Search
Search
About
Log in
Join
Experiences with
Mycophenolate
Posts
Communities
789 public posts
Filter results
Any help with sides of mouth splitting?
Hello there, I'm new here.......I've been diagnosed with limited cutaneous scleroderma 9 months ago and am taking Hydroxychloroquine and
Mycophenolate
....for some months now the sides of my mouth have been splitting - no dry cracked lips, just the corners.
Hello there, I'm new here.......I've been diagnosed with limited cutaneous scleroderma 9 months ago and am taking Hydroxychloroquine and
Mycophenolate
....for some months now the sides of my mouth have been splitting - no dry cracked lips, just the corners.
beachpal
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Budesonide.
I keep having flare ups and they changed my immune suppressants from
mycophenolate
to tacrolimus as they believed
mycophenolate
had stopped working, now I'm flaring again so they want to try changing my steroids.
I keep having flare ups and they changed my immune suppressants from
mycophenolate
to tacrolimus as they believed
mycophenolate
had stopped working, now I'm flaring again so they want to try changing my steroids.
jacqueline121
in
LUPUS UK
8 years ago
What sun cream to use?
Anyway I am going to Tenerife in August with my daughter, son in law and 2 grand daughters, any suggestions as to what brand of sun cream to use, bearing in mind I take
mycophenolate
. I know it has to be 50 factor.
Anyway I am going to Tenerife in August with my daughter, son in law and 2 grand daughters, any suggestions as to what brand of sun cream to use, bearing in mind I take
mycophenolate
. I know it has to be 50 factor.
fairy56
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Mycophenolate Mofetil
Just a quick question for those of you who take
mycophenolate
Mofetil (immunosuppressant). I finally got the go ahead to start taking the medication after suffering from infection after infection. So... I wondered how long it took for you guys to feel the effects (good and bad!)
Just a quick question for those of you who take
mycophenolate
Mofetil (immunosuppressant). I finally got the go ahead to start taking the medication after suffering from infection after infection. So... I wondered how long it took for you guys to feel the effects (good and bad!)
Evine
in
Lung Conditions Community Forum
8 years ago
Mycophenolate
I believe
mycophenolate
is more commonly used in other conditions like lupus and rarely used for RA unless, as with me, there are complications with other health issues. So I'm wondering if anyone here with RA is using or has tried
mycophenolate
in the past as I'd like to hear your experiences?
I believe
mycophenolate
is more commonly used in other conditions like lupus and rarely used for RA unless, as with me, there are complications with other health issues. So I'm wondering if anyone here with RA is using or has tried
mycophenolate
in the past as I'd like to hear your experiences?
wishbone
in
NRAS
8 years ago
Any advice for post transplant appatite loss, nausea and vomiting ?
On adaport 3mg and 4mg daily, 5mg prednisalone and 1gm of
mycophenolate
2 times daily. Any thoughts ?
On adaport 3mg and 4mg daily, 5mg prednisalone and 1gm of
mycophenolate
2 times daily. Any thoughts ?
LAJ123
in
British Liver Trust
8 years ago
Blood in urine
I take Prograf,
Mycophenolate
, aspirin and Doxazosin (8 mg) for blood pressure. Is anyone else experiencing a similar thing? I had a transplant due to PBC and worried it maybe making a return, thanks for reading it and hope your all well.
I take Prograf,
Mycophenolate
, aspirin and Doxazosin (8 mg) for blood pressure. Is anyone else experiencing a similar thing? I had a transplant due to PBC and worried it maybe making a return, thanks for reading it and hope your all well.
Yarnie
in
British Liver Trust
8 years ago
Sore throat
I am on
mycophenolate
1g twice a day prednisolone 5mg daily. Plus other meds like hydrochloroquine. Now I have sore throat. What do I do. I have had these meds for almost 6 mths and more . As some are immunosuppressant.
I am on
mycophenolate
1g twice a day prednisolone 5mg daily. Plus other meds like hydrochloroquine. Now I have sore throat. What do I do. I have had these meds for almost 6 mths and more . As some are immunosuppressant.
favour6
in
LUPUS UK
8 years ago
MMF
hello all, I'm just wondering if anyone has had to stop taking
Mycophenolate
Mofeil , due to blood tests results or anything else, and if so, how fast was the dose reduced? Best wishes Elizabeth
hello all, I'm just wondering if anyone has had to stop taking
Mycophenolate
Mofeil , due to blood tests results or anything else, and if so, how fast was the dose reduced? Best wishes Elizabeth
Bethb
in
Behçet's UK
8 years ago
Still have UTI, but progress at last, fingers crossed anyway.....
I was on mtx but had to stop taking it and am supposed to start taking
mycophenolate
on May 9th. Unless in the unlikely event of this current course of nitrofuantoin clearing this infection, that ain't going to happen. I've yet to have a serious flare, but that certainly ain't going to last.
I was on mtx but had to stop taking it and am supposed to start taking
mycophenolate
on May 9th. Unless in the unlikely event of this current course of nitrofuantoin clearing this infection, that ain't going to happen. I've yet to have a serious flare, but that certainly ain't going to last.
wishbone
in
NRAS
8 years ago
Sclero & hashimotos
Mycophenolate
and losartan & the inevitable Levothyroxine 150 I know I'm not as well as I could be.....aches,fuzzy head , cold ,fluctuating energy levels and weight etc .
