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Help with tapering Prednisone
I was diagnosed with PMR finally in Oct 23 after ending up in hospital unable to move. Doctors have been very dismissive and I have seen rheumatologist once and been signed off. I started on Prednisone at 12.5mg then reduced to 10 mg and have been told to reduce by 1mg per month. Is this a realistic
I was diagnosed with PMR finally in Oct 23 after ending up in hospital unable to move. Doctors have been very dismissive and I have seen rheumatologist once and been signed off. I started on Prednisone at 12.5mg then reduced to 10 mg and have been told to reduce by 1mg per month. Is this a realistic
Beans-and-Buns
in
PMRGCAuk
1 month ago
New diagnosis
Hi all, it has been a while since my last post. I was diagnosed in December in the end, with SLE and started on hydroxychloroquine and methyl prednisone. The last few months have been a bit all over the place. On the one hand, I’m so grateful not to be crazy. On the other hand, I’m angry that for so
Hi all, it has been a while since my last post. I was diagnosed in December in the end, with SLE and started on hydroxychloroquine and methyl prednisone. The last few months have been a bit all over the place. On the one hand, I’m so grateful not to be crazy. On the other hand, I’m angry that for so
Rocinante_89
in
LUPUS UK
1 month ago
Does it sound like PMR?
I have been to several specialists, but no one understands what is happening to me, their eyes always ends up swimming in their faces. After countless hours googling, I found this forum a could finally recognise things you have described here. I woke up with excruciating pain after a parathyroidectomy
I have been to several specialists, but no one understands what is happening to me, their eyes always ends up swimming in their faces. After countless hours googling, I found this forum a could finally recognise things you have described here. I woke up with excruciating pain after a parathyroidectomy
Liljeblad
in
PMRGCAuk
1 month ago
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The pain of PMR before being prescribed prednisone
I want to ask you how you dealt with the pain of PMR before being prescribed prednisone as when I look back at those incredibly painful and debilitating symptoms I had I wonder how I manged to carry on. My story was I was off on my holidays to Turkey and my knees were beginning to feel so stiff and
I want to ask you how you dealt with the pain of PMR before being prescribed prednisone as when I look back at those incredibly painful and debilitating symptoms I had I wonder how I manged to carry on. My story was I was off on my holidays to Turkey and my knees were beginning to feel so stiff and
Markandevie
in
PMRGCAuk
1 month ago
4 days in
Good morning everyone, Ive just taken my fourth dose of prednisone (20mg). Definitely feeling a bit better but still bit achey & stiff. Should I be feeling completely better already or does it take much longer? I have taken Prednisone before for PMR and it worked wonders but I can't remember how quickly
Good morning everyone, Ive just taken my fourth dose of prednisone (20mg). Definitely feeling a bit better but still bit achey & stiff. Should I be feeling completely better already or does it take much longer? I have taken Prednisone before for PMR and it worked wonders but I can't remember how quickly
scooby96
in
PMRGCAuk
1 month ago
Started reducing so updated profile
To keep my profile updated, I've added that having been on 15 mg prednisolone for the six weeks since being diagnosed with PMR, my doctor yesterday recommended reducing by 2.5. That felt a bit much, so I've opted for a 1.25 reduction to see how that feels, and I've found I'm noticeably (though not
To keep my profile updated, I've added that having been on 15 mg prednisolone for the six weeks since being diagnosed with PMR, my doctor yesterday recommended reducing by 2.5. That felt a bit much, so I've opted for a 1.25 reduction to see how that feels, and I've found I'm noticeably (though not
Sibelius5
in
PMRGCAuk
7 months ago
2Nd Biopsy in 3+ years of Bone Met
Greetings All, A question about biopsies: Upon PC-stage 4 diagnosis per discovery of pc lesions causing spinal compression in 2020, my husband had a biopsy taken during his back surgery-which showed his already metastatic pc not to be an inherited condition. He went on to radiation of the spinal
Greetings All, A question about biopsies: Upon PC-stage 4 diagnosis per discovery of pc lesions causing spinal compression in 2020, my husband had a biopsy taken during his back surgery-which showed his already metastatic pc not to be an inherited condition. He went on to radiation of the spinal
Lavender22
in
Advanced Prostate Cancer
1 month ago
Classification Criteria vs. Diagnosis Criteria
I learned something new while reading this article on PMR: https://www.cmaj.ca/content/193/46/E1770 It says "The European League Against Rheumatism (EULAR) and American College of Rheumatology (ACR) criteria can distinguish polymyalgia rheumatica from mimicking conditions." However, I then clicked
I learned something new while reading this article on PMR: https://www.cmaj.ca/content/193/46/E1770 It says "The European League Against Rheumatism (EULAR) and American College of Rheumatology (ACR) criteria can distinguish polymyalgia rheumatica from mimicking conditions." However, I then clicked
AtopicGuy
in
PMRGCAuk
1 month ago
GCA cortisol levels
I’m on 8 mg prednisone yesterday I tested my cortisol today. The result was 2.2 at 8:30 in the morning. Should I be concerned?
I’m on 8 mg prednisone yesterday I tested my cortisol today. The result was 2.2 at 8:30 in the morning. Should I be concerned?
