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Start Adalimumab next week!
Start this drug next week after 2 and a half years of shocking hell. I was still playing football 5 times a week at the start of 2022, when a pain in the bottom of my foot stopped me in my tracks (now it’s in both feet, ankles, shoulders and back). Got diagnosed with spondyloarthritis. Long story short
Start this drug next week after 2 and a half years of shocking hell. I was still playing football 5 times a week at the start of 2022, when a pain in the bottom of my foot stopped me in my tracks (now it’s in both feet, ankles, shoulders and back). Got diagnosed with spondyloarthritis. Long story short
Lloyd_Gross
in
NRAS
22 days ago
Sore gut after bad flare up
So the initial nightmare flare up & cramps on Sunday night/Monday has now eased off. I can't say it's calmed down because I'm left with the worst lower abdominal pains and extreme sore feeling inside. Just putting my feet on the ground to walk seems to jolt! Feeling of bad bloating but actually
So the initial nightmare flare up & cramps on Sunday night/Monday has now eased off. I can't say it's calmed down because I'm left with the worst lower abdominal pains and extreme sore feeling inside. Just putting my feet on the ground to walk seems to jolt! Feeling of bad bloating but actually
binks
in
IBS Network
22 days ago
Ivermectin
I was recently diagnosed with CLL after a year plus of repeating colds and respiratory infections. My whites were in the high 20's sometimes almost doubling in a couple of weeks time. Now they are in the low to mid teens and I feel good. So, my question is has anyone used Ivermectin with any success?
I was recently diagnosed with CLL after a year plus of repeating colds and respiratory infections. My whites were in the high 20's sometimes almost doubling in a couple of weeks time. Now they are in the low to mid teens and I feel good. So, my question is has anyone used Ivermectin with any success?
Bornagain514
in
CLL Support
23 days ago
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MY WARRIOR FACE IS BEAMING!!!
🌹 just like to say thank you for all the loving messages I received yesterday 🤓🌹🤓The reason I'm so so scared is I had colon cancer 5 years ago and I was at death's door however🙏 I KICKED ITS BUTT!!🤨😖😎. That's why any type of new cancer scares me so bad 😔😓😔 SO HIGH HOPES AND HERE'S
🌹 just like to say thank you for all the loving messages I received yesterday 🤓🌹🤓The reason I'm so so scared is I had colon cancer 5 years ago and I was at death's door however🙏 I KICKED ITS BUTT!!🤨😖😎. That's why any type of new cancer scares me so bad 😔😓😔 SO HIGH HOPES AND HERE'S
Tawnie123
in
NRAS
24 days ago
INR control
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
mully
in
Hughes Syndrome APS Forum
6 months ago
Dosage for gabapentin enacarbil ( also known as horizant).
I have been on gabapentin neurontin for several months but I read that on the Mayo website that the time release version (horizant) is better suited for treating RLS. I currently take 1200 mg of gabapentin neurontin in two doses at 7 and bedtime. I have now convinced my doctor to prescribe the horizant
I have been on gabapentin neurontin for several months but I read that on the Mayo website that the time release version (horizant) is better suited for treating RLS. I currently take 1200 mg of gabapentin neurontin in two doses at 7 and bedtime. I have now convinced my doctor to prescribe the horizant
jinolke
in
Restless Legs Syndrome
6 months ago
unknown
I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
Mystery20
in
MY SKIN
6 months ago
Rituximab experience?
Hi all. I have had large vessel vasculitis for over three years which, despite several different treatments, is proving difficult to control. An FDG PET CT scan last November showed some inflammation in all areas of my aorta still. I have just started Rituximab infusions. This has made me feel even more
Hi all. I have had large vessel vasculitis for over three years which, despite several different treatments, is proving difficult to control. An FDG PET CT scan last November showed some inflammation in all areas of my aorta still. I have just started Rituximab infusions. This has made me feel even more
Kafkaontheshore
in
PMRGCAuk
6 months ago
Looking for some assistance
Hello, I've recently become very intolerant to gluten which has been a bit of a shock. I read online that it can be triggered by anxiety and it happened at the time of a serious family crisis. Can anyone tell me if this has happened to them and if so, if it's likely to recede or am I am stuck with it
Hello, I've recently become very intolerant to gluten which has been a bit of a shock. I read online that it can be triggered by anxiety and it happened at the time of a serious family crisis. Can anyone tell me if this has happened to them and if so, if it's likely to recede or am I am stuck with it
alliso
in
Gluten Free Guerrillas
6 months ago
Aching following injection
Hi all! I am new here. I have just had my third injection for diabetic macular oedema (on Monday) and since then have had a dull ache on and off particularly when looking to the side. No other symptoms. The eye clinic wanted me to go in on Friday afternoon and I couldn’t get there in time! Hoping to
Hi all! I am new here. I have just had my third injection for diabetic macular oedema (on Monday) and since then have had a dull ache on and off particularly when looking to the side. No other symptoms. The eye clinic wanted me to go in on Friday afternoon and I couldn’t get there in time! Hoping to
JWills1912
in
Macular Society
6 months ago
Retina detachment...is there a link with CLL?
I'm recovering from an op to reattach my retina. In a bored moment I started googling any connection with CLL and it is looking like there is!!! Anyone had this problem too?
I'm recovering from an op to reattach my retina. In a bored moment I started googling any connection with CLL and it is looking like there is!!! Anyone had this problem too?
