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Rituximab experience?
Hi all. I have had large vessel vasculitis for over three years which, despite several different treatments, is proving difficult to control. An FDG PET CT scan last November showed some inflammation in all areas of my aorta still. I have just started Rituximab infusions. This has made me feel even more
Hi all. I have had large vessel vasculitis for over three years which, despite several different treatments, is proving difficult to control. An FDG PET CT scan last November showed some inflammation in all areas of my aorta still. I have just started Rituximab infusions. This has made me feel even more
Kafkaontheshore
in
PMRGCAuk
3 months ago
Looking for some assistance
Hello, I've recently become very intolerant to gluten which has been a bit of a shock. I read online that it can be triggered by anxiety and it happened at the time of a serious family crisis. Can anyone tell me if this has happened to them and if so, if it's likely to recede or am I am stuck with it
Hello, I've recently become very intolerant to gluten which has been a bit of a shock. I read online that it can be triggered by anxiety and it happened at the time of a serious family crisis. Can anyone tell me if this has happened to them and if so, if it's likely to recede or am I am stuck with it
alliso
in
Gluten Free Guerrillas
3 months ago
Aching following injection
Hi all! I am new here. I have just had my third injection for diabetic macular oedema (on Monday) and since then have had a dull ache on and off particularly when looking to the side. No other symptoms. The eye clinic wanted me to go in on Friday afternoon and I couldn’t get there in time! Hoping to
Hi all! I am new here. I have just had my third injection for diabetic macular oedema (on Monday) and since then have had a dull ache on and off particularly when looking to the side. No other symptoms. The eye clinic wanted me to go in on Friday afternoon and I couldn’t get there in time! Hoping to
JWills1912
in
Macular Society
3 months ago
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Retina detachment...is there a link with CLL?
I'm recovering from an op to reattach my retina. In a bored moment I started googling any connection with CLL and it is looking like there is!!! Anyone had this problem too?
I'm recovering from an op to reattach my retina. In a bored moment I started googling any connection with CLL and it is looking like there is!!! Anyone had this problem too?
Lizlashley1
in
CLL Support
3 months ago
new NTG diagnosis
I’ve just been diagnosed with bilateral NTG. I think I was in shock in the consultation room, I couldn’t ask or even think of many useful questions. I have structural damage in both eyes & pressures were 20 adjusted to 18 for corneal thickness. I’ve started drops once a night. I had a funny turn yesterday
I’ve just been diagnosed with bilateral NTG. I think I was in shock in the consultation room, I couldn’t ask or even think of many useful questions. I have structural damage in both eyes & pressures were 20 adjusted to 18 for corneal thickness. I’ve started drops once a night. I had a funny turn yesterday
Maisie79
in
Glaucoma UK
3 months ago
how to get off amiodrone
I am reaching out to you again. There are two problems I need information on. I was diagnosed with afib August 22 and Sept 1, 23 given amiodarone 200 mgs daily. because afib became continuous. I have found it makes me lose weight and I am contiuously eating to try to keep my weight on. Has anyone
I am reaching out to you again. There are two problems I need information on. I was diagnosed with afib August 22 and Sept 1, 23 given amiodarone 200 mgs daily. because afib became continuous. I have found it makes me lose weight and I am contiuously eating to try to keep my weight on. Has anyone
kitttycat
in
AF Association
3 months ago
My Dad
Hi all. Im looking for some advice please because im really struggling with my parents and im unsure where else to turn. My dad was diagnosed with Glaucoma a few years ago. He has had varies operations to try and relive his pressures. In February last year he was advised to have a cataract operation.
Hi all. Im looking for some advice please because im really struggling with my parents and im unsure where else to turn. My dad was diagnosed with Glaucoma a few years ago. He has had varies operations to try and relive his pressures. In February last year he was advised to have a cataract operation.
hazza1982
in
Glaucoma UK
3 months ago
Do you that have had Orchiectomy still take ATD Medication?
I’ve been told that I will be on ATD meds for life, I’m 63 and have been taking Lupron and Zytiga for going on two years. I asked my MO about Orchiectomy and he said if I did it he would still recommend Lupron. Can you guys please share your thoughts and experiences? Thank you in advance
I’ve been told that I will be on ATD meds for life, I’m 63 and have been taking Lupron and Zytiga for going on two years. I asked my MO about Orchiectomy and he said if I did it he would still recommend Lupron. Can you guys please share your thoughts and experiences? Thank you in advance
OldGuysRule
in
Advanced Prostate Cancer
3 months ago
Taking Flecainide 50g twice a day with Apixaban 5mg Twice a day and Soltalol 40mg twice a day
I have been getting AFIB 30% of the time when i was wearing a 14 day heart monitor.I was already taking Apixaban 5mg and Soltalol 40mg twice a day. I had Pulmonary embolisms in March 2023 from a DVT in my lungs. I am 52 years old and had good fitness until the DVT struck. I had been drinking red wine
I have been getting AFIB 30% of the time when i was wearing a 14 day heart monitor.I was already taking Apixaban 5mg and Soltalol 40mg twice a day. I had Pulmonary embolisms in March 2023 from a DVT in my lungs. I am 52 years old and had good fitness until the DVT struck. I had been drinking red wine
RagdollRagdoll
in
Atrial Fibrillation Support
3 months ago
anticoagulation fear
Hi! I started on anticoagulation in August. I started with apixaban 5 mg twice a day. I got very bad intermittent chest pains that worried me from the medicine that I never had before. Then I got gastritis. the doctor switched me to half dose to see if I could tolerate that and the same thing happened
Hi! I started on anticoagulation in August. I started with apixaban 5 mg twice a day. I got very bad intermittent chest pains that worried me from the medicine that I never had before. Then I got gastritis. the doctor switched me to half dose to see if I could tolerate that and the same thing happened
Fblue
in
AF Association
3 months ago
Another update. Post ENT.
