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Hope at last
Hi well after five years of suffering with the most intense burning, agitation, painful genitalia, lack of sleep I finally have a diagnosis of neuropathy. I was referred to a Gynaecologist and after a month received a letter saying there would be a two year wait just to be seen. We decided that I should
Hi well after five years of suffering with the most intense burning, agitation, painful genitalia, lack of sleep I finally have a diagnosis of neuropathy. I was referred to a Gynaecologist and after a month received a letter saying there would be a two year wait just to be seen. We decided that I should
CecilyParsley
in
Pelvic Pain Support Network
10 months ago
My first COVID positive test ever came up twice positive
I thought I had a cold coming Wednesday night while at work at the local hospital, then yesterday had my rutuximab at the local chemo unit told them about my cold, they were happy to carry on , I did test on Wednesday evening at work negative Tested today twice both positive Been aching a lot especially
I thought I had a cold coming Wednesday night while at work at the local hospital, then yesterday had my rutuximab at the local chemo unit told them about my cold, they were happy to carry on , I did test on Wednesday evening at work negative Tested today twice both positive Been aching a lot especially
Stewie_1968
in
CLL Support
2 months ago
Covid vaccine
Hi haven’t been on for a while -all the Healthunlocked notifications going into junk - so not been prompted! Does anyone know when we can get next Covid booster -my lady was 6 months ago. I seem to recall something about a spring booster ? Thank you ! Happy Easter—have a lovely April x
Hi haven’t been on for a while -all the Healthunlocked notifications going into junk - so not been prompted! Does anyone know when we can get next Covid booster -my lady was 6 months ago. I seem to recall something about a spring booster ? Thank you ! Happy Easter—have a lovely April x
Mozart150
in
NRAS
2 months ago
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Is this gastritis???
Hello, I'm new to this group. I caught (1st time) covid 19 this past Christmas 2023. It took me 3 weeks to recover. On the tail end I notice I pretty much lost my appetite then my symptoms upper middle abdomen area (diaphragm) daily bloating, fullness, dull pain, nausea, no appetite, shortness of breath
Hello, I'm new to this group. I caught (1st time) covid 19 this past Christmas 2023. It took me 3 weeks to recover. On the tail end I notice I pretty much lost my appetite then my symptoms upper middle abdomen area (diaphragm) daily bloating, fullness, dull pain, nausea, no appetite, shortness of breath
Marc787
in
IBS Network
2 months ago
steroid injection and echocardiogram booked for the same day
hi everyone have finally got my steroid injection after 9 weeks. Then this morning hospital called me and said they have an echocardiogram app. on the same day. The echocardiogram is at 8.00am and then my steroid injection is at 1.30pm. Will it be ok to have them both done on the same day. Thanks
hi everyone have finally got my steroid injection after 9 weeks. Then this morning hospital called me and said they have an echocardiogram app. on the same day. The echocardiogram is at 8.00am and then my steroid injection is at 1.30pm. Will it be ok to have them both done on the same day. Thanks
Gillybean123
in
Atrial Fibrillation Support
3 months ago
HELLO POM POM SHAKERS: IT’S ANOTHER BIG WEEKEND!!!!
Having just digested the most recent post from the HU Glitterati who enjoyed the Monsal Trail last week (hopefully they have digested the Sunday Lunch and, for some, Bakewell Tart and Pudding!), the scene moves to Manchester. All of our HU A Listers who are turning out on Sunday are running the Manchester
Having just digested the most recent post from the HU Glitterati who enjoyed the Monsal Trail last week (hopefully they have digested the Sunday Lunch and, for some, Bakewell Tart and Pudding!), the scene moves to Manchester. All of our HU A Listers who are turning out on Sunday are running the Manchester
Beachcomber66
Half Marathon
in
Fun Beyond 10K & Race Support
2 months ago
Is a massage ok with PMR etc?
I have PMR (on 5mg currently) and also have pain on walking caused by spinal stenosis/ degeneration of lumbar spine and left hip etc. I also had a steroid injection a while back for bursitis in my right hip. My daughter would like to give me a massage as a Mothers’s Day gift and I’d love to have one
I have PMR (on 5mg currently) and also have pain on walking caused by spinal stenosis/ degeneration of lumbar spine and left hip etc. I also had a steroid injection a while back for bursitis in my right hip. My daughter would like to give me a massage as a Mothers’s Day gift and I’d love to have one
BadDancer
in
PMRGCAuk
3 months ago
dengue fever vaccinate or not?
