Search
Search
About
Log in
Join
Experiences with
Mycophenolate
Posts
Communities
789 public posts
Filter results
Cyclophosphamide
I have had a few problems this year and have had my
mycophenolate
increased to 3 X 2 a day. My consultant says it may take up to 6 Months to feel an improvement and if not then we can try cyclophosphamide treatment. Has anyone had any experience of this?
I have had a few problems this year and have had my
mycophenolate
increased to 3 X 2 a day. My consultant says it may take up to 6 Months to feel an improvement and if not then we can try cyclophosphamide treatment. Has anyone had any experience of this?
Jennifer1950
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Feeling let down, frustrated, angry, scared....Anyone else battled to get a referral outside their area health board?
I finally found a Dermatologist this year, (My Knight) who has helped me no end and prescribed me 3g
Mycophenolate
a day, in an attempt to get my residual symptoms under control. Symptoms that were mainly systemic and should have been treated by my Rheumy.
I finally found a Dermatologist this year, (My Knight) who has helped me no end and prescribed me 3g
Mycophenolate
a day, in an attempt to get my residual symptoms under control. Symptoms that were mainly systemic and should have been treated by my Rheumy.
Wendy39
in
LUPUS UK
8 years ago
Tips for starting mycophenolate?
I'm on hydroxycholoquine and 15mg prednisilone atm, and starting
mycophenolate
today. Anyone got any tips on minimising the potential side effects when starting? Any other thoughts? Thanks x
I'm on hydroxycholoquine and 15mg prednisilone atm, and starting
mycophenolate
today. Anyone got any tips on minimising the potential side effects when starting? Any other thoughts? Thanks x
whisperit
in
LUPUS UK
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Advice please!
I was diagnosed with organising pneumonia/ interstitial lung disease last year and after much steroid treatment, was given
mycophenolate
mofetil as the doctors felt that the lung problem was indicative of an underlying autoimmune disease that they have yet to diagnose.
I was diagnosed with organising pneumonia/ interstitial lung disease last year and after much steroid treatment, was given
mycophenolate
mofetil as the doctors felt that the lung problem was indicative of an underlying autoimmune disease that they have yet to diagnose.
Evine
in
LUPUS UK
8 years ago
Churg Strauss- alternative treatments??
Tried
Mycophenolate
but not successful. ANCA always positive. Mostly ESR and CRP are normal. Sometimes wonder if I really have CS when I read posts here. I would love to know if anyone has benefitted from any alternative therapies? About to try acupuncture. Have a rich anti inflammatory diet.
Tried
Mycophenolate
but not successful. ANCA always positive. Mostly ESR and CRP are normal. Sometimes wonder if I really have CS when I read posts here. I would love to know if anyone has benefitted from any alternative therapies? About to try acupuncture. Have a rich anti inflammatory diet.
vivavida
in
Vasculitis UK
8 years ago
Being realistic about recovery v retirement
By the time the
mycophenolate
is working, I will be on the verge on going to zero sick pay i.e. no income whatsoever! My question is this: is it realistic to imagine i might return to work?If so, when? Or should I cut my losses now and negotiate early retirement?
By the time the
mycophenolate
is working, I will be on the verge on going to zero sick pay i.e. no income whatsoever! My question is this: is it realistic to imagine i might return to work?If so, when? Or should I cut my losses now and negotiate early retirement?
whisperit
in
LUPUS UK
8 years ago
Better to use a forearm Crutch than a stick walking long distance outside.
I am now on myfenax 250mg
mycophenolate
& down to one steroid tablet now my kidneys is now back to normal & my illness is now in remission. What I want to ask is between my lillness & Chemo my mobility Is now effected very bad on bad feet My legs get sore and very tired balance not great at times.
I am now on myfenax 250mg
mycophenolate
& down to one steroid tablet now my kidneys is now back to normal & my illness is now in remission. What I want to ask is between my lillness & Chemo my mobility Is now effected very bad on bad feet My legs get sore and very tired balance not great at times.
Fred27
in
NRAS
8 years ago
Update on my Dermatology Appointment, with my Knight, 13th September
last Tuesday 13th September and am now up to 3 grams a day on the
Mycophenolate
Mofetil. I had to wait 2 hours to see my Knight in clinic. Appt was 4.40pm and I went in at 6.40pm. He couldn't believe that I had waited to see him. But that appt was so important to me.
last Tuesday 13th September and am now up to 3 grams a day on the
Mycophenolate
Mofetil. I had to wait 2 hours to see my Knight in clinic. Appt was 4.40pm and I went in at 6.40pm. He couldn't believe that I had waited to see him. But that appt was so important to me.
Wendy39
in
LUPUS UK
8 years ago
Is it the drugs, the condition, or something else?
from the drugs, and last week, my respiratory consultant suggested I start
mycophenolate
soon (I haven't done this yet).
from the drugs, and last week, my respiratory consultant suggested I start
mycophenolate
soon (I haven't done this yet).
whisperit
in
LUPUS UK
8 years ago
Support needed please
I take Hydroxychloroqine and
Mycophenolate
and have regular blood tests. About two years ago I saw a surgery nurse because l thought I had thrush (vaginal) and she gave me Canestan cream. I mentioned I was a bit swollen and she nodded her head !
