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Experiences with
Medium chain acyl dehydrogenase deficiency
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Radium 223 instead of enzalutamide
My dad mentioned that he’d like to come off enzalutamide because of always feeling tired and the doc has agreed and is now starting him on a course of Radium 223. The aim is to target 2 small bone mets and bring them under control. Apparently they are becoming more active so the enzalutamide hasn’t held
My dad mentioned that he’d like to come off enzalutamide because of always feeling tired and the doc has agreed and is now starting him on a course of Radium 223. The aim is to target 2 small bone mets and bring them under control. Apparently they are becoming more active so the enzalutamide hasn’t held
SC19
in
Advanced Prostate Cancer
2 years ago
kidney Function and ascities
I really appreciate all your replies as I’m trying to find out as much as I can to help my son . he has decompensated liver cirrhosis and ascetics which is building slot more regularly . It’s very uncomfortable for him and he has pain in both sides . his GFR is 88 from last weeks blood test . Is this
I really appreciate all your replies as I’m trying to find out as much as I can to help my son . he has decompensated liver cirrhosis and ascetics which is building slot more regularly . It’s very uncomfortable for him and he has pain in both sides . his GFR is 88 from last weeks blood test . Is this
Mango5cm
in
British Liver Trust
2 years ago
Messed up on my diet. Ascites
Hi all greetings from the USA! i am 42 and was recently diagnosed with Ascites from postal hypertension related NASH cirrhosis. Have had a number of paracentesis procedures now every two weeks. Weight has gone down from 335 to 235 and I had been following my diet and sodium restriction to the letter
Hi all greetings from the USA! i am 42 and was recently diagnosed with Ascites from postal hypertension related NASH cirrhosis. Have had a number of paracentesis procedures now every two weeks. Weight has gone down from 335 to 235 and I had been following my diet and sodium restriction to the letter
Crooktele79
in
British Liver Trust
2 years ago
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Advice on latest bloods
Hi i would really appreciate some advice on my latest bloods, and whether I should supplement B12 and folate and maybe iron based on them. Bloods taken as per protocol recommended on here. Currently taking 75 mcg thyroxine and 2 x half grains of ERFA T4 - 17.4 (range 12-22) T3 - 4 (range 3.1-6.8
Hi i would really appreciate some advice on my latest bloods, and whether I should supplement B12 and folate and maybe iron based on them. Bloods taken as per protocol recommended on here. Currently taking 75 mcg thyroxine and 2 x half grains of ERFA T4 - 17.4 (range 12-22) T3 - 4 (range 3.1-6.8
Spangle15
in
Thyroid UK
2 years ago
radium 223
I am 6 years into stage 4 prostate cancer. Have had SOC treatment in UK. Best PSA was 0.08 about 2 years ago. Since then have had bicalutimide, enzalutimide some localised radiotherapy for back pain. Also been on cabazitaxel, which eventually failed. I am now into my 2nd. treatment of radium 223. So
I am 6 years into stage 4 prostate cancer. Have had SOC treatment in UK. Best PSA was 0.08 about 2 years ago. Since then have had bicalutimide, enzalutimide some localised radiotherapy for back pain. Also been on cabazitaxel, which eventually failed. I am now into my 2nd. treatment of radium 223. So
tonmead
in
Advanced Prostate Cancer
2 years ago
Don't trust everything you read on the internet
Just sharing the NHS website on B12 and folate deficiency anaemia, which reads as per the below. What this says to me is that there is a distinct difference between what actually happens in the real world vs. what we read about on the old internet. It is important to remember that not every article
Just sharing the NHS website on B12 and folate deficiency anaemia, which reads as per the below. What this says to me is that there is a distinct difference between what actually happens in the real world vs. what we read about on the old internet. It is important to remember that not every article
Pickle500
in
Pernicious Anaemia Society
2 years ago
AF & keeping hydrated
just wondering about thoughts of others, with regard to hydration, bottled mineral water or tap water, as, please correct me if I am wrong, but is the sodium content of mineral water something to be concerned about? After all these years of AF, (ten) I know I should know a lot more or the do’s &
just wondering about thoughts of others, with regard to hydration, bottled mineral water or tap water, as, please correct me if I am wrong, but is the sodium content of mineral water something to be concerned about? After all these years of AF, (ten) I know I should know a lot more or the do’s &
sugaredalmonds
in
Atrial Fibrillation Support
2 years ago
Ferritin level information
I have seen numerous claims of “check your ferritin level, if it’s <100 you need to start taking iron.” Unfortunately, it’s just not that simple. That guideline has not been established. I have confirmed this with my RLS physicians. He said ferritin level is only 1 component used along with transferrin
I have seen numerous claims of “check your ferritin level, if it’s <100 you need to start taking iron.” Unfortunately, it’s just not that simple. That guideline has not been established. I have confirmed this with my RLS physicians. He said ferritin level is only 1 component used along with transferrin
DataRN
in
Restless Legs Syndrome
2 years ago
Advice please - thyroid, vitamins, ferritin. Dr only wants to give statins?
