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PMR and Diet
My husband was recently diagnosed with suspected PMR, so his rheumatologist is treating him currently with prednisone and tapering down. Here is the question: Does anyone have any suggestions or helpful articles that may help to determine if there is a diet and/or changes in lifestyle that would help
My husband was recently diagnosed with suspected PMR, so his rheumatologist is treating him currently with prednisone and tapering down. Here is the question: Does anyone have any suggestions or helpful articles that may help to determine if there is a diet and/or changes in lifestyle that would help
Andymegv
in
PMRGCAuk
1 year ago
Cataract surgery imminent
I have cataract surgery scheduled for next Wednesday 1st February for both eyes. It is being done privately at a hospital nearby and the opthalmic surgeon is very experienced and has a very good reputation. I have GCA and am currently taking 35 mg of prednisolone daily. The surgeon knows this and does
I have cataract surgery scheduled for next Wednesday 1st February for both eyes. It is being done privately at a hospital nearby and the opthalmic surgeon is very experienced and has a very good reputation. I have GCA and am currently taking 35 mg of prednisolone daily. The surgeon knows this and does
Raga72
in
PMRGCAuk
1 year ago
cramp ,especially in my calves and feet at night
I’ve been getting severe cramp in my lower legs at night and sometimes during the day too. I take magnesium at bed time ,but it doesn’t always work. Sometimes I get it in my hands as well during the day, especially if knitting , or even writing. . Any suggestions? My current dose of prednisone is 5
I’ve been getting severe cramp in my lower legs at night and sometimes during the day too. I take magnesium at bed time ,but it doesn’t always work. Sometimes I get it in my hands as well during the day, especially if knitting , or even writing. . Any suggestions? My current dose of prednisone is 5
nissemor
in
PMRGCAuk
1 year ago
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bone pain after ADT
my husband had three years of adt plus 45 rounds of radiation. One lymph node Was involved so he was considered stage iii at dx. His psa went from 49 to >.04 In the first three months and never went up. He now has NED and will be checked every three months. Problem is, after coming off three years
my husband had three years of adt plus 45 rounds of radiation. One lymph node Was involved so he was considered stage iii at dx. His psa went from 49 to >.04 In the first three months and never went up. He now has NED and will be checked every three months. Problem is, after coming off three years
Kinggip2
in
Advanced Prostate Cancer
1 year ago
Something else!
Has anyone had breast surgery or any other kind really while still on 15mg Prednisolone. It’s making me very nervous. Been down to 6mg but back on 30mg because of GCA/ vasculitis flare. Reduced to 15mg but a bit stuck. Waiting to see Rheumatologist in 2 weeks.
Has anyone had breast surgery or any other kind really while still on 15mg Prednisolone. It’s making me very nervous. Been down to 6mg but back on 30mg because of GCA/ vasculitis flare. Reduced to 15mg but a bit stuck. Waiting to see Rheumatologist in 2 weeks.
broomfield28
in
PMRGCAuk
1 year ago
Prednisone
Can anyone tell me if Prednisone has caused your skin to thin? I now find I am bruising very easily, I just need to lean too heavy on my arms and I bruise or I am bleeding without even knowing how I got cut? I am so tired all the time, although pain is not too bad. I am taking Methotrexate 10mg,
Can anyone tell me if Prednisone has caused your skin to thin? I now find I am bruising very easily, I just need to lean too heavy on my arms and I bruise or I am bleeding without even knowing how I got cut? I am so tired all the time, although pain is not too bad. I am taking Methotrexate 10mg,
cross2
in
NRAS
1 year ago
methoject
I was diagnosed with Ankylosing spondilitis in December 2020 after previously having been diagnosed with PMR and treated with Prednisolone. I was weaned off Pred and started Methotexate in April 21. Still having flares in June last year I saw rheumatologist who changed my 15mg tablets to 25 mg methoject
I was diagnosed with Ankylosing spondilitis in December 2020 after previously having been diagnosed with PMR and treated with Prednisolone. I was weaned off Pred and started Methotexate in April 21. Still having flares in June last year I saw rheumatologist who changed my 15mg tablets to 25 mg methoject
Amb1xkr
in
NRAS
1 year ago
Pattern Tertiary 5 PC
Does anyone have Pattern Tertiary 5 PC? What have been your experiences with it? My 50 year old son was recently diagnosed with 4+3=7 tertiary pattern 5. From what I’ve read it’s more difficult than just 4+3 = 7. I would appreciate any feedback you can give me as he’s only about seven months into
Does anyone have Pattern Tertiary 5 PC? What have been your experiences with it? My 50 year old son was recently diagnosed with 4+3=7 tertiary pattern 5. From what I’ve read it’s more difficult than just 4+3 = 7. I would appreciate any feedback you can give me as he’s only about seven months into
Cactus297
in
Prostate Cancer Under 60
1 year ago
how to get off prednisone
I am 10 years post transplant tak8ng 5 mg prednisone daily and am seeing some bone loss from it. Can I eliminate the prednisone from my meds safely?
