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Experiences with
Medium chain acyl dehydrogenase deficiency
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bowels
hi there, my mums bowels are now very sensitive. Would anyone have any recommendations on how to help stool to be firm, rather than Imodium as I can’t imagine that can be taken on a daily basis?
hi there, my mums bowels are now very sensitive. Would anyone have any recommendations on how to help stool to be firm, rather than Imodium as I can’t imagine that can be taken on a daily basis?
NetballMagic
in
PSP Association
1 year ago
Test results - could someone help please?
Hi! My thyroid is well replaced, but I have been feeling so tired and achy, so I asked my GP to test vitamins. She said all is well. I'm gutted because I feel TERRIBLE. What do you think to these results? Serum Ferritin: 29 (r 20-204) Serum Iron Level: 11.7 (r4.4-27.9) Serum Transferrin: 2.63 (r
Hi! My thyroid is well replaced, but I have been feeling so tired and achy, so I asked my GP to test vitamins. She said all is well. I'm gutted because I feel TERRIBLE. What do you think to these results? Serum Ferritin: 29 (r 20-204) Serum Iron Level: 11.7 (r4.4-27.9) Serum Transferrin: 2.63 (r
Suzanneharb
in
Thyroid UK
1 year ago
Radium 223 and (AdcalD3) calcium supplements
Hi I was hoping for some clarity here as I've been getting different advice in the UK. I think the advice is to keep off the calcium supplements 7 days before a Ra 223 injection and then return to the tablets a few days after. Similarly my Zometa (Zoledronic Acid )injection should be timed so it
Hi I was hoping for some clarity here as I've been getting different advice in the UK. I think the advice is to keep off the calcium supplements 7 days before a Ra 223 injection and then return to the tablets a few days after. Similarly my Zometa (Zoledronic Acid )injection should be timed so it
Finlay66
in
Advanced Prostate Cancer
1 year ago
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#2 Update: Adrenal Testing
This afternoon (12.45) I had the blood draw for: Adrenal auto-antibodies, Aldosterone, Renin, Potassium & Sodium. I've also had a short Synacthen test. Stop The Thyroid Madness (For better, for worse) insist that salt is restricted the day before Aldosterone testing and that the arm is held at a perpendicular
This afternoon (12.45) I had the blood draw for: Adrenal auto-antibodies, Aldosterone, Renin, Potassium & Sodium. I've also had a short Synacthen test. Stop The Thyroid Madness (For better, for worse) insist that salt is restricted the day before Aldosterone testing and that the arm is held at a perpendicular
Hidden
in
Thyroid UK
1 year ago
#1: The Start
Following the example of Clarebear I've decided to document my thyroid-adrenal journey on here in hopes it'll keep me accountable, and also may serve some after me. After a long, complicated history of no diagnosis, followed by lithium treatment, then prolonged time spent on T4 with no improvement,
Following the example of Clarebear I've decided to document my thyroid-adrenal journey on here in hopes it'll keep me accountable, and also may serve some after me. After a long, complicated history of no diagnosis, followed by lithium treatment, then prolonged time spent on T4 with no improvement,
Hidden
in
Thyroid UK
1 year ago
potassium level
I recently had bloodwork done. My sodium is at very bottom of range.( 135) it always has been. My potassium is 3.7 with a range of 3.5-5.5. I have tended to be around 4 or a tad higher. A year ago I was 3.8. I have been injecting every 3 weeks for a year and a half. Do I need more potassium? I know it
I recently had bloodwork done. My sodium is at very bottom of range.( 135) it always has been. My potassium is 3.7 with a range of 3.5-5.5. I have tended to be around 4 or a tad higher. A year ago I was 3.8. I have been injecting every 3 weeks for a year and a half. Do I need more potassium? I know it
EiCa
in
Pernicious Anaemia Society
1 year ago
HELP PLEASE
hi guys it’s been awhile since I have posted, I’m in desperate need of some clarification, it’s my son he’s been so poorly for quite awhile, reoccurring viruses, sever fatigue, joint pain, and is so pale😳😔 he’s in His early 20s and really struggling with all this, I have a diagnosis of Pernious anemia
