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Sinus and eye infection
After transplant I experienced multiple sinus infections that I never had before due to be immune suppresion and more recently due to new poor levels of air quality due to climate change, those are becoming more frequent with eye infection as well. My question concerning eye infections. Has anyone had
After transplant I experienced multiple sinus infections that I never had before due to be immune suppresion and more recently due to new poor levels of air quality due to climate change, those are becoming more frequent with eye infection as well. My question concerning eye infections. Has anyone had
Eyak1971
in
Kidney Transplant
1 year ago
Blood Test
I have been on prednisolone for PMR since June 24 2024, I am due to have blood tests on 29 August 2024 what tests should I be aware of that need to be taken, I am also having Thyroid bloods TSH and Free t4 tested as readings were out of range on last test.
I have been on prednisolone for PMR since June 24 2024, I am due to have blood tests on 29 August 2024 what tests should I be aware of that need to be taken, I am also having Thyroid bloods TSH and Free t4 tested as readings were out of range on last test.
Blodders2
in
PMRGCAuk
1 day ago
On 45mg Prednisolone. Doc just told me to miss a day.
I'm so frightened. I have got totally confused. Confusion started when I got diagnosed with GCA and put on Prednisolone 50 mg, along with Apixaban, Lanzoprazole, coleocalciferol, something that's vit D complex plus calcium (forgotton the name), simavastin and Bisoprolol. Then I had afall, got taken
I'm so frightened. I have got totally confused. Confusion started when I got diagnosed with GCA and put on Prednisolone 50 mg, along with Apixaban, Lanzoprazole, coleocalciferol, something that's vit D complex plus calcium (forgotton the name), simavastin and Bisoprolol. Then I had afall, got taken
Blondgrassblowing
in
PMRGCAuk
1 day ago
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steroid reduction setback
i was diagnosed with PMR beginning of June and started on 15mg Prednisolone which immediately brought about huge improvement to the point where after a couple of weeks I had no pain. After 4 weeks, and with inflammatory markers down from 70s to normal, GP reduced dose to 14 mg. I found no deterioration
i was diagnosed with PMR beginning of June and started on 15mg Prednisolone which immediately brought about huge improvement to the point where after a couple of weeks I had no pain. After 4 weeks, and with inflammatory markers down from 70s to normal, GP reduced dose to 14 mg. I found no deterioration
Crosswordsolver
in
PMRGCAuk
2 days ago
IBS-C - have had this for life and is playing up again now
I remember being taken to hospital at a pre-school age because I had a 'blockage.' After that my mother gave me castor oil, enos, sennapods, that Ex-Lax chocolate that would not fool a 4 year old, prunes. You name it I had it and I can never remember having a bowel movement normally. I could go for
I remember being taken to hospital at a pre-school age because I had a 'blockage.' After that my mother gave me castor oil, enos, sennapods, that Ex-Lax chocolate that would not fool a 4 year old, prunes. You name it I had it and I can never remember having a bowel movement normally. I could go for
Miserere
in
IBS Network
4 days ago
Hydrocortisone Tablets
Hello everyone, hope all good & well with you all.. I have been on Hydrocortisone tablets for adrenal insufficiency for about 1 year now, I had been on prednisolone for many years quite a high dose & when I developed adrenal insufficiency I was put on a much lower dose of Hydrocortisone 10 mg morning
Hello everyone, hope all good & well with you all.. I have been on Hydrocortisone tablets for adrenal insufficiency for about 1 year now, I had been on prednisolone for many years quite a high dose & when I developed adrenal insufficiency I was put on a much lower dose of Hydrocortisone 10 mg morning
primrose123
in
Lung Conditions Community Forum
5 days ago
Good diet so no need for Adcal?
