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Neomycin / Prednisolone
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Lepto meningeal involvement. No further treatment. Palliative radiation?
Spouse 10 weeks post Pluvicto and about to embark on a Hail Mary trial of androgen receptor degrader. But yesterday's brain MRI showed spread to dura and leptomeninges. So my lovely light and love of my life is coming to the end of the road we have walked, too briefly, together. Oncologist has already
Spouse 10 weeks post Pluvicto and about to embark on a Hail Mary trial of androgen receptor degrader. But yesterday's brain MRI showed spread to dura and leptomeninges. So my lovely light and love of my life is coming to the end of the road we have walked, too briefly, together. Oncologist has already
Biobro
in
Advanced Prostate Cancer
8 months ago
Abiraterone + Prednisone with Preexisting CAD
On November 1, 2023 a PET scan established that my metastatic prostate cancer is castrate resistance. I added Abiraterone + Prednisone to my 3 monthly Lupron shot. Same PET scan detected severe calcification in multiple coronary arteries, which was confirmed by heart CT scan and angiogram. I have severe
On November 1, 2023 a PET scan established that my metastatic prostate cancer is castrate resistance. I added Abiraterone + Prednisone to my 3 monthly Lupron shot. Same PET scan detected severe calcification in multiple coronary arteries, which was confirmed by heart CT scan and angiogram. I have severe
dac500
in
Advanced Prostate Cancer
4 months ago
Am I an "outlier"?
Simply wanted to report on what happened after I stopped taking Prednisone. I was diagnosed with PMR in August, 2022 and put on 13 mg of prednisone daily and 70mg of Fosamax, once weekly (to counter the bone loss associated with prednisone), In the fall of 2023, I finally got down to 1mg of prednisone
Simply wanted to report on what happened after I stopped taking Prednisone. I was diagnosed with PMR in August, 2022 and put on 13 mg of prednisone daily and 70mg of Fosamax, once weekly (to counter the bone loss associated with prednisone), In the fall of 2023, I finally got down to 1mg of prednisone
Mansplainer101
in
PMRGCAuk
4 months ago
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Facial numbness/tingling and congestion
Hello, I am a 58 year old woman who was diagnosed with GCA 4 months ago. I have been taking medrol (methyprednisolone) and Tocilizumab and just decreased to 12 mg medrol, which is the equivalent of 15 mg. prednisone. Before my initial diagnosis one of my symptoms, in addition to the headaches and jaw
Hello, I am a 58 year old woman who was diagnosed with GCA 4 months ago. I have been taking medrol (methyprednisolone) and Tocilizumab and just decreased to 12 mg medrol, which is the equivalent of 15 mg. prednisone. Before my initial diagnosis one of my symptoms, in addition to the headaches and jaw
sgdevlin
in
PMRGCAuk
4 months ago
Covid infection initiating PMR flareup
I have tested positive for Covid.. it has initiated a PMR flare-up. Gp suggested increasing prednisolone for 3 or 4 days to 13mg, I had reduced to 9mg. Then reduce 1mg / day to 9. Anyone else had a flare up related to covid (I have ha d 6 vaccination re covid) 0
I have tested positive for Covid.. it has initiated a PMR flare-up. Gp suggested increasing prednisolone for 3 or 4 days to 13mg, I had reduced to 9mg. Then reduce 1mg / day to 9. Anyone else had a flare up related to covid (I have ha d 6 vaccination re covid) 0
attempttocycycle
in
PMRGCAuk
8 months ago
colitis
I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then
I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then
Bluegirl1948
in
Crohn's and Colitis Support
4 months ago
How do I know if my Adrenals are not working?
I am down to 3 mgs Prednisone ..had PMR for 3 years..now in a good space...working hard physically and Gym 3-5 times per week..CRP is 4-5...I keep hearing that I have to "wake" my adrenals up? How will I know that they are not "awake"??
