I'm globally hypermobile with polyarthralgia & SLE related synovitis diagnosed in several joints, including the highest cervical joints, & the metatarsals. I also get SLE synovitis pain episodes in shoulders, elbows, wrists, ankles, knees joints etc. I have been managing this type of joint pain all my life and am now 60, and on 400 mg plaquenil daily, which takes the edge off my synovitis mostly.....but not so well in my pelvic girdle.
Am also on 20mg amitriptyline nightly....am not sure if this actually is helping with my chronic pain, but boy oh boy does it help me sleep/rest more soundly).
Anywy, I find that only my rheumy's 4 week 10mg pred tapers really really do reduce my pelvic girdle synovitis symptoms (sacrum & hip joint SLE related synovitis). Over the decades, NSAIDs and analgesics have failed totally to reduce synovitis pain in these pelvic girdle joints. The rest of my spine (affected by spondylosis) has responded vvv well to permanent facet joint denervations, and anyway, apparently the other spinal joints are not synovial. I've spent a lifetime managing to have a sort of career inspite of joint pain....via the Alexander technique, gentle stretching exercise (Pilates, yoga etc), antiinflammation diet & supplements, meditation, pacing myself/rationing activity, mindfulness etc etc, but all that has only helped "so much"....this is why I was so thrilled by the help pred tapers do give me, and why i now have high hopes for myco
I'm about to try mycophenolate, because my highly lupus experienced rheumy doesn't want me on pred long term (although I am allowed 3 pred tapers per year)
So, I'm hoping to hear from someone here who finds myco has helped with their persistent SLE related pelvic girdle synovial pain in sacrum & hips