I am 10 years post transplant tak8ng 5 mg prednisone daily and am seeing some bone loss from it. Can I eliminate the prednisone from my meds safely?
Alaskaliving
in
Kidney Transplant
1 year ago
Update on "Zytiga failed, Xtandi next" from 8 days ago
My "winter" MO (Fl vs Mass) says the active hip lesion means the Zytiga is failing, at least at that one area only but recommends Xtandi and I am now hormone resistant after 19 months on ADT plus Zytiga/prednisone. I asked my "summer" MO the following. [i]"Is it possible that the hip lesion is the
My "winter" MO (Fl vs Mass) says the active hip lesion means the Zytiga is failing, at least at that one area only but recommends Xtandi and I am now hormone resistant after 19 months on ADT plus Zytiga/prednisone. I asked my "summer" MO the following. [i]"Is it possible that the hip lesion is the
alperk
in
Advanced Prostate Cancer
1 year ago
Glucose
I have stage four prostate cancer and have been taking Zytiga, Prednisone, and Lupron for 5 and 1/2 years. My PSA is 0.049 and my testosterone is -7. Have any of you had an increase in your glucose level? In my last four blood tests, my glucose has gone from 115 to a little over 200. Could Prednisone
I have stage four prostate cancer and have been taking Zytiga, Prednisone, and Lupron for 5 and 1/2 years. My PSA is 0.049 and my testosterone is -7. Have any of you had an increase in your glucose level? In my last four blood tests, my glucose has gone from 115 to a little over 200. Could Prednisone
ucladany
in
Advanced Prostate Cancer
1 year ago
Tried to use my new stationary bike for just 10 minutes
After much prodding throughout the years from various doctors, a few weeks ago I bought a stationary bike as I finally decided not to be a couch potato anymore, to improve my heart muscle, and to better control my pre-diabetes that I've had long before PMR. On two separate days I've used the stationary
After much prodding throughout the years from various doctors, a few weeks ago I bought a stationary bike as I finally decided not to be a couch potato anymore, to improve my heart muscle, and to better control my pre-diabetes that I've had long before PMR. On two separate days I've used the stationary
perceptual63
in
PMRGCAuk
1 year ago
May second follow up appointment since new treatment
I had my 2nd follow up yesterday since start of zytiga, Prednisone and Lupron. All of my blood labs are within normal range, PSA continues to ⬇️ now at 2.6 (from 16) before treatment restart. Testosterone also ⬇️ to 74 (from 158) after a two year 'holiday' But, here comes de drama, I've put on 20 lbs
I had my 2nd follow up yesterday since start of zytiga, Prednisone and Lupron. All of my blood labs are within normal range, PSA continues to ⬇️ now at 2.6 (from 16) before treatment restart. Testosterone also ⬇️ to 74 (from 158) after a two year 'holiday' But, here comes de drama, I've put on 20 lbs
Blueribbon63
in
Advanced Prostate Cancer
1 year ago
Blood Pressure
Anyone have a drop in blood pressure after starting prednisone (20 mg for first 3 weeks and then tapering to 15 mg and 10 mg) for suspected diagnosis by rheumatologist for PMR? At first, we thought the tiredness was due to the prednisone itself, but then the blood pressure was low, even though on blood
Anyone have a drop in blood pressure after starting prednisone (20 mg for first 3 weeks and then tapering to 15 mg and 10 mg) for suspected diagnosis by rheumatologist for PMR? At first, we thought the tiredness was due to the prednisone itself, but then the blood pressure was low, even though on blood
Andymegv
in
PMRGCAuk
1 year ago
Prednisone Anyone? Day 21
Well then! Here I am -day 21 on miracle drug Prednisone. Pleased to say that my hand is much better. Now on one tablet a day for a week then all finished. Hope you are all keeping well,safe and warm this week. Take care ❤️
Well then! Here I am -day 21 on miracle drug Prednisone. Pleased to say that my hand is much better. Now on one tablet a day for a week then all finished. Hope you are all keeping well,safe and warm this week. Take care ❤️
Green230461
in
NRAS
1 year ago
5years in of a forecast 5 to 10 years expected survival - age 78 now.