I started off on 15mg Pred in October and am now down to 10mg. I am off to India (Rajasthan) in February and dengue fever vaccine has been suggested. As it is a live vaccine I am not sure whether having the vaccine is worth the risk of contracting dengue. Any advice? Also big thanks to the community
I started off on 15mg Pred in October and am now down to 10mg. I am off to India (Rajasthan) in February and dengue fever vaccine has been suggested. As it is a live vaccine I am not sure whether having the vaccine is worth the risk of contracting dengue. Any advice? Also big thanks to the community
Hb22
in
PMRGCAuk
5 months ago
W9R2 done
I didn't enjoy that at all. 73° and windy but more it was thar my legs felt heavy from start to finish. Think I had toxic tens from 0 -15 mins and 20 - 30 mins. Did consciously slow down once or twice when getting too puffed but I can confirm that having run for too long by accident last week has not
I didn't enjoy that at all. 73° and windy but more it was thar my legs felt heavy from start to finish. Think I had toxic tens from 0 -15 mins and 20 - 30 mins. Did consciously slow down once or twice when getting too puffed but I can confirm that having run for too long by accident last week has not
Gottamakechanges
in
Couch to 5K
2 months ago
Emergency use authorization of a new pre-exposure prophylaxis (PrEP) for COVID-19, PEMGARDA™ (VYD222)
Hi, Great news for the immunocompromised community including us. Invivyd announced late last week the emergency use authorization of their new pre-exposure prophylaxis (PrEP) for COVID-19, PEMGARDA™ (VYD222). It’s a one-hour infusion and lasts 3 months and based on titers should be effective against
Hi, Great news for the immunocompromised community including us. Invivyd announced late last week the emergency use authorization of their new pre-exposure prophylaxis (PrEP) for COVID-19, PEMGARDA™ (VYD222). It’s a one-hour infusion and lasts 3 months and based on titers should be effective against
bkoffman
CLL CURE Hero
in
CLL Support
2 months ago
Covid and injections
I suffered from Covid over Christmas from the 16th to the 30th December. Up 'til now I have had all the injections on offer. I read Dorset Lady's post that we are going to be offered another injection in the spring. It has left me wondering whether I will need this or not in the circumstances. I
I suffered from Covid over Christmas from the 16th to the 30th December. Up 'til now I have had all the injections on offer. I read Dorset Lady's post that we are going to be offered another injection in the spring. It has left me wondering whether I will need this or not in the circumstances. I
prunus
in
PMRGCAuk
2 months ago
Recap on Intense pain post
I’ve had a CT in Fall of 2019 indicating a couple of bulging discs. Spinal stenosis, s curve scoliosis. I’ve tried chiropractic treatments as well as acupuncture, acupressure and meditate several times a day. I’ve been cautioned by my primary care physician who has a DO ( osteopathic medical degree).
I’ve had a CT in Fall of 2019 indicating a couple of bulging discs. Spinal stenosis, s curve scoliosis. I’ve tried chiropractic treatments as well as acupuncture, acupressure and meditate several times a day. I’ve been cautioned by my primary care physician who has a DO ( osteopathic medical degree).
Downinil
in
Pain Concern
3 months ago
mid-year covid vaccine
the CDC has recommended we immuno-suppressed get a second covid vaccine this year. i am getting mine tomorrow, six months after the 2023-24 first dose. What has your experience been with a second shot in a year? I have normally only gotten one but with this advisory, I decided to do. Your thoughts
the CDC has recommended we immuno-suppressed get a second covid vaccine this year. i am getting mine tomorrow, six months after the 2023-24 first dose. What has your experience been with a second shot in a year? I have normally only gotten one but with this advisory, I decided to do. Your thoughts
ElMaga
in
CLL Support
2 months ago
Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December. It's a community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 350+ members since starting last December. It's a community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like
TiredTavern
in
Myalgic Encephalomyelitis Community
2 months ago
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid?
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid? Answered by Michelle Kilmer Moser https://youtu.be/HldwdGvCPwA
Should you take Low Dose Naltrexone (LDN) more than once a day for long Covid? Answered by Michelle Kilmer Moser https://youtu.be/HldwdGvCPwA
Shewulf
Administrator
in
LDN Research Trust
2 months ago
COVID
I've had COVID for a few days so have not been in touch. Thank G-D I am not throwing up. Calling my Dr. Monday. I hope everyone is doing well. Leslie
I've had COVID for a few days so have not been in touch. Thank G-D I am not throwing up. Calling my Dr. Monday. I hope everyone is doing well. Leslie
lbenmaor
in
My MSAA Community
2 months ago
New medication for boosting immunity against covid19
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Gardner-NY
in
Kidney Transplant
2 months ago
starting again!
hello, I was running around 10 miles in my mid fifties following post surgical PE at 50. Covid in 2022 set off severe flare of Ulcerative Colitis (had since 25) and PE. Spent a year recovering started couch to 5k in January having built up fitness walking and cycling. Doing well then got knocked back
hello, I was running around 10 miles in my mid fifties following post surgical PE at 50. Covid in 2022 set off severe flare of Ulcerative Colitis (had since 25) and PE. Spent a year recovering started couch to 5k in January having built up fitness walking and cycling. Doing well then got knocked back
Aclotintrainers
in
Anticoagulation Support
2 months ago
Tens machine for intermittent claudication
Has any one used a Tens machine for intermittent claudication?
Has any one used a Tens machine for intermittent claudication?
Doggie123-UK
in
Pain Concern
2 months ago
Lurgy again!
I had a trip to London on Tuesday to work on a show and that was pretty tiring. I'd run on Monday, hoping for 30 minutes, but surrendering at 23. So the 30 minute run was Wednesday ... but no, just too tired. Thursday? Nah. So today, for sure. I got up early and put my running gear on, did two lots of
I had a trip to London on Tuesday to work on a show and that was pretty tiring. I'd run on Monday, hoping for 30 minutes, but surrendering at 23. So the 30 minute run was Wednesday ... but no, just too tired. Thursday? Nah. So today, for sure. I got up early and put my running gear on, did two lots of
Gthants
in
Bridge to 10K
2 months ago
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