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Aortitis
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
Dance62
in
PMRGCAuk
2 months ago
Lactose intolerant
I am changing from Armour Thyroid to synthetic T4 and T3, due to cost and that a local Endo has agreed to this on the NHS. However I’m super sensitive to lactose and the hospital pharmacy are dithering about finding lactose free options. Does anyone know which brands are lactose free please?
I am changing from Armour Thyroid to synthetic T4 and T3, due to cost and that a local Endo has agreed to this on the NHS. However I’m super sensitive to lactose and the hospital pharmacy are dithering about finding lactose free options. Does anyone know which brands are lactose free please?
Karen-Eleanor
in
Thyroid UK
3 months ago
"Diagnosis Creep": Are Some AF Patients Overtreated (with Anti-coagulants)?
Interesting article in Medscape. You should be able to get full copy for free by just registering. https://www.medscape.com/viewarticle/997425?ecd=WNL_trdalrt_pos1_231018_etid5968858&uac=388437PK&impID=5968858 Of note is that Dr. Lip -- one of the developers of the CHADS risk score -- talks about its
Interesting article in Medscape. You should be able to get full copy for free by just registering. https://www.medscape.com/viewarticle/997425?ecd=WNL_trdalrt_pos1_231018_etid5968858&uac=388437PK&impID=5968858 Of note is that Dr. Lip -- one of the developers of the CHADS risk score -- talks about its
mjames1
in
AF Association
7 months ago
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Weight loss and Ketogenic diets
Hi Team,I'm curious about people experience with Ketogentic diets? I've let medication settle for four months now, and can see that much needed weight loss will be a grind . 😐 I have read about Ketogentic diets and was generally sceptical about dietary restriction. First line information often states
Hi Team,I'm curious about people experience with Ketogentic diets? I've let medication settle for four months now, and can see that much needed weight loss will be a grind . 😐 I have read about Ketogentic diets and was generally sceptical about dietary restriction. First line information often states
Luckyclaire
in
Thyroid UK
7 months ago
Vagus Nerve Stimulation for RLS
https://pubmed.ncbi.nlm.nih.gov/37846650/ An interesting study on Vagus Nerve Stumulation on 15 drug resistant RLS patients showed significant improvements in quality of life scale and that 2 of the 15 reduced their IRLSS below 5. The study doesn't say what meds the patients were taking. Sadly, they
https://pubmed.ncbi.nlm.nih.gov/37846650/ An interesting study on Vagus Nerve Stumulation on 15 drug resistant RLS patients showed significant improvements in quality of life scale and that 2 of the 15 reduced their IRLSS below 5. The study doesn't say what meds the patients were taking. Sadly, they
Joolsg
in
Restless Legs Syndrome
7 months ago
Notifying DVLA
just been diagnosed a couple of weeks ago I have normal tension glaucoma My consultant said I would have to inform the DVLA and she would send me the details in her letter From experience letters from the hospital can take weeks to arrive. Do I need to wait for this letter or am I better contacting
just been diagnosed a couple of weeks ago I have normal tension glaucoma My consultant said I would have to inform the DVLA and she would send me the details in her letter From experience letters from the hospital can take weeks to arrive. Do I need to wait for this letter or am I better contacting
Crafty-gran
in
Glaucoma UK
7 months ago
PMR and brachial neuritis
It looks like I have developed a fairly rare condition called Parsonage-Turner syndrome (PTS), also called brachial neuritis. It started with terrible pain in the shoulder, so initially I thought it would appear in the other shoulder and be the beginning of a PMR relapse. But it is taking a different
It looks like I have developed a fairly rare condition called Parsonage-Turner syndrome (PTS), also called brachial neuritis. It started with terrible pain in the shoulder, so initially I thought it would appear in the other shoulder and be the beginning of a PMR relapse. But it is taking a different
dmart7
in
PMRGCAuk
2 months ago
Question to the collective
As mentioned previously, I was diagnosed (Prof H/Sheffield) as having the SCA7 version of Ataxia in 2014. I was put on a tablet,( DANTROLENE) that has been gradually increased from 1 X 25mg capsule to the current 3 X 25mg Just had a phone call about some physio I saw last year, and it was then kind
As mentioned previously, I was diagnosed (Prof H/Sheffield) as having the SCA7 version of Ataxia in 2014. I was put on a tablet,( DANTROLENE) that has been gradually increased from 1 X 25mg capsule to the current 3 X 25mg Just had a phone call about some physio I saw last year, and it was then kind
Butcherpete
in
Ataxia UK
2 months ago
Temperature Issues in Besremi due to poor packaging during shipping...
