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BRONCHIECTASIS….PLUS Allergic to medical face mask…any non polypropylene/TPE ones available?
Hi I’m having a nightmare with my bronchiectasis, I’ve had numerous exacerbations this year, use my rescue pack and prednisone when needed…cant remember being well in all honesty. I had HIB in April and given Levofloxacin as Doxycycline won’t shift my HIB. Think I had HIB in 2015, 2016, 2018 and 2023
Hi I’m having a nightmare with my bronchiectasis, I’ve had numerous exacerbations this year, use my rescue pack and prednisone when needed…cant remember being well in all honesty. I had HIB in April and given Levofloxacin as Doxycycline won’t shift my HIB. Think I had HIB in 2015, 2016, 2018 and 2023
Pennylap
in
Lung Conditions Community Forum
9 months ago
HCG level blip?
Hello I’m wondering if anyone can ease my anxiety at all. My HCG levels have been as follows: 12dp3dt- 580 13dp3dt - 847 15dp3dt- 1761 18dp3dt - 5463 20dp3t - 9075 My clinic have said they’re generally looking good but I didn’t double between 18dpt and 20dpt and so they’ve put me back on a steroid
Hello I’m wondering if anyone can ease my anxiety at all. My HCG levels have been as follows: 12dp3dt- 580 13dp3dt - 847 15dp3dt- 1761 18dp3dt - 5463 20dp3t - 9075 My clinic have said they’re generally looking good but I didn’t double between 18dpt and 20dpt and so they’ve put me back on a steroid
Siothew12
in
Fertility Network UK
9 months ago
Recent carpal tunnel, trochanter bursitis, and maybe shoulder bursitis
I've had PMR/GCA for 5 years, and I'm currently at 3 mg prednisone. I haven't had any PMR/GCA symptoms for over a year (one PMR flare in 2022 and one GCA flare in 2020). In May I developed carpal tunnel in both hands/wrists, then in July trochanter bursitis and shoulder pain/tenderness that I think
I've had PMR/GCA for 5 years, and I'm currently at 3 mg prednisone. I haven't had any PMR/GCA symptoms for over a year (one PMR flare in 2022 and one GCA flare in 2020). In May I developed carpal tunnel in both hands/wrists, then in July trochanter bursitis and shoulder pain/tenderness that I think
Viola1
in
PMRGCAuk
9 months ago
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Is weight an influence on prednisolone daily dose?
I am 21 stone and have been on 15mg daily around 11am since end of April. I experience some pain twinges from mid evening. I reduce to 12.5 this coming Saturday and have a tel consultation with my doctor next week. At my weight, surely someone half my weight would have a much higher concentration of
I am 21 stone and have been on 15mg daily around 11am since end of April. I experience some pain twinges from mid evening. I reduce to 12.5 this coming Saturday and have a tel consultation with my doctor next week. At my weight, surely someone half my weight would have a much higher concentration of
Thiago1396
in
PMRGCAuk
11 months ago
Alternating between 3 and 4 mg pred now
I was at 5 for a few weeks, now doing another drop. Not noticing any unusual additional pains. Doing 3 and 4 for a week and things are good. Still have the trigger finger issue of both middle fingers and they have a neuropathy, oddly numb and sometimes painful I have to put up with. I was wondering
I was at 5 for a few weeks, now doing another drop. Not noticing any unusual additional pains. Doing 3 and 4 for a week and things are good. Still have the trigger finger issue of both middle fingers and they have a neuropathy, oddly numb and sometimes painful I have to put up with. I was wondering
sdowney717
in
PMRGCAuk
9 months ago
doubling Pred dose 60 minutes prior to Dental surgery?
Hello all, I have learnt so much from reading the posts on this forum on a daily basis - 6 months from a PMR diagnosis I am beginning to get a grip on the endless complications. I would like to thank you for your patience and commitment to repeatedly answering questions from confused, anxious patients
Hello all, I have learnt so much from reading the posts on this forum on a daily basis - 6 months from a PMR diagnosis I am beginning to get a grip on the endless complications. I would like to thank you for your patience and commitment to repeatedly answering questions from confused, anxious patients
mullochs
in
PMRGCAuk
11 months ago
Supplements and self-care
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
StayinAlive8
in
Advanced Prostate Cancer
9 months ago
GCA relapse?
