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Neomycin / Prednisolone
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What to do for the stiffness.
Coming up on 4 years since I was diagnosed with PMR and GCA. I have tapered to 2 mg of Prednisone daily. Labs are all good. The stiffness is not going away. Mornings are pretty bad, as well as during the night. If I sit still for more than 30 minutes I am so stiff I can not walk normally. Most of the
Coming up on 4 years since I was diagnosed with PMR and GCA. I have tapered to 2 mg of Prednisone daily. Labs are all good. The stiffness is not going away. Mornings are pretty bad, as well as during the night. If I sit still for more than 30 minutes I am so stiff I can not walk normally. Most of the
Cgt1151
in
PMRGCAuk
7 months ago
Magnesium supplement - how much per day?
Until a few days ago I was taking soluble Magnellon 300 mg each day in the early evening, after food. I've been doing this since PMR diagnosis in August 2020. For the last 3 months or so I've been experiencing 'flutterings' in my legs and feet when I'm relaxing and in bed at night. Having read
Until a few days ago I was taking soluble Magnellon 300 mg each day in the early evening, after food. I've been doing this since PMR diagnosis in August 2020. For the last 3 months or so I've been experiencing 'flutterings' in my legs and feet when I'm relaxing and in bed at night. Having read
Pr0jection
in
PMRGCAuk
10 months ago
Chest CT scan/Myositis bloods/MRI - right knee Quadricep Tendon Rupture Report update
Hello my dear Lupus warriors ❤️ Just to give an update, actually Tiggywoos wrote quick question about Anti-OJ autoantibodies 6 days ago. I thought to do new post to reach more people. I had CT chest scan last year which revealed lower right lung 🫁 inflammation. At this time, I was told that my lungs
Hello my dear Lupus warriors ❤️ Just to give an update, actually Tiggywoos wrote quick question about Anti-OJ autoantibodies 6 days ago. I thought to do new post to reach more people. I had CT chest scan last year which revealed lower right lung 🫁 inflammation. At this time, I was told that my lungs
Energy14
in
LUPUS UK
10 months ago
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Whole pelvic radiation after testicular cancer?
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
Adendino
in
Advanced Prostate Cancer
7 months ago
Struggling with PMR and Pred
Hello, am newish in the group. Just updated my bio with my story and how I ended up where I am. I have had PMR like symptoms since around 2003, that seem to flare for a few months and then goes back to being just about liveable with for a while when self medicating with ibuprofen, before flaring
Hello, am newish in the group. Just updated my bio with my story and how I ended up where I am. I have had PMR like symptoms since around 2003, that seem to flare for a few months and then goes back to being just about liveable with for a while when self medicating with ibuprofen, before flaring
Gimme
in
PMRGCAuk
10 months ago
Diet and GCA
I have recently found this wonderful forum, it's so full of information I wish I had seen it before. I thought I would post this in case it is interesting to anyone. I was diagnosed with GCA just a year ago this weekend. I was nearly 77 when I suddenly became exhausted and overwhelmed with fatigue.
I have recently found this wonderful forum, it's so full of information I wish I had seen it before. I thought I would post this in case it is interesting to anyone. I was diagnosed with GCA just a year ago this weekend. I was nearly 77 when I suddenly became exhausted and overwhelmed with fatigue.
Toolie2
in
PMRGCAuk
10 months ago
Stopping abiraterone
OK, specific question time here. I've been on Abiraterone+Prednisone for about a year and a half, with a 2 month break around Christmas last year. My Doc says the normal course of Abiraterone is about 18 months, and I think that we're kind of dancing around discontinuing the drug, for me. I know that
OK, specific question time here. I've been on Abiraterone+Prednisone for about a year and a half, with a 2 month break around Christmas last year. My Doc says the normal course of Abiraterone is about 18 months, and I think that we're kind of dancing around discontinuing the drug, for me. I know that
chickgreen
in
Advanced Prostate Cancer
7 months ago
Chronic
3 years, started with a dry cough. 1 year ago I started with a stuffy nose & wet cough. Now I have excessive phlegm. Choking phlegm! Been thru blood work, Exray, ENT, Allergist, Pulmonologist, Asthma Testing, Emergency Room a couple of times, meds galore, nose sprays, prednisone a few times, antibiotics
3 years, started with a dry cough. 1 year ago I started with a stuffy nose & wet cough. Now I have excessive phlegm. Choking phlegm! Been thru blood work, Exray, ENT, Allergist, Pulmonologist, Asthma Testing, Emergency Room a couple of times, meds galore, nose sprays, prednisone a few times, antibiotics
Frustratedo
in
Lung Conditions Community Forum
7 months ago
Only prednisolone??
Has anyone been prescribed methotrexate instead of prednisalone for pmr??
Has anyone been prescribed methotrexate instead of prednisalone for pmr??
Nanatoo
in
PMRGCAuk
10 months ago
new myocarditis MRI results; what now?
Dear Forumites, Yesterday I received results from my followup cMRI for myocarditis. The good news, it is better since the first cMRI in April. There is still swelling and enlargement of the heart walls, but not as much, and the EFs (ejection fractions) are both still down, but not as far down (55%
Dear Forumites, Yesterday I received results from my followup cMRI for myocarditis. The good news, it is better since the first cMRI in April. There is still swelling and enlargement of the heart walls, but not as much, and the EFs (ejection fractions) are both still down, but not as far down (55%
Britomartis29
in
British Heart Foundation
7 months ago
Prednisolone vs Co-codamol 30/500
I’m long term PMR, down to 6mg pred and this will be my dose for life. I still ache every day and take normally two Co-codamol 30/500 first thing in morning and at 1800 hrs. I am due à medicine review by my surgery pharmacist and I am pretty sure they want me to cut down or stop the Co-codamol. My
I’m long term PMR, down to 6mg pred and this will be my dose for life. I still ache every day and take normally two Co-codamol 30/500 first thing in morning and at 1800 hrs. I am due à medicine review by my surgery pharmacist and I am pretty sure they want me to cut down or stop the Co-codamol. My
sharpedge
in
PMRGCAuk
10 months ago
enteric coated empty capsules
My pharmacist has never heard of enteric Prednisone. Where can I buy empty enteric capsules to put prednisone in.
