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PMR and chronic fatigue syndrome- is there a link?
Hi everyone, I haven’t posted before but read all posts and comments daily and find the information very helpful Here’s my story…sorry if it’s too long… - PMR started in February 2023 - diagnosed PMR April 2023 after a week in hospital with a specialist and put on 25 mg of prednisone - appointment
Hi everyone, I haven’t posted before but read all posts and comments daily and find the information very helpful Here’s my story…sorry if it’s too long… - PMR started in February 2023 - diagnosed PMR April 2023 after a week in hospital with a specialist and put on 25 mg of prednisone - appointment
MegfromOz
in
PMRGCAuk
9 months ago
Should I increase my Pred dose?
Hi! I was diagnosed with PMR in October 2022 and started on 15mg of Prednisolone for 4 weeks. I reduced to 12.5mg and stayed there until February then reduced to 10 mg until mid-March. Since then, I was reducing by 0.5 every couple of weeks. All felt well until I started to feel pain on waking in my
Hi! I was diagnosed with PMR in October 2022 and started on 15mg of Prednisolone for 4 weeks. I reduced to 12.5mg and stayed there until February then reduced to 10 mg until mid-March. Since then, I was reducing by 0.5 every couple of weeks. All felt well until I started to feel pain on waking in my
AgMuirhead
in
PMRGCAuk
11 months ago
Feeling unwell after reducing Prednisolone from 10 to 9mg
I was diagnosed with PMR in May and commenced 10mg Predisolone. After 6 days I felt amazing. I reduced this to 9 mg after 4 weeks as instructed but after 3days the pain was so intense I couldn’t cope. My rheumatologist advised going back to 10mg which I have done. After 3 days the pain is now controlled
I was diagnosed with PMR in May and commenced 10mg Predisolone. After 6 days I felt amazing. I reduced this to 9 mg after 4 weeks as instructed but after 3days the pain was so intense I couldn’t cope. My rheumatologist advised going back to 10mg which I have done. After 3 days the pain is now controlled
Hidden
in
PMRGCAuk
11 months ago
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Does or Has Anyone heard or read that PCA can Morp into Neuroendocrine Cancer while on Lupron or Orgovyx, Nubeqa or any other medication?
I’m on Firmagon every 28 days, Zytiga, ( Abiraterone) and Prednisone since 07/2022. I have concerns if Anyone had their PCA Morp into Neuroendocrine Cancer or Small Cell Carcinoma while on Lupron or Orgovyx, Nubeqa etc, or any other medication prescribed.
I’m on Firmagon every 28 days, Zytiga, ( Abiraterone) and Prednisone since 07/2022. I have concerns if Anyone had their PCA Morp into Neuroendocrine Cancer or Small Cell Carcinoma while on Lupron or Orgovyx, Nubeqa etc, or any other medication prescribed.
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
still in pain.
Hi I am still supplementing my Prednisolone with Brufen and paracetamol. Pain in right jaw and head continues. I am so tired of being in pain. Next appointment with Rheumatologist is July 24. Spoke to my GP who is reluctant to change anything. On 40mg of Prednisolone and I am to reduce it to 30mg tomorrow
Hi I am still supplementing my Prednisolone with Brufen and paracetamol. Pain in right jaw and head continues. I am so tired of being in pain. Next appointment with Rheumatologist is July 24. Spoke to my GP who is reluctant to change anything. On 40mg of Prednisolone and I am to reduce it to 30mg tomorrow
AineB2020
in
PMRGCAuk
11 months ago
Severe Itching
Thank you for all your kind responses. So after 2 days on prednisone and hydroxyzine, the itch is lessening. Herb's oncologist thinks this is a side effect of the Keytruda treatments for cancer that Herb started monthly this year. So now we gave to decide whether to discontinue the treatments or face
Thank you for all your kind responses. So after 2 days on prednisone and hydroxyzine, the itch is lessening. Herb's oncologist thinks this is a side effect of the Keytruda treatments for cancer that Herb started monthly this year. So now we gave to decide whether to discontinue the treatments or face
Trower
in
Kidney Disease
9 months ago
STILL ON THE BED...MOSTLY..10TH WEEK
As some are aware, my back issues have been ongoing, but yesterday morning I woke with what feels like a cracked rib. Left side, bottom rib, tenderest spot being about 3 inches to left of the clavicle. Extremely painful. This rib was broken many years ago. Could also be as spasmed muscle, as it reaches
As some are aware, my back issues have been ongoing, but yesterday morning I woke with what feels like a cracked rib. Left side, bottom rib, tenderest spot being about 3 inches to left of the clavicle. Extremely painful. This rib was broken many years ago. Could also be as spasmed muscle, as it reaches
Missus835
in
PMRGCAuk
9 months ago
Scalp pain
I am getting so frustrated. I have now seen 3 primary care doctors and one rheumatologist. I've had possible diagnoses of either PMR or fibromyalgia None of the 4 can tell me why I have scalp pain, pink scalp and very sore, itchy scalp. None can tell me why I have constant hot flashes. I can't take
I am getting so frustrated. I have now seen 3 primary care doctors and one rheumatologist. I've had possible diagnoses of either PMR or fibromyalgia None of the 4 can tell me why I have scalp pain, pink scalp and very sore, itchy scalp. None can tell me why I have constant hot flashes. I can't take
Dazy2008
in
Fibromyalgia Action UK
9 months ago
Not fair!
