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Neomycin / Prednisolone
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Rituximab and hair loss
Hello, I've just had my first two doses of Rituximab in February, and I've been noticing more hair loss when I wash my hair. Has anyone had this, and do you have any remedies? I have fine hair too. I'm on a mix of methotrexate, prednisolone and hydroxychloroquine. Many thanks!
Hello, I've just had my first two doses of Rituximab in February, and I've been noticing more hair loss when I wash my hair. Has anyone had this, and do you have any remedies? I have fine hair too. I'm on a mix of methotrexate, prednisolone and hydroxychloroquine. Many thanks!
poppies_are_red
in
LUPUS UK
7 months ago
GCA Flare~~ status and explanationsš
You are ALL just an awesome army of encouragement and support. My state of mind is rather unusual for me. As a child, if I had an upset stomach, my mother would put ginger ale in a glass and stir it with a spoon until all the bubbles and carbonation were gone. I feel like flat ginger ale. Yesterday
You are ALL just an awesome army of encouragement and support. My state of mind is rather unusual for me. As a child, if I had an upset stomach, my mother would put ginger ale in a glass and stir it with a spoon until all the bubbles and carbonation were gone. I feel like flat ginger ale. Yesterday
Grammy80
in
PMRGCAuk
1 month ago
Cortisol serum blood test results, are they normal?
Iām sorry if this information is readily available on Q and A but I have been a headless chicken since being told I had an enlarged pituitary gland three weeks ago. So I am turning to my lovely caring supportive informed friends on this forum for information I can understand. The Endocrinologist has
Iām sorry if this information is readily available on Q and A but I have been a headless chicken since being told I had an enlarged pituitary gland three weeks ago. So I am turning to my lovely caring supportive informed friends on this forum for information I can understand. The Endocrinologist has
Zebedee44
in
PMRGCAuk
7 months ago
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shoulder scan
hi. Iāve had pmr for nearly 10 years. Iāve been up and down prednisolone like a yo yo. Last year I got to my lowest dose of 3.5 mg, but then had relapse after relapse and at the end of the year was back at 10 mg. My doctor noticed I was overdue an appointment with rheumatology and I saw a new to me rheumatologist
hi. Iāve had pmr for nearly 10 years. Iāve been up and down prednisolone like a yo yo. Last year I got to my lowest dose of 3.5 mg, but then had relapse after relapse and at the end of the year was back at 10 mg. My doctor noticed I was overdue an appointment with rheumatology and I saw a new to me rheumatologist
CJ-pmr15
in
PMRGCAuk
7 months ago
ADVICE PLEASE
I'm asking here rather than my doctor because I'm embarrassed about what I've done and how ignorant I have been. Not only that but my rheumatologist gives me the utmost Trust in allowing me to determine the best prednisone dose for me. So after about a week of unrelenting horrible pain that I had been
I'm asking here rather than my doctor because I'm embarrassed about what I've done and how ignorant I have been. Not only that but my rheumatologist gives me the utmost Trust in allowing me to determine the best prednisone dose for me. So after about a week of unrelenting horrible pain that I had been
Amkoffee
in
PMRGCAuk
2 months ago
Ongoing maintenance
Hello againHaving successfully, hopefully, reached 3mg prednisone after 4 years and planning the ever so slow descent to zero, can I please ask those of you happily free of the drug if you take any supplements claiming to suppress inflammation? As a precaution?
Hello againHaving successfully, hopefully, reached 3mg prednisone after 4 years and planning the ever so slow descent to zero, can I please ask those of you happily free of the drug if you take any supplements claiming to suppress inflammation? As a precaution?
Caloo650
in
PMRGCAuk
2 months ago
How long on Prostap?
