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Mantle cell lymphoma (MCL)
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I didn't have pernicious anemia I have cancer
This is just a heads up for anyone who has read some of my earlier posts. Several months ago I had been trying to find answers to my recently diagnosed pernicious anemia, but unfortunately after more blood tests I was found to have AML leukemia. I spent nearly four hours in the Mayo Clinic last week
This is just a heads up for anyone who has read some of my earlier posts. Several months ago I had been trying to find answers to my recently diagnosed pernicious anemia, but unfortunately after more blood tests I was found to have AML leukemia. I spent nearly four hours in the Mayo Clinic last week
oldtimeradioguy
in
Pernicious Anaemia Society
8 years ago
New Member
I'm new to the forum and have myleo fibrosis. I am waiting on a stem cell transplant at City of Hope
I'm new to the forum and have myleo fibrosis. I am waiting on a stem cell transplant at City of Hope
linbatten
in
Fight MPN
8 years ago
Burkitt's NH Lymphoma - extranodal
Hi everyone. I am 56 yr old female and am now 9 months cancer free!. I was diagnosed with Large B-cell NH lymphoma in June 2015. The biopsy showed Burkitt-like behavior so my dx was Burkitt's. The treatment plan was Hyper-CVAD alternating with High dose Methotrexate plus cytarabine with Rituxamab
Hi everyone. I am 56 yr old female and am now 9 months cancer free!. I was diagnosed with Large B-cell NH lymphoma in June 2015. The biopsy showed Burkitt-like behavior so my dx was Burkitt's. The treatment plan was Hyper-CVAD alternating with High dose Methotrexate plus cytarabine with Rituxamab
ntbusby
in
Non Hodgkin's Lymphoma Friends
8 years ago
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CLL Research Down Under into BTK cardiotoxicity, e.g. development of AF on Ibrutinib - from CLL Global Research Foundation
From the CLL Global Research Foundation - October / November Issue [i]'Earlier this year CLL Global was approached by a donor interested in making a contribution that would be directed specifically towards research into cardiotoxicity associated with Bruton's tyrosine kinase (BTK) inhibitors such as
From the CLL Global Research Foundation - October / November Issue [i]'Earlier this year CLL Global was approached by a donor interested in making a contribution that would be directed specifically towards research into cardiotoxicity associated with Bruton's tyrosine kinase (BTK) inhibitors such as
AussieNeil
Partner
in
CLL Support
8 years ago
Intro
Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b in 2013. My treatment protocol has been ukall12. After 6 months inpatient treatment then and a donor stem cell transplant I'm doing well, being monitored frequently but all's good. I've been writing a blog this year diarying
Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b in 2013. My treatment protocol has been ukall12. After 6 months inpatient treatment then and a donor stem cell transplant I'm doing well, being monitored frequently but all's good. I've been writing a blog this year diarying
Christiana_
in
Leukaemia Support
8 years ago
Chicago LRF Conference News
Hi everyone, Just a quick highlight from the Conference: We are beginning to see a move from single use of the exciting new targeting agents to see if better remissions if not cures can be achieved through combining these newer agents. Dr. Craig Portell had a Poster presentation on a Clinical Trial combining
Hi everyone, Just a quick highlight from the Conference: We are beginning to see a move from single use of the exciting new targeting agents to see if better remissions if not cures can be achieved through combining these newer agents. Dr. Craig Portell had a Poster presentation on a Clinical Trial combining
ThreeWs
in
CLL Support
8 years ago
Tocilizumab and Giant Cell Arteritis
John Mills on behalf of VUK is Interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
John Mills on behalf of VUK is Interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
Suzym2u
in
PMRGCAuk
8 years ago
Tocilizumab for Giant Cell Arteritis (Temporal Arteritis)
John Mills on behalf of VUK are interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
John Mills on behalf of VUK are interested in hearing about the experiences of anyone who has been treated with Tocilizumab for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
My labs are MCH is 26.2. My RDW is 15.1.
My concern is that I might have something wrong. In my family sickle cell anemia runs on my mother's side of the family. My second cousin has that she died from it. I also want to know is it possible I might have it.
My concern is that I might have something wrong. In my family sickle cell anemia runs on my mother's side of the family. My second cousin has that she died from it. I also want to know is it possible I might have it.
