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microbleeds
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
chelb29
in
Hughes Syndrome APS Forum
9 months ago
IBS / Diverticulosis
Does anyone suffer from a flare , UTI and diverticulitis at the same time ? This last flare started after a course of antibiotics for another infection. , but now I have felt really ill for the last few days with very tender abdomen and pain all along my left side even up under my left ribs ! I also
Does anyone suffer from a flare , UTI and diverticulitis at the same time ? This last flare started after a course of antibiotics for another infection. , but now I have felt really ill for the last few days with very tender abdomen and pain all along my left side even up under my left ribs ! I also
Mascot68
in
IBS Network
3 months ago
BCG - intravesical immunotherapy - Update.
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Ern007
in
Lung Conditions Community Forum
9 months ago
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stomach bloating
I have pain starting from stomach then it seems to travel down to lower abdomen. I am very bloated, only burping or passing wind, my pain can be released a bit. The bloating is so bad, I couldn’t even breathe. I am wondering if anyone who have similar symptoms and how to relief such painful bloating.
I have pain starting from stomach then it seems to travel down to lower abdomen. I am very bloated, only burping or passing wind, my pain can be released a bit. The bloating is so bad, I couldn’t even breathe. I am wondering if anyone who have similar symptoms and how to relief such painful bloating.
Stomach2024
in
IBS Network
3 months ago
Help and understanding
Hi all, let me start with how much I love this site everyone is so helpful and understanding. I'm sorry if I go on a bit just sometimes things seem better when you write it down and get anothers view. I've had ibs c for 30 ish years. It was just constant constipation in the beginning. As the years went
Hi all, let me start with how much I love this site everyone is so helpful and understanding. I'm sorry if I go on a bit just sometimes things seem better when you write it down and get anothers view. I've had ibs c for 30 ish years. It was just constant constipation in the beginning. As the years went
Gizmo6
in
IBS Network
3 months ago
what is ibs?
Hi! new here and didn’t actually know this forum was about until I started googling on the nhs site. So my question is what is ibs? I want to explain what I’m experiencing and if someone can tell me if it’s completely normal for ibs to be like this I would be really grateful. This time last year
Hi! new here and didn’t actually know this forum was about until I started googling on the nhs site. So my question is what is ibs? I want to explain what I’m experiencing and if someone can tell me if it’s completely normal for ibs to be like this I would be really grateful. This time last year
HLeamon
in
IBS Network
3 months ago
Ca125 huge rise please help
My mother 's Ca 125 had a huge Spike from 2.74 last november to 11.42 at the begininng of May. CEA went Down instead. She changed Lab and this new Lab has a different range, the previous One used 0-21 and this One use the usual 0-35. She also had a ct scan , absolutely clear. She had , 15 days prior
My mother 's Ca 125 had a huge Spike from 2.74 last november to 11.42 at the begininng of May. CEA went Down instead. She changed Lab and this new Lab has a different range, the previous One used 0-21 and this One use the usual 0-35. She also had a ct scan , absolutely clear. She had , 15 days prior
Belindajames
in
My Ovacome
3 months ago
Macular Hole
Hi, long term PMR/GCA sufferer been on 4mg for long enough and staying there! However I developed a macular hole which needed surgery. Has anyone else had this problem, is there likely any association of cause with GCA /PMR or Pred? Surgery done now and I have to wait and see how successful it is.
Hi, long term PMR/GCA sufferer been on 4mg for long enough and staying there! However I developed a macular hole which needed surgery. Has anyone else had this problem, is there likely any association of cause with GCA /PMR or Pred? Surgery done now and I have to wait and see how successful it is.
doubtfully
in
PMRGCAuk
9 months ago
Esomeprazole and metoclopramide
Hello everyone I’ve been enjoying the posts on What’s in a Title and thank you to all involved. On a more mundane matter, I had a telephone consultation with I’m pleased to say, Dr Murray’s gastrointestinal/Scleroderma clinic over a week ago. It was with Kristina Clarke who I’ve met before and when
Hello everyone I’ve been enjoying the posts on What’s in a Title and thank you to all involved. On a more mundane matter, I had a telephone consultation with I’m pleased to say, Dr Murray’s gastrointestinal/Scleroderma clinic over a week ago. It was with Kristina Clarke who I’ve met before and when
Halfwayuphill
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Atorvastatin and Ibrutinib?
I asked the group about a month ago if it was OK to take Atorvastatin and Ibrutinib, several members came back and said they have been on the combination. However, my Haematologist has advised and I quote: "There may be an interaction and should not be given to prevent high cholesterol and if your
I asked the group about a month ago if it was OK to take Atorvastatin and Ibrutinib, several members came back and said they have been on the combination. However, my Haematologist has advised and I quote: "There may be an interaction and should not be given to prevent high cholesterol and if your
RobertCLL
in
CLL Support
9 months ago
I am terminal
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Pumpkininja
in
My Ovacome
3 months ago
Happy holiday post!
Quick catch up to give a boost if you're struggling right now starting your journey 😘 Basics Stage4b hgsc hrd+ brca negative with lymph nodes next to my heart and pelvis, started carbo/taxol June 2021 had 4 rounds then paid private for operation then 2 rounds. Finished 22 infusions of avastin in April
Quick catch up to give a boost if you're struggling right now starting your journey 😘 Basics Stage4b hgsc hrd+ brca negative with lymph nodes next to my heart and pelvis, started carbo/taxol June 2021 had 4 rounds then paid private for operation then 2 rounds. Finished 22 infusions of avastin in April
Newbery3
in
My Ovacome
3 months ago
What doesn't mix well with Coumadin?
