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Severe pain triggered by sitting or lying down- does anyone else experience this?
Hi all, my first post on here! I was diagnosed with stage 2 Endo after having a lap last December. The surgeon found it in the space between my womb and bladder, womb and bowel, and around my left ovary and all down my left pelvic wall. It was excision surgery and he took out everything that he could
Hi all, my first post on here! I was diagnosed with stage 2 Endo after having a lap last December. The surgeon found it in the space between my womb and bladder, womb and bowel, and around my left ovary and all down my left pelvic wall. It was excision surgery and he took out everything that he could
JoMarch15
in
Endometriosis UK
9 months ago
Advice sought on management
Hello, I am writing for some advice on managing ovarian cyst pain and PCOS. I was diagnosed with PCOS in 2016 and had a laparoscopy in 2019 where nothing was found. I was still experiencing frequent need to urinate, abdominal pressure, irregular frequent bleeding, mood swings, back ache, pain and headaches
Hello, I am writing for some advice on managing ovarian cyst pain and PCOS. I was diagnosed with PCOS in 2016 and had a laparoscopy in 2019 where nothing was found. I was still experiencing frequent need to urinate, abdominal pressure, irregular frequent bleeding, mood swings, back ache, pain and headaches
Crunchieee
in
PCOS UK (Verity)
9 months ago
is it restless leg syndrome or fibromyalgia
hi everyone, I’ve had intense pain for over 40 years in my legs when I lie down , I’ve been diagnosed with ME and then Fibromyalgia who knows what or which it is , I don’t think the specialist know themselves ! Anyway I’ve have had in the past jerks all over which would stop me from sleeping but I don
hi everyone, I’ve had intense pain for over 40 years in my legs when I lie down , I’ve been diagnosed with ME and then Fibromyalgia who knows what or which it is , I don’t think the specialist know themselves ! Anyway I’ve have had in the past jerks all over which would stop me from sleeping but I don
Hidden
in
Restless Legs Syndrome
9 months ago
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Week 6 #1 done
I was going to give myself an extra rest day after slogging my way through a very unpleasant 20 minutes at the end of week 5. The weather was so inviting yesterday morning that instead of a gentle morning of pottering around I set off to start week 6. What could be so difficult about it? After a solid
I was going to give myself an extra rest day after slogging my way through a very unpleasant 20 minutes at the end of week 5. The weather was so inviting yesterday morning that instead of a gentle morning of pottering around I set off to start week 6. What could be so difficult about it? After a solid
RiceAndPeas
in
Couch to 5K
9 months ago
Hypothyroidism and shivering
Hi. I have Graves’ disease and hyperthyroidism but a few months ago my doctor had me take 4xs my medication to prevent a flare from covid. It was only for a week but have had a few occasions where I felt uncontrollably cold even in summer. Recently my physical therapist used a TENS unit on my back with
Hi. I have Graves’ disease and hyperthyroidism but a few months ago my doctor had me take 4xs my medication to prevent a flare from covid. It was only for a week but have had a few occasions where I felt uncontrollably cold even in summer. Recently my physical therapist used a TENS unit on my back with
Beefull8
in
Thyroid UK
10 months ago
BP Home Machines
Hi, I know that home blood pressure machines are inaccurate when measuring whilst in arrhythmia, but does that just refer to the heart rate and not the actual BP? Thanks
Hi, I know that home blood pressure machines are inaccurate when measuring whilst in arrhythmia, but does that just refer to the heart rate and not the actual BP? Thanks
Hanibal
in
AF Association
1 year ago
PVC study
Just found this study on possible non-invasive treatment for PVCs. Study results do not seem to have been published yet, maybe its still in progress. I'm very interested to know the results. I notice that I often experience ectopics after drinking hot tea within minutes of ingesting. Considering the
Just found this study on possible non-invasive treatment for PVCs. Study results do not seem to have been published yet, maybe its still in progress. I'm very interested to know the results. I notice that I often experience ectopics after drinking hot tea within minutes of ingesting. Considering the
MikeThePike
in
Arrhythmia Alliance
11 months ago
pregnancy RLS
I was on medication before I was pregnant because my RL was so severe. Since being pregnant the medication wasn’t advised due to lack of research. I am approaching 32 weeks pregnant and it’s worse than ever! I can’t sleep. Iv tried iron supplements, tens machine, ice packs, magnesium cream and bath salts
I was on medication before I was pregnant because my RL was so severe. Since being pregnant the medication wasn’t advised due to lack of research. I am approaching 32 weeks pregnant and it’s worse than ever! I can’t sleep. Iv tried iron supplements, tens machine, ice packs, magnesium cream and bath salts
JNdavis
in
Restless Legs Syndrome
10 months ago
Will we be seeing you at this year's Arrhythmia Alliance Patients Day?
