Hi .....I'm sorry this is going to be an outpouring of tearful misery !
I was diagnosed with Sjogren's about 15 years (but had it for much longer.
I take Hydroxychloroqine and Mycophenolate and have regular blood tests.
About two years ago I saw a surgery nurse because l thought I had thrush (vaginal) and she gave me Canestan cream. I mentioned I was a bit swollen and she nodded her head !
At the time I had peripheral neuropathy in both feet and this started up in my 'undercarriage' About six months later I went back to a GP because the neuropathy and feeling of fullness were getting a lot worse. She examined me ,said I was very dry and otherwise everything was OK. She took a swab and gave me a Thrush tablet. The swab came back negative. A few months later I saw another GP told him about the swelling and he gave me Sylk. Finally I saw by own GP who examined me and said everything looked normal.....steroid cream !
Luckily I saw my Rheumatologist soon after. She said it must me Vulvodynia and started me on Gabapentin . That upset me and I now take Pregabalin. While the neuropathy has calmed down a bit the feeling of swelling is now giving me difficulties peeing late evening when thing are always at their worst.
I am really giving up now as I'm not getting any answers. Has anyone got any ideas ?
I am 72 and counting !