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Medium chain acyl dehydrogenase deficiency
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Serum transferrin too high
Hello there, I haven't posted for a while as I am fine. Since taking T3 all my various ailments have disappeared on the whole. Very fortunate as since my husband died during the first lockdown, it is just me with 3 children. This is about my daughter, 14, very tired, put on 2 1/2 stone in 2 years
Hello there, I haven't posted for a while as I am fine. Since taking T3 all my various ailments have disappeared on the whole. Very fortunate as since my husband died during the first lockdown, it is just me with 3 children. This is about my daughter, 14, very tired, put on 2 1/2 stone in 2 years
Donutlight
in
Thyroid UK
2 years ago
ALBUMIN and EDEMA and COMPRESSION SOCKS - oh my!
partner diagnosed decompensated cirrhosis 22.12.21 - stopped drinking the same day. Albumin 18 at diagnosis, 24 at best since now dipped again to 22. How long did people's albumin take to recover - is it normally so slow to improve - in contrast bilirubin gone from 256 to 58 since Dec. He is having
partner diagnosed decompensated cirrhosis 22.12.21 - stopped drinking the same day. Albumin 18 at diagnosis, 24 at best since now dipped again to 22. How long did people's albumin take to recover - is it normally so slow to improve - in contrast bilirubin gone from 256 to 58 since Dec. He is having
Rshc
in
British Liver Trust
2 years ago
Information on who to contact plz
Hi I've just seen the news about sodium valproate was wondering how to get information about compensation etc as I have a child who has difficultys and I was taking this drug thro his pregnant
Hi I've just seen the news about sodium valproate was wondering how to get information about compensation etc as I have a child who has difficultys and I was taking this drug thro his pregnant
Louiseh74
in
Epilepsy Action
2 years ago
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Husbands collapse
Well I've just visited my husband again and the Dr says that his confused state may improve once I get him back to my daughters. She doesn't know if it will ease and she's not sure if it was caused by the sodium drop or something else going on. His blood tests aren't back from yesterday, but they're
Well I've just visited my husband again and the Dr says that his confused state may improve once I get him back to my daughters. She doesn't know if it will ease and she's not sure if it was caused by the sodium drop or something else going on. His blood tests aren't back from yesterday, but they're
TinT22
in
Headway
2 years ago
Looking for thoughts on next treatment after Docetaxel
Here's my background. - Living in Canada, diagnosed in 2018 with 4+4 and PSA 40. - On Zoladex since 2018 and still on - 35 sessions of radiation in 2018 and PSA dropped to <1. - PSA started rising (got to 40) in Summer 2020 and started on Zytiga -Scans showed 30+ mets to spine, ribs, pelvis but no soft
Here's my background. - Living in Canada, diagnosed in 2018 with 4+4 and PSA 40. - On Zoladex since 2018 and still on - 35 sessions of radiation in 2018 and PSA dropped to <1. - PSA started rising (got to 40) in Summer 2020 and started on Zytiga -Scans showed 30+ mets to spine, ribs, pelvis but no soft
davebliz
in
Advanced Prostate Cancer
2 years ago
Rectal prolapse
Hi everyone and Happy Easter - hope the sun is shining where you are. It's beautiful here! (UK). Unfortunately I think I have a rectal prolapse :( . I had a soft mass pop out this morning. It's more or less gone back in now but googling tells me that it won't be a one-off. I have real difficulties with
Hi everyone and Happy Easter - hope the sun is shining where you are. It's beautiful here! (UK). Unfortunately I think I have a rectal prolapse :( . I had a soft mass pop out this morning. It's more or less gone back in now but googling tells me that it won't be a one-off. I have real difficulties with
Ursula_I
in
SHARE Metastatic Breast Cancer
2 years ago
