My husband has struggled with recurrent UTIs since 2020 when he was diagnosed with bladder cancer , had several bladder surgeries, many cystoscopies, and yearly prostate biopsies….so a lot of poking around ..
He has been on antibiotics many times , and has been on daily low dose bactrim for almost a year for a Klebsiella pneumoniae infection that always reoccurs when he tries to go off . He had one consult with an infectious disease doctor at Mayo , otherwise sees a Urology PA at Mayo .
He tried another antibiotic for about a month in June , but the infection came back and he is back on Bactrim.
He is on Orgovyx, Abiraterone and Prednisone, post radiation, for Gleason 9 (PSA 46.6 before treatment)… but I think he worries more about the infection some days, than the cancer.
Any recommendations/ advice?
Thanks
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Klebsiella pneumoniae is a contagious bacteria that can cause urinary tract infections (UTIs) in people who have catheters inserted during a hospital stay. UTIs caused by Klebsiella pneumoniae can be life-threatening, especially for people with serious illnesses.
Thanks for the link.. We are in Arizona, and when I set the filter for AZ there were no names given.
I will look at nearby by states….maybe a Zoom consult.
It is frightening, for both of us, from everything we’ve read… the infectious disease Doctor only recommended a six month course of Bactrim … which did not resolve the infection. We will see if we can get scheduled with him again… our urologist did not refer at our request, but the MO did.
several thoughts. He almost certainly has scarring which provides a breeding ground for bacteria.
Has the Kleb culture been checked for antibiotic sensitivity/ resistance?
Have rotating antibiotics been considered?
A simple safe option which might be worth a shot is to take daily mannose. It is excreted in the urine and, since many bacteria use a mannose binding site to adhere to the bladder wall, the mannose helps elimination of the bacteria. May do nothing, but worth a shot for a few weeks. You can buy mannose on Amazon.
Good luck. I would definitely raise the question of using a regime of rotating antibiotics. I doubt he can clear it completely but the goal will be to keep it suppressed.
I agree that Mannose D is very useful for UTIs. It comes in a powder or capsules and is widely available in most vitamin stores and online. He would need to take about 1500-2000 mg initially for a few days and then a maintenance dose of 1000 mg. He would also need to drink a full glass of water when taking the mannose. Drinking water also helps to flush out bacteria from the bladder.
I sure dont know why but do you have experience with UTI ? The caring sister here is trying to save her husbands life (read J-O-H-N-'s reply at the top of the thread). With medical science. Your disdain for the medical profession is probably and correctly not welcome. It's self serving and not helpful at all. Some of us are near the end. We don't have the time and obviously won't be helped by your playing scientist researcher and worse yet promoting these things you promote. Might be fine for someone who has been cured or actually maybe not. Again you are not a trusted doctor, scientist, researcher and shouldnt be anyone else's.
Camp soups I’m sorry you’re at the end of this dreaded disease but please don’t chastise my experience w these drugs. I don’t state that I’m a dr, scientist or anything else that you wrongly accuse me of, I just simply state my experience w this horrible disease and It’s up to people to believe what they want. That’s what we’re here for to help each other get info on what actually does n does not work and furthermore it wasn’t my post that was deleted, cancer concierge deleted the post on their own!
I did not, I went off zytiga n adt on my own as I hated the way I felt. I did heavy research n found out about ivermectin being repurposed as an anti cancer drug specifically pca and am having very encouraging results thus far, 2 years in… good luck w your situation n keep us posted…😁
You’re coming off like you are but anyways quit w the attacks if you want to be one dimensional go right ahead but don’t deprive the rest of us all treatments available, we’re all here to listen to each one’s treatments and how people respond accordingly..!
And to answer your question about my experience w zytiga, I didn't like it but they add prednisone and that actually helps with energy n boost of mood. Prednisone is a corticosteroid, so they take away one’s testosterone n try to supplant it with a different type of steroid, as synthetic testosterone is an anabolic steroid. I wound up getting off all the harmful drugs n use ivermectin, now considering taking trt( testosterone) contra indicative to what they preach. In my opinion doesn’t work on average for more than two years as pca becomes castrate resistant…
This is the site for Advanced Prostate Cancer, a lot of courageous men trying to fight the beast and support each other. They are brave and smart, an occaisonal squabble is not of great concern. IMO
As a brave and courageous woman who has fought the beast twice, I understand. I shall leave the group as I’ve been asked not to post.
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