hi guys it’s been awhile since I have posted, I’m in desperate need of some clarification, it’s my son he’s been so poorly for quite awhile, reoccurring viruses, sever fatigue, joint pain, and is so pale😳😔 he’s in His early 20s and really struggling with all this, I have a diagnosis of Pernious anemia
Steph0077
in
Pernicious Anaemia Society
1 year ago
Bloods Results
These where printed out for me as requested, any advice most welcome 🌸 Was taking teva levo 75mcg, thybon henning t3 10mcg, prior to these results. Now taking 5mcg three times a day. Supplement vit D with k2, mk7 and magnesium glycinate
These where printed out for me as requested, any advice most welcome 🌸 Was taking teva levo 75mcg, thybon henning t3 10mcg, prior to these results. Now taking 5mcg three times a day. Supplement vit D with k2, mk7 and magnesium glycinate
Geegee777
in
Thyroid UK
1 year ago
Salt - serum sodium
I have just had my two monthly blood test. Whilst my ESR and CRP are within the normal range my serum sodium is 130mmol/L. (133 - 146.00mmol/L). It has been like this for the past year or so and everyone has ignored it 'til now. I am not one for pills unless I really need them like prednisolone. Can
I have just had my two monthly blood test. Whilst my ESR and CRP are within the normal range my serum sodium is 130mmol/L. (133 - 146.00mmol/L). It has been like this for the past year or so and everyone has ignored it 'til now. I am not one for pills unless I really need them like prednisolone. Can
prunus
in
PMRGCAuk
1 year ago
Suddenly Fighting for breath.
Sudden struggle for breath about 4 times a day, then coughing uncontrollably- during which time I am unable Catch my breath, making a pulling sound to to draw some air/ breath I have Asthma Bronchiectasis. I use ventolin perhaps 4 times a day, then at night. I feel helpless as it happens frequently
Sudden struggle for breath about 4 times a day, then coughing uncontrollably- during which time I am unable Catch my breath, making a pulling sound to to draw some air/ breath I have Asthma Bronchiectasis. I use ventolin perhaps 4 times a day, then at night. I feel helpless as it happens frequently
djbctla
in
Lung Conditions Community Forum
1 year ago
Iron and B12 deficiency
Had a massive realisation after getting a diagnosis of ME and not feeling like it fit/refusing to accept it. As we all are, I'm just trying to piece together this puzzle as GPS dont seem to bother Now realise I have chronically low FERRITIN. Doctors only look at the serum iron (similar to how they
Had a massive realisation after getting a diagnosis of ME and not feeling like it fit/refusing to accept it. As we all are, I'm just trying to piece together this puzzle as GPS dont seem to bother Now realise I have chronically low FERRITIN. Doctors only look at the serum iron (similar to how they
Hidden
in
Pernicious Anaemia Society
1 year ago
acid reflux and headache
I’m lucky enough to be prescription drug free and sparingly use a mixture of otc pain killers and gels when I need a break from pain. My Dad and my Step Dad both died aged 86 on December 29th last year. There’s been lots to sort out and two distressed widows to support as well as my own grief. My
I’m lucky enough to be prescription drug free and sparingly use a mixture of otc pain killers and gels when I need a break from pain. My Dad and my Step Dad both died aged 86 on December 29th last year. There’s been lots to sort out and two distressed widows to support as well as my own grief. My
Hidden
in
PMRGCAuk
1 year ago
Cenobamate
Cenobamate Hi My son 34 has epilepsy and is on sodium valporate and lamotragine his seizures are not controlled and his neurologist has suggested Cenobamate. Im always worried about side effects . He has many other issues cerebral palsy severe learning difficulties plus we have trouble getting him
Cenobamate Hi My son 34 has epilepsy and is on sodium valporate and lamotragine his seizures are not controlled and his neurologist has suggested Cenobamate. Im always worried about side effects . He has many other issues cerebral palsy severe learning difficulties plus we have trouble getting him
carlija2
in
Epilepsy Action
1 year ago
Radium 223 -Is this tumour flare?
