Hi MPN friends, I just wanted to let you know that I will be starting the process of a stem cell transplant next weds 22 June. I live in France and will be having the treatment in Montpellier. I have a femal German donor 10/10 match. Words cannot express my gratitude at the gift of her stem cells. At this time when we are talking about Europe and whether it is Inn OUT or shake it all about, this wonderful, selfless German woman is doing all she can to give the gift of a longer life. It is overwhelming.
So it is admission 22nd, procedures and tests 22&23, chemo 24-27, stem cells 29th.
Keep your fingers crossed for me because I know it will be a long and bumpy road. I send my love to all my MPN friends but in particular I would like to say a great big thank you to Gary aka crapaud. He and I spike together for a long time earlier this week about his experience of a SCT in France and he reassured me and grounded me. I have my eyes open but I am calm. And I am very grateful.
Best wishes to you all Jane
( I am 50 years old and I have post Et MF with CALR mutation. Have been on 40mg Jakafi per day since last August but have been transfusion dependent since starting the meds)