Antivirals
Hi All, I tested positive on Wednesday via LFT so sent my priority pcr which came back Thursday as positive. Told I would be called within 24 hours regarding anti virals. 40 hours goes by and nothing. I then called my GP who said no point calling us you need to call 111. So I called 111 and after another
Hi All, I tested positive on Wednesday via LFT so sent my priority pcr which came back Thursday as positive. Told I would be called within 24 hours regarding anti virals. 40 hours goes by and nothing. I then called my GP who said no point calling us you need to call 111. So I called 111 and after another
DeanSamson
in
Asthma Community Forum
2 years ago
Zofigo RA223 Seems To Be Working - PSA Still 9
Hello warriors: I am about to have my third injection of Radium 223. So far so good. I have some fatigue but try to ignore it and press on with exercise, swimming, walking, lifting weights and playing golf. I think the Lupron and the 6 months of Chemo did more to the stamina than the RA 223. My PSA
Hello warriors: I am about to have my third injection of Radium 223. So far so good. I have some fatigue but try to ignore it and press on with exercise, swimming, walking, lifting weights and playing golf. I think the Lupron and the 6 months of Chemo did more to the stamina than the RA 223. My PSA
Hidden
in
Advanced Prostate Cancer
2 years ago
Iron panel
Hi everyone, I would like to thank you all for the advice on getting my Iron tested, I did get the full panel test and the advice from the doctor was Everything is normal, Transferrin saturation is 32 Ferritin 36 Armed with all the info from this forum I discussed this with my doctor who agreed to
Hi everyone, I would like to thank you all for the advice on getting my Iron tested, I did get the full panel test and the advice from the doctor was Everything is normal, Transferrin saturation is 32 Ferritin 36 Armed with all the info from this forum I discussed this with my doctor who agreed to
Stan7
in
Restless Legs Syndrome
2 years ago
OPTIMAL TEST LEVELS ?
Can someone please briefly address my recent test levels. Please be aware I am decidedly unscientifically minded and find it hard to follow the science…and certainly to retain it ! So ..please give me numbers… I can’t quite get the whole iron picture ..serum iron, transferrin and serum ferritin… But
Can someone please briefly address my recent test levels. Please be aware I am decidedly unscientifically minded and find it hard to follow the science…and certainly to retain it ! So ..please give me numbers… I can’t quite get the whole iron picture ..serum iron, transferrin and serum ferritin… But
Jollypolly
in
Thyroid UK
2 years ago
Ain’t that a kick in the teeth
Well, fellow travellers. I haven’t posted for a long while , but I have been lurking. Like many others, I tend to “forget” about the forum while I am too busy enjoying life and return when things are not so rosy. I am at loss to explain the purpose of this missive as it’s not particular uplifting nor
Well, fellow travellers. I haven’t posted for a long while , but I have been lurking. Like many others, I tend to “forget” about the forum while I am too busy enjoying life and return when things are not so rosy. I am at loss to explain the purpose of this missive as it’s not particular uplifting nor
aFibber55
in
Atrial Fibrillation Support
2 years ago
REFLECTIVE RAMBLINGS OF A RETICENTLY RETIRED RUNNER ..Part 1
THANKS The warm responses from so many of you to my
"I HAVE HUNG UP MY RUNNING SHOES”
post https://healthunlocked.com/couchto5k/posts/147942134/i-have-hung-up-my-running-shoes was exactly what I have come to expect from the wonderful supportive membership
THANKS The warm responses from so many of you to my
"I HAVE HUNG UP MY RUNNING SHOES”
post https://healthunlocked.com/couchto5k/posts/147942134/i-have-hung-up-my-running-shoes was exactly what I have come to expect from the wonderful supportive membership
Hidden
Mentor
in
Couch to 5K
2 years ago
Has anyone with CLl dealt with Neuro Endocrine cancer (liver) as a second cancer?
