I've just bought the new collection of articles by Dasgupta and Dejaco, 'Polymyalgia Rheumatica and Giant Cell Arteritis', published by OUP last month.
I was very disappointed to see on the first page of this brand-new book that the authors state in the 'Preface' that PMR and GCA are 'exclusively occurring in older people'. This is a book directed ostensibly at health-care professionals, and presumably a large part of its intended audience includes those who are not rheumatology specialists. I can't help thinking that there is a missed opportunity here to have highlighted the broader age spectrum that these conditions can affect. So often I read here on the forum that people at the younger age range are being told 'you're too young' to have PMR or GCA, or at least how it makes the diagnostic pathways more challenging for the doctors.
I'm not an 'older person' (51), either in my life stage nor under the usual medical criteria, which are usually related to retirement age or people seen under gerontology specialties whose medical needs and presentations can be different to those with younger bodies - although I concede that I'm older than 30, older than 40.
Does anyone know if any age-related data is being collected for these conditions? If not, I might take this on as a project when I'm well enough to do so (there is potentially scope for me to do this my work). It seems to me that there are considerable socio-economic implications as well as medical factors (eg atypical presentation) that could perhaps inform medical decision making in the future, and help patients work with their doctors to achieve successful outcomes.