to a post that just went missing…..
Revised and edited post. My apologies if this post caused any confusion or led down the wrong track. Top Biscuit has been in touch with me and wishes to make the following very clear: Her post wasn't about anticoagulation at all, although she understands how it could lead the mind to the question of
Revised and edited post. My apologies if this post caused any confusion or led down the wrong track. Top Biscuit has been in touch with me and wishes to make the following very clear: Her post wasn't about anticoagulation at all, although she understands how it could lead the mind to the question of
Rainfern
in
AF Association
5 months ago
Recent blood tests
Hi, can anybody offer any guidance on my blood tests. I have paid to have them done by blue horizon. My blood was done at 8.45 before taking any medication. I take levo 175 one day followed by 150 the next. B12 supplement. I have been suffering from a feeling of being on a boat with weak legs. Bad brain
Hi, can anybody offer any guidance on my blood tests. I have paid to have them done by blue horizon. My blood was done at 8.45 before taking any medication. I take levo 175 one day followed by 150 the next. B12 supplement. I have been suffering from a feeling of being on a boat with weak legs. Bad brain
Colvic
in
Thyroid UK
5 months ago
Hair Loss on Acalabrutinib
Has anyone suffered significant hair loss while taking this drug? Does the hair loss stop at some point in time. Does the hair regrow? This is the one thing the oncologist said wouldn't happen. I have been taking an iron supplement and 5,000 mcg of biotin, information that I read in other posts. My hair
Has anyone suffered significant hair loss while taking this drug? Does the hair loss stop at some point in time. Does the hair regrow? This is the one thing the oncologist said wouldn't happen. I have been taking an iron supplement and 5,000 mcg of biotin, information that I read in other posts. My hair
Vinweesel2023
in
CLL Support
5 months ago
Delayed injection
I have wet md and glaucoma in both eyes. I was scheduled for left eye injection 1/10. I called to confirm my appointment that was made in Nov. and was told it had been cancelled. They said something about my insurance being FFS and I need CAP to get treatment. I have been going to this facility for
I have wet md and glaucoma in both eyes. I was scheduled for left eye injection 1/10. I called to confirm my appointment that was made in Nov. and was told it had been cancelled. They said something about my insurance being FFS and I need CAP to get treatment. I have been going to this facility for
eyeseeu
in
Macular Society
5 months ago
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