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GCA Flare~~ status and explanationsđ
You are ALL just an awesome army of encouragement and support. My state of mind is rather unusual for me. As a child, if I had an upset stomach, my mother would put ginger ale in a glass and stir it with a spoon until all the bubbles and carbonation were gone. I feel like flat ginger ale. Yesterday
You are ALL just an awesome army of encouragement and support. My state of mind is rather unusual for me. As a child, if I had an upset stomach, my mother would put ginger ale in a glass and stir it with a spoon until all the bubbles and carbonation were gone. I feel like flat ginger ale. Yesterday
Grammy80
in
PMRGCAuk
4 days ago
ADVICE PLEASE
I'm asking here rather than my doctor because I'm embarrassed about what I've done and how ignorant I have been. Not only that but my rheumatologist gives me the utmost Trust in allowing me to determine the best prednisone dose for me. So after about a week of unrelenting horrible pain that I had been
I'm asking here rather than my doctor because I'm embarrassed about what I've done and how ignorant I have been. Not only that but my rheumatologist gives me the utmost Trust in allowing me to determine the best prednisone dose for me. So after about a week of unrelenting horrible pain that I had been
Amkoffee
in
PMRGCAuk
5 days ago
Ongoing maintenance
Hello againHaving successfully, hopefully, reached 3mg prednisone after 4 years and planning the ever so slow descent to zero, can I please ask those of you happily free of the drug if you take any supplements claiming to suppress inflammation? As a precaution?
Hello againHaving successfully, hopefully, reached 3mg prednisone after 4 years and planning the ever so slow descent to zero, can I please ask those of you happily free of the drug if you take any supplements claiming to suppress inflammation? As a precaution?
Caloo650
in
PMRGCAuk
5 days ago
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Can I take Xtandi + prednisone?
I have kidney injury and doctor prescribed the prednisone 60MG mostly related clinic trials Can I take Xtandi with prednisone 60mg ?
I have kidney injury and doctor prescribed the prednisone 60MG mostly related clinic trials Can I take Xtandi with prednisone 60mg ?
God_Loves_Me
in
Advanced Prostate Cancer
5 days ago
Sudden diabetes diagnoses
Hi I am a 62 year old male, who has been on Prednisone for two years now. I am currently on 6.5mg of Prednisone. In the last week I suddenly had the following symptoms; blurred vision, extreme thirst, increased urination, feeling very tired. My GP had me admitted to hospital on the back of high blood
Hi I am a 62 year old male, who has been on Prednisone for two years now. I am currently on 6.5mg of Prednisone. In the last week I suddenly had the following symptoms; blurred vision, extreme thirst, increased urination, feeling very tired. My GP had me admitted to hospital on the back of high blood
Ligaamisgefok
in
PMRGCAuk
5 days ago
Looking for anyone who has done Dendritic Cell Therapy in India?
hi! My dad was diagnosed with PCA in Feb 2024 and has been on doublet therapy. He has high volume bone mets with no symptoms. Currently he is on zytiga and prednisone (5mg). He got bilateral orchidectomy done in febâ24. We are considering dendritic cell therapy for him to be done next month. His MO
hi! My dad was diagnosed with PCA in Feb 2024 and has been on doublet therapy. He has high volume bone mets with no symptoms. Currently he is on zytiga and prednisone (5mg). He got bilateral orchidectomy done in febâ24. We are considering dendritic cell therapy for him to be done next month. His MO
Justgettingitright
in
Advanced Prostate Cancer
5 days ago
How did you know you were losing your kidney?
hi all - I posted here a few months ago freaking out about my creatinine spiking after many years of stability. Itâs been months of trial and error and Iâm at my wits end and would just like to get a sense from others what it was like or how it felt when your transplanted kidney started failing you.
hi all - I posted here a few months ago freaking out about my creatinine spiking after many years of stability. Itâs been months of trial and error and Iâm at my wits end and would just like to get a sense from others what it was like or how it felt when your transplanted kidney started failing you.