Hi all, I may have mentioned this before, but while my response to the maximal dosage of Besremi has been measurable in other ways, my Hct control has been off and on. Most of the time SWMBO is at home to receive and sign for the monthly delivery of Besremi, so it wasn't until I was out of work [from
Hi all, I may have mentioned this before, but while my response to the maximal dosage of Besremi has been measurable in other ways, my Hct control has been off and on. Most of the time SWMBO is at home to receive and sign for the monthly delivery of Besremi, so it wasn't until I was out of work [from
PhysAssist
in
MPN Voice
7 months ago
Cataract after Preserflo treatment
I'm 4 months after glaucoma surgery / preseflo, I still have blurred vision - today I was diagnosed with a cataract on the operated eye and also retinal swelling. Does anyone have experience with such a case - how to treat it (cataract surgery will help). I will be glad for the reactions - experience
I'm 4 months after glaucoma surgery / preseflo, I still have blurred vision - today I was diagnosed with a cataract on the operated eye and also retinal swelling. Does anyone have experience with such a case - how to treat it (cataract surgery will help). I will be glad for the reactions - experience
ocicka
in
Glaucoma UK
7 months ago
GCA flare and eye sight
I have GCA. I have a new rheumatologist who practices at University Hospital in a clinic designed for patients with vasculitis and certain auto immune diseases (GCA being one of them), who has told me that I need to not worry about losing eye sight during the course of tapering prednisone or a flare
I have GCA. I have a new rheumatologist who practices at University Hospital in a clinic designed for patients with vasculitis and certain auto immune diseases (GCA being one of them), who has told me that I need to not worry about losing eye sight during the course of tapering prednisone or a flare
pmac22
in
PMRGCAuk
7 months ago
Severe reaction to Targinact - please help
Thanks everyone for your help with my last post re: Targinact. I think I am having severe side-effects from the drug, all of which are listed in the leaflet. I thought I was ill due to a seasonal flu/cold, but I now think the sickness, shaking, diarrhoea, nausea, rapid breathing and complete loss of
Thanks everyone for your help with my last post re: Targinact. I think I am having severe side-effects from the drug, all of which are listed in the leaflet. I thought I was ill due to a seasonal flu/cold, but I now think the sickness, shaking, diarrhoea, nausea, rapid breathing and complete loss of
Claire_lc
in
Restless Legs Syndrome
3 months ago
Vertigo or dizziness?
Just reducing from 6.5mg Pred to 6mg. All seems well but yesterday evening, as I was sitting and reading a book, I started to feel 'out of it' so to speak. A bit dizzy and as though I needed to take a large breath as I had forgotten to breathe. This morning I felt dizzy when I got up in that I wanted
Just reducing from 6.5mg Pred to 6mg. All seems well but yesterday evening, as I was sitting and reading a book, I started to feel 'out of it' so to speak. A bit dizzy and as though I needed to take a large breath as I had forgotten to breathe. This morning I felt dizzy when I got up in that I wanted
Miserere
in
PMRGCAuk
7 months ago
My first endocrinologist visit
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
sferios
in
PMRGCAuk
7 months ago
best anesthesia for knee replacement surgery ?
Greetings… I experienced my first struggle with daily RLS after 2 emergency gallbladder surgeries in 2021. My RLS lasted 10-12 horrible months post op… a short time still I’m aware, relative to the experience of so many sufferers on this forum. Apparently I am one of the lucky ones for whom only daily
Greetings… I experienced my first struggle with daily RLS after 2 emergency gallbladder surgeries in 2021. My RLS lasted 10-12 horrible months post op… a short time still I’m aware, relative to the experience of so many sufferers on this forum. Apparently I am one of the lucky ones for whom only daily
Friend7
in
Restless Legs Syndrome
7 months ago
Statins Worried
Could I have any opinions on taking Statins My GP is recommending I start taking them I was really upset when he said that If I didn't take them that my risk of heart attack or stoke would go up by 40% in the next ten years I am 72 My BP is quite good I have just started taking 5 mg of amlodipine at
Could I have any opinions on taking Statins My GP is recommending I start taking them I was really upset when he said that If I didn't take them that my risk of heart attack or stoke would go up by 40% in the next ten years I am 72 My BP is quite good I have just started taking 5 mg of amlodipine at
heartbeat4
in
AF Association
7 months ago
Turmeric
I have been amazed at the effect taking turmeric has had on the amount of pain I experience in my hands and how quickly this has happened. (Yes, I know about the placebo effect!) I would recommend anyone to try it (providing they check with their haems/doctors first). I take 2 capsules of turmeric extract
I have been amazed at the effect taking turmeric has had on the amount of pain I experience in my hands and how quickly this has happened. (Yes, I know about the placebo effect!) I would recommend anyone to try it (providing they check with their haems/doctors first). I take 2 capsules of turmeric extract
Mwalimu
in
MPN Voice
7 months ago
Struggling to bring down blood sugars
Hi Friends, As some of you know I've been on a journey and taking T3 was the real game changer. I am under the care of a fantastic private Endo. I've included my thyroid and sugar results in this post. My insulin is elevated indicating insulin resistance. All tests are done fasting and no meds
Hi Friends, As some of you know I've been on a journey and taking T3 was the real game changer. I am under the care of a fantastic private Endo. I've included my thyroid and sugar results in this post. My insulin is elevated indicating insulin resistance. All tests are done fasting and no meds
Wired123
in
Thyroid UK
7 months ago
Apixaban side effects/adverse reactions
Many months ago, I tried Rivaroxaban but found it affects my ability to focus my eyes. Switched to Apixaban and that has seemed OK. However, two things have happened. I had a neurological assessment which found almost zero reflexes in my arms. And my feet have become very dry and are starting to become
Many months ago, I tried Rivaroxaban but found it affects my ability to focus my eyes. Switched to Apixaban and that has seemed OK. However, two things have happened. I had a neurological assessment which found almost zero reflexes in my arms. And my feet have become very dry and are starting to become
Carew
in
Anticoagulation Support
7 months ago
Roflumilast/Daxas
Dear all, I just wanted to let all of you with severe COPD that I was given the opportunity last year, March 2022 to start this medication, Roflimilast. I had to request the outpatient appointment to be able to bring the possibility of being prescribed it. HealthUnlocked It wasn’t even mentioned to me
Dear all, I just wanted to let all of you with severe COPD that I was given the opportunity last year, March 2022 to start this medication, Roflimilast. I had to request the outpatient appointment to be able to bring the possibility of being prescribed it. HealthUnlocked It wasn’t even mentioned to me
PaulineHM
in
Lung Conditions Community Forum
7 months ago
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