I asked my GP (again!)about taking Adcal and explained that a lot of people on this forum were automatically prescribed it when put on steroids. GP asked about my diet and said I was getting plenty of calcium in my diet. He said calcium and Vitamin D levels were good on my last blood test and the DEXA
I asked my GP (again!)about taking Adcal and explained that a lot of people on this forum were automatically prescribed it when put on steroids. GP asked about my diet and said I was getting plenty of calcium in my diet. He said calcium and Vitamin D levels were good on my last blood test and the DEXA
Mfaepink1973
in
PMRGCAuk
6 days ago
adrenals struggling and diarrhoea
hi, I am down to 3.5mg of prednisolone and struggling with some stomach issues and fatigue. last night I had awful stomach cramps, nausea and diarrhoea that lasted all night and into today and felt quite weak. I am wondering what people take to help with this. Thank you for any help
hi, I am down to 3.5mg of prednisolone and struggling with some stomach issues and fatigue. last night I had awful stomach cramps, nausea and diarrhoea that lasted all night and into today and felt quite weak. I am wondering what people take to help with this. Thank you for any help
Koalajane
in
PMRGCAuk
6 days ago
Hello fellow sufferers
I've just found this forum (all new to me posting on a forum), as I have been diagnosed with PMR recently and am finding dealing with the symptoms a struggle. I don't have any tips currently but am looking forward to reading about other people's experiences with the condition. I'm in the early stages
I've just found this forum (all new to me posting on a forum), as I have been diagnosed with PMR recently and am finding dealing with the symptoms a struggle. I don't have any tips currently but am looking forward to reading about other people's experiences with the condition. I'm in the early stages
greencyclist62
in
PMRGCAuk
6 days ago
Prednisolone enquiry
Presently as well as PMR I am being treated for Vasculitis. The regimen was high doses of prednisolone with mecophenolate and rituzimab infusions. My consultant on reducing the pred is suggesting 5mg on alternate days instead of 2.5mg daily. Any ideas of the reasoning behind that?
Presently as well as PMR I am being treated for Vasculitis. The regimen was high doses of prednisolone with mecophenolate and rituzimab infusions. My consultant on reducing the pred is suggesting 5mg on alternate days instead of 2.5mg daily. Any ideas of the reasoning behind that?
HamishPMR
in
PMRGCAuk
7 days ago
Thyroxine and methylprednisolone
Can I take my prednisolone and levothyroxine together or better one hour apart ?
Can I take my prednisolone and levothyroxine together or better one hour apart ?
Lasagne777
in
PMRGCAuk
7 days ago
Reducing Prednisolone question
I have had PMR since October 2017 now, and gradually reducing fairly successfully. Twice before I had a problem at 3.5mg , and could not get any lower, having a couple of flares. Now I have just got down to 2.75mg by the slow method at the rate of .25mg over a six week period. So it has taken me a long
I have had PMR since October 2017 now, and gradually reducing fairly successfully. Twice before I had a problem at 3.5mg , and could not get any lower, having a couple of flares. Now I have just got down to 2.75mg by the slow method at the rate of .25mg over a six week period. So it has taken me a long
Purplegloss
in
PMRGCAuk
8 days ago
Flare protocol
What exactly is the 'flare protocol'? I am trying to get off prednisolone due to the side effects, but as I am now on 5mg (reducing by 1mg a month) & I am beginning to get some shoulder/upper arm pain, I wondered if I should up the dose, but by how much & for how long? I know it isn't a race, but
What exactly is the 'flare protocol'? I am trying to get off prednisolone due to the side effects, but as I am now on 5mg (reducing by 1mg a month) & I am beginning to get some shoulder/upper arm pain, I wondered if I should up the dose, but by how much & for how long? I know it isn't a race, but
Potter100
in
PMRGCAuk
9 days ago
Tapering on split dose
Hi all, I’m so thankful for this forum and all the knowledgeable people, hoping for more good advice…Started on split dose of 10mgs Prednisolone morning and evening in January this year. After 4 weeks I started tapering my evening dose by 1 mg every 2-3 weeks with no problems or recurrence of pain, am
