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Neomycin / Prednisolone
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Next step options after lupron/zytiga failed
I have been on monthly Lupron for 7 years (starting in 2014) after the spread of prostate cancer to my bones following a prostatectomy in 2014. Lupron alone was very effective until December 2021. I then added Zytiga/Prednisone which had worked well. But current (June 2024) scans show substantial disease
I have been on monthly Lupron for 7 years (starting in 2014) after the spread of prostate cancer to my bones following a prostatectomy in 2014. Lupron alone was very effective until December 2021. I then added Zytiga/Prednisone which had worked well. But current (June 2024) scans show substantial disease
sleepless-in-seattle
in
Advanced Prostate Cancer
3 months ago
Follow-up with Rheumatologist Re: Pred Tapering
I wanted to give an update from my last post, since so many of you were kind enough to offer suggestions, about my concerns regarding my rheumatologist’s tapering plan. I definitely have a better plan after writing to her via the patient portal. I will be tapering from 40 mg in 5 mg intervals for 2
I wanted to give an update from my last post, since so many of you were kind enough to offer suggestions, about my concerns regarding my rheumatologist’s tapering plan. I definitely have a better plan after writing to her via the patient portal. I will be tapering from 40 mg in 5 mg intervals for 2
Moaningxcat
in
PMRGCAuk
3 months ago
headache, throbbing, eye pain & rolling
Hello All, I am new here. I would appreciate advice please. Thanks for reading this. I was diagnosed with high eye pressure/glaucoma on 18/03/2022. My eye pressure was high then because I was on a high dose of Prednisolone. I thought it was steroid induced pressure and it would go away when my
Hello All, I am new here. I would appreciate advice please. Thanks for reading this. I was diagnosed with high eye pressure/glaucoma on 18/03/2022. My eye pressure was high then because I was on a high dose of Prednisolone. I thought it was steroid induced pressure and it would go away when my
softekcom
in
Glaucoma UK
8 months ago
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Antihistamine protocol
Hi everyone o have my last transfer next month and wanted to try everything I can as this is my last attempt. I have downregulated for 3 months on zorodex as I have adenomyosis and endo. For the transfer, I will be taking prednisone 10mg twice daily and aspirin 150mg from cd2 and forward. I've also
Hi everyone o have my last transfer next month and wanted to try everything I can as this is my last attempt. I have downregulated for 3 months on zorodex as I have adenomyosis and endo. For the transfer, I will be taking prednisone 10mg twice daily and aspirin 150mg from cd2 and forward. I've also
Norregirl
in
Fertility Network UK
3 months ago
**sensitive post***Official test day
Hi guys my whole tww was absolutely symptomless scaring another failure. I posted here and so many people came back with assuring me that symptoms means nothing in the tww . So here I am on my official pregnancy test day . Symptom or symptomless means nothing in tww . So today am pregnant. I know I still
Hi guys my whole tww was absolutely symptomless scaring another failure. I posted here and so many people came back with assuring me that symptoms means nothing in the tww . So here I am on my official pregnancy test day . Symptom or symptomless means nothing in tww . So today am pregnant. I know I still
Hidden
in
Fertility Network UK
3 months ago
BUYING DRUGS
Our cancer treatment centres are a disaster here. I need to purchase some drugs on my own if I am to survive. Would you please recommend someone you trust to buy from the following: 1. Zytiga. 500 mg. dosage or whatever is available, I need three months worth, taken twice daily 2. Prednisone 5 mg
Our cancer treatment centres are a disaster here. I need to purchase some drugs on my own if I am to survive. Would you please recommend someone you trust to buy from the following: 1. Zytiga. 500 mg. dosage or whatever is available, I need three months worth, taken twice daily 2. Prednisone 5 mg
billyboy3
in
Advanced Prostate Cancer
4 months ago
PMR disease
I was diagnosed with pmr in February. I'm on prednisone 7.5mg, methotrexate 12.5mg and just took my first injection of kevzara. Praying I can get into remission quickly.
I was diagnosed with pmr in February. I'm on prednisone 7.5mg, methotrexate 12.5mg and just took my first injection of kevzara. Praying I can get into remission quickly.
