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Experiences with
Mast cell activation syndrome (MCAS)
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Vaginal bleeding following bowel movement.
I have had a pessary ring in place, successfully for about 10 years. I am using vaginal oestrogen crem. Recently had a slightly difficult bowel movement bowel movement, after which I experienced slight vaginal bleeding. I will make an appointment with my GP, but wondered if anyone else had experienced
I have had a pessary ring in place, successfully for about 10 years. I am using vaginal oestrogen crem. Recently had a slightly difficult bowel movement bowel movement, after which I experienced slight vaginal bleeding. I will make an appointment with my GP, but wondered if anyone else had experienced
young-at-heart48
in
Pelvic Pain Support Network
2 years ago
Blood test results query
Hello all, Updated tests just back and need help interpreting if possible please! TSH 4.01 mIU/L (range 0.37 - 4.2) FT3 4.5 pmoI/L (range 3.1 - 6.8) FT4 12.1 pmoI/L (range 12 - 22) TgA 239 IU/ml (range 0 - 115) TpA <9 IU/ml (range 0 - 34) White Cell Count 2.19
Hello all, Updated tests just back and need help interpreting if possible please! TSH 4.01 mIU/L (range 0.37 - 4.2) FT3 4.5 pmoI/L (range 3.1 - 6.8) FT4 12.1 pmoI/L (range 12 - 22) TgA 239 IU/ml (range 0 - 115) TpA <9 IU/ml (range 0 - 34) White Cell Count 2.19
MPG15
in
Thyroid UK
2 years ago
Sleep cocktail regimen for rls?,
Hello everyone, For the past few weeks I have been taking 50 mgs. Trazodone with 100 mgs Gabapentin two hours before bed and then 300mgs. Gabapentin about half hour before bed. I take a break every four days. At which point I take 1 mg. Clonazepam. This has been helping me both with my RLS and my
Hello everyone, For the past few weeks I have been taking 50 mgs. Trazodone with 100 mgs Gabapentin two hours before bed and then 300mgs. Gabapentin about half hour before bed. I take a break every four days. At which point I take 1 mg. Clonazepam. This has been helping me both with my RLS and my
zeusop
in
Restless Legs Syndrome
2 years ago
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Most effective medications for suppressing Periodic Limb Movements of Sleep (PLMS)
An interesting article from the Journal of Clinical Sleep Medicine (Jan 24, 2023) https://doi.org/10.5664/jcsm.10440 I'm unable to access the full article but here's part of the abstract. STUDY OBJECTIVES:Periodic limb movements during sleep (PLMS) are a frequent finding in restless legs syndrome (
An interesting article from the Journal of Clinical Sleep Medicine (Jan 24, 2023) https://doi.org/10.5664/jcsm.10440 I'm unable to access the full article but here's part of the abstract. STUDY OBJECTIVES:Periodic limb movements during sleep (PLMS) are a frequent finding in restless legs syndrome (
Hidden
in
Restless Legs Syndrome
2 years ago
Travel insurance within the UK.
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
Kraskie1915
in
CLL Support
1 year ago
Urgent Chronic Diarrhea with Left Shoulder Blade Pain Bile Acid Absortion MCAS ?
I definitely fit the Bile Acid symptoms as well as
Mast
Cell
Activation
Syndrome
and my fatigue is getting much worse , It feels like someone has pulled the plug out and I have no energy or stamina and have to rest and/or sleep for a while in the middle of the day.
I definitely fit the Bile Acid symptoms as well as
Mast
Cell
Activation
Syndrome
and my fatigue is getting much worse , It feels like someone has pulled the plug out and I have no energy or stamina and have to rest and/or sleep for a while in the middle of the day.
Pumpkin2009
in
IBS Network
2 years ago
methadone and shortness of breath
Hi all, Apologize in advance for length of this post. I've had RLS for since my early 40s and spent about 14 years on DA drugs. A not unusual story with augmentation and switching over to pregabalin about 3 years ago- but the pregabalin not being entirely effective for symptoms. At that time I was
Hi all, Apologize in advance for length of this post. I've had RLS for since my early 40s and spent about 14 years on DA drugs. A not unusual story with augmentation and switching over to pregabalin about 3 years ago- but the pregabalin not being entirely effective for symptoms. At that time I was
KClark68
in
Restless Legs Syndrome
2 years ago
Burning Mouth Syndrome
I haven't been on here for a while so, apologies. I have had pneumonia twice in the past 8 weeks & have been left with a terrible burning pain in my mouth. Has anyone ever had this? If so how do you treat it. Dr say there is no cure for it, it is driving me insane. Jackie
I haven't been on here for a while so, apologies. I have had pneumonia twice in the past 8 weeks & have been left with a terrible burning pain in my mouth. Has anyone ever had this? If so how do you treat it. Dr say there is no cure for it, it is driving me insane. Jackie
JustJaxx
in
Fibromyalgia Action UK
2 years ago
up coming urology procedure and sick day rules?
i am waiting to have laser surgery with general anaesthetic on a benign prostate problem shortly. I am successfully reducing my pred for PMR for the second time in 3 and half years from 10 to 7.5 currently and taking it very slowly. Do I follow the sick day rules when having this procedure and if so
i am waiting to have laser surgery with general anaesthetic on a benign prostate problem shortly. I am successfully reducing my pred for PMR for the second time in 3 and half years from 10 to 7.5 currently and taking it very slowly. Do I follow the sick day rules when having this procedure and if so
Pommygranny
in
PMRGCAuk
2 years ago
Treatment of RLS with Pramipexole
I was diagnosed with RLS about 6 months ago. My consultant prescribed Ropinirole but after reading adverse comments about it , I told my GP I did not want to take it and I am now taking 300mg of pregabalin twice per day. Unfortunately my symptoms are not improving . My GP has now prescribed Pramipexole
I was diagnosed with RLS about 6 months ago. My consultant prescribed Ropinirole but after reading adverse comments about it , I told my GP I did not want to take it and I am now taking 300mg of pregabalin twice per day. Unfortunately my symptoms are not improving . My GP has now prescribed Pramipexole
DonWilliams
in
Restless Legs Syndrome
2 years ago
treatment and relationship - couples therapy?
