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Mast cell activation syndrome (MCAS)
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pramipexole shortage
I have taken pramipexole for RLS over 15 years. Before that I took Ropinirole, which lost its effectiveness. There is hardly any 0.18 mg (180 mcg) left in any Leeds pharmacies . I got just half my prescribed amount today. Without it I shall never sleep again, but be a writhing mess. One reads in the
I have taken pramipexole for RLS over 15 years. Before that I took Ropinirole, which lost its effectiveness. There is hardly any 0.18 mg (180 mcg) left in any Leeds pharmacies . I got just half my prescribed amount today. Without it I shall never sleep again, but be a writhing mess. One reads in the
Grumpdad
in
Restless Legs Syndrome
1 year ago
Tapering with new issues ongoing
Tapering while new issues arvine profile image arvine• 8 hours ago•1 Reply well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma
Tapering while new issues arvine profile image arvine• 8 hours ago•1 Reply well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma
arvine
in
PMRGCAuk
1 year ago
Tapering while new issues
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
arvine
in
Pain Concern
1 year ago
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augmentation on neupro+Gabapentin. should I switch to a different dopamine agonist? All that’s helping is cannabis.
I’ve been on Neupro 1mg patches for 4+ years. I also currently take 800mg Gabapentin: 400mg twice a day. In the last month my RLS symptoms have appeared nightly beginning around 9:30pm. I’m able to fall asleep but then wake up in the middle of the night with RLS symptoms. The only thing that’s helped
I’ve been on Neupro 1mg patches for 4+ years. I also currently take 800mg Gabapentin: 400mg twice a day. In the last month my RLS symptoms have appeared nightly beginning around 9:30pm. I’m able to fall asleep but then wake up in the middle of the night with RLS symptoms. The only thing that’s helped
Discopage
in
Restless Legs Syndrome
1 year ago
School experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Another interesting dissertation: Lewis, M. L. (2022). A narrative inquiry into the school experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)(Doctoral dissertation, University of Bristol). https://research-information.bris.ac.uk/ws/portalfiles/portal/
Another interesting dissertation: Lewis, M. L. (2022). A narrative inquiry into the school experiences of teenagers living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)(Doctoral dissertation, University of Bristol). https://research-information.bris.ac.uk/ws/portalfiles/portal/
theia
in
Myalgic Encephalomyelitis Community
1 year ago
Red face / flushing. Possible rosacea
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Kraskie1915
in
CLL Support
1 year ago
Hot flashes?
Am having ever more hot flashes and sweating around my neck over last several months. Could it be the steroids? In the distant past, was relying on welbutrin for depression but got hot flashes and changed to escatolepram. In the last few years I started taking a small dose of welbutrin in addition
Am having ever more hot flashes and sweating around my neck over last several months. Could it be the steroids? In the distant past, was relying on welbutrin for depression but got hot flashes and changed to escatolepram. In the last few years I started taking a small dose of welbutrin in addition
Merryfield
in
PMRGCAuk
1 year ago
Coping strategies
I have recently had a relative that has been placed in ICU . I am finding it very stressful and worrying with all the ups and downs. Are there any tips of how to cope with the situation ?
I have recently had a relative that has been placed in ICU . I am finding it very stressful and worrying with all the ups and downs. Are there any tips of how to cope with the situation ?
Ashfilm
in
ICUsteps
2 years ago
Can you 'demand' Tocilizumab for GCA?
I was diagnosed with PMR in January 23, responded well to steroids (15mg) but quickly developed GCA symptoms (severe headache pain, blurred vision and jaw claudication) when these were reduced to 12.5mg after 3 weeks and 'normal' CRP/ESR tests. I was referred to Ambulatory care but an ultrasound showed
I was diagnosed with PMR in January 23, responded well to steroids (15mg) but quickly developed GCA symptoms (severe headache pain, blurred vision and jaw claudication) when these were reduced to 12.5mg after 3 weeks and 'normal' CRP/ESR tests. I was referred to Ambulatory care but an ultrasound showed
tweety_pie
in
PMRGCAuk
1 year ago
What is the difference between these two tests?
Parietal Cell Antibody, ELISA/ positive Parietal Cell Antibody with Relex to Titer/ Negative
Parietal Cell Antibody, ELISA/ positive Parietal Cell Antibody with Relex to Titer/ Negative
Tigerlilly81
in
Pernicious Anaemia Society
1 year ago
Gabapentin plus Sertraline
I’d be grateful for advice. I have longstanding RLS and currently take codeine 30-60mg with partial effect. I’ve never taken anything else for RLS. A few weeks ago I needed antidepressants and my GP gave me Sertraline, as I had managed several months on this previously, with the RLS remaining tolerable
I’d be grateful for advice. I have longstanding RLS and currently take codeine 30-60mg with partial effect. I’ve never taken anything else for RLS. A few weeks ago I needed antidepressants and my GP gave me Sertraline, as I had managed several months on this previously, with the RLS remaining tolerable
Embroiderer
in
Restless Legs Syndrome
1 year ago
Tocilizumab
Hi. Has anyone had Tocilizumab injections for pmr? I've been looking at recent research which seems to suggest favourable outcomes for pmr sufferers who have problems tapering prednisolone.