I am down to 3 mgs Prednisone ..had PMR for 3 years..now in a good space...working hard physically and Gym 3-5 times per week..CRP is 4-5...I keep hearing that I have to "wake" my adrenals up? How will I know that they are not "awake"??
Matua
in
PMRGCAuk
4 months ago
Stopped taking prednisolone
My PMR journey started December 2019. As covid started soon afterwards and there was no support from the local surgery, Health Unlocked was an absolute godsend. I would therefore like to say a big thank you for the helpful feedbacks received and really did appreciate all the replies for peace of mind
My PMR journey started December 2019. As covid started soon afterwards and there was no support from the local surgery, Health Unlocked was an absolute godsend. I would therefore like to say a big thank you for the helpful feedbacks received and really did appreciate all the replies for peace of mind
Dorsetgirl17
in
PMRGCAuk
8 months ago
Is enteric Prednisone available in France? Does anyone know? Flare!!
Hi my drama with foot and ankle pain has developed into. PMR story. My rheumatologist sent me to a foot ankle doc he trusts who was very thorough and listened to both of us. First doc:?MRI showed only mild Achilles Tendinitis but that was Diagnosis. Rheumie said not where most pain is. Couldn’t do
Hi my drama with foot and ankle pain has developed into. PMR story. My rheumatologist sent me to a foot ankle doc he trusts who was very thorough and listened to both of us. First doc:?MRI showed only mild Achilles Tendinitis but that was Diagnosis. Rheumie said not where most pain is. Couldn’t do
bluegirl7
in
PMRGCAuk
4 months ago
The Big C
Hello friends: After 3 and 1/2 years of GCA and prednisone, I think I’m pretty much free. I’m down to 1 mg every other day. As providence has dictated, I was just diagnosed with triple negative breast cancer, which is an aggressive and unforgiving cancer. My question regards my current Immune state
Hello friends: After 3 and 1/2 years of GCA and prednisone, I think I’m pretty much free. I’m down to 1 mg every other day. As providence has dictated, I was just diagnosed with triple negative breast cancer, which is an aggressive and unforgiving cancer. My question regards my current Immune state
Snerd
in
PMRGCAuk
4 months ago
Hoilday
I started a Zytiga holiday yesterday. Still on Lupron for now. How long should I keep taking prednisone? I know Zytiga clears out pretty fast.
I started a Zytiga holiday yesterday. Still on Lupron for now. How long should I keep taking prednisone? I know Zytiga clears out pretty fast.
gsun
in
Advanced Prostate Cancer
4 months ago
Fastest and safest way to get off prednisone
I have postef most of my history and story fee times on this site, Have been on prednisone so 71/2 years, started at 40 mgs back then , was down to 4 mgs dec 2022, but rheumy increased pred at that point to 40 again, bcause of potential GCA, then used dead slow method to get to 6 mgs spring of 2023,,
I have postef most of my history and story fee times on this site, Have been on prednisone so 71/2 years, started at 40 mgs back then , was down to 4 mgs dec 2022, but rheumy increased pred at that point to 40 again, bcause of potential GCA, then used dead slow method to get to 6 mgs spring of 2023,,
arvine
in
PMRGCAuk
4 months ago
Second Opinion
I was originally told I had possible CP after EUS showed scar tissue on pancreas. I had additional labs done for any autoimmune issues and my IgG 4 was elevated and I was then told AIP and put on prednisone. I haven't been happy with the communication in my Drs office so I got a second opinion from
I was originally told I had possible CP after EUS showed scar tissue on pancreas. I had additional labs done for any autoimmune issues and my IgG 4 was elevated and I was then told AIP and put on prednisone. I haven't been happy with the communication in my Drs office so I got a second opinion from
TiffanysPancreas
in
Chronic Pancreatitis Support
4 months ago
To continue after round 7?
