Experiences with

Neomycin / Prednisolone

My instructions on the medication just says 'take with food'. I split my dosage into three and take it with my meals. I assume that this is OK but should I be taking the dosage all at once?

Good Afternoon Just wondering if anyone has any advice. I have been on prednisolone now for 10 years, (PMR and GCA) and over the past 4 years or so repeatedly tried to reduce down from 5mg. Unsuccessfully. I was down to 2mgs last year, felt awful and my ESA was up from 20 to 36, the Rheumatology

A couple of weeks ago I was diagnosed with a prolapse. Something else on top of my PMR and struggling to get over a lousy cough/cold (had prior to cough). To my relief PMR well controlled at the moment after some yo-yoing. Currently on 10mg for a further month after GP increased from 9mg (went as low

hi I’ve been in methotrexate for. 6 weeks and being monitored re blood tests fortnightly as I can’t get below 9 mg of Prednisolone . I’m ,aware of the side effects however as I’m not due to see the rheumatologist for another month wonder if one of you wise people can tell me what’s meant to happen

I have been referred to have an urgent short Synacthen test. 18 March 2pm. The endocrine nurse who phoned me to book the appointment wants me to not take my prednisolone on the 18th and the 17th. Said I could take my dose straight after the test. I'm worried about how I will be with no pred for

I was diagnosed with PMR in November 2021 following a Moderna booster and was immediately put on prednisolone. After 3 years and several relapses with doses going up and down I have now been steroid free for 6 months. Very difficult months when at times I have felt so bad that I considered asking to

GCA Newbie and my first post. Diagnosed 4 October 2024. Classic text book journey so far. Hitting my first major bump in the road and you guessed it, tapering. Started Prednisolone at 60mg followed by 3 intravenous interventions for jaw claudication. Gradually reducing, as from beginning of February

I’ve just been presented Alendronic Acid 70mg and having read the guide on taking it I’m not keen. I’m taking Prednisolone, only 1mg every other day, for PMR which does flare up from time to time. Does anyone have any views on this medication?

I noticed my GP surgery have taken my prednisolone off my repeat medication list “because I’m supposed to be reducing it and it’s an acute drug “. I feel extremely vulnerable now as I’ve been on it for 15 years on top of all my other Lupus meds and obviously would have an adrenal crisis if it was stopped

Hi I have hypothyroidism - being treated with NDT Armour. This has been for about 4 years, I have a gluten free diet. Despite the NDT treatment (levothyroxine didn't work) , I still feel the cold, have weight gain, have digestive issues, am irritable and, have to eat a lot and often. My energy

Lyme disease 6 years ago. Treated with 3 weeks doxycycline. Took several years to feel better, fatigue and low mood bad.Now after a very stressful year have intense pain in pelvic/ hip area and difficulty walking. Exhausted. ?Lyme returned, also get itch where bite was! On 20 mg Prednisolone as ESR is

I am still on a bit of a rollercoaster. I have 8 week blood test to see the changes of my thyroid function. I was diagnosed with Graves disease quite a while ago. I take 5 mg of carbimozole every other day as prescribed by the endocrinologist as taking it every day made my thyroid function on the

I have recently been diagnosed with a recurrence of breast cancer and due to have a mastectomy within the next few weeks. I consulted a GP as to what I should do with my Pred dose, particularly on the day of the operation. He said he would consult a Rheumatologist and let me know (I have never been referred

Good afternoon I just thought I would share this mornings experience as it may be helpful to others. I had a private consultation with Dr Andrew Barr at the Leeds Nuffield this morning , Consultant Rheumatologist at Leeds NHS teaching hospital. He was simply outstanding , spent 50 minutes with

I’m tapering slowly and have reached 4/4.5mg prednisolone daily which I take at about 8am. I was diagnosed in November 2023. November 2024, I had emergency bowel surgery and am recovering well. But, in the evenings, between 6/8 usually, I experience a weird shivery feeling. I’m not cold and I don’t physically

Our Dorset Support Group has grown so we are creating smaller groups. We formed the West Dorset Support Group for those near Dorchester. We will meet monthly at the Pavilion in the Park PiP) Poundbury. First meeting is Tuesday 18 March at 11:00. Anyone with PMR, GCA or LVV is welcome! Email me at westdorsetpmrgca

Hi, I am travelling from the UK to Australia and would like advice on how to take prednisolone when travelling through different time zones. I know there is a link to this information, but I can not seem to find it. I am not great on the internet. Would someone be able to repost the link please.?Many

so, I’m on my second week of oral prednisolone (40mg down from 60mg last week) and feel vaguely like I’m catching a cold. It’s hard to tell since obviously any sinus swelling probably isn’t going to happen? I basically feel a little fuzzy, a little phlegm in my throat but very minor - it’s just that

I’ve been on Prednisolone for over 6 years having once managed to come off last May. Unfortunately I had to go back on due to symptoms returning. For most of the time, my nails have been in better condition than ever in my life, but this last year I’ve developed very odd white marks on several nails

I’m worrying myself today about side effects of prednisolone and inhaled steroids etc, I have a steroid card and had quite a few weeks of high dose prednisolone last few months plus looking likely to continue while I wait for specialist appointment in April. Just wondered if anyone had any suggestions