I started Radium 223 therapy on Tuesday and since then I suffered from general stiffness and pain from the back of the pelvis down to the lower leg. I was wondering if anyone else had suffered these symptoms and if it was tumour flare? Thanks
I started Radium 223 therapy on Tuesday and since then I suffered from general stiffness and pain from the back of the pelvis down to the lower leg. I was wondering if anyone else had suffered these symptoms and if it was tumour flare? Thanks
Finlay66
in
Advanced Prostate Cancer
1 year ago
Sodium
Hello all, just wondering if anyone would know if a slightly low Sodium Level in your Blood can contribute to triggering an AF attack, thank you. John
Hello all, just wondering if anyone would know if a slightly low Sodium Level in your Blood can contribute to triggering an AF attack, thank you. John
Bluseman
in
AF Association
1 year ago
Anyone experience ectopics(Extra beats) with pain when anxious, stressed or intake stimulants? or is it just me?
I noticed that when I'm stressed or anxious, or have had sodium or coffee(even decaf) as too much of that even since it contains some caffeine..I get ecopics but mine are NOT skipped beats but extra beats and they are sometimes less noticeable, then some are more noticable and then some are painful..
I noticed that when I'm stressed or anxious, or have had sodium or coffee(even decaf) as too much of that even since it contains some caffeine..I get ecopics but mine are NOT skipped beats but extra beats and they are sometimes less noticeable, then some are more noticable and then some are painful..
groundedcloser
in
Arrhythmia Alliance
1 year ago
Newbie !
Hi, I am new here. I was diagnosed with Stage 3C1 cervical cancer March 2021. I had 27 radiotherapy sessions, 5 chemotherapy sessions and 3 high dose brachytherapy sessions. My bowel issues started very early on and got worse and worse as treatment went on. I finished active treatment on 29th July. I
Hi, I am new here. I was diagnosed with Stage 3C1 cervical cancer March 2021. I had 27 radiotherapy sessions, 5 chemotherapy sessions and 3 high dose brachytherapy sessions. My bowel issues started very early on and got worse and worse as treatment went on. I finished active treatment on 29th July. I
Dasch123
in
Pelvic Radiation Disease Association
1 year ago
MDS is Doubling down on nutrition and lifestyle
We just had an appointment with hubby’s MDS this week. This dr has always been a keto diet advocate, but he’s now added a whole nutritional and lifestyle program to his practice. Some things they are recommending and help with include: - A gut biome and probiotic program. Primarily centered around
We just had an appointment with hubby’s MDS this week. This dr has always been a keto diet advocate, but he’s now added a whole nutritional and lifestyle program to his practice. Some things they are recommending and help with include: - A gut biome and probiotic program. Primarily centered around
LeharLover62
in
Cure Parkinson's
2 years ago
Vaccine and Prolonged Diarrhea
I had the bivalent Covid vaccine on 27 December (my fifth vaccine). I had noticed in the last couple of years that about two weeks after each vaccine, my bowels acted up a bit but they subsided after taking Normix. But ever since 10 January, which was two weeks after this bivalent vaccine,
I had the bivalent Covid vaccine on 27 December (my fifth vaccine). I had noticed in the last couple of years that about two weeks after each vaccine, my bowels acted up a bit but they subsided after taking Normix. But ever since 10 January, which was two weeks after this bivalent vaccine,
711debbie
in
IBS Network
1 year ago
3 weeks into disimpaction but can’t get to thinner stools than gravy
My two year old is on the disimpaction regime and we’re now three weeks in. Done all the correct macrogol doses and still on 8 per day since day 7 (now day 21) and for the last two nights we’ve added one evening dose of 2.5ml Of sodium Pico. Still just gravy stools consistently. Do we keep going? Up
My two year old is on the disimpaction regime and we’re now three weeks in. Done all the correct macrogol doses and still on 8 per day since day 7 (now day 21) and for the last two nights we’ve added one evening dose of 2.5ml Of sodium Pico. Still just gravy stools consistently. Do we keep going? Up
Stants
in
ERIC
1 year ago
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