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Mantle cell lymphoma (MCL)
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Stick or Twist...Not Really.
For those people who don't know me and read this, I have CLL and
Mantle
Cell
Lymphoma
and am being treated for both, but the MCL is leading the treatment protocol.
For those people who don't know me and read this, I have CLL and
Mantle
Cell
Lymphoma
and am being treated for both, but the MCL is leading the treatment protocol.
zentangle
in
CLL Support
8 years ago
Will B12 skew PC and IF results
Hi, I have been having injections of hydroxocobalamin from my doctor every 3 months since I was diagnosed in 2011 with PA, level was 140. At my injection 3 months ago, the nurse told me that the doctors want all their B12 injection patients to have a parietal cell antibody test. This came back negative
Hi, I have been having injections of hydroxocobalamin from my doctor every 3 months since I was diagnosed in 2011 with PA, level was 140. At my injection 3 months ago, the nurse told me that the doctors want all their B12 injection patients to have a parietal cell antibody test. This came back negative
rw1001
in
Pernicious Anaemia Society
8 years ago
SCT go ahead
Hi MPN friends, I just wanted to let you know that I will be starting the process of a stem cell transplant next weds 22 June. I live in France and will be having the treatment in Montpellier. I have a femal German donor 10/10 match. Words cannot express my gratitude at the gift of her stem cells. At
Hi MPN friends, I just wanted to let you know that I will be starting the process of a stem cell transplant next weds 22 June. I live in France and will be having the treatment in Montpellier. I have a femal German donor 10/10 match. Words cannot express my gratitude at the gift of her stem cells. At
Jane65
in
MPN Voice
8 years ago
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Myeloma relapse.
Diagnosed with MM in 2006. My symptoms where only foggy vision. After 9 months and multiple tests it was a diagnoses of Multiple Myeloma. three years of quarterly blood work checks I was prepared for a stem cell transplant. Fortunately I used my own stem cells. Hospitalized for 3 weeks, full remission
Diagnosed with MM in 2006. My symptoms where only foggy vision. After 9 months and multiple tests it was a diagnoses of Multiple Myeloma. three years of quarterly blood work checks I was prepared for a stem cell transplant. Fortunately I used my own stem cells. Hospitalized for 3 weeks, full remission
MargaretG
in
Myeloma America Support
8 years ago
Allogeneic Transplantation for Chronic Lymphocytic Leukemia in the Age of Novel Treatment Strategies
Given we currently have a few members going through bone marrow transplants, this review article in CancerNetwork by Mark-Alexander Schwarzbich, MD, Fabienne McClanahan, MD, PhD, and John Gribben, MD, DSc should be of interest: http://www.cancernetwork.com/oncology-journal/allogeneic-transplantation-chronic-lymphocytic-leukemia-age-novel-treatment-strategies
Given we currently have a few members going through bone marrow transplants, this review article in CancerNetwork by Mark-Alexander Schwarzbich, MD, Fabienne McClanahan, MD, PhD, and John Gribben, MD, DSc should be of interest: http://www.cancernetwork.com/oncology-journal/allogeneic-transplantation-chronic-lymphocytic-leukemia-age-novel-treatment-strategies
AussieNeil
Partner
in
CLL Support
8 years ago
MPN Voice Nottingham Support Group - Wednesday 15th June - speaker is the bone marrow transplant nurse specialist
We are very pleased to announce that the speaker for the meeting on Wednesday 15th June will be Lynne Watson, the bone marrow transplant specialist nurse. The meeting starts at 6 pm and ends at approximately 7.30 pm. Everyone who is affected by a MPN is welcome to come along, there is no fee to attend
We are very pleased to announce that the speaker for the meeting on Wednesday 15th June will be Lynne Watson, the bone marrow transplant specialist nurse. The meeting starts at 6 pm and ends at approximately 7.30 pm. Everyone who is affected by a MPN is welcome to come along, there is no fee to attend
Mazcd
MPNVoice
in
MPN Voice
8 years ago
Plymouth Devon & Cornwall PMR/GCA meet up 15th June 10.30
Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis support meeting for the Devon & Cornwall Area PMRGCA UK is holding their next support group meeting in the Plymouth area for anyone with PMR or their carers To be held in room 3 Saltash Wesley Methodist Church Callington
Re: - Polymyalgia Rheumatica – Giant Cell Arteritis – Temporal Arteritis support meeting for the Devon & Cornwall Area PMRGCA UK is holding their next support group meeting in the Plymouth area for anyone with PMR or their carers To be held in room 3 Saltash Wesley Methodist Church Callington
Hidden
in
PMRGCAuk
8 years ago
How Often Should I Have Checkups Post-Stem Cell Transplant?