Mycophenolate
and losartan & the inevitable Levothyroxine 150 I know I'm not as well as I could be.....aches,fuzzy head , cold ,fluctuating energy levels and weight etc .
judith3
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Exactly 4 years since a big decision
Before trying Thalidomide I also tried Azathioprine, Ciclosporin,
Mycophenolate
Mofetil and Methotrexate. I have been on a lot of different drugs since treatment started in 1998 (fell ill in 1994). And steroids too, of course.
Before trying Thalidomide I also tried Azathioprine, Ciclosporin,
Mycophenolate
Mofetil and Methotrexate. I have been on a lot of different drugs since treatment started in 1998 (fell ill in 1994). And steroids too, of course.
vivdunstan
Volunteer
in
Vasculitis UK
8 years ago
mycophenolate Side effects ?
Hi everyone just an update from my last post- went to see consultant today and he prescribed me
mycophenolate
to take alongside my other medication. I have to see him every month and get bloods done every 2 weeks. Has anyone else had this? Any side effects I should look out for? X
Hi everyone just an update from my last post- went to see consultant today and he prescribed me
mycophenolate
to take alongside my other medication. I have to see him every month and get bloods done every 2 weeks. Has anyone else had this? Any side effects I should look out for? X
Charlottelauren
in
LUPUS UK
8 years ago
Thoughts / experiences of Mycophenolate ?
So another suggestion is
Mycophenolate
, which I've not tried before so wondered what others have experienced ? Any information would be great. I'm currently back on Prednisolone and platelets stable. Thank you all Happy Easter
So another suggestion is
Mycophenolate
, which I've not tried before so wondered what others have experienced ? Any information would be great. I'm currently back on Prednisolone and platelets stable. Thank you all Happy Easter
AnthonyHeard
ITP Support Association
in
ITP Support Association
8 years ago
Neutrophil Count <0.7 whilst Taking Mycophenolate Mofitil
My neurologist has said that these numbers are what he would expect and I am to continue taking the same dose of
mycophenolate
. I have another blood test in a couple of weeks to check the neutrophil count again.
My neurologist has said that these numbers are what he would expect and I am to continue taking the same dose of
mycophenolate
. I have another blood test in a couple of weeks to check the neutrophil count again.
JenStarkey
in
LUPUS UK
8 years ago
The time has come - to AC or not AC
All AF drugs stopped May 2014, started drug treatment for autoimmune disease - Sept 2014 a currently taking
Mycophenolate
- immune suppressant developed for kidney transplant patients & Pyridostigomine - Acetycholineeterase (a neurotransmitter).
All AF drugs stopped May 2014, started drug treatment for autoimmune disease - Sept 2014 a currently taking
Mycophenolate
- immune suppressant developed for kidney transplant patients & Pyridostigomine - Acetycholineeterase (a neurotransmitter).
CDreamer
in
Atrial Fibrillation Support
8 years ago
Foot Pain advice
They do a great booklet of
mycophenolate
), I wondered if this Foot Pain booklet could be equally helpful...some of you may remember that one of my specialist subjects (😉😝) is Lupus Feet...over the decades, I've had to get clued up because of my wonderful "complex persistent pattern" 😏 feet probs.
They do a great booklet of
mycophenolate
), I wondered if this Foot Pain booklet could be equally helpful...some of you may remember that one of my specialist subjects (😉😝) is Lupus Feet...over the decades, I've had to get clued up because of my wonderful "complex persistent pattern" 😏 feet probs.
Barnclown
in
LUPUS UK
8 years ago
Medication
Good morning 😊 all I have been taking
Mycophenolate
for about 6 months now, and I was led to believe that once on this drug my prednisone would be reduced as I take 45mg a day and have taken this dose for well over a year and sometimes up to 60mg.
Good morning 😊 all I have been taking
Mycophenolate
for about 6 months now, and I was led to believe that once on this drug my prednisone would be reduced as I take 45mg a day and have taken this dose for well over a year and sometimes up to 60mg.
craftyone
in
Lung Conditions Community Forum
9 years ago
Steriods
Hi all, I had GPA for 11 years now and have been on
Mycophenolate
and 5mg of Prednisolone for some years now. At clinic yesterday they want to stop my Prednisolone . I am to have a blood test to see if my body is producing its own. If so it will just be stopped without reducing it.
Hi all, I had GPA for 11 years now and have been on
Mycophenolate
and 5mg of Prednisolone for some years now. At clinic yesterday they want to stop my Prednisolone . I am to have a blood test to see if my body is producing its own. If so it will just be stopped without reducing it.
ludo
in
Vasculitis UK
9 years ago
MMF
I just started taking
Mycophenolate
500mg twice a day very scare to start taking it because all the side effect. I want to know should u wear a mask when u are out in the public? how long do it take to get in your system? Thank You....
I just started taking
Mycophenolate
500mg twice a day very scare to start taking it because all the side effect. I want to know should u wear a mask when u are out in the public? how long do it take to get in your system? Thank You....
Babygirl1955
in
Functional Neurological Disorder - FND Hope
9 years ago
1
...
28
29
30
...
40
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
LUPUS UK
290 results
Vasculitis UK
104 results
Scleroderma & Raynaud's UK (SRUK)
92 results
View top 10 communities
Sort by
Most Relevant
Newest