Oldies60
in
PMRGCAuk
4 months ago
symbicort to fostair ?
I was on symbicort morning and night and then salbutamol as needed, however the past two weeks my asthma has flared up resulting in prednisone for 5 days (which ended the same day I got switched to fostair) I got switched to fostair 100/6 on the mart scheme , I’ve been using fostair for 4 days now
I was on symbicort morning and night and then salbutamol as needed, however the past two weeks my asthma has flared up resulting in prednisone for 5 days (which ended the same day I got switched to fostair) I got switched to fostair 100/6 on the mart scheme , I’ve been using fostair for 4 days now
MrsE27
in
Asthma Community Forum
4 months ago
Rheumatologist Pred Taper Schedule
I’m in need of your advice and counsel. Yesterday, I had a telehealth appointment with my rheumatologist. I was diagnosed with likely GCA this past April and am currently taking 40 mg prednisone and 15 mg weekly of methotrexate. My last blood work in May showed inflammation markers were within normal
I’m in need of your advice and counsel. Yesterday, I had a telehealth appointment with my rheumatologist. I was diagnosed with likely GCA this past April and am currently taking 40 mg prednisone and 15 mg weekly of methotrexate. My last blood work in May showed inflammation markers were within normal
Moaningxcat
in
PMRGCAuk
4 months ago
Quick Question
I live in Canada and am wondering if it is standard practice in the UK to prescribe prednisone on a permanent basis for someone in extremely severe COPD as a help? It is here in different provinces. Thanks in advance😊
I live in Canada and am wondering if it is standard practice in the UK to prescribe prednisone on a permanent basis for someone in extremely severe COPD as a help? It is here in different provinces. Thanks in advance😊
Wolffers
in
Lung Conditions Community Forum
4 months ago
Tapering
It is some time since I posted anything about my PMR journey, but want to share my recent tapering experience. I have been on prednisone for 4.5 years and struggled over covid lockdowns being able to talk to anyone, gp or rheumatoid, when I was having what I thought were flares of pmr when trying to
It is some time since I posted anything about my PMR journey, but want to share my recent tapering experience. I have been on prednisone for 4.5 years and struggled over covid lockdowns being able to talk to anyone, gp or rheumatoid, when I was having what I thought were flares of pmr when trying to
Kiwisufferer2019
in
PMRGCAuk
4 months ago
Please advice
My latest PSA on 6/11/24 was 1.06 up from 0.65 on 4/2/24. I have a meeting with my MO on 4/26 to discuss the next step. I was taking Opdivo immunotherapy from 2/2023 to 2/2024 for bladder cancer. so far my bladder cancer is in check so now I can focus on my PCA. Should I get a PSMA pet? is it time to
My latest PSA on 6/11/24 was 1.06 up from 0.65 on 4/2/24. I have a meeting with my MO on 4/26 to discuss the next step. I was taking Opdivo immunotherapy from 2/2023 to 2/2024 for bladder cancer. so far my bladder cancer is in check so now I can focus on my PCA. Should I get a PSMA pet? is it time to
old64horn
in
Advanced Prostate Cancer
4 months ago
worried
trying to be brief . Diagnosed with PMR last week after approx 2 months of symptoms, ie really stiff in the morning , neck , shoulders , tops of arms and thighs . Understand this is typical , but can’t find info on other random issues like small pockets of pain in various parts of the body , tingling
trying to be brief . Diagnosed with PMR last week after approx 2 months of symptoms, ie really stiff in the morning , neck , shoulders , tops of arms and thighs . Understand this is typical , but can’t find info on other random issues like small pockets of pain in various parts of the body , tingling
Pastamama
in
PMRGCAuk
8 months ago
PMR since July 2018 and down to 1mg. Enter GCA
My Bio is pretty well up to date, until a week ago. Quick summary of things is: I'm ok, vision ok, diagnosed with GCA, and I've gone from 1mg (nearly done...or so I thought) to 60mg. Now on my third day of 60mg and waiting on new bloods I did today and a call from the consultant tomorrow to discuss
My Bio is pretty well up to date, until a week ago. Quick summary of things is: I'm ok, vision ok, diagnosed with GCA, and I've gone from 1mg (nearly done...or so I thought) to 60mg. Now on my third day of 60mg and waiting on new bloods I did today and a call from the consultant tomorrow to discuss
pata63
in
PMRGCAuk
4 months ago
Confusing Lab Test Results
I had a recent PMR flare that necessitated my temporarily going up from the 5mg I had tapered down to to a much higher dose. 20mg for 2 weeks, followed by 15mg for one week and then a drop to 10mg, where I have stayed for almost a month before I resume DL’s slow 5 week taper. Fortunately, my increased
I had a recent PMR flare that necessitated my temporarily going up from the 5mg I had tapered down to to a much higher dose. 20mg for 2 weeks, followed by 15mg for one week and then a drop to 10mg, where I have stayed for almost a month before I resume DL’s slow 5 week taper. Fortunately, my increased
Donna5658
in
PMRGCAuk
4 months ago
Early weeks Prednisone V Adrenaline question?
