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Compression boots w/heat
Hello, So far the only the only things I have found to help my severe RLS is 15 mgs of methodone w/400 mgs of magnesium (long term fix about 24 hrs), hot baths with epsom salt (short term fix, maybe 30 mins.) Being how I do NOT want to be on methodone for ever. I am looking for other solutions.
Hello, So far the only the only things I have found to help my severe RLS is 15 mgs of methodone w/400 mgs of magnesium (long term fix about 24 hrs), hot baths with epsom salt (short term fix, maybe 30 mins.) Being how I do NOT want to be on methodone for ever. I am looking for other solutions.
Anguished
in
Restless Legs Syndrome
2 years ago
Male pudendal nerve décompression surgery
I am going to Nantes in a few months to have a diagnostic
nerve
block
and if positive will decide upon surgery. I have seen all the stats on the Internet but have yet to speak to anyone that has had this procedure- it would be great to hear from a real live person - hopefully you are out there.
I am going to Nantes in a few months to have a diagnostic
nerve
block
and if positive will decide upon surgery. I have seen all the stats on the Internet but have yet to speak to anyone that has had this procedure- it would be great to hear from a real live person - hopefully you are out there.
Humming
in
Pelvic Pain Support Network
2 years ago
Tetanus shot?? Any interactions with Imbruvica?
My husband got a tetanus shot because he was cut with something rusty and hadn't had one in at least 10 years. I haven't had one either, but if I do get cut, or otherwise need one, am I able to get it without a reaction because of CLL or Imbruvica???? Googled it but I didn't get any good results.
My husband got a tetanus shot because he was cut with something rusty and hadn't had one in at least 10 years. I haven't had one either, but if I do get cut, or otherwise need one, am I able to get it without a reaction because of CLL or Imbruvica???? Googled it but I didn't get any good results.
DawnRedwood
in
CLL Support
2 years ago
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update on the ecg I posted 2 weeks ago!
so was at cardiologist today for my 3 month post ablation follow up for AF. He’s thinking there is a good chance the AF has gone. I showed him the ecg traces from my Apple Watch which some of you had suggested bigeminy PVCs and that’s exactly what they are. He has me on a 24 hour monitor just now to
so was at cardiologist today for my 3 month post ablation follow up for AF. He’s thinking there is a good chance the AF has gone. I showed him the ecg traces from my Apple Watch which some of you had suggested bigeminy PVCs and that’s exactly what they are. He has me on a 24 hour monitor just now to
Bailey2004
in
Atrial Fibrillation Support
2 years ago
Have a good Laugh
Spoke to my pharmacists today,asked about Shingles vaccine, she didn't know at 70 we got a shingles vaccine, was saying I needed the Shingrix and it may have to order it,was like speaking to a 4year old BLANK , She said it was a school day every day,she obviously doesn't TV either. Lol
Spoke to my pharmacists today,asked about Shingles vaccine, she didn't know at 70 we got a shingles vaccine, was saying I needed the Shingrix and it may have to order it,was like speaking to a 4year old BLANK , She said it was a school day every day,she obviously doesn't TV either. Lol
Harrywogan
in
PMRGCAuk
2 years ago
burning pain constant bad deep
it’s period weak and my gosh the pain has taken me out not only my full abdomen and my back but tingling and numb legs vomiting and just overall fatigue. The pain feels like a hot blade is being stabbed into my abdomen and is really VERY deep. I’ve had such a stressful week which isn’t making it better
it’s period weak and my gosh the pain has taken me out not only my full abdomen and my back but tingling and numb legs vomiting and just overall fatigue. The pain feels like a hot blade is being stabbed into my abdomen and is really VERY deep. I’ve had such a stressful week which isn’t making it better
Littlebug77
in
Endometriosis UK
2 years ago
Bewildered
I’ve had SUNCT headache syndrome for a few years which I was having
nerve
block
in my left eye and back of my head which are brutal on their own. I have tinnitus in left ear with deafness in same side. But now a smell of cigarette smoke when nobody around me smoke it’s quiet annoying.