Hello, my name is Chris from french part of Canada, please forgive my poor English... I have artificial heart from incident in Afghanistan. I need to take Coumadin/warfarin to keep my blood from becoming ragu...I've recently moved to the Philippines for obvious reasons and I have trouble falling asleep
Hello, my name is Chris from french part of Canada, please forgive my poor English... I have artificial heart from incident in Afghanistan. I need to take Coumadin/warfarin to keep my blood from becoming ragu...I've recently moved to the Philippines for obvious reasons and I have trouble falling asleep
Corporal_Canada
in
Hughes Syndrome APS Forum
9 months ago
Stomach pain bam
Got diagnosed with bile acid malabsorption over a year ago terrible pain before and after bowel movements that lasts a good few hours seeing a different doctor at my surgery he said he could be the bile salts aggravating my colon so i have to up the colesevelam to 2 a day instead of 1 if that dont help
Got diagnosed with bile acid malabsorption over a year ago terrible pain before and after bowel movements that lasts a good few hours seeing a different doctor at my surgery he said he could be the bile salts aggravating my colon so i have to up the colesevelam to 2 a day instead of 1 if that dont help
Netbet22
in
IBS Network
3 months ago
Tinnitus and Cochlear implants
Hello .. I’m just enquiring if there is anyone out there who has a cochlear implant and tinnitus. I’ve had a lot of operations on my ear , and onto my second cochlear implant. I’m in pain still after these operations and still have awful tinnitus. Just trying to get on with things!
Hello .. I’m just enquiring if there is anyone out there who has a cochlear implant and tinnitus. I’ve had a lot of operations on my ear , and onto my second cochlear implant. I’m in pain still after these operations and still have awful tinnitus. Just trying to get on with things!
1Dar
in
Tinnitus UK
9 months ago
Is my Endo back?
Hi Everyone, Looking for some advice or anyone who's been through a similar experience. I had Endo 3 years ago some of my main symptoms where bowel issues bloating, gassy, stomach cramps and diarrhea whenever I ate to much. Initially the doctor put it down to IBS. Obviously that wasn't the case and it
Hi Everyone, Looking for some advice or anyone who's been through a similar experience. I had Endo 3 years ago some of my main symptoms where bowel issues bloating, gassy, stomach cramps and diarrhea whenever I ate to much. Initially the doctor put it down to IBS. Obviously that wasn't the case and it
mo222
in
Endometriosis UK
3 months ago
High dose Turmeric and links to low ferritin
My ferritin has dropped from 82ug/L (30-150) 4 months ago to 64ug/L (30-264) this week (both Medichecks- Inuvi lab). I’ve been scratching my head to find out why this could be, as my diet hasn’t changed. https://amzn.eu/d/bTWoF2o The only change I’ve made is to increase my usual turmeric dose (which
My ferritin has dropped from 82ug/L (30-150) 4 months ago to 64ug/L (30-264) this week (both Medichecks- Inuvi lab). I’ve been scratching my head to find out why this could be, as my diet hasn’t changed. https://amzn.eu/d/bTWoF2o The only change I’ve made is to increase my usual turmeric dose (which
Buddy195
Administrator
in
Thyroid UK
3 months ago
hepatic Encephalopathy
morning, can anyone advice me about hepatic Encephalopathy ? I have stage 4 liver desease and was feeling so confused last night with things like time and thinking lights were off but were on is this the start of it? Last time I was like this was last march when I had my diagnoses, I take lactose which
morning, can anyone advice me about hepatic Encephalopathy ? I have stage 4 liver desease and was feeling so confused last night with things like time and thinking lights were off but were on is this the start of it? Last time I was like this was last march when I had my diagnoses, I take lactose which
Kingbilly3
in
British Liver Trust
3 months ago
Almost ready for phase 1: JHU083 (or JHU-083) a selective glutamine metabolism blocker
"The drug, JHU083, is a type of molecule called a prodrug that cells inside the body convert into an active drug. Specifically, JHU083 can only be turned into its active, glutamine-blocking form inside the tumor, preventing it from causing harmful side effects elsewhere in the body. " We all know that
"The drug, JHU083, is a type of molecule called a prodrug that cells inside the body convert into an active drug. Specifically, JHU083 can only be turned into its active, glutamine-blocking form inside the tumor, preventing it from causing harmful side effects elsewhere in the body. " We all know that
Maxone73
in
Advanced Prostate Cancer
3 months ago
The Dreaded MR
I think I posted a comment on someone else's thread months ago about having to go through MR, because in my review, they had taken me from enhanced on both elements of PIP down to standard rate on daily living only. To be honest I was evidently irate in the information I sent back. Igot them to send
I think I posted a comment on someone else's thread months ago about having to go through MR, because in my review, they had taken me from enhanced on both elements of PIP down to standard rate on daily living only. To be honest I was evidently irate in the information I sent back. Igot them to send
ArtfulLyricist
in
Fibromyalgia Action UK
9 months ago
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