I was diagnosed in January2021 with PC. Gleeson 4+3 but PSA only ever up to 10. I have had four PSMA scans which show 8 metastases in skull, ribs, pubic bone, hip bone. These continue to grow. I have been on Aberiterone/prednisolone, plus Prostap every 3 months. I have growing levels of bone pain (
I was diagnosed in January2021 with PC. Gleeson 4+3 but PSA only ever up to 10. I have had four PSMA scans which show 8 metastases in skull, ribs, pubic bone, hip bone. These continue to grow. I have been on Aberiterone/prednisolone, plus Prostap every 3 months. I have growing levels of bone pain (
Stephen399b
in
Advanced Prostate Cancer
7 months ago
Can I take Xtandi + prednisone?
I have kidney injury and doctor prescribed the prednisone 60MG mostly related clinic trials Can I take Xtandi with prednisone 60mg ?
I have kidney injury and doctor prescribed the prednisone 60MG mostly related clinic trials Can I take Xtandi with prednisone 60mg ?
God_Loves_Me
in
Advanced Prostate Cancer
2 months ago
Sudden diabetes diagnoses
Hi I am a 62 year old male, who has been on Prednisone for two years now. I am currently on 6.5mg of Prednisone. In the last week I suddenly had the following symptoms; blurred vision, extreme thirst, increased urination, feeling very tired. My GP had me admitted to hospital on the back of high blood
Hi I am a 62 year old male, who has been on Prednisone for two years now. I am currently on 6.5mg of Prednisone. In the last week I suddenly had the following symptoms; blurred vision, extreme thirst, increased urination, feeling very tired. My GP had me admitted to hospital on the back of high blood
Ligaamisgefok
in
PMRGCAuk
2 months ago
Looking for anyone who has done Dendritic Cell Therapy in India?
hi! My dad was diagnosed with PCA in Feb 2024 and has been on doublet therapy. He has high volume bone mets with no symptoms. Currently he is on zytiga and prednisone (5mg). He got bilateral orchidectomy done in febā24. We are considering dendritic cell therapy for him to be done next month. His MO
hi! My dad was diagnosed with PCA in Feb 2024 and has been on doublet therapy. He has high volume bone mets with no symptoms. Currently he is on zytiga and prednisone (5mg). He got bilateral orchidectomy done in febā24. We are considering dendritic cell therapy for him to be done next month. His MO
Justgettingitright
in
Advanced Prostate Cancer
2 months ago
How did you know you were losing your kidney?
hi all - I posted here a few months ago freaking out about my creatinine spiking after many years of stability. Itās been months of trial and error and Iām at my wits end and would just like to get a sense from others what it was like or how it felt when your transplanted kidney started failing you.
hi all - I posted here a few months ago freaking out about my creatinine spiking after many years of stability. Itās been months of trial and error and Iām at my wits end and would just like to get a sense from others what it was like or how it felt when your transplanted kidney started failing you.
SOct91
in
Kidney Transplant
2 months ago
Prednisone for FET - any experience
Good evening āļø, Hope everyone is well. Last minute question as usual from me, as my follow up is tomorrow morning š¬. Think I like to ignore it for as long as possible. Basically I have now had 9 embryo transfers of 10 embryos (one double). I had one early miscarriage March 2021 (pre 7 weeks) and
Good evening āļø, Hope everyone is well. Last minute question as usual from me, as my follow up is tomorrow morning š¬. Think I like to ignore it for as long as possible. Basically I have now had 9 embryo transfers of 10 embryos (one double). I had one early miscarriage March 2021 (pre 7 weeks) and
Booda21
in
Fertility Network UK
2 months ago
Covid, Tapering and Actemra
Hi, I have a mild case of Covid (my 3rd bout.) I had already tapered down to 2 mg. pred. and had been feeling quite well. (I am also on Actemra, which seems to be working well, in my case.) Should I stop the Actemra while I am sick? And just hold steady with the 2 mg. prednisone? Thanks for this
Hi, I have a mild case of Covid (my 3rd bout.) I had already tapered down to 2 mg. pred. and had been feeling quite well. (I am also on Actemra, which seems to be working well, in my case.) Should I stop the Actemra while I am sick? And just hold steady with the 2 mg. prednisone? Thanks for this
Lenore58
in
PMRGCAuk
2 months ago
wife of Long term PMR sufferer
Hello. I am not the one suffering from PMR. It is my husband. He is 59 and has had PMR since the summer of 2022. He started with symptoms after having Covid and had to do on 40mg prednisolone before he felt any benefit. He works full time as a sports coach in a school so has little time to rest.