Lizlashley1
in
CLL Support
6 months ago
new NTG diagnosis
I’ve just been diagnosed with bilateral NTG. I think I was in shock in the consultation room, I couldn’t ask or even think of many useful questions. I have structural damage in both eyes & pressures were 20 adjusted to 18 for corneal thickness. I’ve started drops once a night. I had a funny turn yesterday
I’ve just been diagnosed with bilateral NTG. I think I was in shock in the consultation room, I couldn’t ask or even think of many useful questions. I have structural damage in both eyes & pressures were 20 adjusted to 18 for corneal thickness. I’ve started drops once a night. I had a funny turn yesterday
Maisie79
in
Glaucoma UK
6 months ago
how to get off amiodrone
I am reaching out to you again. There are two problems I need information on. I was diagnosed with afib August 22 and Sept 1, 23 given amiodarone 200 mgs daily. because afib became continuous. I have found it makes me lose weight and I am contiuously eating to try to keep my weight on. Has anyone
I am reaching out to you again. There are two problems I need information on. I was diagnosed with afib August 22 and Sept 1, 23 given amiodarone 200 mgs daily. because afib became continuous. I have found it makes me lose weight and I am contiuously eating to try to keep my weight on. Has anyone
kitttycat
in
AF Association
6 months ago
My Dad
Hi all. Im looking for some advice please because im really struggling with my parents and im unsure where else to turn. My dad was diagnosed with Glaucoma a few years ago. He has had varies operations to try and relive his pressures. In February last year he was advised to have a cataract operation.
Hi all. Im looking for some advice please because im really struggling with my parents and im unsure where else to turn. My dad was diagnosed with Glaucoma a few years ago. He has had varies operations to try and relive his pressures. In February last year he was advised to have a cataract operation.
hazza1982
in
Glaucoma UK
6 months ago
Do you that have had Orchiectomy still take ATD Medication?
I’ve been told that I will be on ATD meds for life, I’m 63 and have been taking Lupron and Zytiga for going on two years. I asked my MO about Orchiectomy and he said if I did it he would still recommend Lupron. Can you guys please share your thoughts and experiences? Thank you in advance
I’ve been told that I will be on ATD meds for life, I’m 63 and have been taking Lupron and Zytiga for going on two years. I asked my MO about Orchiectomy and he said if I did it he would still recommend Lupron. Can you guys please share your thoughts and experiences? Thank you in advance
OldGuysRule
in
Advanced Prostate Cancer
6 months ago
Taking Flecainide 50g twice a day with Apixaban 5mg Twice a day and Soltalol 40mg twice a day
I have been getting AFIB 30% of the time when i was wearing a 14 day heart monitor.I was already taking Apixaban 5mg and Soltalol 40mg twice a day. I had Pulmonary embolisms in March 2023 from a DVT in my lungs. I am 52 years old and had good fitness until the DVT struck. I had been drinking red wine
I have been getting AFIB 30% of the time when i was wearing a 14 day heart monitor.I was already taking Apixaban 5mg and Soltalol 40mg twice a day. I had Pulmonary embolisms in March 2023 from a DVT in my lungs. I am 52 years old and had good fitness until the DVT struck. I had been drinking red wine
RagdollRagdoll
in
Atrial Fibrillation Support
6 months ago
anticoagulation fear
Hi! I started on anticoagulation in August. I started with apixaban 5 mg twice a day. I got very bad intermittent chest pains that worried me from the medicine that I never had before. Then I got gastritis. the doctor switched me to half dose to see if I could tolerate that and the same thing happened
Hi! I started on anticoagulation in August. I started with apixaban 5 mg twice a day. I got very bad intermittent chest pains that worried me from the medicine that I never had before. Then I got gastritis. the doctor switched me to half dose to see if I could tolerate that and the same thing happened
Fblue
in
Atrial Fibrillation Support
6 months ago
Antihistamine protocol
Hi everyone o have my last transfer next month and wanted to try everything I can as this is my last attempt. I have downregulated for 3 months on zorodex as I have adenomyosis and endo. For the transfer, I will be taking prednisone 10mg twice daily and aspirin 150mg from cd2 and forward. I've also
Hi everyone o have my last transfer next month and wanted to try everything I can as this is my last attempt. I have downregulated for 3 months on zorodex as I have adenomyosis and endo. For the transfer, I will be taking prednisone 10mg twice daily and aspirin 150mg from cd2 and forward. I've also
Norregirl
in
Fertility Network UK
1 month ago
Another update. Post ENT.
Finally after being referred in July 2023 got seen by a specialist January '24. At this moment my Tinnitus it at an all time high. It just seems to get louder and louder. It was a very thorough appointment though. I explained my situation, ( see previous posts ). Had a hearing test and a thorough
Finally after being referred in July 2023 got seen by a specialist January '24. At this moment my Tinnitus it at an all time high. It just seems to get louder and louder. It was a very thorough appointment though. I explained my situation, ( see previous posts ). Had a hearing test and a thorough
19marv19
in
Tinnitus UK
6 months ago
sometimes I feel like its just me with this extreme T
I have very severe reactive tinnitus which reacts to noise hearing aids and sound therapy push up the volume - so are almost impossible to use everyday sounds like traffic , car journey , tv, can also push up the T volume and even change the sound of it . I avoid walking along main roads and also
I have very severe reactive tinnitus which reacts to noise hearing aids and sound therapy push up the volume - so are almost impossible to use everyday sounds like traffic , car journey , tv, can also push up the T volume and even change the sound of it . I avoid walking along main roads and also
surviveT
in
Tinnitus UK
6 months ago
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