I’ve had SUNCT headache syndrome for a few years which I was having
nerve
block
in my left eye and back of my head which are brutal on their own. I have tinnitus in left ear with deafness in same side. But now a smell of cigarette smoke when nobody around me smoke it’s quiet annoying.
Guardsman68
in
Ataxia UK
2 years ago
Angiogram-who is to blame?
I was due to have an angiogram last Thursday but because I hadn't paused Apixaban for 3 days before I couldn't have it. The consultant who was to have conducted the procedure met me and simply said "these things happen" but we then had one of the most disagreeable consultations I have ever had afterwards
I was due to have an angiogram last Thursday but because I hadn't paused Apixaban for 3 days before I couldn't have it. The consultant who was to have conducted the procedure met me and simply said "these things happen" but we then had one of the most disagreeable consultations I have ever had afterwards
Hidden
in
AF Association
2 years ago
TENS machine not working
hey everyone! I’ve been using a TENS machine for a while now, mainly on my lower back as it gets really painful. Today, it’s not working as well on my right side (which is worse for pain). The machine isn’t broken, I’ve changed the batteries, new pads etc. I had it on level 20 and I could only feel
hey everyone! I’ve been using a TENS machine for a while now, mainly on my lower back as it gets really painful. Today, it’s not working as well on my right side (which is worse for pain). The machine isn’t broken, I’ve changed the batteries, new pads etc. I had it on level 20 and I could only feel
Sardee
in
Endometriosis UK
2 years ago
I would like to hear your experience of pelvic congestion syndrome
Dear Team, I have been recently diagnosed with PCS. I have been suffering from pelvic pain for a few years now. I have adenomyosis which appears to be controlled well with the mirena coil. In October 21 I was admitted because I was in so much pain in my lower right abdomen and again in May 22.
Dear Team, I have been recently diagnosed with PCS. I have been suffering from pelvic pain for a few years now. I have adenomyosis which appears to be controlled well with the mirena coil. In October 21 I was admitted because I was in so much pain in my lower right abdomen and again in May 22.
Tmacca
in
Pelvic Pain Support Network
2 years ago
Should I have a catheter ablation?
Hi everyone I follow this group everyday and you are all so helpful. But i need some advice now. I was diagnosed with PAF February last year after trying to catch it for 2 years (long story). I take 1.25 Bisoporol daily with Apixaban. My PAF has got worse and i now have episodes everyday with heart
Hi everyone I follow this group everyday and you are all so helpful. But i need some advice now. I was diagnosed with PAF February last year after trying to catch it for 2 years (long story). I take 1.25 Bisoporol daily with Apixaban. My PAF has got worse and i now have episodes everyday with heart
Youngest
in
AF Association
2 years ago
Before seeing an electrophysiologist
I’ve got an appointment beginning of august to see an electrophysiologist for broad complex tachycardia, SVT, PAF. this is all after muscle damage from heart attack. The letter says I’ll have 2 hours of tests before seeing any doctor. Anyone any ideas what these tests might be? Besides the obvious ECG
I’ve got an appointment beginning of august to see an electrophysiologist for broad complex tachycardia, SVT, PAF. this is all after muscle damage from heart attack. The letter says I’ll have 2 hours of tests before seeing any doctor. Anyone any ideas what these tests might be? Besides the obvious ECG
Ewloe
in
Arrhythmia Alliance
2 years ago
Possible AF
Last Sunday I had a dreadful accident. I either slipped or tripped in the kitchen. I had a kettle full of boiling water in my hand at the time. The result was that I badly scalded my leg and was taken by ambulance to my nearest A&E hospital which is 20 plus miles away. Whilst enroute the paramedics did
Last Sunday I had a dreadful accident. I either slipped or tripped in the kitchen. I had a kettle full of boiling water in my hand at the time. The result was that I badly scalded my leg and was taken by ambulance to my nearest A&E hospital which is 20 plus miles away. Whilst enroute the paramedics did
kitchengardener2
in
AF Association
2 years ago
Some advice
Hello, I don't really know how to start off. Around a year ago I was diagnosed with primary dysmenorrhea. I have been suffering with pain and fatigue since I was 11 when I first got my period. I was given birth control and regularly take a series of medications to help me somewhat function during my
Hello, I don't really know how to start off. Around a year ago I was diagnosed with primary dysmenorrhea. I have been suffering with pain and fatigue since I was 11 when I first got my period. I was given birth control and regularly take a series of medications to help me somewhat function during my
thealevelstudent
in
Endometriosis UK
2 years ago
Pregabelin & Mirapex?