My sister's surgery only seem interested in giving her statins, but I'm concerned about some of her other results instead. Please can someone else give their views? I wonder if I'm right or not. She's just 60 and has been on levo for about 30 years. Sorry, results are a bit long! Serum FT4 –
normal
My sister's surgery only seem interested in giving her statins, but I'm concerned about some of her other results instead. Please can someone else give their views? I wonder if I'm right or not. She's just 60 and has been on levo for about 30 years. Sorry, results are a bit long! Serum FT4 –
normal
TaraJR
in
Thyroid UK
2 years ago
IBS Symptoms After Antidepressants
Hi, Bit of a newbie here but just after advice and general common experiences. So around July 2020 I went to the doctors for low mood and possible depression had no IBS Symptoms at this time, I was prescribed 20mg of Citalpram (SSRI) which i proceeded to take along side CBT. During the time taking
Hi, Bit of a newbie here but just after advice and general common experiences. So around July 2020 I went to the doctors for low mood and possible depression had no IBS Symptoms at this time, I was prescribed 20mg of Citalpram (SSRI) which i proceeded to take along side CBT. During the time taking
123beansprout123
in
IBS Network
2 years ago
B1/Thiamine dosing
Influenced by a thread here, I started taking 200 mg b1/thiamine a day. Was doing fine, but tried to double that and felt funky. It's so hard to know if it is the b1 or not. I am following the b1 dosing protocol and keeping up on magnesium, sodium and potassium. I am curious about others who does
Influenced by a thread here, I started taking 200 mg b1/thiamine a day. Was doing fine, but tried to double that and felt funky. It's so hard to know if it is the b1 or not. I am following the b1 dosing protocol and keeping up on magnesium, sodium and potassium. I am curious about others who does
B12life
in
Pernicious Anaemia Society
2 years ago
E.Coli/UTI
As a result of some symptoms I reported to my Transplant Coordinator (“TC”) because I was recently prescribed Sodium Bicarbonate for the low CO2 result in my blood test, the TC ordered a Urine Culture test for me at LabCorp. It came back with a “colony” of bacteria in my bladder. I went thru 10 days
As a result of some symptoms I reported to my Transplant Coordinator (“TC”) because I was recently prescribed Sodium Bicarbonate for the low CO2 result in my blood test, the TC ordered a Urine Culture test for me at LabCorp. It came back with a “colony” of bacteria in my bladder. I went thru 10 days
TaffyTwoshoes27
in
Kidney Transplant
2 years ago
Hypothyroid and Anemia
Good day to you all. I have a basic question . I would Iike to know if post menopausal women can also suffer from iron anemia.
Good day to you all. I have a basic question . I would Iike to know if post menopausal women can also suffer from iron anemia.
MightyMay
in
Thyroid UK
2 years ago
IBS or .......
