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Mycophenolate
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Increasing mycophenolate dose
Hi everyone, I've been taking
mycophenolate
for 6 months, 500mg a day. At my annual check up with the rheumy last week, she said that she felt it should be increased up to 1500mg over the next 4 weeks.
Hi everyone, I've been taking
mycophenolate
for 6 months, 500mg a day. At my annual check up with the rheumy last week, she said that she felt it should be increased up to 1500mg over the next 4 weeks.
Wengc
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Migraines
I know that
mycophenolate
can cause headache, but the increase doesn't really tie in within time that I started it. Any advice appreciated 🌼🌺🌼
I know that
mycophenolate
can cause headache, but the increase doesn't really tie in within time that I started it. Any advice appreciated 🌼🌺🌼
creaky
in
LUPUS UK
8 years ago
hypersensitivity pneumonitis
, I was diagnosed 3 years ago and have been on large doses of steroids and a course of
Mycophenolate
that didn't agree with me, now they are planning to use a IV drug to supress my immune system, apart from having to take oxygen with me everywhere and all the medication upsets my diabetes life is OK
, I was diagnosed 3 years ago and have been on large doses of steroids and a course of
Mycophenolate
that didn't agree with me, now they are planning to use a IV drug to supress my immune system, apart from having to take oxygen with me everywhere and all the medication upsets my diabetes life is OK
alanloddington
in
Lung Conditions Community Forum
8 years ago
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Well done, LupusUK Forum!
The conclusion was that it was an unusual reaction to
mycophenolate
, and i should stop taking it and wait. So I was stopped, and waited. Unfortunately, the symptoms didn't.
The conclusion was that it was an unusual reaction to
mycophenolate
, and i should stop taking it and wait. So I was stopped, and waited. Unfortunately, the symptoms didn't.
whisperit
in
LUPUS UK
8 years ago
Too much prednisilone or too little? Take a guess!
So stopping my
mycophenolate
hasn't stopped the daily round of hot flushes, shaking, and nausea. My rheumy has suggested cutting down my prednisilone from 10 to 7.5mg, but confesses that this is just a guess.
So stopping my
mycophenolate
hasn't stopped the daily round of hot flushes, shaking, and nausea. My rheumy has suggested cutting down my prednisilone from 10 to 7.5mg, but confesses that this is just a guess.
whisperit
in
LUPUS UK
8 years ago
Pulmonary regurgitation
Thank you so much....Wendy Oh I am taking
mycophenolate
and hydroxych. and losartan..
Thank you so much....Wendy Oh I am taking
mycophenolate
and hydroxych. and losartan..
Wengc
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Mycophenolate/myfortic what's the difference ?
Hi , I have been reading a couple of posts regarding
Mycophenolate
intolerance , it is in my notes that I am
Mycophenolate
intolerant but then I was put on myfortic which is a large orange 360mg tablet, when you Google myfortic it comes up as
Mycophenolate
acid, I believe myfortic is a more gastro resistant
Hi , I have been reading a couple of posts regarding
Mycophenolate
intolerance , it is in my notes that I am
Mycophenolate
intolerant but then I was put on myfortic which is a large orange 360mg tablet, when you Google myfortic it comes up as
Mycophenolate
acid, I believe myfortic is a more gastro resistant
Buffy14
in
LUPUS UK
8 years ago
mycophenolate
I've recently started taking
mycophenolate
after a serious lupus flare , after reading about the side effects I was very reluctant to start taking them , I'm on another 9 other tablet's that I take daily that I also have side effects with that have just started to ease of after nearly 6 months, im now
I've recently started taking
mycophenolate
after a serious lupus flare , after reading about the side effects I was very reluctant to start taking them , I'm on another 9 other tablet's that I take daily that I also have side effects with that have just started to ease of after nearly 6 months, im now
Krissy91
in
LUPUS UK
8 years ago
Mycophenolate intolerant
Flu-like symptoms are typical of
mycophenolate
intolerance, he said, and if they are severe, it's an indication that
mycophenolate
is not for you! The fact that I had a resumption of the symptoms after a repeat challenge made it very likely that this was the cause. So - no more MMF for me!
Flu-like symptoms are typical of
mycophenolate
intolerance, he said, and if they are severe, it's an indication that
mycophenolate
is not for you! The fact that I had a resumption of the symptoms after a repeat challenge made it very likely that this was the cause. So - no more MMF for me!
whisperit
in
LUPUS UK
8 years ago
Mycophenolate fail???
I did this, and over the next few days felt gradually somewhat better. 5 days ago my rheumy instructed me to re-start the
mycophenolate
.
I did this, and over the next few days felt gradually somewhat better. 5 days ago my rheumy instructed me to re-start the
mycophenolate
.
whisperit
in
LUPUS UK
8 years ago
Update cellcept v myfenax
Switched back to cellcept brand of
mycophenolate
rather than the generic myfenax that I had been taking since May.
