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Experiences with
Mantle cell lymphoma (MCL)
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High Homocysteine levels
Hello Mine is a bit of a long story so hope this is ok. I am 58 I had my gallbladder out in 2013 before that I thought I was eating not to bad but obviously I wasn’t. I had lots of gallstones, I got pancaraties and that’s how I knew I had a problem with gallstones. Anyway I got diagnosed with fibromyalgia
Hello Mine is a bit of a long story so hope this is ok. I am 58 I had my gallbladder out in 2013 before that I thought I was eating not to bad but obviously I wasn’t. I had lots of gallstones, I got pancaraties and that’s how I knew I had a problem with gallstones. Anyway I got diagnosed with fibromyalgia
Jan87
in
Pernicious Anaemia Society
7 years ago
on prednisone since oct 2016 had pneumonia vaccine side affects
my rhuemy has kept me at 10 mg since july 2017 didn,t want me to reduce until at least feb this year, as my son was diagnosed with multiple myeloma, and having bone marrow transplant, being admitted jan 15, for that, and said with the extra stress, not good idea to reduce, was doing ok with that as far
my rhuemy has kept me at 10 mg since july 2017 didn,t want me to reduce until at least feb this year, as my son was diagnosed with multiple myeloma, and having bone marrow transplant, being admitted jan 15, for that, and said with the extra stress, not good idea to reduce, was doing ok with that as far
arvine
in
PMRGCAuk
7 years ago
Mantle cell-imbruvica
Mom diagnosed with
mantle
cell
lymphoma
. Taking imbruvica 3capsules daily for a year. Within last couple months noticed bad nausea after eating. Have been on very limited diet. Dr thinks possible gastroparesis. Has anyone else experienced this?
Mom diagnosed with
mantle
cell
lymphoma
. Taking imbruvica 3capsules daily for a year. Within last couple months noticed bad nausea after eating. Have been on very limited diet. Dr thinks possible gastroparesis. Has anyone else experienced this?
9229Schaeffer
in
CLL Support
7 years ago
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Venetoclax Plus Rituximab Is Superior to Bendamustine Plus Rituximab (Murano Study)
Today on the ASH 2017 Meeting, the results of the Murano Study were published: https://ash.confex.com/ash/2017/webprogram/Paper109076.html I was one of the 389 participants in this trial and off course I am very happy with the conclusion, demonstrating that treatment with VR resulted in outcomes superior
Today on the ASH 2017 Meeting, the results of the Murano Study were published: https://ash.confex.com/ash/2017/webprogram/Paper109076.html I was one of the 389 participants in this trial and off course I am very happy with the conclusion, demonstrating that treatment with VR resulted in outcomes superior
Korstiaan
in
CLL Support
7 years ago
SICKLE CELL NEWS (Jan-March 2018)
Here are the stories/articles on the Jan-March 2018 edition: 1. NIGERIA 2019 ELECTIONS: Professor Mrs. Adesanya-Davies blazes the trail for involvement of women with SC in politics - she aims for the highest political office in the land! 2. Barrister Uche Ojukwu suffered a rare SCD complication that
Here are the stories/articles on the Jan-March 2018 edition: 1. NIGERIA 2019 ELECTIONS: Professor Mrs. Adesanya-Davies blazes the trail for involvement of women with SC in politics - she aims for the highest political office in the land! 2. Barrister Uche Ojukwu suffered a rare SCD complication that
scnews
in
Sickle Cell Society
7 years ago
Christmas
To all who have used Health Unlocked in 2017, Robert Louis Stevenson was the author of Treasure Island. He also wrote the following: O God, our loving Father, help us Rightly to remember the birth of Jesus, That we may share in the song of the Angels, the gladness of the shepherds And the worship
To all who have used Health Unlocked in 2017, Robert Louis Stevenson was the author of Treasure Island. He also wrote the following: O God, our loving Father, help us Rightly to remember the birth of Jesus, That we may share in the song of the Angels, the gladness of the shepherds And the worship
Kevin53
in
LUPUS UK
7 years ago
Can Ibrutinib affect the vagus nerve and digestion?
Moms scan from September 27 shows no sign of recurrent or new
mantle
cell
lymphoma
. For past few weeks though has had nausea more loss of hearing and fatigue. Dr does not think imbruvica causing these, but I’m wondering if it can affect the vagus nerve and the ? Gastroparesis.
Moms scan from September 27 shows no sign of recurrent or new
mantle
cell
lymphoma
. For past few weeks though has had nausea more loss of hearing and fatigue. Dr does not think imbruvica causing these, but I’m wondering if it can affect the vagus nerve and the ? Gastroparesis.
9229Schaeffer
in
CLL Support
7 years ago
Rejection of claim for daycare rituximab cancer treatment by United India Insurance Co
I had stage IV
mantle
cell
Non hodgkins
lymphoma
. Got chemotherapy treatment at mumbai . Now under full remission but i am taking rituximab inj in day care every 2 months.All my earlier chemo costs were paid by United India Insurance under their gold policy. I am 61 yrs old male.
I had stage IV
mantle
cell
Non hodgkins
lymphoma
. Got chemotherapy treatment at mumbai . Now under full remission but i am taking rituximab inj in day care every 2 months.All my earlier chemo costs were paid by United India Insurance under their gold policy. I am 61 yrs old male.
munjalbom8
in
Breast Cancer India
7 years ago
CAR-T Therapy Inquiry
CAR-T Therapy Inquiry Are you a patient or physician interested in CAR-T gene therapy? Call the Stanford Blood and Marrow Transplant Program at 650-723-0822.