AjahY
in
Pernicious Anaemia Society
8 years ago
Help night sweats
Hello thank you for allowing me to be part of your group. I was diagnosed in 2012 with lymphoma the cancer had attacked my L2 and I have a small hole in that bone. I had radiation and chemo. I also had 9 shots of ge a reclass drug. They did scans recently because I was having so much trouble with my
Hello thank you for allowing me to be part of your group. I was diagnosed in 2012 with lymphoma the cancer had attacked my L2 and I have a small hole in that bone. I had radiation and chemo. I also had 9 shots of ge a reclass drug. They did scans recently because I was having so much trouble with my
clairerrut
in
Non Hodgkin's Lymphoma Friends
8 years ago
Rising haematocrit levels
Hi I haven't been in touch for a while. I am jack 2 positive ET diagnosed 7 years ago. I take 500 hydrea daily and plavix. My haematocrit level has been rising and is now at .49. Does anyone know if there are any diet changes I could make to reduce this a bit? I read something about spinach and broccoli
Hi I haven't been in touch for a while. I am jack 2 positive ET diagnosed 7 years ago. I take 500 hydrea daily and plavix. My haematocrit level has been rising and is now at .49. Does anyone know if there are any diet changes I could make to reduce this a bit? I read something about spinach and broccoli
Margo18
in
MPN Voice
8 years ago
Hemoglobin c trait...SCT..SCA...what do I have
I am 44 I was diagnosed with SCA 3 years ago after several visits to the hospital, several admissions...multiple blood transfusions and a hematologist ...I am now being told that I do not have SCT or SCD or SCA but Hemoglobin C trait and that this causes no problems at all. Funny thing is this I never
I am 44 I was diagnosed with SCA 3 years ago after several visits to the hospital, several admissions...multiple blood transfusions and a hematologist ...I am now being told that I do not have SCT or SCD or SCA but Hemoglobin C trait and that this causes no problems at all. Funny thing is this I never
Diamondlyfe16
in
Sickle Cell Society
8 years ago
What to buy OH for Christmas
As Christmas is looming again I thought I'd tell you how to bring back that childhood feeling of the excitement at being faced with a pile of presents not knowing what you were about to unwrap. I don't know about anyone else but now that gifts are often requests rather than surprises Christmas has kind
As Christmas is looming again I thought I'd tell you how to bring back that childhood feeling of the excitement at being faced with a pile of presents not knowing what you were about to unwrap. I don't know about anyone else but now that gifts are often requests rather than surprises Christmas has kind
ShellyC23
in
PMRGCAuk
8 years ago
Sickle Cell Trait - HELP
I found this site searching to see if there is any correlation between horrible menstrual cycles, fainting spells or migraines and sickle cell trait. I feel like I take my daughter to the Dr all the time with different problems and ask them if there is anything linking her medical issues to the trait
I found this site searching to see if there is any correlation between horrible menstrual cycles, fainting spells or migraines and sickle cell trait. I feel like I take my daughter to the Dr all the time with different problems and ask them if there is anything linking her medical issues to the trait
mssara
in
Sickle Cell Society
8 years ago
Symptoms and the trait
Hi everyone. We're seeing a lot of posts about symptoms and sickle cell trait at the moment, which is food for thought, and we might in future produce information resources about this, because there isn't a lot out there. A quick overview on what's known: -Sickle cell trait means you carry one copy of
Hi everyone. We're seeing a lot of posts about symptoms and sickle cell trait at the moment, which is food for thought, and we might in future produce information resources about this, because there isn't a lot out there. A quick overview on what's known: -Sickle cell trait means you carry one copy of
SCSZoe
Administrator
in
Sickle Cell Society
8 years ago
Gluten-free & Dapsone - but still struggling
I've been GF and on Dapsone for two full years. I've been treating at Mayo Clinic where their reputation leads one to be optimistic about resolving this miserable condition. This week I told the doc that perhaps I should stop the Dapsone - to see if it actually makes any difference - because my symptoms
I've been GF and on Dapsone for two full years. I've been treating at Mayo Clinic where their reputation leads one to be optimistic about resolving this miserable condition. This week I told the doc that perhaps I should stop the Dapsone - to see if it actually makes any difference - because my symptoms
dwaage1
in
Gluten Free Guerrillas
8 years ago
Starting clinical trial for non noudle marginal lymphoma
Hi my name is Theresa, I was diagnosed with low grade marginal Lymphoma almost 2 years ago,. At that time I had a mass on back for which I received radiation and rituxin infusion once every week for four weeks and a maintenance schedule of once every two months for a 2 year period. I was about 6 months
Hi my name is Theresa, I was diagnosed with low grade marginal Lymphoma almost 2 years ago,. At that time I had a mass on back for which I received radiation and rituxin infusion once every week for four weeks and a maintenance schedule of once every two months for a 2 year period. I was about 6 months
Tmcarmicino
in
Non Hodgkin's Lymphoma Friends
8 years ago
NCT02478125 - for prostate cancer metatstses
This was at Johns Hopkins just last week. I went down for a screening interview, which was wonderful, and the whole experience was fantastic. Unfortunately, I was too healthy for the trial, so I have to at least wait. I characterize it as an "off label" use of a pretty standard procedure: essentially
This was at Johns Hopkins just last week. I went down for a screening interview, which was wonderful, and the whole experience was fantastic. Unfortunately, I was too healthy for the trial, so I have to at least wait. I characterize it as an "off label" use of a pretty standard procedure: essentially
Hidden
in
Understanding Clinical Trials
8 years ago
Mantle cell lymphoma
Dx five years ago, rchop and retuxan follow up. What have others experienced? Dr. doesn't say much so I have done a lot of research at major medical center websites. Would like to connect with others.
Dx five years ago, rchop and retuxan follow up. What have others experienced? Dr. doesn't say much so I have done a lot of research at major medical center websites. Would like to connect with others.
Janekite2015
in
Non Hodgkin's Lymphoma Friends
8 years ago
Sharing resources
Hi Everyone - I am new to this online community. I am not a cancer patient, however I am a caregiver with substantial cancer experience. I provided primary care to both of my parents following their diagnosis and treatment for bladder cancer (both deceased). When my husband was diagnosed originally
Hi Everyone - I am new to this online community. I am not a cancer patient, however I am a caregiver with substantial cancer experience. I provided primary care to both of my parents following their diagnosis and treatment for bladder cancer (both deceased). When my husband was diagnosed originally
AnneNewman
in
Non Hodgkin's Lymphoma Friends
8 years ago
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