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Mantle cell lymphoma (MCL)
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The placebo and the nocebo effect and the ethics of pacebo use.
[i]'What are placebos?[/i]
[i]It’s important to distinguish between pure and impure placebos. A pure placebo is a straightforwardly fake treatment – a saline injection or a sugar pill, for instance, that is represented as a drug.[/i] [i]An impure placebo is a substance or treatment that does
[i]'What are placebos?[/i]
[i]It’s important to distinguish between pure and impure placebos. A pure placebo is a straightforwardly fake treatment – a saline injection or a sugar pill, for instance, that is represented as a drug.[/i] [i]An impure placebo is a substance or treatment that does
AussieNeil
Partner
in
CLL Support
8 years ago
Understanding New Myeloma Therapies and the Role of Stem Cell Transplant
Is stem cell transplant a viable treatment option? How long should maintenance therapy last? From the Myeloma 2016 meeting in Boston, Dr. Thomas Martin from UCSF Medical Center answered these questions and more related to myeloma treatment. He goes on to discuss new and upcoming myeloma treatments as
Is stem cell transplant a viable treatment option? How long should maintenance therapy last? From the Myeloma 2016 meeting in Boston, Dr. Thomas Martin from UCSF Medical Center answered these questions and more related to myeloma treatment. He goes on to discuss new and upcoming myeloma treatments as
mcints
in
Myeloma America Support
8 years ago
Weekly Clinical Trial Spotlight
We firmly believe clinical trials are a great way to get tomorrow's medicine today so each week, we will be featuring a clinical trial from our partner, SparkCures. SparkCures is a clinical trial finder tool and we encourage you to check them out! ********************Myeloma Clinical Trial**********
We firmly believe clinical trials are a great way to get tomorrow's medicine today so each week, we will be featuring a clinical trial from our partner, SparkCures. SparkCures is a clinical trial finder tool and we encourage you to check them out! ********************Myeloma Clinical Trial**********
tclementi
in
Myeloma America Support
8 years ago
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Scleroderma and Non-Hodgkins Lymphoma
My mum was diagnosed with scleroderma 18 months ago - it's confined to her (very tight) skin and her symptoms are very cold hands and feet and lack of energy/can't walk far. Just before Christmas she was diagnosed with non-Hodgkins lymphoma in her neck for which she's nearly completed chemotherapy treatment
My mum was diagnosed with scleroderma 18 months ago - it's confined to her (very tight) skin and her symptoms are very cold hands and feet and lack of energy/can't walk far. Just before Christmas she was diagnosed with non-Hodgkins lymphoma in her neck for which she's nearly completed chemotherapy treatment
TraceyK55
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
My ET Has Progressed to MF: Am I a Candidate for Stem Cell Transplant?
In this Ask the Expert segment, Patient Power community member, Betty’s essential thrombocythemia (ET) has transformed to myelofibrosis (MF) and she wants to know, “What are the general considerations or criteria for putting patients on a stem cell transplant (SCT) list?” Dr. Naveen Pemmaraju responds
In this Ask the Expert segment, Patient Power community member, Betty’s essential thrombocythemia (ET) has transformed to myelofibrosis (MF) and she wants to know, “What are the general considerations or criteria for putting patients on a stem cell transplant (SCT) list?” Dr. Naveen Pemmaraju responds
mcints
in
Fight MPN
8 years ago
I was dx 4 years ago with Cll at 48 and had a quadruple bypass last year. Blood thinners?
A quick question. As I am taking blood thinners, could this affect me going on a clinical trial in the future?
A quick question. As I am taking blood thinners, could this affect me going on a clinical trial in the future?
Pinno
in
CLL Support
8 years ago
Waldenstrom’s Macroglobulinemia Patient & Caregiver Surveys
If you have Waldenstrom’s Macroglobulinemia (Lymphoplasmacytic Lymphoma), we need your help. Lymphoma Canada, in partnership with the Canadian Organization for Rare Disorders (CORD) is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Ibrutinib (Imbruvica) for patients with
If you have Waldenstrom’s Macroglobulinemia (Lymphoplasmacytic Lymphoma), we need your help. Lymphoma Canada, in partnership with the Canadian Organization for Rare Disorders (CORD) is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Ibrutinib (Imbruvica) for patients with
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
Coffee Intake Reduced Colorectal Cancer Risk
[i]Drinking coffee resulted in a more than 25% decreased risk for developing colorectal cancer, according to the results of a study published in Cancer, Epidemiology, Biomarkers & Prevention.[/i] : [i]“This large case–control study (coffee intake and colorectal cancer occurrence in 5,145 cases and 4,097
[i]Drinking coffee resulted in a more than 25% decreased risk for developing colorectal cancer, according to the results of a study published in Cancer, Epidemiology, Biomarkers & Prevention.[/i] : [i]“This large case–control study (coffee intake and colorectal cancer occurrence in 5,145 cases and 4,097
AussieNeil
Partner
in
CLL Support
8 years ago
Is the Use of a JAK inhibitor Prior to Stem Cell Transplant Recommended?
