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Experiences with
Mantle cell lymphoma (MCL)
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Cancelled Op
I had a date for my total ankle replacement for the 7th October, on the 3rd I received a call saying that it had been cancelled due to the parts not being available (I have been waiting for this operation since February this year and have has 2 pre-assements) I am wondering if anybody has had a similar
I had a date for my total ankle replacement for the 7th October, on the 3rd I received a call saying that it had been cancelled due to the parts not being available (I have been waiting for this operation since February this year and have has 2 pre-assements) I am wondering if anybody has had a similar
Boddingtons1
in
Pain Concern
8 years ago
New to group, but old to DLBCL NHL
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found
fwhip14
in
Non Hodgkin's Lymphoma Friends
8 years ago
World Lymphoma Awareness Day
Today is World Lymphoma Awareness Day: Every 3 minutes someone is diagnosed with a Blood Cancer in the USA.
Today is World Lymphoma Awareness Day: Every 3 minutes someone is diagnosed with a Blood Cancer in the USA.
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
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Going to oncologist
Hey, everyone. I am seeing an oncologist Friday because I think I may have lymphoma? And it pangs me to even mention that. :/ basically, a few months ago, I started feeling very sick and very fatigued. Around the same time some red patches appeared on my left arm and left shoulder, which looked like
Hey, everyone. I am seeing an oncologist Friday because I think I may have lymphoma? And it pangs me to even mention that. :/ basically, a few months ago, I started feeling very sick and very fatigued. Around the same time some red patches appeared on my left arm and left shoulder, which looked like
Michhy
in
Lymphoma Canada
8 years ago
Gastrin test
Hi everyone, I posted on here a few weeks ago talking about some of my lab results and what they could possibly entail. Some possibilities were atrophic gastritis and pernicious anemia. I definitely have been diagnosed with barrett's esophagus at the young age of 30. The reason why atrophic gastritis
Hi everyone, I posted on here a few weeks ago talking about some of my lab results and what they could possibly entail. Some possibilities were atrophic gastritis and pernicious anemia. I definitely have been diagnosed with barrett's esophagus at the young age of 30. The reason why atrophic gastritis
yogamom1
in
Pernicious Anaemia Society
8 years ago
My cancer experience
Cerous uterine cancer surgery February 2016. Chemo/radiation completed the end of June 2016. Clear of cancer as of September 2016.
Cerous uterine cancer surgery February 2016. Chemo/radiation completed the end of June 2016. Clear of cancer as of September 2016.
GrandmaG
in
Pain Concern
8 years ago
watch & wait - immunizations....how long to treatment ?
Hello, I was dx in Jan this year and am still on W & W. My ALC in July was at 9.5, WBC.. 16 down from 19 at dx.... ANC..5.7 HGB...15...PLT .... 201 RBC .... 4.76 all seem to be stable for now. I want to stay healthy especially with my 3 kids still in school, lots of germs coming into my home. What
Hello, I was dx in Jan this year and am still on W & W. My ALC in July was at 9.5, WBC.. 16 down from 19 at dx.... ANC..5.7 HGB...15...PLT .... 201 RBC .... 4.76 all seem to be stable for now. I want to stay healthy especially with my 3 kids still in school, lots of germs coming into my home. What
garrick66
in
CLL Support
8 years ago
Autologous stem cell transplantation
Hi all i wish you are doing well with your treatment,I'm interested in information about relapsed &transformed follicular lymphoma treated with r.chop Now going to do autologous bone marrow. Stem cells transplant. Thanks
Hi all i wish you are doing well with your treatment,I'm interested in information about relapsed &transformed follicular lymphoma treated with r.chop Now going to do autologous bone marrow. Stem cells transplant. Thanks
Bhlool
in
Lymphoma Canada
8 years ago
Can Hashis flare up ?
