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Neomycin / Prednisolone
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A positive move
I saw a rheumatologist yesterday and thanks to all the information gained from this site I am now taking prednisolone. I wanted a two week trial and he wanted a blood test showing positive markers first but I pointed out that many people don’t have that. He mentioned RA but I showed him that none of
I saw a rheumatologist yesterday and thanks to all the information gained from this site I am now taking prednisolone. I wanted a two week trial and he wanted a blood test showing positive markers first but I pointed out that many people don’t have that. He mentioned RA but I showed him that none of
Nanatoo
in
PMRGCAuk
1 year ago
Prednisone tapering
I've been tapering off prednisone which initially was 30 mg daily by 1 mg every 3 days on dr's and rheumatologist advice. (Was diagnosed with PMR then changed to fibromyalgia). I was also taking tumeric supplements which i stopped on saturday. As of today I am on 7 mg. My question is: the last 2 days
I've been tapering off prednisone which initially was 30 mg daily by 1 mg every 3 days on dr's and rheumatologist advice. (Was diagnosed with PMR then changed to fibromyalgia). I was also taking tumeric supplements which i stopped on saturday. As of today I am on 7 mg. My question is: the last 2 days
Monkey321
in
PMRGCAuk
1 year ago
BRONCHIECTASIS….PLUS Allergic to medical face mask…any non polypropylene/TPE ones available?
Hi I’m having a nightmare with my bronchiectasis, I’ve had numerous exacerbations this year, use my rescue pack and prednisone when needed…cant remember being well in all honesty. I had HIB in April and given Levofloxacin as Doxycycline won’t shift my HIB. Think I had HIB in 2015, 2016, 2018 and 2023
Hi I’m having a nightmare with my bronchiectasis, I’ve had numerous exacerbations this year, use my rescue pack and prednisone when needed…cant remember being well in all honesty. I had HIB in April and given Levofloxacin as Doxycycline won’t shift my HIB. Think I had HIB in 2015, 2016, 2018 and 2023
Pennylap
in
Lung Conditions Community Forum
1 year ago
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HCG level blip?
Hello I’m wondering if anyone can ease my anxiety at all. My HCG levels have been as follows: 12dp3dt- 580 13dp3dt - 847 15dp3dt- 1761 18dp3dt - 5463 20dp3t - 9075 My clinic have said they’re generally looking good but I didn’t double between 18dpt and 20dpt and so they’ve put me back on a steroid
Hello I’m wondering if anyone can ease my anxiety at all. My HCG levels have been as follows: 12dp3dt- 580 13dp3dt - 847 15dp3dt- 1761 18dp3dt - 5463 20dp3t - 9075 My clinic have said they’re generally looking good but I didn’t double between 18dpt and 20dpt and so they’ve put me back on a steroid
Siothew12
in
Fertility Network UK
1 year ago
Recent carpal tunnel, trochanter bursitis, and maybe shoulder bursitis
I've had PMR/GCA for 5 years, and I'm currently at 3 mg prednisone. I haven't had any PMR/GCA symptoms for over a year (one PMR flare in 2022 and one GCA flare in 2020). In May I developed carpal tunnel in both hands/wrists, then in July trochanter bursitis and shoulder pain/tenderness that I think
I've had PMR/GCA for 5 years, and I'm currently at 3 mg prednisone. I haven't had any PMR/GCA symptoms for over a year (one PMR flare in 2022 and one GCA flare in 2020). In May I developed carpal tunnel in both hands/wrists, then in July trochanter bursitis and shoulder pain/tenderness that I think
Viola1
in
PMRGCAuk
1 year ago
Magnesium supplement - how much per day?