Am a long term IBS sufferer but nothing like this. I've suffered with diarrhea since February this year, some days spent on the pot, have been waiting for a colonoscopy since March. 1st Stool test came back ok but to fiddle the waiting times for the the colonoscopy I was given another stool test to
Am a long term IBS sufferer but nothing like this. I've suffered with diarrhea since February this year, some days spent on the pot, have been waiting for a colonoscopy since March. 1st Stool test came back ok but to fiddle the waiting times for the the colonoscopy I was given another stool test to
Bumpity
in
IBS Network
2 years ago
Update
Hi Had a phone call on Friday asking me to contract the surgery, following my over range ferritin results. I've now got to have a TIBC, iron and TSAT blood test. I think I need to be honest with the surgery and say I've was supplementing with iron tablets until recently and this is likely to have caused
Hi Had a phone call on Friday asking me to contract the surgery, following my over range ferritin results. I've now got to have a TIBC, iron and TSAT blood test. I think I need to be honest with the surgery and say I've was supplementing with iron tablets until recently and this is likely to have caused
Sparklingsunshine
in
Thyroid UK
2 years ago
blood test translation request please
Serum Alkaline phosphates 68u/L (30-150). Serum Albumin 41 g/L (35-48) Serum calcium level 2.37 mol/L (2.2-2.6) RENAL PROFILE Serum sodium 136 mmol/L (132 - 146) Serum potassium 3.7 mmol/L (3.5 - 5.0) Serum urea level 65 urology/L (45 - 84) Serum adjusted calcium 2.42 mmol/L (2.2 - 2.6) States
Serum Alkaline phosphates 68u/L (30-150). Serum Albumin 41 g/L (35-48) Serum calcium level 2.37 mol/L (2.2-2.6) RENAL PROFILE Serum sodium 136 mmol/L (132 - 146) Serum potassium 3.7 mmol/L (3.5 - 5.0) Serum urea level 65 urology/L (45 - 84) Serum adjusted calcium 2.42 mmol/L (2.2 - 2.6) States
App1
in
Thyroid UK
2 years ago
what could it be
hi, I am 34, no family of colon cancer , weeks ago I had a running stomach and I believed it was something I ate bad the day before so I then took Imodium and since then my bowel movement have changed with being more constipated so my doctor gave me laxido which seemed to work but ever since my bowel
hi, I am 34, no family of colon cancer , weeks ago I had a running stomach and I believed it was something I ate bad the day before so I then took Imodium and since then my bowel movement have changed with being more constipated so my doctor gave me laxido which seemed to work but ever since my bowel
jourdanb991
in
Colon Cancer Connected
2 years ago
Food when on PD Dialysis
I haven't really seen this but what all do you eat? I'm not yet there and at 17% I'm mostly eating plants. So if I was on PD can I eat what I like while sticking to healthy food but what about high potassium foods like potatoes, tomatoes, cantaloupe, bananas and the like? Since I am taking meds for
I haven't really seen this but what all do you eat? I'm not yet there and at 17% I'm mostly eating plants. So if I was on PD can I eat what I like while sticking to healthy food but what about high potassium foods like potatoes, tomatoes, cantaloupe, bananas and the like? Since I am taking meds for
horsie63
in
Kidney Dialysis
2 years ago
Acid reflux/heartburn
I suffered with odd bouts of Acid Reflux about ten years ago and took antacids and Nexium after a heavy evening meal. I believe I have had silent reflux for the past few years. About 6 weeks ago I had a terrible episode of a burning sensation in the middle of my chest and acid reflux and since then I
I suffered with odd bouts of Acid Reflux about ten years ago and took antacids and Nexium after a heavy evening meal. I believe I have had silent reflux for the past few years. About 6 weeks ago I had a terrible episode of a burning sensation in the middle of my chest and acid reflux and since then I
Dorset22
in
Acid Reflux Support
2 years ago
Low iron levels
My doctor has advised me that my iron level is on the low side of the normal range. Should I take iron supplements to boost it as my doctor is happy to leave the levels as they are.
My doctor has advised me that my iron level is on the low side of the normal range. Should I take iron supplements to boost it as my doctor is happy to leave the levels as they are.
Maggiv
in
Thyroid UK
2 years ago
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