Patient Power community member, Johnny asks, “I had a stem cell transplant (SCT) five years ago. How often should I be having checkups?” Dr. Jatin Shah of MD Anderson Cancer Center shares his recommendation and sums everything up with stressing the need to watch your disease closely. https://www.patientpower.info
Patient Power community member, Johnny asks, “I had a stem cell transplant (SCT) five years ago. How often should I be having checkups?” Dr. Jatin Shah of MD Anderson Cancer Center shares his recommendation and sums everything up with stressing the need to watch your disease closely. https://www.patientpower.info
mcints
in
Myeloma America Support
8 years ago
Younger age GCA data?
I've just bought the new collection of articles by Dasgupta and Dejaco, 'Polymyalgia Rheumatica and Giant Cell Arteritis', published by OUP last month. I was very disappointed to see on the first page of this brand-new book that the authors state in the 'Preface' that PMR and GCA are 'exclusively occurring
I've just bought the new collection of articles by Dasgupta and Dejaco, 'Polymyalgia Rheumatica and Giant Cell Arteritis', published by OUP last month. I was very disappointed to see on the first page of this brand-new book that the authors state in the 'Preface' that PMR and GCA are 'exclusively occurring
CloudGazer6
in
PMRGCAuk
8 years ago
Donating blood
Report reveals 'unfair survival odds' for BAME blood cancer patients due to lack of donor diversity http://www.nhsbt.nhs.uk/news-and-media/…/news_2016_05_19.asp This is an issue which affects sickle cell, too. Many people who live with sickle cell are black, and require repeated blood transfusions
Report reveals 'unfair survival odds' for BAME blood cancer patients due to lack of donor diversity http://www.nhsbt.nhs.uk/news-and-media/…/news_2016_05_19.asp This is an issue which affects sickle cell, too. Many people who live with sickle cell are black, and require repeated blood transfusions
SCSZoe
Administrator
in
Sickle Cell Society
8 years ago
Circulating Tumor Cells Linked to Worse Prognosis (BREASTCANCER.ORG)...
Circulating tumor cells (CTCs) are cells that break off from a cancer tumor and move into the blood stream. Doctors sometimes test for CTCs to see if breast cancer cells are active in areas of the body besides the breast. Several previous studies have linked the number of CTCs to the prognosis of metastatic
Circulating tumor cells (CTCs) are cells that break off from a cancer tumor and move into the blood stream. Doctors sometimes test for CTCs to see if breast cancer cells are active in areas of the body besides the breast. Several previous studies have linked the number of CTCs to the prognosis of metastatic
Dil2310
in
Breast Cancer India
8 years ago
Hemoglobin, iron, and vitamin B12 deficiencies and high blood homocysteine levels in patients with anti-thyroid autoantibodies
OK - small sample. OK - selection according to relatively low incidence other disorders. OK - hypothyroidism determined by in/out of full TSH range. But... the fact that these things are even being talked about as having connections is a plus.
[i]Hemoglobin, iron, and vitamin B12 deficiencies and
OK - small sample. OK - selection according to relatively low incidence other disorders. OK - hypothyroidism determined by in/out of full TSH range. But... the fact that these things are even being talked about as having connections is a plus.
[i]Hemoglobin, iron, and vitamin B12 deficiencies and
helvella
Thyroid UK
in
Thyroid UK
8 years ago
Newbie
Hi I have been a 'browser' here for a while but never posted for personal reasons. I am 64 (65 next week) and was 32 when I was diagnosed with ET. I think I must have had every treatment available in the last 32 years; radio active phosphorus injections, interferon, Hydrea, Busulphan, Anagrelide, aspirin
Hi I have been a 'browser' here for a while but never posted for personal reasons. I am 64 (65 next week) and was 32 when I was diagnosed with ET. I think I must have had every treatment available in the last 32 years; radio active phosphorus injections, interferon, Hydrea, Busulphan, Anagrelide, aspirin
Wychwoodbabe
in
MPN Voice
8 years ago
WHO?