My pharmacist has never heard of enteric Prednisone. Where can I buy empty enteric capsules to put prednisone in.
darkred
in
PMRGCAuk
7 months ago
Trouble Tapering
I was diagnosed with PMR 2 years ago. My doctor started me on 40 mg prednisone. I think the higher dose was because I was in severe pain. It didn't take too long before I tapered to 20 mg. I then got down to 15 mg but had to go back up to 20 mg where I was stuck for a while. By this past February I had
I was diagnosed with PMR 2 years ago. My doctor started me on 40 mg prednisone. I think the higher dose was because I was in severe pain. It didn't take too long before I tapered to 20 mg. I then got down to 15 mg but had to go back up to 20 mg where I was stuck for a while. By this past February I had
noslak
in
PMRGCAuk
7 months ago
Rapid Taper
My Rheumatologist wanted me to taper in 6 days from 20mg to 0 prednisone in order to reassess me for PMR. Even though I did have elevated CRP and ESR he is not quite sure since some of my symptoms weren’t gone. Will all my so called PMR symptoms return by the time I’m at O and will my markers be back
My Rheumatologist wanted me to taper in 6 days from 20mg to 0 prednisone in order to reassess me for PMR. Even though I did have elevated CRP and ESR he is not quite sure since some of my symptoms weren’t gone. Will all my so called PMR symptoms return by the time I’m at O and will my markers be back
3dogsheidi
in
PMRGCAuk
7 months ago
Flare or not
Five years on and been doing okay. Struggling to get below 1mg prednisone though. I've been splitting the 1mg and taking it slowly but maybe not slowly enough. I now live in new town with new doctor (two years here) . I'm growing conscious of morning aches and stiffness in both shoulders and hips
Five years on and been doing okay. Struggling to get below 1mg prednisone though. I've been splitting the 1mg and taking it slowly but maybe not slowly enough. I now live in new town with new doctor (two years here) . I'm growing conscious of morning aches and stiffness in both shoulders and hips
Kinnear
in
PMRGCAuk
7 months ago
Down to 1.5mg prednisone now for about 5 days
I do notice a few more stiffness issues in the morning. But no typical PMR pains. Left middle finger maybe slightly improved. I actually can sleep better now as the fingers dont hurt so much. The pain develops mostly when sleeping, I can not sleep in any position except for on my stomach or my hands
I do notice a few more stiffness issues in the morning. But no typical PMR pains. Left middle finger maybe slightly improved. I actually can sleep better now as the fingers dont hurt so much. The pain develops mostly when sleeping, I can not sleep in any position except for on my stomach or my hands
sdowney717
in
PMRGCAuk
7 months ago
When to stop prednisolone? Consultant says at ET?
Hello I'm a bit nervous as i've just had a fresh embryo transfer. I've been on prednisolone for suspected auto immune conditions, for the last few weeks/since start of cycle. However, the consultant told me to stop taking it today, now that I have had the transfer. I'm a bit confused as i've read
Hello I'm a bit nervous as i've just had a fresh embryo transfer. I've been on prednisolone for suspected auto immune conditions, for the last few weeks/since start of cycle. However, the consultant told me to stop taking it today, now that I have had the transfer. I'm a bit confused as i've read
rainbowbaby8320
in
Fertility Network UK
10 months ago
Decision Xtandi or radiation
Many posts proceed this one and I am now at a crossroad. Scans since 7/21 showed uptake in either/or illiac, acetabulum and the ischium. After 2/23 scan I had 35 gys radiation to acetabulum. PSA dropped then started rising, 9/23 scan showed SUV uptake 28.4 at ischium. PSA 4.2 Local radiologist is
Many posts proceed this one and I am now at a crossroad. Scans since 7/21 showed uptake in either/or illiac, acetabulum and the ischium. After 2/23 scan I had 35 gys radiation to acetabulum. PSA dropped then started rising, 9/23 scan showed SUV uptake 28.4 at ischium. PSA 4.2 Local radiologist is
alperk
in
Advanced Prostate Cancer
7 months ago
Profile Update
I was going to update my profile but after adding additional ailments several times and then having them disappear, I have decided to inform via this post. I was diagnosed with PMR early 2016 with 15 mgs prednisone. Since that year I've had right leg replacement and bleeding ulcer at the same time
I was going to update my profile but after adding additional ailments several times and then having them disappear, I have decided to inform via this post. I was diagnosed with PMR early 2016 with 15 mgs prednisone. Since that year I've had right leg replacement and bleeding ulcer at the same time
pegpowell
in
PMRGCAuk
7 months ago
palpitations?
I’ve probably asked this before but I feel so frightened. Do others get, fluttering , & a feeling heart has stopped then a thud before it restarts. Started 50 mg prednisolone last august now down to 9. Also have to take leothyroxine & metformin, and atorvastatin. Have had ECG which was ok & done blood
I’ve probably asked this before but I feel so frightened. Do others get, fluttering , & a feeling heart has stopped then a thud before it restarts. Started 50 mg prednisolone last august now down to 9. Also have to take leothyroxine & metformin, and atorvastatin. Have had ECG which was ok & done blood
CavalierKC3
in
PMRGCAuk
10 months ago
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