Scalp pain: I am getting so frustrated... - Fibromyalgia Acti...

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Scalp pain

Dazy2008 profile image
4 Replies

I am getting so frustrated. I have now seen 3 primary care doctors and one rheumatologist. I've had possible diagnoses of either PMR or fibromyalgia

None of the 4 can tell me why I have scalp pain, pink scalp and very sore, itchy scalp. None can tell me why I have constant hot flashes.

I can't take prednisone. It makes my irregular heart beat go crazy, Cymbalta made me drugged and unable to function all day.

I have been on an anti inflammatory diet for months and now and am trying keto.

Most of my symptoms have improved a little with diet and supplements but I have a long way to go.

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Dazy2008
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CheetieCat profile image
CheetieCat

Hi, I don't know your age but the obvious ones you've probably ruled out already for the hot flashes is of course peri menopause & menopause.

Fibromyalgia can also cause heat issues, difficulty regulating your temperature and hot flashes and sorry to say same for peripheral neuropathy. I know it well 😞

Scalp issues are also quite common with fibromyalgia from itching to feeling like your scalp has been sun burned to the point even brushing your hair is painful. Lumps, bumps, dry skin ..... 😩

Sadly a lot of Doctors don't seem to be aware of much around fibro or even interested in finding out more.

Hope this helps x

Dazy2008 profile image
Dazy2008 in reply toCheetieCat

Thanks for your reply. I am 81 so yes ,causes have been ruled out. These issues started at the exact same time as the all over body pain so I suspected ,but doctors are ignoring my odd symptoms and just saying " I don't know"

CheetieCat profile image
CheetieCat in reply toDazy2008

Oh, at 81 they're definitely ruled out!😳 The truly sad thing is they probably don't know. You'll find more information from people on forums like this one and lots of support. This is a really good one for information on neuropathy

neurotalk.org/

E3178 profile image
E3178

Hi, I am also your age and started with the itching and crawling scalp about 15yrs ago.I also had and have a head that regularly feels as though it has been kicked all over. This is always when I am having more pain generally although my head always feels sore.

The itching has calmed down a bit now but because I scratched so much I lost some hair which hasn't grown back so be aware of this.

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