I take Hydroxychloroqine and
Mycophenolate
and have regular blood tests. About two years ago I saw a surgery nurse because l thought I had thrush (vaginal) and she gave me Canestan cream. I mentioned I was a bit swollen and she nodded her head !
bones-bones
in
The Australian Sjögren's Syndrome Association
8 years ago
Back from my hols
so spent most of the time under parasol, because of
mycophenolate
.
so spent most of the time under parasol, because of
mycophenolate
.
fairy56
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Cellcept v myfenax update
I posted a while ago that I was concerned that my symptoms had stared to return after I swapped from branded
mycophenolate
, (cellcept) to the NHS unbranded (myfenax) I saw the specialistnurse last week and expressed my theory.
I posted a while ago that I was concerned that my symptoms had stared to return after I swapped from branded
mycophenolate
, (cellcept) to the NHS unbranded (myfenax) I saw the specialistnurse last week and expressed my theory.
creaky
in
LUPUS UK
8 years ago
Does anyone recognise this pattern?
Since then I have been on several cocktails of drugs including
mycophenolate
, hydroxychloroquine, prednisone, nifedipine, lorsartan and recently naproxen, gabapentin and montelukast. Despite the help of some fantastic people the disease marches on at an alarming rate.
Since then I have been on several cocktails of drugs including
mycophenolate
, hydroxychloroquine, prednisone, nifedipine, lorsartan and recently naproxen, gabapentin and montelukast. Despite the help of some fantastic people the disease marches on at an alarming rate.
Jacksons_dad
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Low White Blood Cell Count
I take a Hydroxychloroquine, an antidepressant, and Vitamin D - was going to start
mycophenolate
but the low WBC has prevented this. So I will be starting Prednisolone shortly. Does anyone have any suggestions for how else to raise your WBC or anything I can be doing to help myself/eating etc?
I take a Hydroxychloroquine, an antidepressant, and Vitamin D - was going to start
mycophenolate
but the low WBC has prevented this. So I will be starting Prednisolone shortly. Does anyone have any suggestions for how else to raise your WBC or anything I can be doing to help myself/eating etc?
chloeabradley
in
LUPUS UK
8 years ago
Immuran (Azathioprine )50 mg twice or Myfortic 360 mg twice daily (mycophenolate sodium )
Immuran (Azathioprine )50 mg twice OR Myfortic 360 mg twice daily (
mycophenolate
sodium ) is better for MCTD or lupus and Sjogren?? any experience? i have to choose between them !
Immuran (Azathioprine )50 mg twice OR Myfortic 360 mg twice daily (
mycophenolate
sodium ) is better for MCTD or lupus and Sjogren?? any experience? i have to choose between them !
Samaka
in
LUPUS UK
8 years ago
Recently Diagnosed with Systemic Scleroderma.
I have been prescribed Evacal, Adalat, Codeine Phosphate, Omeprazole, Pregabalin, & yesterday started on
Mycophenolate
. My lungs are now scarred, I get short of breath & I still in pain with my Raynaurds affecting my hands & fingers ankles.
I have been prescribed Evacal, Adalat, Codeine Phosphate, Omeprazole, Pregabalin, & yesterday started on
Mycophenolate
. My lungs are now scarred, I get short of breath & I still in pain with my Raynaurds affecting my hands & fingers ankles.
GillSuffolk
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
How long after finishing a course of steroids do they continue to have an effect?
I then started 1g of
Mycophenolate
Mofetil on Tuesday 19th July. I was warned I might get a "kick back" from the steroids but when? And what will it involve? I have noticed the fatigue slowly creeping back in. Then today, nausea and a feeling of overwhelmingly heat & sweaty and faint.
I then started 1g of
Mycophenolate
Mofetil on Tuesday 19th July. I was warned I might get a "kick back" from the steroids but when? And what will it involve? I have noticed the fatigue slowly creeping back in. Then today, nausea and a feeling of overwhelmingly heat & sweaty and faint.
Wendy39
in
LUPUS UK
8 years ago
Giant Cell Arteritis and Mycophenolate
I just want to come off the
mycophenolate
and carry on trying to get back to where I was at 3.5mgs a day. Any research I have done as regards
mycophenolate
helping with GCA isn't very encouraging. Most obliged for any assistance.
I just want to come off the
mycophenolate
and carry on trying to get back to where I was at 3.5mgs a day. Any research I have done as regards
mycophenolate
helping with GCA isn't very encouraging. Most obliged for any assistance.
Stkeyna
in
PMRGCAuk
8 years ago
Vaccinations and immune suppressants
I currently take Humira,
Mycophenolate
and aspirin. I have read that I can't have 'live vaccines'. I've also read that Hepititus A & Yellow fever are both 'live vaccines'. My question is does anyone have experience of sorting vaccines whilst on immune suppressants? If yes, how did you get round it.
I currently take Humira,
Mycophenolate
and aspirin. I have read that I can't have 'live vaccines'. I've also read that Hepititus A & Yellow fever are both 'live vaccines'. My question is does anyone have experience of sorting vaccines whilst on immune suppressants? If yes, how did you get round it.
lbishopp
in
Behçet's UK
8 years ago
Pre Rehab assessment @ Mycophenolate Mofetil
What am I going to be asked to do It has been suggested that I take
Mycophenolate
Mofetil PF. What ae the side effects of this drug. I have been on Prednisolone for 2 years with very little effect. One of the lucky ones with this drug. Thank you for your help.
What am I going to be asked to do It has been suggested that I take
Mycophenolate
Mofetil PF. What ae the side effects of this drug. I have been on Prednisolone for 2 years with very little effect. One of the lucky ones with this drug. Thank you for your help.
sunnyday22
in
Lung Conditions Community Forum
8 years ago
1
...
27
28
29
...
40
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
290 results
Vasculitis UK
104 results
Scleroderma & Raynaud's UK (SRUK)
92 results
View top 10 communities
Sort by
Most Relevant
Newest