Finally after being referred in July 2023 got seen by a specialist January '24. At this moment my Tinnitus it at an all time high. It just seems to get louder and louder. It was a very thorough appointment though. I explained my situation, ( see previous posts ). Had a hearing test and a thorough
Finally after being referred in July 2023 got seen by a specialist January '24. At this moment my Tinnitus it at an all time high. It just seems to get louder and louder. It was a very thorough appointment though. I explained my situation, ( see previous posts ). Had a hearing test and a thorough
19marv19
in
Tinnitus UK
3 months ago
sometimes I feel like its just me with this extreme T
I have very severe reactive tinnitus which reacts to noise hearing aids and sound therapy push up the volume - so are almost impossible to use everyday sounds like traffic , car journey , tv, can also push up the T volume and even change the sound of it . I avoid walking along main roads and also
I have very severe reactive tinnitus which reacts to noise hearing aids and sound therapy push up the volume - so are almost impossible to use everyday sounds like traffic , car journey , tv, can also push up the T volume and even change the sound of it . I avoid walking along main roads and also
surviveT
in
Tinnitus UK
3 months ago
taking collagen
I am on a maintenance drug after been diagnosed with hg ovianian cancer Is anyone taking a collagen supplement
I am on a maintenance drug after been diagnosed with hg ovianian cancer Is anyone taking a collagen supplement
Curry55
in
My Ovacome
3 months ago
Update on NOT a UTI
Hi, just to update. I had the cystoscopy this morning, not a pleasant experience, but no cancer, no inflammation and no gritty substance, so that at least is good. She did say some people's kidneys do just excrete microscopic blood particles as their normal, but that I possibly have overactive bladder
Hi, just to update. I had the cystoscopy this morning, not a pleasant experience, but no cancer, no inflammation and no gritty substance, so that at least is good. She did say some people's kidneys do just excrete microscopic blood particles as their normal, but that I possibly have overactive bladder
Pusph
in
PMRGCAuk
3 months ago
Blocked vein
Good morning all, I have moved to a new area and my new hospital is really excellent. However my 1st consultation after scans I saw my new consultant, I had fluid at the back of eye I have had neovascular AMD for 5 years, he also said I had a blocked vein. He asked if my previous hospital had told me
Good morning all, I have moved to a new area and my new hospital is really excellent. However my 1st consultation after scans I saw my new consultant, I had fluid at the back of eye I have had neovascular AMD for 5 years, he also said I had a blocked vein. He asked if my previous hospital had told me
Whitegoose
in
Macular Society
3 months ago
operation
I have been told today that I am going to have to have an operation to try and halt the sight loss in my left eye😩it also involves removing my lens to avoid cataracts! There no guarantee this will work so I’m anxious to say the least. I have also been put on Acetazolamide to lower my pressures .. I
I have been told today that I am going to have to have an operation to try and halt the sight loss in my left eye😩it also involves removing my lens to avoid cataracts! There no guarantee this will work so I’m anxious to say the least. I have also been put on Acetazolamide to lower my pressures .. I
Bazzer65
in
Glaucoma UK
3 months ago
Firmagon vs Lupron
So, the question is what are the up or downs if switching from Firmagon to Lupron. I used Orgovyx until it didn't work, switched to Firmagon. Wanted either due to family history with heart issues. Dad, uncle's, brothers, all having issues. One brother recently having a major HA... But the convenience
So, the question is what are the up or downs if switching from Firmagon to Lupron. I used Orgovyx until it didn't work, switched to Firmagon. Wanted either due to family history with heart issues. Dad, uncle's, brothers, all having issues. One brother recently having a major HA... But the convenience
Cooolone
in
Advanced Prostate Cancer
3 months ago
Saline nasal rinse and glaucoma
I suffer with allergies and used to use steroid nasal spray. Now I have glaucoma I now know that these sprays are bad news! I've been looking into saline nasal rinse kits as an alternative to help me with the chronic catarrh in my throat but can't see any information about if these are safe to use for
I suffer with allergies and used to use steroid nasal spray. Now I have glaucoma I now know that these sprays are bad news! I've been looking into saline nasal rinse kits as an alternative to help me with the chronic catarrh in my throat but can't see any information about if these are safe to use for
Bonniecat7
in
Glaucoma UK
3 months ago
edoxaban or rivaroxaban?
I have been on Lixiana (Edoxaban) since my AF diagnosis just over two years ago and have had no issues at all with it. After my last request for a repeat prescription I got a phone call today from the doctor saying that the blood test I had last August (!) revealed a slight decrease in kidney function
I have been on Lixiana (Edoxaban) since my AF diagnosis just over two years ago and have had no issues at all with it. After my last request for a repeat prescription I got a phone call today from the doctor saying that the blood test I had last August (!) revealed a slight decrease in kidney function
Sandych55
in
Atrial Fibrillation Support
3 months ago
Failed Trabeculectomy
Hi!I have a failed trabeculectomy. 😢 Operated June 2022 with pressure of 16. Too high so 2 stitches were taken out and then pressure dropped to 2 and wouldn't come up so had to add a stitch to the bleb going through the conjunctiva. Pressure remained at about 11 for 9 months then then the bleb heal
Hi!I have a failed trabeculectomy. 😢 Operated June 2022 with pressure of 16. Too high so 2 stitches were taken out and then pressure dropped to 2 and wouldn't come up so had to add a stitch to the bleb going through the conjunctiva. Pressure remained at about 11 for 9 months then then the bleb heal
stephanie1977
in
Glaucoma UK
3 months ago
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