I finally tapered off steroids April 2023 after 18 months. Over the last few weeks my headaches have returned daily- bilateral temples. My head just feels woozy and ‘full’ . Hard to describe. Scalp ‘burns’ but is not sensitive to touch. So fatigued I just can’t do much of anything. Went to rheum and
I finally tapered off steroids April 2023 after 18 months. Over the last few weeks my headaches have returned daily- bilateral temples. My head just feels woozy and ‘full’ . Hard to describe. Scalp ‘burns’ but is not sensitive to touch. So fatigued I just can’t do much of anything. Went to rheum and
Jsaoughs
in
PMRGCAuk
9 months ago
hydroxychloroquine
I had been weaning off Prednisolone and my RA symptoms started to return. Consultant had hoped the methotrexate on its own (just with ibuprofen/naproxen/paracetamol as needed) would be enough but it isn’t. I started 2x200mg daily hydroxychloroquine this week. I have been told it can take 6 weeks to
I had been weaning off Prednisolone and my RA symptoms started to return. Consultant had hoped the methotrexate on its own (just with ibuprofen/naproxen/paracetamol as needed) would be enough but it isn’t. I started 2x200mg daily hydroxychloroquine this week. I have been told it can take 6 weeks to
AW600
in
NRAS
11 months ago
steroid card
Hiya. I have been switched to Fostair 200/6 2 puffs twice daily. I’ve also had 3 courses of prednisolone in the past year. My doctor said I needed to get a steroid card from the pharmacist, which I duly did but when I had my asthma review the nurse said it wasn’t necessary. Does anyone know the rules
Hiya. I have been switched to Fostair 200/6 2 puffs twice daily. I’ve also had 3 courses of prednisolone in the past year. My doctor said I needed to get a steroid card from the pharmacist, which I duly did but when I had my asthma review the nurse said it wasn’t necessary. Does anyone know the rules
Gymbearo
in
Asthma Community Forum
11 months ago
More drugs!
Some of you will know we moved from Cornwall to the Bristol area which obviously meant registering with a new doctors surgery. I’ve been about three times and you can never see the same doctor even though they say make an appointment to see me after your blood test. Anyway the last time I went was partly
Some of you will know we moved from Cornwall to the Bristol area which obviously meant registering with a new doctors surgery. I’ve been about three times and you can never see the same doctor even though they say make an appointment to see me after your blood test. Anyway the last time I went was partly
Griggser
in
PMRGCAuk
11 months ago
tapering issues
Recently tapered down from 5.5 to 5 of prednisone, seemed to go alright but about 3 weeks on 5 mg I started to see low moods,upset stomach,severe tiredness,lightheaded,and some aches and pains in muscles and joints.Also been waking up at 5 am and unable to sleep. At the same time as my reduction I have
Recently tapered down from 5.5 to 5 of prednisone, seemed to go alright but about 3 weeks on 5 mg I started to see low moods,upset stomach,severe tiredness,lightheaded,and some aches and pains in muscles and joints.Also been waking up at 5 am and unable to sleep. At the same time as my reduction I have
Amilee
in
PMRGCAuk
9 months ago
Pain till afternoon
I’ve been on Prednisone for five weeks, the last two weeks 15 mg. I’m probably at 70 % better. But still have the same symptoms, just less? When I take my dose in am, along with Tylenol, it’s until about 2 pm until I feel relief. Then I go to bed wake up around 3-4 then my legs start up again. Like
I’ve been on Prednisone for five weeks, the last two weeks 15 mg. I’m probably at 70 % better. But still have the same symptoms, just less? When I take my dose in am, along with Tylenol, it’s until about 2 pm until I feel relief. Then I go to bed wake up around 3-4 then my legs start up again. Like
3dogsheidi
in
PMRGCAuk
9 months ago
BP with abiraterone + prednisone, eplerenone, dexamethasone
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
Gearhead
in
Advanced Prostate Cancer
9 months ago
? Rapid taper
I have just got off the phone with my Rheumatology Specialist Nurse who has advised me to start reducing my prednisolone by I mg a week. I am currently taking 8mg pred and commenced Methotrexate 15mg a week on 4 May. My journey with GCA started March 2022 taking 40mg pred. I've had 2 flares, one
I have just got off the phone with my Rheumatology Specialist Nurse who has advised me to start reducing my prednisolone by I mg a week. I am currently taking 8mg pred and commenced Methotrexate 15mg a week on 4 May. My journey with GCA started March 2022 taking 40mg pred. I've had 2 flares, one
magpie990
in
PMRGCAuk
11 months ago
Can pred cause dementia-like symptoms?