SOct91
in
Kidney Transplant
5 days ago
Prednisone for FET - any experience
Good evening âď¸, Hope everyone is well. Last minute question as usual from me, as my follow up is tomorrow morning đŹ. Think I like to ignore it for as long as possible. Basically I have now had 9 embryo transfers of 10 embryos (one double). I had one early miscarriage March 2021 (pre 7 weeks) and
Good evening âď¸, Hope everyone is well. Last minute question as usual from me, as my follow up is tomorrow morning đŹ. Think I like to ignore it for as long as possible. Basically I have now had 9 embryo transfers of 10 embryos (one double). I had one early miscarriage March 2021 (pre 7 weeks) and
Booda21
in
Fertility Network UK
5 days ago
Covid, Tapering and Actemra
Hi, I have a mild case of Covid (my 3rd bout.) I had already tapered down to 2 mg. pred. and had been feeling quite well. (I am also on Actemra, which seems to be working well, in my case.) Should I stop the Actemra while I am sick? And just hold steady with the 2 mg. prednisone? Thanks for this
Hi, I have a mild case of Covid (my 3rd bout.) I had already tapered down to 2 mg. pred. and had been feeling quite well. (I am also on Actemra, which seems to be working well, in my case.) Should I stop the Actemra while I am sick? And just hold steady with the 2 mg. prednisone? Thanks for this
Lenore58
in
PMRGCAuk
6 days ago
Does GCA affect eyes in an all-or-nothing way, or are there degrees?
Hello GCA folks, I am on month 3 of prednisone (currently 15 mg), after PMR diagnosis in early June. Age 60. My question for you is: when your GCA came on, did you experience a sudden loss of vision, or did it come on gradually? And if gradual, did it affect all ranges (i.e., near, mid- and distance
Hello GCA folks, I am on month 3 of prednisone (currently 15 mg), after PMR diagnosis in early June. Age 60. My question for you is: when your GCA came on, did you experience a sudden loss of vision, or did it come on gradually? And if gradual, did it affect all ranges (i.e., near, mid- and distance
Bunchberry
in
PMRGCAuk
6 days ago
Update ..pulse therapy with methylprednisolone for GCA flare
Most importantly, thank you to all of you for your support. I wouldn't be where I am without you. My intentions of an update were there yesterday, but I am here at any rate. I'm just a thankful 'Pred-mess' at the moment. After the first 1000mg on Thursday, I was just 'wired.' I sat up that whole day
Most importantly, thank you to all of you for your support. I wouldn't be where I am without you. My intentions of an update were there yesterday, but I am here at any rate. I'm just a thankful 'Pred-mess' at the moment. After the first 1000mg on Thursday, I was just 'wired.' I sat up that whole day
Grammy80
in
PMRGCAuk
6 days ago
What clinic trials have been successful?
My husband's next oncologist appointment is tomorrow. PSA is at 74. It has been a roller coaster ride since March 2017. Prostate removed with many complications in hospital. Was there for 2 weeks, which should have been 2 days. Was weak for several months after. Follow up appointment 3 months later
My husband's next oncologist appointment is tomorrow. PSA is at 74. It has been a roller coaster ride since March 2017. Prostate removed with many complications in hospital. Was there for 2 weeks, which should have been 2 days. Was weak for several months after. Follow up appointment 3 months later
Docker53
in
Advanced Prostate Cancer
7 days ago
How do You split your Pred dosage?
Hi, If you take two doses of Pred each day, please tell me how much (%) and when do you take your split dosages of Prednisone? Splitting the dose came up in my recent thread and I am looking into doing it. Thank you!
Hi, If you take two doses of Pred each day, please tell me how much (%) and when do you take your split dosages of Prednisone? Splitting the dose came up in my recent thread and I am looking into doing it. Thank you!
