Diagnosed 4 yrs ago with CS. It is non severe- so far. Long term pred treatment has resulted in osteoporosis and paper thin skin. I have periods without- currently 6 weeks but now symptoms of extreme tiredness, joint pain and sore eyes all back. Have expert consultant who says getting CS patients off steroid is huge challenge. Tried Mycophenolate but not successful. ANCA always positive. Mostly ESR and CRP are normal. Sometimes wonder if I really have CS when I read posts here.
I would love to know if anyone has benefitted from any alternative therapies? About to try acupuncture. Have a rich anti inflammatory diet.
Would be very grateful for any advice/ideas.