I woke up this morning with crushing fatigue and mind-boggling pain. It took me a little bit before I realized that my PMR is back. I put a call into my rheumatologist for a prescription for 20 mg prednisone. Can anyone tell me about how long it took for the pain to subside after starting prednisone.
I woke up this morning with crushing fatigue and mind-boggling pain. It took me a little bit before I realized that my PMR is back. I put a call into my rheumatologist for a prescription for 20 mg prednisone. Can anyone tell me about how long it took for the pain to subside after starting prednisone.
Amkoffee
in
PMRGCAuk
9 months ago
Progress on dental implant
Good morning everyone I had the implant yesterday, took an extra 2 milligrams of Prednisolone to deal with the stress of it all. Told the Dentist about my additional challenges with the AF and he was singularly unfazed. The appointment was for an hour and a half so I was delighted when he told me
Good morning everyone I had the implant yesterday, took an extra 2 milligrams of Prednisolone to deal with the stress of it all. Told the Dentist about my additional challenges with the AF and he was singularly unfazed. The appointment was for an hour and a half so I was delighted when he told me
EdithWales
in
PMRGCAuk
11 months ago
Severe itching
We went to ER today because rash and itching are escalating. They gave him a cortisone shot and a benedryl shot. So far, it has not made a difference. They gave him script for prednisone and hydroxyzine. We have appt to see oncologist tomorrow. Something has to give. He is getting no sleep.
We went to ER today because rash and itching are escalating. They gave him a cortisone shot and a benedryl shot. So far, it has not made a difference. They gave him script for prednisone and hydroxyzine. We have appt to see oncologist tomorrow. Something has to give. He is getting no sleep.
Trower
in
Kidney Disease
9 months ago
good morning
I am currently being treated for latent TB with Rifampin and on prednisone 6mg. I was doing so so well before this new med and it seems rifampin decreases the effects of prednisone which I’ve noticed so much lately! Ugh! I feel as if I’m back to square 1 with the PMR. Is anyone aware of how much I
I am currently being treated for latent TB with Rifampin and on prednisone 6mg. I was doing so so well before this new med and it seems rifampin decreases the effects of prednisone which I’ve noticed so much lately! Ugh! I feel as if I’m back to square 1 with the PMR. Is anyone aware of how much I
Curry_girl
in
PMRGCAuk
9 months ago
Muscle or arthritis pain right leg?
I've been on prednisolone since diagnosis of GCA in Oct 2022. Just reduced pred from 6mg to 5mg reducing by 1mg per month. All been fine but am now getting pain in my calf and right side of knee and middle/upper thigh. Sometimes get severe piercing pain (usually middle of night). No other symptoms
I've been on prednisolone since diagnosis of GCA in Oct 2022. Just reduced pred from 6mg to 5mg reducing by 1mg per month. All been fine but am now getting pain in my calf and right side of knee and middle/upper thigh. Sometimes get severe piercing pain (usually middle of night). No other symptoms
Galore
in
PMRGCAuk
11 months ago
Do I have PMR? This is getting ridiculous.