Kritterkid
in
PMRGCAuk
7 days ago
MTX appears to have no improvement
I am supposed to be on 10 mgs of Prednisone but had to increase to 15 mg while in flare with PMR .We are travelling on a bus tour and the early mornings are brutal. In May my Rheumy also put me on MTX which is appearing to have no effect except interrupting my enjoyment of my evening wine .Are there
I am supposed to be on 10 mgs of Prednisone but had to increase to 15 mg while in flare with PMR .We are travelling on a bus tour and the early mornings are brutal. In May my Rheumy also put me on MTX which is appearing to have no effect except interrupting my enjoyment of my evening wine .Are there
Sunny1947
in
PMRGCAuk
7 days ago
Has anyone been successful in knocking out a Klebsiella pneumoniae UTI?
My husband has struggled with recurrent UTIs since 2020 when he was diagnosed with bladder cancer , had several bladder surgeries, many cystoscopies, and yearly prostate biopsiesâŚ.so a lot of poking around .. He has been on antibiotics many times , and has been on daily low dose bactrim for almost
My husband has struggled with recurrent UTIs since 2020 when he was diagnosed with bladder cancer , had several bladder surgeries, many cystoscopies, and yearly prostate biopsiesâŚ.so a lot of poking around .. He has been on antibiotics many times , and has been on daily low dose bactrim for almost
CancerConcierge
in
Advanced Prostate Cancer
7 days ago
PMR Really?
I am 57 year old female with severe body pain. The all over pain is ache but the severe pain is lower back. When I explained this to rheumatologist she diagnosed PMR. Started taking 20 mg prednisone. It helped with the ache but the back pain is still there. It eased the back pain some but not all the
I am 57 year old female with severe body pain. The all over pain is ache but the severe pain is lower back. When I explained this to rheumatologist she diagnosed PMR. Started taking 20 mg prednisone. It helped with the ache but the back pain is still there. It eased the back pain some but not all the
KimmyK961
in
PMRGCAuk
7 days ago
Advice please....high stress
Okay, here's the deal. I am currently on 4 mg of prednisone. Started the 7 week reducing from 4 1/2 mg back towards the end of May. I have been on 4 steady for a little over two weeks and have struggled with anxiety for the last two weeks due to a serious medical situation with my son. Next week
Okay, here's the deal. I am currently on 4 mg of prednisone. Started the 7 week reducing from 4 1/2 mg back towards the end of May. I have been on 4 steady for a little over two weeks and have struggled with anxiety for the last two weeks due to a serious medical situation with my son. Next week
ILbbHpmr
in
PMRGCAuk
8 days ago
Prednisone, hormonal imbalance & TTC
Hi, I'm reaching out to this wonderful community for some support. I am a 33-yo woman, diagnosed with Lupus Dec ´22. I experienced no lupus symptoms (apart from migraines) until I began experiencing Raynaudâs in Oct ´21 i think (had my first two covid vaccinations in June and August ´21, just putting
Hi, I'm reaching out to this wonderful community for some support. I am a 33-yo woman, diagnosed with Lupus Dec ´22. I experienced no lupus symptoms (apart from migraines) until I began experiencing Raynaudâs in Oct ´21 i think (had my first two covid vaccinations in June and August ´21, just putting
Shelly1919
in
LUPUS UK
8 days ago
What to expect from a 10 percent reduction?
After 4-5 months on 7.5mg prednisone I have reduced to 6.8 (approximately). I have been on 6.8 for 10 days now and I am ok except for being fatiqued. Is that to be expected even though the reduction is less than 10 percent? And for how long should I wait before going back to 7.5mg? I have to get at least
After 4-5 months on 7.5mg prednisone I have reduced to 6.8 (approximately). I have been on 6.8 for 10 days now and I am ok except for being fatiqued. Is that to be expected even though the reduction is less than 10 percent? And for how long should I wait before going back to 7.5mg? I have to get at least
Quintius
in
PMRGCAuk
8 days ago
Shelf life of Prednisone?
Does Prednisone last longer than the expiration date on the bottle? Thank you!
Does Prednisone last longer than the expiration date on the bottle? Thank you!
Kritterkid
in
PMRGCAuk
8 days ago
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