I've been GF and on Dapsone for two full years. I've been treating at Mayo Clinic where their reputation leads one to be optimistic about resolving this miserable condition. This week I told the doc that perhaps I should stop the Dapsone - to see if it actually makes any difference - because my symptoms of late have been really bad So I stopped the Dapsone, and now 3 days later I am blistering and itching at a new pace of severe outbreak. I am excited about finding this site though, to at least share the misery, and perhaps get some new ideas.
I'm curious about the issue of iodine. I have stopped using iodized salt, but I notice that my adult vitamin has 150% adult minimum requirement of iodine - and I take it daily. Has iodine been a culprit for many of the afflicted? Could this be what I've missed?