I would like to ask the experienced team on here if they have seen or investigated if there is a link between the initial “prednisone euphoria” while the adrenal glands are still working…. where one feels like one can carefully manage a reasonable quality of life…. And reducing Prednisone successfully
I would like to ask the experienced team on here if they have seen or investigated if there is a link between the initial “prednisone euphoria” while the adrenal glands are still working…. where one feels like one can carefully manage a reasonable quality of life…. And reducing Prednisone successfully
RosyPollyandMe
in
PMRGCAuk
4 months ago
no implantation
hi guys need your advise please so I had my third egg retrieval and a fresh transfer this time , I had a 5ab and a compact morula transferred. Everything looked great however no implantation as long as I know as am 9dp5dt but no symptoms at all since day 1. I have been pregnant 3 times with no live birth
hi guys need your advise please so I had my third egg retrieval and a fresh transfer this time , I had a 5ab and a compact morula transferred. Everything looked great however no implantation as long as I know as am 9dp5dt but no symptoms at all since day 1. I have been pregnant 3 times with no live birth
Hidden
in
Fertility Network UK
4 months ago
Over Exercise?!!!
Hi. I have always valued all the contributions on this site since I was diagnosed with PMR and GCA in October 2021; this is my first post. Last December I had a PET scan as my ESR and CRP had rocketed ( ESR 102 and ESR 72) and I was definitely in flare mode with increased stiffness and pain. I was put
Hi. I have always valued all the contributions on this site since I was diagnosed with PMR and GCA in October 2021; this is my first post. Last December I had a PET scan as my ESR and CRP had rocketed ( ESR 102 and ESR 72) and I was definitely in flare mode with increased stiffness and pain. I was put
Magsters123
in
PMRGCAuk
8 months ago
ALT and AST levels
Hi all! I'll begin by thanking everyone on this site for the invaluable information I've found here. I'm Gleason 9, very high risk, localized pca. In Jan/Feb I rec'd 5 treatments of SBRT and have been on Lupron and Abiraterone/prednisone for the past 7 months. Just had labs done, and psa is at 0.1. The
Hi all! I'll begin by thanking everyone on this site for the invaluable information I've found here. I'm Gleason 9, very high risk, localized pca. In Jan/Feb I rec'd 5 treatments of SBRT and have been on Lupron and Abiraterone/prednisone for the past 7 months. Just had labs done, and psa is at 0.1. The
Quarky
in
Advanced Prostate Cancer
4 months ago
Does lupron/zytiga cause peripheral neuropathy as side effect?
I have been on Lupron for a year Aberaterone and prednisone for 10 months. Quite suddenly about six or seven weeks ago I developed peripheral neuropathy In my feet and toes. Mild pain, but constant really bad, stinging in my toes and feet. I’ve read that neuropathy can be a side effect of aberaterone
I have been on Lupron for a year Aberaterone and prednisone for 10 months. Quite suddenly about six or seven weeks ago I developed peripheral neuropathy In my feet and toes. Mild pain, but constant really bad, stinging in my toes and feet. I’ve read that neuropathy can be a side effect of aberaterone
pj1121
in
Advanced Prostate Cancer
4 months ago
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