Is there a positive correlation between the use of a JAK Inhibitor and stem cell transplant (SCT)? UK viewer, Peter, asks about the recommended use of a JAK inhibitor prior to having a SCT. Dr. Naveen Pemmaraju from MD Anderson Cancer Center responds with a discussion of two studies on this subject
Is there a positive correlation between the use of a JAK Inhibitor and stem cell transplant (SCT)? UK viewer, Peter, asks about the recommended use of a JAK inhibitor prior to having a SCT. Dr. Naveen Pemmaraju from MD Anderson Cancer Center responds with a discussion of two studies on this subject
mcints
in
Fight MPN
8 years ago
My Journey
Hi i have Myeloma it was diagnosed Nov 2012 after being told on numerious occasions that i had siatica ,i was given Radiation then put on a trial drug which put me in remmision until June 2013 it had spread to my pelvis so i had to go on more medication the only problem i had no chemo for 5 months as
Hi i have Myeloma it was diagnosed Nov 2012 after being told on numerious occasions that i had siatica ,i was given Radiation then put on a trial drug which put me in remmision until June 2013 it had spread to my pelvis so i had to go on more medication the only problem i had no chemo for 5 months as
bigpants
in
Myeloma America Support
8 years ago
Are there possibilities other than stem cell transplant in Canada for CLL with 11Q deletion?
My son lives in Canada. He has CLL stage 4 with 11Q deletion. He was taken off Ibrutinib because his Neutrophils were getting low. Then he had a cold and swollen lymph nodes on his neck, and an enlarged spleen. He is now back on Ibrutinib on a reduced dosage of 2 pills/day. His doctor says that according
My son lives in Canada. He has CLL stage 4 with 11Q deletion. He was taken off Ibrutinib because his Neutrophils were getting low. Then he had a cold and swollen lymph nodes on his neck, and an enlarged spleen. He is now back on Ibrutinib on a reduced dosage of 2 pills/day. His doctor says that according
karenmarie
in
CLL Support
8 years ago
Follicular Lymphoma Patients and Caregivers Survey
Lymphoma Canada is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Idelalisib (Zydelig) for the treatment of patients with follicular lymphoma who have received at least two prior systemic regimens and are refractory to both rituximab and an alkylating agent. You can help
Lymphoma Canada is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Idelalisib (Zydelig) for the treatment of patients with follicular lymphoma who have received at least two prior systemic regimens and are refractory to both rituximab and an alkylating agent. You can help
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
New Research from USA about drugs and GCA-- some of this s quite technical but a lay person should be able to follow the gist.