Will we be seeing you at this year's Arrhythmia Alliance Patients Day? Did you know that we offer an early bird discount available until 02 June? At #PatientsDay2023, you can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more
Will we be seeing you at this year's Arrhythmia Alliance Patients Day? Did you know that we offer an early bird discount available until 02 June? At #PatientsDay2023, you can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
Details around flecainide organising atrial fibrillation into an atrial tachy
Does anyone have any details around how/when this occurs and is it just a case of living with it? The nurses suggested I could try increasing flec from 50mg twice a day to 100mg, but if the flec causes the issues, I'm wondering if it would make things worse? I was put onto bisoprolol because of this
Does anyone have any details around how/when this occurs and is it just a case of living with it? The nurses suggested I could try increasing flec from 50mg twice a day to 100mg, but if the flec causes the issues, I'm wondering if it would make things worse? I was put onto bisoprolol because of this
kitenski
in
AF Association
1 year ago
Out of Remission
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
MyCLLJourney
in
CLL Support
11 months ago
anyone heard of long p wave
had my pacemaker in on Friday. Still in hospital with New med trial is bisoprolol, flecainide, amlodipine, xarelto. They say the flecainide is causing long p wave- I was taken off of flecainide in 2019 , but I thought it was for long qt wave. On this regiment of meds, no more spiking of heart
had my pacemaker in on Friday. Still in hospital with New med trial is bisoprolol, flecainide, amlodipine, xarelto. They say the flecainide is causing long p wave- I was taken off of flecainide in 2019 , but I thought it was for long qt wave. On this regiment of meds, no more spiking of heart
Tantaanna
in
AF Association
1 year ago
We are incredibly excited to see you in-person at this year’s AF Association Patients Day!
You can expect a jam-packed agenda, with a wide range of topics from anticoagulants, pacemakers, AF ablation and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers alike to hear about
You can expect a jam-packed agenda, with a wide range of topics from anticoagulants, pacemakers, AF ablation and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers alike to hear about
Hidden
Partner
in
AF Association
1 year ago
Sudden increase in resting Heart Rate?
Bit puzzled by this, wondering if anyone had any clever ideas? I've tried to ring the local arrhythmia nurses but not got through yet, emailed them yesterday but no reply so far. I'm on 1x1.25mg biso and 1x50 flec twice daily which appears to have been working Ok.
Saturday I did a local park run
Bit puzzled by this, wondering if anyone had any clever ideas? I've tried to ring the local arrhythmia nurses but not got through yet, emailed them yesterday but no reply so far. I'm on 1x1.25mg biso and 1x50 flec twice daily which appears to have been working Ok.
Saturday I did a local park run
kitenski
in
AF Association
1 year ago
We are incredibly excited to see you in-person at this year’s Arrhythmia Alliance Patients Day!
You can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers
You can expect a jam-packed agenda, with a wide range of topics such as SVT, ICDs, Pacemakers, Defibrillators, lifestyle changes and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
TantaAnna update post sixth ablation
Going to have a pacemaker implanted this Friday! My journey continues, seeking QOL to improve, not good for over four months. Had six ablation (for atrial tachycardia) with six spots ablated by Texas Dr. I still have fluctuations in heart rate changing minute to minute almost., sitting still. I can’
Going to have a pacemaker implanted this Friday! My journey continues, seeking QOL to improve, not good for over four months. Had six ablation (for atrial tachycardia) with six spots ablated by Texas Dr. I still have fluctuations in heart rate changing minute to minute almost., sitting still. I can’
Tantaanna
in
AF Association
1 year ago
Can Anyone Help?
I’m currently abroad and have ‘spanish tummy’. Anyone know of any reason I can’t take Imodium or Dioralyte with Flecainide/Bisoprolol or Apixaban?
I’m currently abroad and have ‘spanish tummy’. Anyone know of any reason I can’t take Imodium or Dioralyte with Flecainide/Bisoprolol or Apixaban?
SilverliningsForNow
in
AF Association
1 year ago
Lyme Disease
Hello, I hope everyone is feeling as well as possible. Can I ask about links between Lyme Disease and RA? What is actually known? My daughter was talking about ticks the other day (we are both walkers) when I said I had had (in my late teens) a bullseye mark from a tick on my leg, she said ‘well that
Hello, I hope everyone is feeling as well as possible. Can I ask about links between Lyme Disease and RA? What is actually known? My daughter was talking about ticks the other day (we are both walkers) when I said I had had (in my late teens) a bullseye mark from a tick on my leg, she said ‘well that
Lyndy
in
NRAS
1 year ago
shingles vaccine
no you can't have the shingles as it is a live vaccine. You don't get offered the shingles vaccine until you are 70
no you can't have the shingles as it is a live vaccine. You don't get offered the shingles vaccine until you are 70
bunnycaramel
in
NRAS
1 year ago
Shingles
I had shingles 7 years agoi am 69 and left me with the most terrible pain neurphatic pain is the worst i think no meds have helped me.i have RA lung fibrosis had cancer sjorgrens i think i canr expect more patologies.i recomend people to have the shingix vaccine because this pain is Agony!!
I had shingles 7 years agoi am 69 and left me with the most terrible pain neurphatic pain is the worst i think no meds have helped me.i have RA lung fibrosis had cancer sjorgrens i think i canr expect more patologies.i recomend people to have the shingix vaccine because this pain is Agony!!
Al1954
in
NRAS
1 year ago
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