Hi all, I’m so thankful for this forum and all the knowledgeable people, hoping for more good advice…Started on split dose of 10mgs Prednisolone morning and evening in January this year. After 4 weeks I started tapering my evening dose by 1 mg every 2-3 weeks with no problems or recurrence of pain, am
Tribie
in
PMRGCAuk
9 days ago
Sleuthing - Natural Killer Cells way too high
Hi All, So far on my journey, some interesting developments; I have scheduled
intraovarian PRP
(Platelet-rich plasma) and
LLLT
(Low-level laser therapy) to commence 100 days prior to my next round of IVF....... I was told the eggs renew every 100 days. During analysis (which I had done
Hi All, So far on my journey, some interesting developments; I have scheduled
intraovarian PRP
(Platelet-rich plasma) and
LLLT
(Low-level laser therapy) to commence 100 days prior to my next round of IVF....... I was told the eggs renew every 100 days. During analysis (which I had done
AnotherLaura
in
Fertility Network UK
9 days ago
Sleep paralysis
Ive had a few episodes of this lately and havent had a problem in the past so could it be to do with my being on a low dose now of Prednisolone ? (4mg). Im presuming it’s sleep paralysis and it’s a bit scary. I hear a noise when Im asleep and think Ive got intruders so I try to wake up and I cant
Ive had a few episodes of this lately and havent had a problem in the past so could it be to do with my being on a low dose now of Prednisolone ? (4mg). Im presuming it’s sleep paralysis and it’s a bit scary. I hear a noise when Im asleep and think Ive got intruders so I try to wake up and I cant
jaycee444
in
PMRGCAuk
10 days ago
Restarting meds after medical procedures 😏
Hi Peeps, I hope this post finds you as well as you can possibly be today 🫠 I haven't been on here for a while; I've been busy sorting out a diagnosis of PLCIS (Pleomorphic lobular carcinoma in suti) after going for my regular mammogram visit earlier on this year. Long story short - I had a lumpectomy
Hi Peeps, I hope this post finds you as well as you can possibly be today 🫠 I haven't been on here for a while; I've been busy sorting out a diagnosis of PLCIS (Pleomorphic lobular carcinoma in suti) after going for my regular mammogram visit earlier on this year. Long story short - I had a lumpectomy
Moomin8
in
NRAS
10 days ago
Flare after short synacthen test
I've been on Pred since April 2022, starting at 15mg and have reduced to 3.5mg - it has taken work, but I've used Dorset Lady's super slow reduction protocol and it has got me to where I am now. I had a short synacthen test 3rd July to see if I would be able to come off Prednisolone, but had to immediately
I've been on Pred since April 2022, starting at 15mg and have reduced to 3.5mg - it has taken work, but I've used Dorset Lady's super slow reduction protocol and it has got me to where I am now. I had a short synacthen test 3rd July to see if I would be able to come off Prednisolone, but had to immediately
Meezamom
in
PMRGCAuk
10 days ago
Update on GCA query
I have been to the local eye specialist which happens to be my optician. I saw a young optician who I have not seen before. He said he’d heard of GSA(!) and admitted to no expertise in the field. I said it may be better to wait for my usual optician who has knowledge of GCA, but he said he knew what
I have been to the local eye specialist which happens to be my optician. I saw a young optician who I have not seen before. He said he’d heard of GSA(!) and admitted to no expertise in the field. I said it may be better to wait for my usual optician who has knowledge of GCA, but he said he knew what
SanG55
in
PMRGCAuk
10 days ago
Hello - I'm interested in other GCA experiences
Hi. First time I've posted. I was diagnosed with GCA in February 2024 following hospital admission. It took medics a while to work it out but, once they did and started me on Prednisolone, my symptoms quickly improved. I returned to work early April and things seemed to be going in the right direction
Hi. First time I've posted. I was diagnosed with GCA in February 2024 following hospital admission. It took medics a while to work it out but, once they did and started me on Prednisolone, my symptoms quickly improved. I returned to work early April and things seemed to be going in the right direction
BladesLover
in
PMRGCAuk
11 days ago
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