Covid, Tapering and Actemra: Hi, I have a mild... - PMRGCAuk

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Covid, Tapering and Actemra

Lenore58 profile image
9 Replies

Hi,

I have a mild case of Covid (my 3rd bout.) I had already tapered down to 2 mg. pred. and had been feeling quite well. (I am also on Actemra, which seems to be working well, in my case.)

Should I stop the Actemra while I am sick? And just hold steady with the 2 mg. prednisone?

Thanks for this amazing resource. xx

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Lenore58 profile image
Lenore58
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9 Replies
Gangley profile image
Gangley

Hello Lenore 58. When I was on Actemra my Dr. always took me off it when I had any infection. I believe the literature provided also says that. I would check with your Dr.

Lenore58 profile image
Lenore58 in reply toGangley

Yes, that does seem to be the consensus in what I’ve read online; which is why I’ve opted to stop Actemra for now. My doctor is not as quick a response as I find on this website! Thank you for responding!

Gangley profile image
Gangley in reply toLenore58

You're welcome and hope your Covid clears soon.

PMRpro profile image
PMRproAmbassador

I think you would/should be told to stop Actemra if unwell. My rheumy department does. They say to wait until you are recovered to restart,

Lenore58 profile image
Lenore58 in reply toPMRpro

Thanks, Pro. I reached out to my rheumy, but it usually takes a couple days to hear back. I expect she will say to hold off until I’m better as well.

Sharitone profile image
Sharitone

I have had to stop Actemra twice for Covid, and also for pneumonia. I was told that I should wait not only for the test to be negative, but also any cough, etc to have cleared up properly as well.

Lenore58 profile image
Lenore58 in reply toSharitone

Thank you!

Musiclady18 profile image
Musiclady18

My recollection, I am now on Methotrexate and no longer on Prednisone, is to stop taking the med until you are over the infection. Good luck !

Lenore58 profile image
Lenore58 in reply toMusiclady18

Thank you!

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