Hi everyone, None of my doctors can give me a definitive diagnosis. I have two rheumatologists and a GP. One of my rheumys is at the Mayo clinic. My diagnosis has changed from myositis to PMR to an "mRNA vaccine-induced myalgia" and then back to myositis, which was ruled out by an MRI. Then it was
Hi everyone, None of my doctors can give me a definitive diagnosis. I have two rheumatologists and a GP. One of my rheumys is at the Mayo clinic. My diagnosis has changed from myositis to PMR to an "mRNA vaccine-induced myalgia" and then back to myositis, which was ruled out by an MRI. Then it was
sferios
in
PMRGCAuk
9 months ago
New job
Good morning fellow Lupies! I was hoping for some opinions please. I recently accepted a new 12 week temp job (with the possibility to go perm later) and was due to start tomorrow. However, I started feeling unwell yesterday and woke up feeling worse and with a temperature and tested positive for Covid
Good morning fellow Lupies! I was hoping for some opinions please. I recently accepted a new 12 week temp job (with the possibility to go perm later) and was due to start tomorrow. However, I started feeling unwell yesterday and woke up feeling worse and with a temperature and tested positive for Covid
BookishVibes
in
LUPUS UK
11 months ago
PMR Update
Visited yet another Rheumatologist this past week. The last Rheumatologist wanted me off the prednisone without taper to see how bad I can get so he can order yet another PET scan. Needless to say, I went to get a second opinion. Yes, this Rheumatologist stated I was to young to have PMR. However,
Visited yet another Rheumatologist this past week. The last Rheumatologist wanted me off the prednisone without taper to see how bad I can get so he can order yet another PET scan. Needless to say, I went to get a second opinion. Yes, this Rheumatologist stated I was to young to have PMR. However,
SMH4CRNA
in
PMRGCAuk
9 months ago
Timing of taking prednisolone
I do a yoga class on Mondays and because it starts at 9.30 and I have been taking pred with my breakfast around 8.00, I'm still stiff in my neck and hips. So, having read your advice here about the inflammation starting up in the wee hours, I decided to take 5mg of the 6.5 I take when I woke for the
I do a yoga class on Mondays and because it starts at 9.30 and I have been taking pred with my breakfast around 8.00, I'm still stiff in my neck and hips. So, having read your advice here about the inflammation starting up in the wee hours, I decided to take 5mg of the 6.5 I take when I woke for the
Smithie49
in
PMRGCAuk
11 months ago
Prednisolone and high blood pressure
Hi Everyone I thought I would let you good people know my recent success story. I have been taking Prednisolone since Approx Nov 2021. In about June 2022 I was diagnosed with very high blood pressure and put on Amlodipine. I was on 6mg of Prednisolone at th time.This was changed to Lercanidipine earlier
Hi Everyone I thought I would let you good people know my recent success story. I have been taking Prednisolone since Approx Nov 2021. In about June 2022 I was diagnosed with very high blood pressure and put on Amlodipine. I was on 6mg of Prednisolone at th time.This was changed to Lercanidipine earlier
MrsPractical
in
PMRGCAuk
11 months ago
Inadvertent taper of prednisolone
I inadvertently took 5mg instead of 10mg prenisolone for 2 days( before which everything was fine) and all my inflammation symptoms of my uveitis came back(haziness etc). . Now I'm back on 10mg . Any idea how long it would take for these symptoms to resolve itself?
I inadvertently took 5mg instead of 10mg prenisolone for 2 days( before which everything was fine) and all my inflammation symptoms of my uveitis came back(haziness etc). . Now I'm back on 10mg . Any idea how long it would take for these symptoms to resolve itself?
Udupik
in
Vasculitis UK
11 months ago
chemo
I was diagnosed last fall with limited GPA (in my ears). Was on methotrexate and low dose prednisone until a few weeks ago. Diagnosed with breast cancer in may so taken off the methotrexate when I started chemo last week. One of my chemo drugs is cytoxan. My question is, has anyone else had this
I was diagnosed last fall with limited GPA (in my ears). Was on methotrexate and low dose prednisone until a few weeks ago. Diagnosed with breast cancer in may so taken off the methotrexate when I started chemo last week. One of my chemo drugs is cytoxan. My question is, has anyone else had this
BellaSarge
in
Vasculitis UK
9 months ago
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