Until a few days ago I was taking soluble Magnellon 300 mg each day in the early evening, after food. I've been doing this since PMR diagnosis in August 2020. For the last 3 months or so I've been experiencing 'flutterings' in my legs and feet when I'm relaxing and in bed at night. Having read
Until a few days ago I was taking soluble Magnellon 300 mg each day in the early evening, after food. I've been doing this since PMR diagnosis in August 2020. For the last 3 months or so I've been experiencing 'flutterings' in my legs and feet when I'm relaxing and in bed at night. Having read
Pr0jection
in
PMRGCAuk
1 year ago
Alternating between 3 and 4 mg pred now
I was at 5 for a few weeks, now doing another drop. Not noticing any unusual additional pains. Doing 3 and 4 for a week and things are good. Still have the trigger finger issue of both middle fingers and they have a neuropathy, oddly numb and sometimes painful I have to put up with. I was wondering
I was at 5 for a few weeks, now doing another drop. Not noticing any unusual additional pains. Doing 3 and 4 for a week and things are good. Still have the trigger finger issue of both middle fingers and they have a neuropathy, oddly numb and sometimes painful I have to put up with. I was wondering
sdowney717
in
PMRGCAuk
1 year ago
Chest CT scan/Myositis bloods/MRI - right knee Quadricep Tendon Rupture Report update
Hello my dear Lupus warriors ❤️ Just to give an update, actually Tiggywoos wrote quick question about Anti-OJ autoantibodies 6 days ago. I thought to do new post to reach more people. I had CT chest scan last year which revealed lower right lung 🫁 inflammation. At this time, I was told that my lungs
Hello my dear Lupus warriors ❤️ Just to give an update, actually Tiggywoos wrote quick question about Anti-OJ autoantibodies 6 days ago. I thought to do new post to reach more people. I had CT chest scan last year which revealed lower right lung 🫁 inflammation. At this time, I was told that my lungs
Energy14
in
LUPUS UK
1 year ago
Supplements and self-care
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
Hi everyone, I am new to this site and to this forum. It has been a wealth of information. I know there have been plenty of other threads, regarding supplements, and how we take care of ourselves, but some of them have aged and just wanted to start a fresh one. I am 53 and was diagnosed with stage
StayinAlive8
in
Advanced Prostate Cancer
1 year ago
Struggling with PMR and Pred
Hello, am newish in the group. Just updated my bio with my story and how I ended up where I am. I have had PMR like symptoms since around 2003, that seem to flare for a few months and then goes back to being just about liveable with for a while when self medicating with ibuprofen, before flaring
Hello, am newish in the group. Just updated my bio with my story and how I ended up where I am. I have had PMR like symptoms since around 2003, that seem to flare for a few months and then goes back to being just about liveable with for a while when self medicating with ibuprofen, before flaring
Gimme
in
PMRGCAuk
1 year ago
Diet and GCA
I have recently found this wonderful forum, it's so full of information I wish I had seen it before. I thought I would post this in case it is interesting to anyone. I was diagnosed with GCA just a year ago this weekend. I was nearly 77 when I suddenly became exhausted and overwhelmed with fatigue.
I have recently found this wonderful forum, it's so full of information I wish I had seen it before. I thought I would post this in case it is interesting to anyone. I was diagnosed with GCA just a year ago this weekend. I was nearly 77 when I suddenly became exhausted and overwhelmed with fatigue.
Toolie2
in
PMRGCAuk
1 year ago
GCA relapse?
I finally tapered off steroids April 2023 after 18 months. Over the last few weeks my headaches have returned daily- bilateral temples. My head just feels woozy and ‘full’ . Hard to describe. Scalp ‘burns’ but is not sensitive to touch. So fatigued I just can’t do much of anything. Went to rheum and
I finally tapered off steroids April 2023 after 18 months. Over the last few weeks my headaches have returned daily- bilateral temples. My head just feels woozy and ‘full’ . Hard to describe. Scalp ‘burns’ but is not sensitive to touch. So fatigued I just can’t do much of anything. Went to rheum and
Jsaoughs
in
PMRGCAuk
1 year ago
Only prednisolone??
Has anyone been prescribed methotrexate instead of prednisalone for pmr??
Has anyone been prescribed methotrexate instead of prednisalone for pmr??