Hi everyone, my partner and I have been together for 6 years and we plan to have a cheeky small wedding in February ☺️ Generally our relationship is great and he’s so kind but after a difficult pregnancy in 2021 where I really suffered with my mental health, then miscarriage and a mental health breakdown
Hi everyone, my partner and I have been together for 6 years and we plan to have a cheeky small wedding in February ☺️ Generally our relationship is great and he’s so kind but after a difficult pregnancy in 2021 where I really suffered with my mental health, then miscarriage and a mental health breakdown
honeybeanbee
in
Fertility Network UK
2 years ago
Tramadol has been a life saver for me
I try to alternate between mirapexin(unfortunately) and tramadol. Its the only thing that seems to work for me. Ive tried most other meds except methadone and the one which makes you feel nauseous as they wont give it to me. Lately though Im not doing so well as when I come off the tram I wake up every
I try to alternate between mirapexin(unfortunately) and tramadol. Its the only thing that seems to work for me. Ive tried most other meds except methadone and the one which makes you feel nauseous as they wont give it to me. Lately though Im not doing so well as when I come off the tram I wake up every
Coeso
in
Restless Legs Syndrome
2 years ago
parietal cell antibody lab results
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
Purplegirl2
in
Pernicious Anaemia Society
2 years ago
Latest Bloods
Hi All I have tried since 26th October 2022 to increase my T3 with Liothyronine. A very tiny amount of 1.25mcg at night, it seemed to be working fine until 2 days after my blood test - high heart rate and increased sweating at night, feeling too hot during the day, despite the weather being so cold
Hi All I have tried since 26th October 2022 to increase my T3 with Liothyronine. A very tiny amount of 1.25mcg at night, it seemed to be working fine until 2 days after my blood test - high heart rate and increased sweating at night, feeling too hot during the day, despite the weather being so cold
AleB
in
Thyroid UK
2 years ago
RLS under anesthesia
Has anyone had RLS while under anesthesia ? I didn't know it would be possible but my Dr told my husband I was probably a secret opioid addict because my legs were twitching a lot during the procedure...... 1. I don't take opioids. Even when I tried them for RLS years ago it didn't really work and
Has anyone had RLS while under anesthesia ? I didn't know it would be possible but my Dr told my husband I was probably a secret opioid addict because my legs were twitching a lot during the procedure...... 1. I don't take opioids. Even when I tried them for RLS years ago it didn't really work and
SkyCop
in
Restless Legs Syndrome
2 years ago
You are what you breath - but what you breath varies...
[i]MY reason for writing this is one or two people liked my answers about the strange world of breathing. I am not a clinician, nor a scientist so beware taking me literally. However some things are self-evident dear Watson. [/i] We breath in a mixture of oxygen (20%) , nitrogen (79%) and a tiny amount
[i]MY reason for writing this is one or two people liked my answers about the strange world of breathing. I am not a clinician, nor a scientist so beware taking me literally. However some things are self-evident dear Watson. [/i] We breath in a mixture of oxygen (20%) , nitrogen (79%) and a tiny amount
Timberman
in
Lung Conditions Community Forum
1 year ago
sickness and fibromyalgia taking betahistine dihydrochloride.
hi I have been sick again this morning and I only seem to get this in the morning. I am wretching a little bit after but trying to get better. I have been given betahistine dihydrochloride for the dizziness etc and I hope this is helpful. I am so sick of this stuff happening to me. I am sorry to moan
hi I have been sick again this morning and I only seem to get this in the morning. I am wretching a little bit after but trying to get better. I have been given betahistine dihydrochloride for the dizziness etc and I hope this is helpful. I am so sick of this stuff happening to me. I am sorry to moan
fibrogirl41
in
Fibromyalgia Action UK
2 years ago
Ropinirole
I’ve been on 3.5 milligrams of Ropinirole for about 4 years now but my RLS is getting much worse- legs and arms. Even though I take it throughout the day and am very active I cannot sit down and take a rest without the RLS kicking in. I am fortunately getting some sleep. Should I switch to pregabalin
I’ve been on 3.5 milligrams of Ropinirole for about 4 years now but my RLS is getting much worse- legs and arms. Even though I take it throughout the day and am very active I cannot sit down and take a rest without the RLS kicking in. I am fortunately getting some sleep. Should I switch to pregabalin
milly-22
in
Restless Legs Syndrome
2 years ago
Miraculous Story of a person who underwent stem cell transplant in 1999
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
Farooqji
in
Cure Parkinson's
1 year ago
Intralipid infussion
Good morning Lovely Girls, I am having my second transfer in Spain next Tuesday and yesterday I had my first intralipid infussion to treat for recurrent miscarriage. The Clinic told me that I would need to have the second one in 3 weeks time if I am pregnant. Please could you let me know if the
Good morning Lovely Girls, I am having my second transfer in Spain next Tuesday and yesterday I had my first intralipid infussion to treat for recurrent miscarriage. The Clinic told me that I would need to have the second one in 3 weeks time if I am pregnant. Please could you let me know if the
Strawberryice
in
Fertility Network UK
2 years ago
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