The 2016 revision of the World Health Organization (WHO) classification of lymphoid neoplasms is coming soon... and CLL/SLL is still a lymphoma. There are a number of changes particularly to MBL, which is now considered a precursor to CLL, in virtually all cases... but is subdivided in to high and low
The 2016 revision of the World Health Organization (WHO) classification of lymphoid neoplasms is coming soon... and CLL/SLL is still a lymphoma. There are a number of changes particularly to MBL, which is now considered a precursor to CLL, in virtually all cases... but is subdivided in to high and low
Cllcanada
Top Poster CURE Hero
in
CLL Support
8 years ago
Do Mobile/Cell phones cause brain cancer?
With a CLL diagnosis, our increased risk secondary cancers becomes a concern. So understandably, many of us look at what we can do to reduce our risk of developing secondary cancers. This article by Simon Chapman, Emeritus Professor in Public Health, University of Sydney may prove reassuring to anyone
With a CLL diagnosis, our increased risk secondary cancers becomes a concern. So understandably, many of us look at what we can do to reduce our risk of developing secondary cancers. This article by Simon Chapman, Emeritus Professor in Public Health, University of Sydney may prove reassuring to anyone
AussieNeil
Partner
in
CLL Support
8 years ago
Allogeneic Stem Cell Transplant: Who Is It Most Appropriate For?
In this Ask the Expert segment, Frances asks, “When is the right time for an allogeneic [stem cell] transplant?” Dr. Jatin Shah of MD Anderson Cancer Center responds by discussing the controversy surrounding this difficult choice and factors that should be considered, and he stresses the need for multiple
In this Ask the Expert segment, Frances asks, “When is the right time for an allogeneic [stem cell] transplant?” Dr. Jatin Shah of MD Anderson Cancer Center responds by discussing the controversy surrounding this difficult choice and factors that should be considered, and he stresses the need for multiple
mcints
in
Myeloma America Support
8 years ago
Considering a Bone Marrow Transplant
What are the pros and cons of continuing CLL therapies versus having a bone marrow transplant (BMT)? Dr. Philip Thompson, a CLL expert from MD Anderson Cancer Center, shares his thoughts on this question. https://www.patientpower.info/video/considering-a-bone-marrow-transplant
What are the pros and cons of continuing CLL therapies versus having a bone marrow transplant (BMT)? Dr. Philip Thompson, a CLL expert from MD Anderson Cancer Center, shares his thoughts on this question. https://www.patientpower.info/video/considering-a-bone-marrow-transplant
mcints
in
CLL America Support
8 years ago
Share your story please!
Hello everyone, Several people on this forum have said some very kind things about the book I published a couple of years ago - Polymyalgia Rheumatica and Giant Cell Arteritis - a survival guide. Right now I am working on the second edition. Mostly for the 'patient experience' bit I was drawing on
Hello everyone, Several people on this forum have said some very kind things about the book I published a couple of years ago - Polymyalgia Rheumatica and Giant Cell Arteritis - a survival guide. Right now I am working on the second edition. Mostly for the 'patient experience' bit I was drawing on
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
8 years ago
My success with Imbruvica (ibrutinib
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
ohiojim
in
CLL Support
8 years ago
Good Blood counts = cured?
End of 2013 I was diagnosed with MF and a few months later this was revised to MDS/MF overlap type of symdrom - this resulted in a SCT in August 2015. 8 months down the line from my SCT, my blood counts are very good - white/red/platelets haemoglobin - and have been for a few months now. Although my
End of 2013 I was diagnosed with MF and a few months later this was revised to MDS/MF overlap type of symdrom - this resulted in a SCT in August 2015. 8 months down the line from my SCT, my blood counts are very good - white/red/platelets haemoglobin - and have been for a few months now. Although my
crapaud
in
MPN Voice
8 years ago
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