Tocilizumab plus prednisolone was twice as effective as placebo plus prednisolone at inducing complete remission in patients with giant cell arteritis (GCA), and four times as effective at producing relapse-free survival in a small, phase 2, randomized, double-blind, placebo-controlled trial. Patients
Tocilizumab plus prednisolone was twice as effective as placebo plus prednisolone at inducing complete remission in patients with giant cell arteritis (GCA), and four times as effective at producing relapse-free survival in a small, phase 2, randomized, double-blind, placebo-controlled trial. Patients
Judigardener
in
PMRGCAuk
8 years ago
Books on PMR & GCA
There is a new book on the block coming out in May: Polymyalgia Rheumatica and Giant Cell Arteritis Authors: Bhaskhar Dasgutpa and Christian Dejaco. 9780198729204 Paperback 03 May 2016 Oxford Rheuumatology Library. Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide by Dr Kate Gilbert
There is a new book on the block coming out in May: Polymyalgia Rheumatica and Giant Cell Arteritis Authors: Bhaskhar Dasgutpa and Christian Dejaco. 9780198729204 Paperback 03 May 2016 Oxford Rheuumatology Library. Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide by Dr Kate Gilbert
jinasc
in
PMRGCAuk
8 years ago
Stem cell breakthrough - using fat cells to create human multipotent stem cells to regenerate body parts
Face it, given the median age for CLL diagnosis is about 72, most of us are wishing we could replace some worn out body parts... While not CLL related, the article below does touch on why bone marrow transplants work (it's stem cells that are transplanted) and why this new technique is an important
Face it, given the median age for CLL diagnosis is about 72, most of us are wishing we could replace some worn out body parts... While not CLL related, the article below does touch on why bone marrow transplants work (it's stem cells that are transplanted) and why this new technique is an important
AussieNeil
Partner
in
CLL Support
8 years ago
What now? ...after BR
My husband has his 6th round of BR chemotherapy this week...I'm wondering what happens now? Do we just go away and wait for the CLL to return? During his chemo, we have had very little input from his Consultant ..I assume he will have a CT scan ...I wonder what questions we should ask? I have been reading
My husband has his 6th round of BR chemotherapy this week...I'm wondering what happens now? Do we just go away and wait for the CLL to return? During his chemo, we have had very little input from his Consultant ..I assume he will have a CT scan ...I wonder what questions we should ask? I have been reading
alice111
in
CLL Support
8 years ago
Sooo is it a new problem to see Lymphoma cells in my blood work??
WBC4.00 - 10.80 K/uL19.24H RBC3.85 - 5.15 M/uL 4.57 HGB12.0 - 15.3 g/dL13.3 HCT36.0 - 45.2 % 40.9 MCV81.5 - 97.5 fL 89.5 MCH27.0 - 34.0 pg 29.1 MCHC32.0 - 36.0 g/dL32.5 RDW11.5 - 15.5 % 14.3 PLATELET COUNT140 - 400 K/uL230 MPV6.6 - 11.1 fL 9.4 SEGS40 - 75 %
WBC4.00 - 10.80 K/uL19.24H RBC3.85 - 5.15 M/uL 4.57 HGB12.0 - 15.3 g/dL13.3 HCT36.0 - 45.2 % 40.9 MCV81.5 - 97.5 fL 89.5 MCH27.0 - 34.0 pg 29.1 MCHC32.0 - 36.0 g/dL32.5 RDW11.5 - 15.5 % 14.3 PLATELET COUNT140 - 400 K/uL230 MPV6.6 - 11.1 fL 9.4 SEGS40 - 75 %
goneblonder
in
CLL Support
8 years ago
Dr. Stilgenbauer: Resistance to ibrutinib in relapsed and refractory patients with 17p deletion and News about CLL Meeting across the USA
Friends, This week in the 2015 Conference Coverage section of the CLL Society website, we have posted a continuation of my interview with Dr. Stephan Stilgenbauer at the American Society of Hematology annual meeting in December 2015 in Orlando. We discussed the criteria that predict resistance to ibrutinib
Friends, This week in the 2015 Conference Coverage section of the CLL Society website, we have posted a continuation of my interview with Dr. Stephan Stilgenbauer at the American Society of Hematology annual meeting in December 2015 in Orlando. We discussed the criteria that predict resistance to ibrutinib
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Aitl
Hello, I am a 58 year old female looking for others who have undergone a stem cell transplant. I have angioimmunoblastic T cell lymphoma which is rare. If anyone out there can share information and experiences with T cell lymphoma please write. I enjoy music listening. Kayaking and going for long walks
Hello, I am a 58 year old female looking for others who have undergone a stem cell transplant. I have angioimmunoblastic T cell lymphoma which is rare. If anyone out there can share information and experiences with T cell lymphoma please write. I enjoy music listening. Kayaking and going for long walks
Kvick
in
LGBT Cancer Community
8 years ago
NHS public consultation on Tocilizumab in GCA
Tocilizumab is one of the new generation of 'biologic' drugs which are being developed to treat a range of diseases, including inflammatory autoimmune conditions, like GCA and PMR. It has been used in a small number of GCA patients to see whether it could help reduce the risk of relapse and help reduce
Tocilizumab is one of the new generation of 'biologic' drugs which are being developed to treat a range of diseases, including inflammatory autoimmune conditions, like GCA and PMR. It has been used in a small number of GCA patients to see whether it could help reduce the risk of relapse and help reduce
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
8 years ago
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