You are ALL just an awesome army of encouragement and support. My state of mind is rather unusual for me. As a child, if I had an upset stomach, my mother would put ginger ale in a glass and stir it with a spoon until all the bubbles and carbonation were gone. I feel like flat ginger ale.
Yesterday, Monday for me, I had my visit with the rheumatologist. The inflammation of this disease of ours (blessing never to be alone) has swollen the optic nerve and nerve head of my good eye. The optic disc is also swollen, which is why I've lost a bit of vision. I can still see, for sure. It just seems hazy, and I do notice the loss of peripheral vision, too....but it's not a big deal. My doctor felt that the neuro-ophthalmologist had done exactly the right thing by immediately ordering the pulse therapy. The fact that they are working together so well makes me feel very fortunate. It is possible for the vision to return as time passes, too. I'm taking 60 mg of Prednisone per day. I'm happy that it is there for me, but it puts me in low gear ~~pred-head makes me feel like I had all those glasses of wine I denied myself.
I'm all about a positive attitude; I'm not depressed, just subdued for me; sometimes, I feel like a spectator. If you were around me all the time, I can be 'over-the-top' with enthusiasm. For now, I am strictly relaxing and responding! to my body...if it wants to be awake until 3:00 am...or sleep at 1:pm....eat...I say, "OK, boss." My blood pressure is excellent, and that is a good thing. My husband has been wonderful. This flare roused his curiosity about GCA (finally), and I'm glad he's helpful. With his dementia and my 'head' we are a pair...but it works.
I'll be seeing the neuro-opthalmologist on the 20th, next Wednesday. The rheumy said I'd be seeing him (N-O)more frequently since he has the equipment and expertise. It will be back to the rheumy in one month...oh, he (N-O) also increased my Gabapentin to 300mg, four times a day. That improved my vision during a flare a few years back. I believe the key is to chill out and focus on getting the swelling down and hopefully avoid additional vision loss and maybe recover some of what appears lost at this point in time. This is possible over a 3-4 month period. Even if things stayed just the way they are, I would be thankful.
Enough about me....a big thanks to each of you~!!💞🫂💞
(It is almost 10 pm, Tuesday eve)
Checking your date is what cleared my head for my own appointment!
PMR Tapering
Covid Sick Day Rules
Feeling a bit down and lonely today so logged on here to connect with 'my (PMR) tribe'even though I should be doing other things
Plaquenil for PMR
Is it PMR pain if only right side