I thought I was doing well (always dangerous) I have the usual long back story of misdiagnosis of CFS then was lucky to see Dr Skinner got on the right path and have used both private and NHs Endos to get the treatment I need for my Hashimotos. I take nature thyroid 3 and a quarter grains spread
I thought I was doing well (always dangerous) I have the usual long back story of misdiagnosis of CFS then was lucky to see Dr Skinner got on the right path and have used both private and NHs Endos to get the treatment I need for my Hashimotos. I take nature thyroid 3 and a quarter grains spread
spacestar
in
Thyroid UK
8 years ago
Stem cell transplant
I have been reading a lot about this and seems this is the cure for our dieses I am currently trying to get this done has anyone had it done or can tell me more about it thanks. If anybody wants more info then please do message me and will forward the forums and websites I have been looking into. They
I have been reading a lot about this and seems this is the cure for our dieses I am currently trying to get this done has anyone had it done or can tell me more about it thanks. If anybody wants more info then please do message me and will forward the forums and websites I have been looking into. They
Tmunney999
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Parietal cell test
Hi everyone, I'm new here and had a couple questions. A little history.. I had the parietal cell antibody test done (3 times) and each time my test has come back abnormal with a reading of 113.5 or higher. My intrinsic factor was negative about a year ago and hasn't been tested since. My B12 levels have
Hi everyone, I'm new here and had a couple questions. A little history.. I had the parietal cell antibody test done (3 times) and each time my test has come back abnormal with a reading of 113.5 or higher. My intrinsic factor was negative about a year ago and hasn't been tested since. My B12 levels have
yogamom1
in
Pernicious Anaemia Society
8 years ago
CNS Lymphoma awareness
I'm new here. Would be interested in connecting with those who,also have secondary CNS lymphoma I am in remission from DLBC NHL but was unaware that it could cross the blood brain barrier into central nervous system. My bio tells the somewhat scary story. Jennifer
I'm new here. Would be interested in connecting with those who,also have secondary CNS lymphoma I am in remission from DLBC NHL but was unaware that it could cross the blood brain barrier into central nervous system. My bio tells the somewhat scary story. Jennifer
Jennchap1
in
Non Hodgkin's Lymphoma Friends
8 years ago
Woohoo husband home
Surprise of the week, my husband who has just undergone a stem cell transplant at Kings came home earlier than anticipated yesterday his transplant is doing very well and having him home is a real boost😃I have done 3 of 6 chemos now and was struggling with the travelling to see him. CT scan booked for
Surprise of the week, my husband who has just undergone a stem cell transplant at Kings came home earlier than anticipated yesterday his transplant is doing very well and having him home is a real boost😃I have done 3 of 6 chemos now and was struggling with the travelling to see him. CT scan booked for
knoxie
in
My Ovacome
8 years ago
Vaginitis and SLE
Hi my friends I do have some problems in my vagina but now I have sever pain and imflammation in my vagina and when I urient I feel remain some urien in my uletra I went to GP he said it doesn't about urinary system it's refer trichomonas vaginitis and take me Metronidazole but I don't know if this pill
Hi my friends I do have some problems in my vagina but now I have sever pain and imflammation in my vagina and when I urient I feel remain some urien in my uletra I went to GP he said it doesn't about urinary system it's refer trichomonas vaginitis and take me Metronidazole but I don't know if this pill
asma1364
in
LUPUS UK
8 years ago
Adding additional chemo
I am being treated for CLL for the second time after being in remission for 9 years...which is a blessing. I am currently taking oral Imbruvica... My most recent bone marrow biopsy showed little change after 3 months. If there is still no change in November, my Oncologist will add either .bendamustine
I am being treated for CLL for the second time after being in remission for 9 years...which is a blessing. I am currently taking oral Imbruvica... My most recent bone marrow biopsy showed little change after 3 months. If there is still no change in November, my Oncologist will add either .bendamustine
lyn26041
in
CLL Support
8 years ago
New Bloods
Hello New Bloods, My thyroid has Improved while being on NDT of which I have been on for about 2 month, but my T3 is borderline, Iron Low even thought I have been supplementing Iron with Solgar Gentle Iron and spatone one of each a day, so going to double up on them, Folate low. Could you tell me which
Hello New Bloods, My thyroid has Improved while being on NDT of which I have been on for about 2 month, but my T3 is borderline, Iron Low even thought I have been supplementing Iron with Solgar Gentle Iron and spatone one of each a day, so going to double up on them, Folate low. Could you tell me which
tracybet
in
Thyroid UK
8 years ago
4 weeks post FCR
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
jackhammer
in
CLL Support
8 years ago
Pins and needles after b12
hi there, so I was recently diagnosed as being deficient in b12. I do not test positive for intrinsic factor but for parietal cell antibody. I had a number of neurological symptoms that came on at once a few months ago-the main symptom being a burning scalp, then on/off dizziness and an on/off feeling
hi there, so I was recently diagnosed as being deficient in b12. I do not test positive for intrinsic factor but for parietal cell antibody. I had a number of neurological symptoms that came on at once a few months ago-the main symptom being a burning scalp, then on/off dizziness and an on/off feeling
kel226
in
Pernicious Anaemia Society
8 years ago
Share your experience with stem cell transplant (bone marrow transplantation)
Please share to let others know what to expect or better inform their decision making with their doctor hey....
Please share to let others know what to expect or better inform their decision making with their doctor hey....
SimoneHU
HealthUnlocked
in
Myeloma Warriors
8 years ago
Professor Dasgupta on video
Hello everyone! At the PMRGCAuk AGM held in June, Professor Bhaskar Dasgupta, whose name many of you will be familiar with (he is President of our charity and a leading expert on PMR and GCA), spoke about why 2016 is a landmark year for Polymyalgia Rheumatica and Giant Cell Arteritis. Here is a link
Hello everyone! At the PMRGCAuk AGM held in June, Professor Bhaskar Dasgupta, whose name many of you will be familiar with (he is President of our charity and a leading expert on PMR and GCA), spoke about why 2016 is a landmark year for Polymyalgia Rheumatica and Giant Cell Arteritis. Here is a link
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
8 years ago
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