Oh my! I just had a telephone appointment with a sleep doctor I had seen a number of times prior to the pandemic. I was telling him about finding out about the Mayo Clinic algorithm and wanting to get off Mirapex because of augmentation. His first question was "Tell me what you mean by augmentation
Oh my! I just had a telephone appointment with a sleep doctor I had seen a number of times prior to the pandemic. I was telling him about finding out about the Mayo Clinic algorithm and wanting to get off Mirapex because of augmentation. His first question was "Tell me what you mean by augmentation
RestlessC
in
Restless Legs Syndrome
2 years ago
Shingles Vaccine
There has been a lot of advertising on Classic FM that older people with immune deficiency diseases should get the anti shingles vaccine. I asked the question a few years ago and it was stated by Prof Harrison that this was a live vaccine and was therefore dangerous to us with ET/PV especially if we
There has been a lot of advertising on Classic FM that older people with immune deficiency diseases should get the anti shingles vaccine. I asked the question a few years ago and it was stated by Prof Harrison that this was a live vaccine and was therefore dangerous to us with ET/PV especially if we
catkinspolymer
in
MPN Voice
2 years ago
Erythema Migrans
I have CLL/SLL , diagnosed in 2010. Have been taking BTK inhibitors since 2017. First Imbruvica and the last two and a half years Calquence. A small reddish spot appeared on my arm in the middle of June. It started to spread. I did not pay much attention. End of July I showed it to my oncologist who
I have CLL/SLL , diagnosed in 2010. Have been taking BTK inhibitors since 2017. First Imbruvica and the last two and a half years Calquence. A small reddish spot appeared on my arm in the middle of June. It started to spread. I did not pay much attention. End of July I showed it to my oncologist who
zsuzsiB
in
CLL Support
2 years ago
Coping with the pain
Hi Guys, Hope everyone's having a good a day as they can. Ever since my lap in July 2 2and diagnosis of endo stage 3 with cysts. The pain has been horrendous, much worse than it was before. I've repeatedly gone back to my drs to ask for pain relief or some help in anyway. Apparently they never
Hi Guys, Hope everyone's having a good a day as they can. Ever since my lap in July 2 2and diagnosis of endo stage 3 with cysts. The pain has been horrendous, much worse than it was before. I've repeatedly gone back to my drs to ask for pain relief or some help in anyway. Apparently they never
Booknerd1598
in
Endometriosis UK
2 years ago
Pain support
good morning I am new to this forum. I am undergoing bloods, x-rays etc to see why I am in constant pain, but my Dr has said Osteoarthritis in my knees and possibly fibromyalgia. I have pain in my knees for approx 8 years and the rest of the pain around 2. There are days/nights where I cry in pain.
good morning I am new to this forum. I am undergoing bloods, x-rays etc to see why I am in constant pain, but my Dr has said Osteoarthritis in my knees and possibly fibromyalgia. I have pain in my knees for approx 8 years and the rest of the pain around 2. There are days/nights where I cry in pain.
French-bear
in
Fibromyalgia Action UK
2 years ago
New cancer treatment immuno therapy combined with guadecitabine in lung, breast, prostate bowel cancer makes cancer visible to immune sys
A new cancer treatment can stop the disease advancing in patients who are resistant to immunotherapy, doctors have discovered. Immunotherapy uses the immune system to target and kill cancer cells, and can save lives when other treatment options, such as surgery, radiotherapy or chemotherapy, have failed
A new cancer treatment can stop the disease advancing in patients who are resistant to immunotherapy, doctors have discovered. Immunotherapy uses the immune system to target and kill cancer cells, and can save lives when other treatment options, such as surgery, radiotherapy or chemotherapy, have failed
George71
in
Fight Prostate Cancer
2 years ago
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