Experiences with

Neomycin / Prednisolone

I have been tapering prednisolone, got down to 20mg then went to 17.5mg and started getting pains in my legs and hips, so went back up to 20mg.But have been helping my husband who had a stroke beginning of January, who was doing really well with his walking,but then had a fall and now has gone to no

Started Methotrexate 20/12 with Prednisolone injection as well to deal with immediateflare/s. In 2025 I have 6 flares of which 3 in the last week of M,arch. I conclude MTX is not for me and a change is needed. Any views

Diagnosed with PMR 5 1/2 years ago. It has been a roller coaster journey Pred- wise now at 1.25 mg and all tests “ normal” range…yay! I am 69 and have just been on a ski holiday and skied a few days- not a lot but enough to help me feel good about myself again. I am having difficulty getting below 1mg

Good morning all . I have been tapering down to 2mg prednisolone over the last 12 months - and then a flare up occurred . So am following flare up protocol and am on 8mg for last 7 days , whilst flare up is about 50% reduced - I feel I have plateaued it does not seem to be reducing further

Firstly thank you all for all your wonderful help. This would have been even more difficult without you. I was diagnosed with PMR March '22, aged 64, via a phone call with a trainee GP. Started on Prednisolone & told to taper every 3 weeks by my own GP, again by a phone call. She stated my PMR would

I finished with prednisolone for PMR in January 2024 with no flares but persistent tiredness which caused me to suspect adrenal issues. I also felt stiffness and discomfort in the lumbar region. I had to push for a synacthen test which gave normal results. However, I was still dissatisfied with the lack

I have had several relapses over the last two years, and had to go back on high doses of prednisolone. The last few weeks I have really suffered with pain and stiffness in my hands and arms, so much so that I am struggling to use my right hand at all. I seen so many posts about how it affects shoulders

Please give me access to your Zoom discussion on why steroids increase blood sugar etc. on 3rd April. I was diagnosed with PMR since 2023 and take Prednisolone. I am in Cape Town, only one hour difference at that time. Thank you and regards Michelle

3am here in Thailand and the pain in my knees, legs and hip is so bad its a straggle to walk to the bathroom without letting out a few screams. Am not on any medications specifically for arthritis, I tried some before and they didn't have any effect on me. Even ibuprofen that used to help has no effect

Hi, I need some advice please. My son started developing spots yesterday and more today. I have SLE and on azathiaprine and 5mg prednisolone. I’ve had the chicken pox vaccine. I was always told to be careful and avoid. If chicken pox he has been infectious already. I know he will continue to be when

Is it best to take Prednisolone after having a blood test Also can you advise if it is ok to take Vitamin B and Vitamin D with Prednisolone Thank you

Hi allFirst of all just wanted to say thanks so much to all the support that this place provides. Don't know what I would do without it. We have unfortunately just had our second BFN with a PGT-A tested embryo. I know that this is a numbers game but really would appreciate some advice on next steps.

When I was first diagnosed with PMR (June/July 24) I was given a reduction plan which didn’t work. On Monday I requested my usual dose of prednisolone. Today I rang the doctors as I’d not received the prescription and was told that I should be on 1 mg a day as advised by the doctor last year and not

i have pmr on 7mgs pred for 5 years trying to reduce the dosage but this is as low as i can manage without symptoms returning. i have recently been suffering from a sore throat/difficulty swallowing went to the gp says there's no indication of infection took a swab and waiting for results. i suggested

I have just been diagnosed with GCA and am taking 55mg Prednisolone and 75 mg Clopidogrel daily. While in hospital I didn't notice anythin wrong with my eyes but since recovering I have discovered my left eye is blurry when looking at long distances. Has anyone else experienced this while on steroids

Good morning everyone 😊 I had rituximab last in spring 2020 (my first ever) and this last winter I've had a flare up of my symptoms. Some of my symptoms are quite painful, such as my hands/fingers and knees and a rash on my face, neck, arm, toes. My SLEDAI was rated as 10 when I was in clinic and I've

I have been on Prednisolone for 2 years and suddenly , after a chest infection 3 moths ago, have started to sweat a lot after a 2 mile walk or any kind of physical activity even in very cold weather. Often my shirts are soaked! I cannot get down below 10mg a day without suffering with PMR. Is this

I’m still trying to get down from 10mg of Prednisolone to 9 mg. I’m on 9.5mg 5 days out of 7. How much pain, fatigue, brain fog etc are you expected to tolerate before upping your dose? Recently I had a new hard flat feeling pain in right butt/thigh. That has morphed into a different kind of pain

I was diagnosed with PMR in October 24, my gp prescribed 15mg prednisolone with a tapering plan that now has me on 9mg, as a reasonably fit and active 61yo everything was going fine until whilst on vacation in the Caribbean 3 weeks ago for the first time in my life my heart went into Atrial fibrillation

(just as a precursor, despite having neither GCA nor PMR, I do have a form of Vasculitis similar to non-cranial GCA - takayasu’s vasculitis, which affects my aorta but no organ involvement so far. I post here rather than in the Vasculitis forums because there’s a lot more information that seems more