DX 2017 metastatic PC T3 a/b on MR metastatic on bone scan [ 1 spine 1 pelvis ] psa 11.2 Gleason 9. Started Abi + pred and Prostap (lute)after 2 years stopped Abi due to heart problems tried Enza caused me to go zombie ( could have been stopping Prednisolone to quickly!) psa was 0.109 testosterone
DX 2017 metastatic PC T3 a/b on MR metastatic on bone scan [ 1 spine 1 pelvis ] psa 11.2 Gleason 9. Started Abi + pred and Prostap (lute)after 2 years stopped Abi due to heart problems tried Enza caused me to go zombie ( could have been stopping Prednisolone to quickly!) psa was 0.109 testosterone
Dondodoc
in
Advanced Prostate Cancer
1 year ago
pregabalin for peripheral neuropathy
I am 7 weeks on Methotrexate, 5 mg prednisone. Am in the middle of switching my neuropathy meds. Went from 60 to 30 mg duloxitine for a month (cymbalta). Having a lot of breakthrough pain, aches. My doc said go ahead and start pregabalin (lyrica) 25 am and 25 pm, and take 4 weeks to reduce cymbalta
I am 7 weeks on Methotrexate, 5 mg prednisone. Am in the middle of switching my neuropathy meds. Went from 60 to 30 mg duloxitine for a month (cymbalta). Having a lot of breakthrough pain, aches. My doc said go ahead and start pregabalin (lyrica) 25 am and 25 pm, and take 4 weeks to reduce cymbalta
BeachsideVia
in
NRAS
1 year ago
How to make an appt with Prof Rod Hughs
I've been diagnosed with PMR since 09/19. On oral preds since March 2021. Started with 7.5mg per day. Never got to lower than 7mg. Now on 11mg. per day. I have no NHS rheumatologist looking after me now, and my GP is unable to help other than to prescribe the prednisolone. I'm suffering more and more
I've been diagnosed with PMR since 09/19. On oral preds since March 2021. Started with 7.5mg per day. Never got to lower than 7mg. Now on 11mg. per day. I have no NHS rheumatologist looking after me now, and my GP is unable to help other than to prescribe the prednisolone. I'm suffering more and more
Bennijax
in
PMRGCAuk
1 year ago
Prednisone switch to Dexamethasone to extend Zytiga
If I switch to Dexamethasone do I need to wean myself off of Prednisone first or can I stop Prednisone one day and start Dexamethasone the next day with out any repercussions?
If I switch to Dexamethasone do I need to wean myself off of Prednisone first or can I stop Prednisone one day and start Dexamethasone the next day with out any repercussions?
Scout4answers
in
Fight Prostate Cancer
1 year ago
Prednisone switch to Dexamethasone with Zytiga
If I switch to Dexamethasone do I need to wean myself off of prednisone first or can I stop Prednisone one day and start Dexamethasone the next day with out any repercussions?
If I switch to Dexamethasone do I need to wean myself off of prednisone first or can I stop Prednisone one day and start Dexamethasone the next day with out any repercussions?
Scout4answers
in
Advanced Prostate Cancer
1 year ago
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