Hi everyone, Something is very wrong with me. I feel like I have some kind of dementia. I work from home (mostly phone, emails and internet, nothing physical), but I can't seem to manage it anymore. My career is falling apart. Tasks that have always been easy for me now make me want to scream, and
Hi everyone, Something is very wrong with me. I feel like I have some kind of dementia. I work from home (mostly phone, emails and internet, nothing physical), but I can't seem to manage it anymore. My career is falling apart. Tasks that have always been easy for me now make me want to scream, and
sferios
in
PMRGCAuk
9 months ago
Liothyronine Trial
I saw an NHS Endocrinologist last week who has agreed to my request for a 3 month trial of Liothyronine, something I have wanted for many years. The suggestion is to drop from 75mcg levothyroxine daily to 25mcg and to take 5mcg of T3 in the morning and again at lunchtime. After nearly 20 years on Levo
I saw an NHS Endocrinologist last week who has agreed to my request for a 3 month trial of Liothyronine, something I have wanted for many years. The suggestion is to drop from 75mcg levothyroxine daily to 25mcg and to take 5mcg of T3 in the morning and again at lunchtime. After nearly 20 years on Levo
FleetRose
in
Thyroid UK
11 months ago
4 weeks of Rituximab
I just finished 4 weeks of Rituximab 750ml once a week. Diagnosed cll 2019 at 42 developed Pure red cell aplasia at the start of this year. Only side affects from Rituximab was fatigue day off infusion in the afternoon, I also take 150mg of Cyclosporine and 75mg prednisone daily. Been able to get back
I just finished 4 weeks of Rituximab 750ml once a week. Diagnosed cll 2019 at 42 developed Pure red cell aplasia at the start of this year. Only side affects from Rituximab was fatigue day off infusion in the afternoon, I also take 150mg of Cyclosporine and 75mg prednisone daily. Been able to get back
Jimmy_9
in
CLL Support
9 months ago
Steroid withdrawal
As I mentioned previously I have recently been hospitalised for 7 days. I was on Prednisolone when admitted ...they never touched me so I continued on them..and then the strength was increased to me feeling 'doolally '! So all in all I have been taking Steroids for some time and after my discharge from
As I mentioned previously I have recently been hospitalised for 7 days. I was on Prednisolone when admitted ...they never touched me so I continued on them..and then the strength was increased to me feeling 'doolally '! So all in all I have been taking Steroids for some time and after my discharge from
Headoverheels
in
Asthma Community Forum
11 months ago
Questions and Advice Needed
I’ve had PMR for a year now. Like many, it hit me overnight, striking my neck, shoulders and hips to the point where I could barely function. My inflammatory markers were within normal range, which may explain why I had extreme stiffness, but little to no pain. 10mg. of Prednisone made me feel almost
I’ve had PMR for a year now. Like many, it hit me overnight, striking my neck, shoulders and hips to the point where I could barely function. My inflammatory markers were within normal range, which may explain why I had extreme stiffness, but little to no pain. 10mg. of Prednisone made me feel almost
Lenore58
in
PMRGCAuk
9 months ago
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