FOURTH Cancer. Melanoma, CLL, Prostate, Neuro Endocrine I stopped Imbrubica in July 2019. In the last 6 months my lymph nodes in my neck were very noticeable. WBC were at 58,000. I was tired but felt ok otherwise. Decided it was time for treatment. Gazyva and Venetaclex was the treatment recommended
FOURTH Cancer. Melanoma, CLL, Prostate, Neuro Endocrine I stopped Imbrubica in July 2019. In the last 6 months my lymph nodes in my neck were very noticeable. WBC were at 58,000. I was tired but felt ok otherwise. Decided it was time for treatment. Gazyva and Venetaclex was the treatment recommended
aboylan
in
CLL Support
2 years ago
Just need some support
Hello all, my son is 7. He was born with CKD, he's currently in stage 2. He has reflux grade 5 bilateral, hydrophronesis bilateral, hyperkalemia, distended bladder, urinary retention and chronic constipation. They all kind of play off of each other and are either all controlled and keep his function
Hello all, my son is 7. He was born with CKD, he's currently in stage 2. He has reflux grade 5 bilateral, hydrophronesis bilateral, hyperkalemia, distended bladder, urinary retention and chronic constipation. They all kind of play off of each other and are either all controlled and keep his function
Turtlepower88
in
Parents of Children with Kidney Disease
2 years ago
Shortness of breath and wheezing
UPDATE: lung function tests normal. Had an ABG (arterial blood gases), results are all over the place, specialist has no idea what’s going on! I have extremely high O2, low CO2, low bicarbonate, low sodium and alkaline pH. Booked in for cardiologist and stress test next week, followed by cardiopulmonary
UPDATE: lung function tests normal. Had an ABG (arterial blood gases), results are all over the place, specialist has no idea what’s going on! I have extremely high O2, low CO2, low bicarbonate, low sodium and alkaline pH. Booked in for cardiologist and stress test next week, followed by cardiopulmonary
MusicalFurbaby
in
LUPUS UK
2 years ago
Does anyone take supplements as well as B12 injections ?
Hi Everyone My doctors have started me on B12 injections and I’ve had 2 loading doses out of the 6 so far . I’m wondering if people still take their B complex supplements on top of the injections so you get all the B vits still ? And if so what strength? I’m feeling very tired today after my second
Hi Everyone My doctors have started me on B12 injections and I’ve had 2 loading doses out of the 6 so far . I’m wondering if people still take their B complex supplements on top of the injections so you get all the B vits still ? And if so what strength? I’m feeling very tired today after my second
Fliplaar
in
Thyroid UK
2 years ago
How long for glutening to clear?
Hi, I’m diagnosed coeliac, gf for past 5 years, strict but with the occasional slip up (I have 3 kids and it’s impossible to have no gluten in the house). Last week I ate 2 pieces of salami and have been in intense digestive distress ever since, only just easing today (day 7). I’ve never been this unwell
Hi, I’m diagnosed coeliac, gf for past 5 years, strict but with the occasional slip up (I have 3 kids and it’s impossible to have no gluten in the house). Last week I ate 2 pieces of salami and have been in intense digestive distress ever since, only just easing today (day 7). I’ve never been this unwell
emmylou_62
in
Gluten Free Guerrillas
2 years ago
Very frustrated mum.
Still frustrated my daughter now age 6 years is still struggling with chronic constipation she now on movlicoil and sodium pic everyday sometimes we go up to 6 a day sometimes we stay on 2 a day but the soiling never stops .Her tummy is normal just she has trained her brain not to poo so 1 how do we
Still frustrated my daughter now age 6 years is still struggling with chronic constipation she now on movlicoil and sodium pic everyday sometimes we go up to 6 a day sometimes we stay on 2 a day but the soiling never stops .Her tummy is normal just she has trained her brain not to poo so 1 how do we
Misty10
in
ERIC
2 years ago
I HAVE HUNG UP MY RUNNING SHOES
It is approaching nine years since I discovered C25k and subsequently this forum and the combination of the two changed my life in more positive ways than I could ever imagine. From a 57 year old who thought that running might be a lesser necessary evil than heading off to the gym to maintain stamina
It is approaching nine years since I discovered C25k and subsequently this forum and the combination of the two changed my life in more positive ways than I could ever imagine. From a 57 year old who thought that running might be a lesser necessary evil than heading off to the gym to maintain stamina
Hidden
Mentor
in
Couch to 5K
2 years ago
please let me hear your positive stories re going from decompensated to compensated
My partner was diagnosed with cirrhosis in Dec and underwent a medical detox from alcohol. He was very poorly and remained in hospital for 3 weeks. Since then he has been eating well and not drinking. His bilirubin has come down from 256 to 60 and his blood platelets look good at 160. The doctors
My partner was diagnosed with cirrhosis in Dec and underwent a medical detox from alcohol. He was very poorly and remained in hospital for 3 weeks. Since then he has been eating well and not drinking. His bilirubin has come down from 256 to 60 and his blood platelets look good at 160. The doctors
Rshc
in
British Liver Trust
2 years ago
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