CAR-T Therapy Inquiry Are you a patient or physician interested in CAR-T gene therapy? Call the Stanford Blood and Marrow Transplant Program at 650-723-0822.
Naka
in
CLL Support
7 years ago
Taking A Deep Breath
Hello everyone, Having taken the plunge and finally signed up to the community at the beginning of the month I thought it was high time that I introduce myself. My name's Andy, I'm 33, and 4 years ago I was diagnosed with a degenerative lung condition called IPPFE (similar to IPF) which doctors believe
Hello everyone, Having taken the plunge and finally signed up to the community at the beginning of the month I thought it was high time that I introduce myself. My name's Andy, I'm 33, and 4 years ago I was diagnosed with a degenerative lung condition called IPPFE (similar to IPF) which doctors believe
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
7 years ago
Value of bone marrow biopsies in Follicular Lymphoma
Hope everyone is having a good weekend and feeling well. I go for my six monthly checkup on Tue 28th. Bloods look ok so hoping nothing else will crop up. This is a short blog post summarising results of a study re value of bone marrow biopsies in follicular lymphoma patients. https://cornell-lymphoma.com
Hope everyone is having a good weekend and feeling well. I go for my six monthly checkup on Tue 28th. Bloods look ok so hoping nothing else will crop up. This is a short blog post summarising results of a study re value of bone marrow biopsies in follicular lymphoma patients. https://cornell-lymphoma.com
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
Bone Marrow Transplant Begins
I feel like the past three and a half years have been rehearsal, and it's time for the big show. I will do the steps I have learned, and the result could be glory or disaster. I made a big bet on this new treatment. When I didn't fit the profile, I asked the researcher to change the parameters so
I feel like the past three and a half years have been rehearsal, and it's time for the big show. I will do the steps I have learned, and the result could be glory or disaster. I made a big bet on this new treatment. When I didn't fit the profile, I asked the researcher to change the parameters so
Beauxman
in
Advanced Prostate Cancer
7 years ago
11 year old son ITP
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
Bishoprena
in
ITP Support Association
7 years ago
Stem cell transplant
Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing to go onto a trial with Ibrutinib and Venetoclax. Glands swollen and large all over. I am 11q unmutated lymphocytes trending upwards at 50 and last month were 33. Hb going slightly downwards but not bad. Everything else good
Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing to go onto a trial with Ibrutinib and Venetoclax. Glands swollen and large all over. I am 11q unmutated lymphocytes trending upwards at 50 and last month were 33. Hb going slightly downwards but not bad. Everything else good
DebLeeCox
in
CLL Support
7 years ago
Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd edition. Kate Gilbert PhD
Just finished this book... I HIGHLY recommend to someone newly diagnosed like me!
Just finished this book... I HIGHLY recommend to someone newly diagnosed like me!
Hidden
in
PMRGCAuk
7 years ago
B12 deficient steak lover
HI everyone, I am new here. I am a 27yr old female in the UK. Recently, I went to my GP with what I thought were Hypothyroid symptoms on my Mother's advice since she has this condition. I was shocked to learn that my thyroid was fine (given a family history of thyroid problems) but found that I had
HI everyone, I am new here. I am a 27yr old female in the UK. Recently, I went to my GP with what I thought were Hypothyroid symptoms on my Mother's advice since she has this condition. I was shocked to learn that my thyroid was fine (given a family history of thyroid problems) but found that I had
TMur1990
in
Pernicious Anaemia Society
7 years ago
Urgent question: low platelets
My husband Murray is in a very precarious state right now and I would sure appreciate your input. Just to summarize - he is 58, diagnosed 3 1/2 years ago but with symptoms for many years before that, 13q, 11q & trisomy 12, relapsed quickly after FCR, on ibrutinib for 9 months, scheduled for stem cell
My husband Murray is in a very precarious state right now and I would sure appreciate your input. Just to summarize - he is 58, diagnosed 3 1/2 years ago but with symptoms for many years before that, 13q, 11q & trisomy 12, relapsed quickly after FCR, on ibrutinib for 9 months, scheduled for stem cell
Glees
in
CLL Support
7 years ago
Tocilizumab is not approved by NHS England for GCA on cost grounds
I am very sorry to have to share the news that NICE, the National Institute for Health and Clinical Excellence, has rejected approval of tocilizumab for GCA. Their decision is open to consultation, and we would like as many GCA patients as possible to comment on their website about this decision. Tocilizumab
I am very sorry to have to share the news that NICE, the National Institute for Health and Clinical Excellence, has rejected approval of tocilizumab for GCA. Their decision is open to consultation, and we would like as many GCA patients as possible to comment on their website about this decision. Tocilizumab
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
7 years ago
High Alt, fibroscan 7.7 CT scan now biopsy scared
Hi everyone, I'm hoping you help can ease my mind or help me with these results! back in July I had a bout of gastritis I was in hospital for a week as my ATL was in the 400's eventually it returned to 37 now it's started to rise again. Doctors are worried as they don't know what's causing it. two weeks
Hi everyone, I'm hoping you help can ease my mind or help me with these results! back in July I had a bout of gastritis I was in hospital for a week as my ATL was in the 400's eventually it returned to 37 now it's started to rise again. Doctors are worried as they don't know what's causing it. two weeks
GillyGangGong
in
British Liver Trust
7 years ago
CMV Risk in Donor Stem Cell Transplant
Antiviral drug helped prevent cytomegalovirus in patients with donor bone marrow stem cell transplantation: https://tinyurl.com/yc79ehsg
Antiviral drug helped prevent cytomegalovirus in patients with donor bone marrow stem cell transplantation: https://tinyurl.com/yc79ehsg
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
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