Nanatoo
in
PMRGCAuk
1 year ago
Prednisolone vs Co-codamol 30/500
I’m long term PMR, down to 6mg pred and this will be my dose for life. I still ache every day and take normally two Co-codamol 30/500 first thing in morning and at 1800 hrs. I am due à medicine review by my surgery pharmacist and I am pretty sure they want me to cut down or stop the Co-codamol. My
I’m long term PMR, down to 6mg pred and this will be my dose for life. I still ache every day and take normally two Co-codamol 30/500 first thing in morning and at 1800 hrs. I am due à medicine review by my surgery pharmacist and I am pretty sure they want me to cut down or stop the Co-codamol. My
sharpedge
in
PMRGCAuk
1 year ago
tapering issues
Recently tapered down from 5.5 to 5 of prednisone, seemed to go alright but about 3 weeks on 5 mg I started to see low moods,upset stomach,severe tiredness,lightheaded,and some aches and pains in muscles and joints.Also been waking up at 5 am and unable to sleep. At the same time as my reduction I have
Recently tapered down from 5.5 to 5 of prednisone, seemed to go alright but about 3 weeks on 5 mg I started to see low moods,upset stomach,severe tiredness,lightheaded,and some aches and pains in muscles and joints.Also been waking up at 5 am and unable to sleep. At the same time as my reduction I have
Amilee
in
PMRGCAuk
1 year ago
When to stop prednisolone? Consultant says at ET?
Hello I'm a bit nervous as i've just had a fresh embryo transfer. I've been on prednisolone for suspected auto immune conditions, for the last few weeks/since start of cycle. However, the consultant told me to stop taking it today, now that I have had the transfer. I'm a bit confused as i've read
Hello I'm a bit nervous as i've just had a fresh embryo transfer. I've been on prednisolone for suspected auto immune conditions, for the last few weeks/since start of cycle. However, the consultant told me to stop taking it today, now that I have had the transfer. I'm a bit confused as i've read
rainbowbaby8320
in
Fertility Network UK
1 year ago
Pain till afternoon
I’ve been on Prednisone for five weeks, the last two weeks 15 mg. I’m probably at 70 % better. But still have the same symptoms, just less? When I take my dose in am, along with Tylenol, it’s until about 2 pm until I feel relief. Then I go to bed wake up around 3-4 then my legs start up again. Like
I’ve been on Prednisone for five weeks, the last two weeks 15 mg. I’m probably at 70 % better. But still have the same symptoms, just less? When I take my dose in am, along with Tylenol, it’s until about 2 pm until I feel relief. Then I go to bed wake up around 3-4 then my legs start up again. Like
3dogsheidi
in
PMRGCAuk
1 year ago
BP with abiraterone + prednisone, eplerenone, dexamethasone
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
Gearhead
in
Advanced Prostate Cancer
1 year ago
palpitations?
I’ve probably asked this before but I feel so frightened. Do others get, fluttering , & a feeling heart has stopped then a thud before it restarts. Started 50 mg prednisolone last august now down to 9. Also have to take leothyroxine & metformin, and atorvastatin. Have had ECG which was ok & done blood
I’ve probably asked this before but I feel so frightened. Do others get, fluttering , & a feeling heart has stopped then a thud before it restarts. Started 50 mg prednisolone last august now down to 9. Also have to take leothyroxine & metformin, and atorvastatin. Have had ECG which was ok & done blood
CavalierKC3
in
PMRGCAuk
1 year ago
Can pred cause dementia-like symptoms?
Hi everyone, Something is very wrong with me. I feel like I have some kind of dementia. I work from home (mostly phone, emails and internet, nothing physical), but I can't seem to manage it anymore. My career is falling apart. Tasks that have always been easy for me now make me want to scream, and
Hi everyone, Something is very wrong with me. I feel like I have some kind of dementia. I work from home (mostly phone, emails and internet, nothing physical), but I can't seem to manage it anymore. My career is falling apart. Tasks that have always been easy for me now make me want to scream, and
sferios
in
PMRGCAuk
1 year ago
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