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Mast cell activation syndrome (MCAS)
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shock - fight or flight response.
sometimes I wonder weather restless leg syndrome is induced by a traumatic experience in earlier life. The fight or flight response that is constantly on overdrive! Never being able to relax…. I’ve had the disorder for most of my life. Contrary to belief my symptoms stated at a very early age. Practitioners
sometimes I wonder weather restless leg syndrome is induced by a traumatic experience in earlier life. The fight or flight response that is constantly on overdrive! Never being able to relax…. I’ve had the disorder for most of my life. Contrary to belief my symptoms stated at a very early age. Practitioners
Dark71
in
Restless Legs Syndrome
2 years ago
Do natural supplements work to reduce high cholesterol?
While strictly not a PMR issue I know there are a few whose cholesterol has risen markedly since being diagnosed. I am one of them. I have always had high-ish cholesterol but my last fasting blood test showed everything else perfectly normal but my cholesterol was up. I haven't seen the results
While strictly not a PMR issue I know there are a few whose cholesterol has risen markedly since being diagnosed. I am one of them. I have always had high-ish cholesterol but my last fasting blood test showed everything else perfectly normal but my cholesterol was up. I haven't seen the results
Pr0jection
in
PMRGCAuk
2 years ago
Statins & Steroids
I’ve been advised to take statins due to high cholesterol levels of 7.0, Serum triglycerides 2.3, HDL 2.5, HDL ratio 2.8, LDL 3.4, non HDL 4.5. I’m reluctant to take more meds but I’m unclear of the meaning of all the results and if I should take statins or not. I’ve read some articles stating that
I’ve been advised to take statins due to high cholesterol levels of 7.0, Serum triglycerides 2.3, HDL 2.5, HDL ratio 2.8, LDL 3.4, non HDL 4.5. I’m reluctant to take more meds but I’m unclear of the meaning of all the results and if I should take statins or not. I’ve read some articles stating that
Griggser
in
PMRGCAuk
2 years ago
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Buprenorphine patch failure. Now very few med options left.
I have PLMD only. It wakes me 3 to 4 times a night and continues until I walk it off. As with many (most?) of you, my sleep architecture is wrecked. In my case I haven't had a continuous night's sleep for 13 years.So, after regimes of Clonazepam, Baclofen, Ropinirole, Gabapentin (twice) and Pregabalin
I have PLMD only. It wakes me 3 to 4 times a night and continues until I walk it off. As with many (most?) of you, my sleep architecture is wrecked. In my case I haven't had a continuous night's sleep for 13 years.So, after regimes of Clonazepam, Baclofen, Ropinirole, Gabapentin (twice) and Pregabalin
dickJones
in
Restless Legs Syndrome
2 years ago
A giant cell arteritis suffer
A giant cell arteritis suffer on methotrexate and prednisolone. Has anyone been on this combination as well? How long did it take you to get off the steroids as i'm still on 4mg as struggling to get off them as symptoms keep returning once I reduce down any further.
A giant cell arteritis suffer on methotrexate and prednisolone. Has anyone been on this combination as well? How long did it take you to get off the steroids as i'm still on 4mg as struggling to get off them as symptoms keep returning once I reduce down any further.
BM16
in
PMRGCAuk
2 years ago
Pregabalin/ropinirole
Hello there i haven't posted for a long time on this forum but I do read and keep an interest in other people's posts/views. I find it helps, sadly, knowing that other people are also experiencing what you are going through. so Ii have been taking Ropinirole for 18+ years. Drs decided I needed to
Hello there i haven't posted for a long time on this forum but I do read and keep an interest in other people's posts/views. I find it helps, sadly, knowing that other people are also experiencing what you are going through. so Ii have been taking Ropinirole for 18+ years. Drs decided I needed to
SilverEvie
in
Restless Legs Syndrome
2 years ago
Paying for Horizant
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
grassgree
in
Restless Legs Syndrome
2 years ago
Levo doses and side effects
Hi everyone, I've had hypothyroidism (Hashimotos) for several years now and never felt 'well' that whole time, but at times have been able to cope and others (like now) absolutely can't. It seems to be constant and I wanted some advice/thoughts from what seems to be a very knowledgeable group who can
Hi everyone, I've had hypothyroidism (Hashimotos) for several years now and never felt 'well' that whole time, but at times have been able to cope and others (like now) absolutely can't. It seems to be constant and I wanted some advice/thoughts from what seems to be a very knowledgeable group who can
Stevensnj87
in
Thyroid UK
1 year ago
Allogenic Stem Cell Transplant
I [i]received a Stem cell transplant six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia. As of today I’m still in remission, showing 97% chimerism
I [i]received a Stem cell transplant six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia. As of today I’m still in remission, showing 97% chimerism
GarciaB
in
MPN Voice
2 years ago
Sore, dry mouth
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Keswick73
in
Fibromyalgia Action UK
2 years ago
Bone marrow transplant
Hi, I am being offered a bone marrow transplant and wonder if anyone can offer me positive advice. Obviously the process is quite scary, but would like to think I'm doing the right thing. Thank you George
Hi, I am being offered a bone marrow transplant and wonder if anyone can offer me positive advice. Obviously the process is quite scary, but would like to think I'm doing the right thing. Thank you George
Georgehb
in
MPN Voice
2 years ago