Hi. Has anyone had Tocilizumab injections for pmr? I've been looking at recent research which seems to suggest favourable outcomes for pmr sufferers who have problems tapering prednisolone.
BlueMozart
in
PMRGCAuk
1 year ago
Bone Marrow Transplant
BONE MARROW TRANSPLANT:Why Mazi Henry Uroegbulam Eric Otulle Eke Sr Will Never Ever Forgive World-famous Hospital For Failing His Daughter - was the child used as a guinea-pig? BONE MARROW TRANSPLANT: Sub-Continent with world's highest prevalence of SCD/SCT goes into BMT - a whole new era for medical
BONE MARROW TRANSPLANT:Why Mazi Henry Uroegbulam Eric Otulle Eke Sr Will Never Ever Forgive World-famous Hospital For Failing His Daughter - was the child used as a guinea-pig? BONE MARROW TRANSPLANT: Sub-Continent with world's highest prevalence of SCD/SCT goes into BMT - a whole new era for medical
sicklecellnews
in
Sickle Cell Society
1 year ago
RLS and antidepressants
Hi, I was just wondering if anyone in the UK has been prescribed an antidepressant that doesn’t make their restless legs worse? I’ve been on citalopram, fluoxetine and duloxetine, they have all made my RLS worse.
Hi, I was just wondering if anyone in the UK has been prescribed an antidepressant that doesn’t make their restless legs worse? I’ve been on citalopram, fluoxetine and duloxetine, they have all made my RLS worse.
Heather-rose
in
Restless Legs Syndrome
1 year ago
Form of Magnesium?
Hi all, my daughter is suggesting I try Magnesium Malate as it is suggested for Fibromyalgia
Hi all, my daughter is suggesting I try Magnesium Malate as it is suggested for Fibromyalgia
serengazer
in
Restless Legs Syndrome
1 year ago
Advice about hair loss please
Hi, so diagnosed with sub hypo 2 months ago with very raised antibodies. I've been on 50mg levo which was raised due to symptoms after a few weeks so now on 75mg. But while I have seen an improvement in other symptoms my hair is shedding even more. Can anyone advise how long does it take to calm down
Hi, so diagnosed with sub hypo 2 months ago with very raised antibodies. I've been on 50mg levo which was raised due to symptoms after a few weeks so now on 75mg. But while I have seen an improvement in other symptoms my hair is shedding even more. Can anyone advise how long does it take to calm down
Catsrock23
in
Thyroid UK
1 year ago
Alternating meds
I wonder if anyone else has experience with a RLS therapy method of alternating .375 mg Pramipexole and Methadone 20-30 mg every 10 days? I also use marijuana which helps maybe 40% for about an hour. My case is very severe with many previous pharmacologic failures including Alpha 2 Ligands, Buprenorphine
I wonder if anyone else has experience with a RLS therapy method of alternating .375 mg Pramipexole and Methadone 20-30 mg every 10 days? I also use marijuana which helps maybe 40% for about an hour. My case is very severe with many previous pharmacologic failures including Alpha 2 Ligands, Buprenorphine
WelbyB
in
Restless Legs Syndrome
1 year ago
Advice pls- FET or endometrial testing
Hi ladies, Would appreciate your advice on my situation. Had an MMC at 7 wks in Oct 22 (4th transfer and first time I’ve ever had a positive pregnancy test). It took nearly 2 months for me to naturally have a period after. I had some miscarriage/ implantation testing with a university research clinic
Hi ladies, Would appreciate your advice on my situation. Had an MMC at 7 wks in Oct 22 (4th transfer and first time I’ve ever had a positive pregnancy test). It took nearly 2 months for me to naturally have a period after. I had some miscarriage/ implantation testing with a university research clinic
Elmo13
in
Fertility Network UK
2 years ago
kratom vs Gabapentin
those of you who have switched from kratom to Gabapentin, or to something else… do you find if better or worse? I’d love to hear from some of you who used to use kratom but don’t anymore… do you feel better ? Do you feel less anxious? Has your sleep improved? Has your life improved? Is it possible to
those of you who have switched from kratom to Gabapentin, or to something else… do you find if better or worse? I’d love to hear from some of you who used to use kratom but don’t anymore… do you feel better ? Do you feel less anxious? Has your sleep improved? Has your life improved? Is it possible to
RCHD
in
Restless Legs Syndrome
1 year ago
subutex
does anyone have any experience of using subutex for restless legs? My mother has had a knee replacement and her restless legs are terribly severe and she is not sleeping at all. She is on progablin and we have taken her off the oxycodine as it was making things much worse, her whole body was shaking
does anyone have any experience of using subutex for restless legs? My mother has had a knee replacement and her restless legs are terribly severe and she is not sleeping at all. She is on progablin and we have taken her off the oxycodine as it was making things much worse, her whole body was shaking
RlS2023
in
Restless Legs Syndrome
1 year ago
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