Switched back to cellcept brand of
mycophenolate
rather than the generic myfenax that I had been taking since May.
creaky
in
LUPUS UK
8 years ago
Medication through the letterbox! A God send.
This has taken the unnecessary hassle out of getting my medication & I can get all the medication that I need including
Mycophenolate
. So simple all you need to do is download an app, my medication is usually delivered within 3 days, but more often than not I get it next day.
This has taken the unnecessary hassle out of getting my medication & I can get all the medication that I need including
Mycophenolate
. So simple all you need to do is download an app, my medication is usually delivered within 3 days, but more often than not I get it next day.
kezzabo
in
LUPUS UK
8 years ago
Anti Synthetase Syndrome - anyone have any feedback? Mind is boggled...
Am currently on Pred and Hydroxychloroquine and should be adding
Mycophenolate
/ MMF soon. Bit apprehensive about it. ANY advice appreciated ! Thanks Nemo
Am currently on Pred and Hydroxychloroquine and should be adding
Mycophenolate
/ MMF soon. Bit apprehensive about it. ANY advice appreciated ! Thanks Nemo
NemoP1980
in
LUPUS UK
8 years ago
Methylprednislone with rituximab infusion
Or take
mycophenolate
for upto 5 years. But would not be able to get pregnant whilst on
mycophenolate
. My problem is im 30 years of age and plan in the near future to have children. My nephrology consultant says rituximab can be given without steroids, anyone had it without steroids??
Or take
mycophenolate
for upto 5 years. But would not be able to get pregnant whilst on
mycophenolate
. My problem is im 30 years of age and plan in the near future to have children. My nephrology consultant says rituximab can be given without steroids, anyone had it without steroids??
Rach459
in
LUPUS UK
8 years ago
Cyclophosphamide
I have had a few problems this year and have had my
mycophenolate
increased to 3 X 2 a day. My consultant says it may take up to 6 Months to feel an improvement and if not then we can try cyclophosphamide treatment. Has anyone had any experience of this?
I have had a few problems this year and have had my
mycophenolate
increased to 3 X 2 a day. My consultant says it may take up to 6 Months to feel an improvement and if not then we can try cyclophosphamide treatment. Has anyone had any experience of this?
Jennifer1950
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Feeling let down, frustrated, angry, scared....Anyone else battled to get a referral outside their area health board?
I finally found a Dermatologist this year, (My Knight) who has helped me no end and prescribed me 3g
Mycophenolate
a day, in an attempt to get my residual symptoms under control. Symptoms that were mainly systemic and should have been treated by my Rheumy.
I finally found a Dermatologist this year, (My Knight) who has helped me no end and prescribed me 3g
Mycophenolate
a day, in an attempt to get my residual symptoms under control. Symptoms that were mainly systemic and should have been treated by my Rheumy.
Wendy39
in
LUPUS UK
8 years ago
Tips for starting mycophenolate?
I'm on hydroxycholoquine and 15mg prednisilone atm, and starting
mycophenolate
today. Anyone got any tips on minimising the potential side effects when starting? Any other thoughts? Thanks x
I'm on hydroxycholoquine and 15mg prednisilone atm, and starting
mycophenolate
today. Anyone got any tips on minimising the potential side effects when starting? Any other thoughts? Thanks x
whisperit
in
LUPUS UK
8 years ago
Advice please!
I was diagnosed with organising pneumonia/ interstitial lung disease last year and after much steroid treatment, was given
mycophenolate
mofetil as the doctors felt that the lung problem was indicative of an underlying autoimmune disease that they have yet to diagnose.
I was diagnosed with organising pneumonia/ interstitial lung disease last year and after much steroid treatment, was given
mycophenolate
mofetil as the doctors felt that the lung problem was indicative of an underlying autoimmune disease that they have yet to diagnose.
Evine
in
LUPUS UK
8 years ago
Churg Strauss- alternative treatments??
Tried
Mycophenolate
but not successful. ANCA always positive. Mostly ESR and CRP are normal. Sometimes wonder if I really have CS when I read posts here. I would love to know if anyone has benefitted from any alternative therapies? About to try acupuncture. Have a rich anti inflammatory diet.
Tried
Mycophenolate
but not successful. ANCA always positive. Mostly ESR and CRP are normal. Sometimes wonder if I really have CS when I read posts here. I would love to know if anyone has benefitted from any alternative therapies? About to try acupuncture. Have a rich anti inflammatory diet.
vivavida
in
Vasculitis UK
8 years ago
Being realistic about recovery v retirement
By the time the
mycophenolate
is working, I will be on the verge on going to zero sick pay i.e. no income whatsoever! My question is this: is it realistic to imagine i might return to work?If so, when? Or should I cut my losses now and negotiate early retirement?
By the time the
mycophenolate
is working, I will be on the verge on going to zero sick pay i.e. no income whatsoever! My question is this: is it realistic to imagine i might return to work?If so, when? Or should I cut my losses now and negotiate early retirement?
whisperit
in
LUPUS UK
8 years ago
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