Maddie2018
in
PMRGCAuk
1 month ago
Pain in Left Eye
Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct.) and weekly Actemra injections (about 4 months) Double vision from high prednisone has resolved as I have tapered. Occasionally I feel pain in my left eye, in the outer lower corner. It will hurt when I move my eye,
Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct.) and weekly Actemra injections (about 4 months) Double vision from high prednisone has resolved as I have tapered. Occasionally I feel pain in my left eye, in the outer lower corner. It will hurt when I move my eye,
Lenore58
in
PMRGCAuk
2 months ago
Continuing Story of CLL Journey
Greetings Everyone, I recently posted on here that I had Cll/AIHA nearly 4 years ago. It was pretty serious before I got treatment of Prednisone and Rituxan by infusion. Now my CL it appears has come out of remission. I visited my Oncologist (who is not a CLL Specialist—more a Generalist and at the
Greetings Everyone, I recently posted on here that I had Cll/AIHA nearly 4 years ago. It was pretty serious before I got treatment of Prednisone and Rituxan by infusion. Now my CL it appears has come out of remission. I visited my Oncologist (who is not a CLL Specialist—more a Generalist and at the
Dodger47
in
CLL Support
2 months ago
After 25 days back on prednisone...
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Biba5
in
PMRGCAuk
2 months ago
Fir a Friend: Tongue is red and Tender
Hi, I have a friend with GCA from another site. She was diagnosed in October 2023. Currently onn10 mg. Prednisone. She called this morning saying that the side of her tongue has a red spot that is sensitive to the touch. I don’t know much about when GCA hits the tongue. Does she need to go straight
Hi, I have a friend with GCA from another site. She was diagnosed in October 2023. Currently onn10 mg. Prednisone. She called this morning saying that the side of her tongue has a red spot that is sensitive to the touch. I don’t know much about when GCA hits the tongue. Does she need to go straight
Lenore58
in
PMRGCAuk
2 months ago
progress with tapering
Hi All, I am currently at 2.25mg prednisone and am noticing that I have a bit more energy these days. I thought it would be interesting to review for myself my prednisone dosing since I started in 2021. I have been keeping a record in Excell. Perhaps this will be encouraging to others, although I realize
Hi All, I am currently at 2.25mg prednisone and am noticing that I have a bit more energy these days. I thought it would be interesting to review for myself my prednisone dosing since I started in 2021. I have been keeping a record in Excell. Perhaps this will be encouraging to others, although I realize
spacevoyager
in
PMRGCAuk
2 months ago
Remission
I want to thank members of this forum for your insight and support over the past 2 1/2 years I have been dealing with GCA and everything that goes along with this disease. I have been off prednisone since last July, and Actemra since last October. I have not had any further GCA symptoms. I had an
I want to thank members of this forum for your insight and support over the past 2 1/2 years I have been dealing with GCA and everything that goes along with this disease. I have been off prednisone since last July, and Actemra since last October. I have not had any further GCA symptoms. I had an
Preacherball
in
PMRGCAuk
2 months ago
Any advice to get back on track please?
Hi kind and wise experts, I have completely stuffed up my GCA dosing regime and am an aching, weepy, exhausted (and clearly self indulgent!) mess😱😂 I wrote several months back asking for advice on coming off Actemra, after 2 yrs, and upping prednisone to cover it. I had been on 1.5mg pred daily
Hi kind and wise experts, I have completely stuffed up my GCA dosing regime and am an aching, weepy, exhausted (and clearly self indulgent!) mess😱😂 I wrote several months back asking for advice on coming off Actemra, after 2 yrs, and upping prednisone to cover it. I had been on 1.5mg pred daily
Happyexplorer
in
PMRGCAuk
2 months ago
Side effects of methotrexate?
I've been taking prednisone for PMR for a year--had no clinical signs of GCA, but have had persistent very high CRP levels for several months. Finally my rheumatologist sent me to a specialist a month ago for an ultrasound of my arteries and he confirmed unequivocally that I had GCA. I could see
I've been taking prednisone for PMR for a year--had no clinical signs of GCA, but have had persistent very high CRP levels for several months. Finally my rheumatologist sent me to a specialist a month ago for an ultrasound of my arteries and he confirmed unequivocally that I had GCA. I could see
Carnivoreyogi
in
PMRGCAuk
2 months ago
Prednisone alternative for Glaucoma patients
Not sure if this has been posted before. For those with Glaucoma, Prednisone may not be good for you. For steroid responders, Prednisone can increase your Intra Ocular Pressure leading to more damage to your retina fiber, losing more of your vision. It is advisable to discuss steroid use with both
Not sure if this has been posted before. For those with Glaucoma, Prednisone may not be good for you. For steroid responders, Prednisone can increase your Intra Ocular Pressure leading to more damage to your retina fiber, losing more of your vision. It is advisable to discuss steroid use with both
akaipop3ps
in
Advanced Prostate Cancer
2 months ago
PMR pain or Adrenal issue
Hello, I have not had PMR pain in over a year. I do have GCA too. I just reduced my prednisone by a half mg a few days ago. My hips and knees are bothering me today. Could this be due my reduction of prednisone and my Adrenals stating to work? Should I go with it for a few days to see if it gets better
Hello, I have not had PMR pain in over a year. I do have GCA too. I just reduced my prednisone by a half mg a few days ago. My hips and knees are bothering me today. Could this be due my reduction of prednisone and my Adrenals stating to work? Should I go with it for a few days to see if it gets better
Plains
in
PMRGCAuk
2 months ago
UPDATE on my dad. A story of hope.❤️ #advancedPC
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
YC22
in
Advanced Prostate Cancer
2 months ago
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