Hello. I am not the one suffering from PMR. It is my husband. He is 59 and has had PMR since the summer of 2022. He started with symptoms after having Covid and had to do on 40mg prednisolone before he felt any benefit. He works full time as a sports coach in a school so has little time to rest.
Whitesmith86
in
PMRGCAuk
7 months ago
Does GCA affect eyes in an all-or-nothing way, or are there degrees?
Hello GCA folks, I am on month 3 of prednisone (currently 15 mg), after PMR diagnosis in early June. Age 60. My question for you is: when your GCA came on, did you experience a sudden loss of vision, or did it come on gradually? And if gradual, did it affect all ranges (i.e., near, mid- and distance
Hello GCA folks, I am on month 3 of prednisone (currently 15 mg), after PMR diagnosis in early June. Age 60. My question for you is: when your GCA came on, did you experience a sudden loss of vision, or did it come on gradually? And if gradual, did it affect all ranges (i.e., near, mid- and distance
Bunchberry
in
PMRGCAuk
2 months ago
tooth extraction
Iām having a tooth out next Wednesday. Iām taking 3mg of prednisolone. Iāve been off AA for nearly a year. What is the advice for this procedure please?
Iām having a tooth out next Wednesday. Iām taking 3mg of prednisolone. Iāve been off AA for nearly a year. What is the advice for this procedure please?
AlfredRose
in
PMRGCAuk
7 months ago
Update ..pulse therapy with methylprednisolone for GCA flare
Most importantly, thank you to all of you for your support. I wouldn't be where I am without you. My intentions of an update were there yesterday, but I am here at any rate. I'm just a thankful 'Pred-mess' at the moment. After the first 1000mg on Thursday, I was just 'wired.' I sat up that whole day
Most importantly, thank you to all of you for your support. I wouldn't be where I am without you. My intentions of an update were there yesterday, but I am here at any rate. I'm just a thankful 'Pred-mess' at the moment. After the first 1000mg on Thursday, I was just 'wired.' I sat up that whole day
Grammy80
in
PMRGCAuk
2 months ago
What clinic trials have been successful?
My husband's next oncologist appointment is tomorrow. PSA is at 74. It has been a roller coaster ride since March 2017. Prostate removed with many complications in hospital. Was there for 2 weeks, which should have been 2 days. Was weak for several months after. Follow up appointment 3 months later
My husband's next oncologist appointment is tomorrow. PSA is at 74. It has been a roller coaster ride since March 2017. Prostate removed with many complications in hospital. Was there for 2 weeks, which should have been 2 days. Was weak for several months after. Follow up appointment 3 months later
Docker53
in
Advanced Prostate Cancer
2 months ago
How do You split your Pred dosage?
Hi, If you take two doses of Pred each day, please tell me how much (%) and when do you take your split dosages of Prednisone? Splitting the dose came up in my recent thread and I am looking into doing it. Thank you!
Hi, If you take two doses of Pred each day, please tell me how much (%) and when do you take your split dosages of Prednisone? Splitting the dose came up in my recent thread and I am looking into doing it. Thank you!
Kritterkid
in
PMRGCAuk
2 months ago
MTX appears to have no improvement
I am supposed to be on 10 mgs of Prednisone but had to increase to 15 mg while in flare with PMR .We are travelling on a bus tour and the early mornings are brutal. In May my Rheumy also put me on MTX which is appearing to have no effect except interrupting my enjoyment of my evening wine .Are there
I am supposed to be on 10 mgs of Prednisone but had to increase to 15 mg while in flare with PMR .We are travelling on a bus tour and the early mornings are brutal. In May my Rheumy also put me on MTX which is appearing to have no effect except interrupting my enjoyment of my evening wine .Are there
Sunny1947
in
PMRGCAuk
2 months ago
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