Hello IVF Warriors I hope you are well. I have not posted on here before and I don’t know really where to start so please excuse me if the post seems a little jumbled and too long. Please also note I do not have have specific stats on me and the post is a little generic in some ways. We have had our
Hello IVF Warriors I hope you are well. I have not posted on here before and I don’t know really where to start so please excuse me if the post seems a little jumbled and too long. Please also note I do not have have specific stats on me and the post is a little generic in some ways. We have had our
Annjali
in
Fertility Network UK
8 months ago
Periodontal Abscess while on Prednisone
Hello to the group. I have just developed an abscess on the gum of a tooth that had a root canal and crown done 2 years ago. I saw a different person in my dentist’s practice today who confirmed the abscess and said I should go back asap to the endodontist who did the original root canal for either
Hello to the group. I have just developed an abscess on the gum of a tooth that had a root canal and crown done 2 years ago. I saw a different person in my dentist’s practice today who confirmed the abscess and said I should go back asap to the endodontist who did the original root canal for either
Donna5658
in
PMRGCAuk
4 months ago
so confusing
I had PMR in my 50s. Was treated with prednisone until the PMR burned itself little over a year later. Last June, 20 years later, my hands and wrists became a problem. No swelling but pain & stiffness in fingers and wrists. Carpal tunnel syndrome was the first dx. Over the summer pain and stiffness
I had PMR in my 50s. Was treated with prednisone until the PMR burned itself little over a year later. Last June, 20 years later, my hands and wrists became a problem. No swelling but pain & stiffness in fingers and wrists. Carpal tunnel syndrome was the first dx. Over the summer pain and stiffness
BorderLuv
in
PMRGCAuk
4 months ago
Prednisone to Deal With Exercise Inflammation ?
During most of my life, I've experienced a lot of stiffness and soreness after exercise. I've often quiried my friends who exercise similarly whether they experience a similar degree of stiffness and soreness. The answer has always been no. Thus, I have speculated for some time that I just don't clear
During most of my life, I've experienced a lot of stiffness and soreness after exercise. I've often quiried my friends who exercise similarly whether they experience a similar degree of stiffness and soreness. The answer has always been no. Thus, I have speculated for some time that I just don't clear
soreoldbiker
in
PMRGCAuk
4 months ago
never heard of GCA
Hi,I’m a 72yr old ex nurse. On 23rd Dec 24 I phoned my optician with regards to much reduced vision in left eye. He said he had noticed start of cataract at check 6 mths ago and thought this had just accelerated. He made appt for Jan 2nd. I had left side pain in face, lost weight, tired but didn’t link
Hi,I’m a 72yr old ex nurse. On 23rd Dec 24 I phoned my optician with regards to much reduced vision in left eye. He said he had noticed start of cataract at check 6 mths ago and thought this had just accelerated. He made appt for Jan 2nd. I had left side pain in face, lost weight, tired but didn’t link
NinnyB
in
PMRGCAuk
4 months ago
Glaucoma and steroids
Recently I had an eye infection and the eye doctor prescription an antibiotic eye drops that contained a steroid for inflammation. Maxitrol. At the time I followed his instructions for treatment but now after I have excessive eye pressure and he diagnosed me with glaucoma in the eye he was treating.
Recently I had an eye infection and the eye doctor prescription an antibiotic eye drops that contained a steroid for inflammation. Maxitrol. At the time I followed his instructions for treatment but now after I have excessive eye pressure and he diagnosed me with glaucoma in the eye he was treating.
Eyak1971
in
Kidney Transplant
4 months ago
Chest infection
My husband who has been on 200mg of Venetoclax for two years now has been ill since New years day, first the doctor thought flu because his chest sounded pretty clear however she gave him 7 days amoxacillan just to be on the safe side, covid tests negative, he has now got a full blown chest infection
My husband who has been on 200mg of Venetoclax for two years now has been ill since New years day, first the doctor thought flu because his chest sounded pretty clear however she gave him 7 days amoxacillan just to be on the safe side, covid tests negative, he has now got a full blown chest infection
Alfiebhoy
in
CLL Support
4 months ago
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