Ropinirole and Pregablin
Hi first post I am so glad I have found this site it has helped me in a big way in my fight against RLS. My doctor has very limited knowledge of RLS At one time I was on 8 mg of Ropinirole extended release with no pregabalin, my doctor knew this was over the recommended dose of 6 mg but decided
Hi first post I am so glad I have found this site it has helped me in a big way in my fight against RLS. My doctor has very limited knowledge of RLS At one time I was on 8 mg of Ropinirole extended release with no pregabalin, my doctor knew this was over the recommended dose of 6 mg but decided
jmnw15359
in
Restless Legs Syndrome
2 years ago
Mother-in-law with EDS has very low Potassium readings
We thought Mum had dementia and the EDS (diagnosed) means she lives with pain and is unsteady. It just transpired that she has had a long term kidney infection and really low Potassium and has been hospitalised and put on a drip for this twice this week, its possible that this and not just the EDS has
We thought Mum had dementia and the EDS (diagnosed) means she lives with pain and is unsteady. It just transpired that she has had a long term kidney infection and really low Potassium and has been hospitalised and put on a drip for this twice this week, its possible that this and not just the EDS has
liverish
in
Ehlers-Danlos Support UK
2 years ago
Buprenorphine Naloxone dose
Hello again! I have had RLS for most of my life. I was taking 6mg Pramipexol per day until given better advice here on the site. I used 100 MG of Tramadol per day and in 18 months managed to cut down to .25mg Pramipexol. Then I got stuck and couldn't cut down any more. I found a Neurologist who prescribed
Hello again! I have had RLS for most of my life. I was taking 6mg Pramipexol per day until given better advice here on the site. I used 100 MG of Tramadol per day and in 18 months managed to cut down to .25mg Pramipexol. Then I got stuck and couldn't cut down any more. I found a Neurologist who prescribed
welschrispy
in
Restless Legs Syndrome
2 years ago
Has Anyone Tried Hyperbaric Oxygen Therapy (HBOT) - for expedited healing from radiation induced bone fractures & unhealing wounds?
I understand that Hyperbaric Oxygen Therapy (HBOT) helps tremendously with jaw bone death caused by Xgeva type drugs & radiation induced bone problems. It is FDA approved therapy for radiation induced injuries. There are no contraindications for people with active cancer. I’m considering HBOT (defined
I understand that Hyperbaric Oxygen Therapy (HBOT) helps tremendously with jaw bone death caused by Xgeva type drugs & radiation induced bone problems. It is FDA approved therapy for radiation induced injuries. There are no contraindications for people with active cancer. I’m considering HBOT (defined
hopenowandtomorrow
in
SHARE Metastatic Breast Cancer
2 years ago
higher risk of Down’s syndrome
After going through three rounds of ivf with pgd for a genetic condition I have we got our risk for downs back after combined test Nt = 1.5 (normal) Papp-a = 0.86 mom ( normal) Free beta hcg = 6.9 mom (elevated) Risk = 1:51 Anyone also had normal measurements other than the hcg? And what was the
After going through three rounds of ivf with pgd for a genetic condition I have we got our risk for downs back after combined test Nt = 1.5 (normal) Papp-a = 0.86 mom ( normal) Free beta hcg = 6.9 mom (elevated) Risk = 1:51 Anyone also had normal measurements other than the hcg? And what was the
sj482
in
Pregnancy and Parenting Support
2 years ago
Perspective: The High-Folate–Low-Vitamin B-12 Interaction Is a Novel Cause of Vitamin B-12 Depletion with a Specific Etiology—A Hypothesis
Note: This paper is presented by its own authors as a [u]hypothesis[/u] rather than a wholly proved and accepted theory. However, excess folic acid has been identified as an issue many times. Typically, a GP prescribes 5 milligram doses, every day, and the patient continues taking that indefinitely
Note: This paper is presented by its own authors as a [u]hypothesis[/u] rather than a wholly proved and accepted theory. However, excess folic acid has been identified as an issue many times. Typically, a GP prescribes 5 milligram doses, every day, and the patient continues taking that indefinitely
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Carnivore diet and ketogenic diet is reportedly reversing many conditions. Can we heal our bodies with our diets.
I do not know if I actually have restless legs syn drome, but for years I have had involuntary leg movements every day, all day. I have jerking and muscle tension that is very uncomfortable and exhausting. I am not certain if it is the side effects of restoril, I take to sleep, or temazapam, that was
I do not know if I actually have restless legs syn drome, but for years I have had involuntary leg movements every day, all day. I have jerking and muscle tension that is very uncomfortable and exhausting. I am not certain if it is the side effects of restoril, I take to sleep, or temazapam, that was
Yecam1949
in
Restless Legs Syndrome
2 years ago
discomfort but only at night
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
brown1688
in
IBS Network
2 years ago
COPD and RLS
I have emphysema and have tried many inhalers and every one of them aggravated the restless legs. I am on Ropinirole, but still and all it got impossible for me to take. Are there any inhalers for COPD that would not aggravate the legs. My doctor feels it necessary to use inhalers, but I refuse as
I have emphysema and have tried many inhalers and every one of them aggravated the restless legs. I am on Ropinirole, but still and all it got impossible for me to take. Are there any inhalers for COPD that would not aggravate the legs. My doctor feels it necessary to use inhalers, but I refuse as
hscarangella
in
Restless Legs Syndrome
2 years ago
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