Search
Search
About
Log in
Join
Experiences with
Mantle cell lymphoma (MCL)
Posts
Communities
1,685 public posts
Filter results
Help Dealing with Sickle Cell Anemia
Hello everyone, I have had sickle cell anemia my entire life. I used to go the hospital very often, but now I only go about twice a year to be admitted. I have; through research, asking around and other such things; found different ways to deal with the pain of my disease. To avoid pain: Wrap
Hello everyone, I have had sickle cell anemia my entire life. I used to go the hospital very often, but now I only go about twice a year to be admitted. I have; through research, asking around and other such things; found different ways to deal with the pain of my disease. To avoid pain: Wrap
Anzy
in
Sickle Cell Society
12 years ago
What an amazing week!
Well, on top of the article in the Daily Mail that has caused our phones to practically melt (140 calls since Tuesday), we have got even more excitement to report. Lord Wills, who has taken up the cause of Giant Cell Arteritis and the tragedy of sight loss that it can cause, has managed to get the
Well, on top of the article in the Daily Mail that has caused our phones to practically melt (140 calls since Tuesday), we have got even more excitement to report. Lord Wills, who has taken up the cause of Giant Cell Arteritis and the tragedy of sight loss that it can cause, has managed to get the
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
12 years ago
Daily Mail features Giant Cell Arteritis
Now, the Daily Mail isn't normally my favourite newspaper, but today it definitely is. The Mail has published a long and really good feature on Giant Cell Arteritis, the tragedy of people who lose their sight because of it not being diagnosed, and the scandal of doctors who don't see what is right in
Now, the Daily Mail isn't normally my favourite newspaper, but today it definitely is. The Mail has published a long and really good feature on Giant Cell Arteritis, the tragedy of people who lose their sight because of it not being diagnosed, and the scandal of doctors who don't see what is right in
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
12 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
AMN/Mystery disease
I am computer challenged! I am like a cave woman in training in this computer/technological world! FYI, I have, never, ever done a blog, before! I am suffering from AMN, big time, and would love some help!!! I KNOW THAT I COULD BE OF HELP AND YOU COULD BE OF HELP TO ME! I have an amazing story
I am computer challenged! I am like a cave woman in training in this computer/technological world! FYI, I have, never, ever done a blog, before! I am suffering from AMN, big time, and would love some help!!! I KNOW THAT I COULD BE OF HELP AND YOU COULD BE OF HELP TO ME! I have an amazing story
relay
in
AMN EASIER
12 years ago
Update on ice cream cones – very disappointed with Sainsbury’s
If you have been following my recent blog posts, you will know that I have been searching for the Barkat gluten free, dairy free ice cream cones. I approached the Barkat stand at the Allergy Show several weeks ago and they assured me they would be back on the shelves in Sainsbury’s very soon. I have
If you have been following my recent blog posts, you will know that I have been searching for the Barkat gluten free, dairy free ice cream cones. I approached the Barkat stand at the Allergy Show several weeks ago and they assured me they would be back on the shelves in Sainsbury’s very soon. I have
Feedingmyintolerantchild
in
Gluten Free Guerrillas
12 years ago
A great source of information on treatment of Sickle Cell in the UK
Many of you are probably aware of NHS Choices as resource for information about Sickle Cell Disorders, but if you aren’t you can find a basic overview here: http://www.nhs.uk/Conditions/Sickle-cell-anaemia/Pages/Introduction.aspx . It provides an overview of the disorders, as well as going more in depth
Many of you are probably aware of NHS Choices as resource for information about Sickle Cell Disorders, but if you aren’t you can find a basic overview here: http://www.nhs.uk/Conditions/Sickle-cell-anaemia/Pages/Introduction.aspx . It provides an overview of the disorders, as well as going more in depth
CarlottaO
Sickle Cell Society
in
Sickle Cell Society
12 years ago
I NEED HELP
It was a surprise to know that 15,000 babies are born yearly in ghana with sickle cell disease and 45,000 in Africa as a whole. Sickle cell disease cant be cured but can by avoided. This is when a person gets to know his or her status and choose the right partner. Here in Ghana, people dont check for
It was a surprise to know that 15,000 babies are born yearly in ghana with sickle cell disease and 45,000 in Africa as a whole. Sickle cell disease cant be cured but can by avoided. This is when a person gets to know his or her status and choose the right partner. Here in Ghana, people dont check for
quasi
in
Sickle Cell Society
12 years ago
Crisis but only sickle cell trait?
I am a 44 year old lady and have been told iam sickle cell trait for many years now. what i need to know is could i still get a crisis as i ended up in hospital recently with stomach pain and ended up having my appendix taken out. However when this was done they were perfectly normal. I have had various
I am a 44 year old lady and have been told iam sickle cell trait for many years now. what i need to know is could i still get a crisis as i ended up in hospital recently with stomach pain and ended up having my appendix taken out. However when this was done they were perfectly normal. I have had various
karengr1
in
Sickle Cell Society
12 years ago
Goodnight all - catch up with you tomorrow
Hi all and a goodnight to you all. That's my lot for the night. Hi ho hi ho and off to bed I go, with a yawn yawn here and a yawn yawn there Hi ho hi ho zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz Sleeeeeeeeeeeeep tight and don't let the bed bugs bite. Love and hugs Chris xx
Hi all and a goodnight to you all. That's my lot for the night. Hi ho hi ho and off to bed I go, with a yawn yawn here and a yawn yawn there Hi ho hi ho zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz Sleeeeeeeeeeeeep tight and don't let the bed bugs bite. Love and hugs Chris xx
Hidden
in
Fibromyalgia Action UK
12 years ago
GINGER CAKE ALERT !!!!
Ok everybody i know you are all on the edge of your seat waiting for my next phase of thing s to eat well i can announce that i have bben to asda and purchased a Mcvities jamacian ginger cake and also a golden syrup cake and i thought i would be healthy and instead of fresh cream i bought a pot of creme
Ok everybody i know you are all on the edge of your seat waiting for my next phase of thing s to eat well i can announce that i have bben to asda and purchased a Mcvities jamacian ginger cake and also a golden syrup cake and i thought i would be healthy and instead of fresh cream i bought a pot of creme
Hidden
in
Fibromyalgia Action UK
12 years ago
Being treated for Splenic Lymphoma but positive for APS antibodies could it really be APS?
I am a 45 YO woman who's father died of APS and Lupus. It was not dignosed for 17 years and many of the symptoms were treated as other diseases. I have been diagnosed with Marginal Zone Splenic Lymphoma with strange infarcs (blood clots) on a giant spleen. Bone marrow biopsy reflected abnormal B-cells
I am a 45 YO woman who's father died of APS and Lupus. It was not dignosed for 17 years and many of the symptoms were treated as other diseases. I have been diagnosed with Marginal Zone Splenic Lymphoma with strange infarcs (blood clots) on a giant spleen. Bone marrow biopsy reflected abnormal B-cells
MerrittM
in
Hughes Syndrome APS Forum
13 years ago
Legs seized up
Hi i have just had a really scary experience, i was walking up stairs and both legs seized up, like cramp but much worse. I felt i had no control over them, i couldnt move. I have had leg cramps before but never anything like this. The reason i found it so upsetting is I wondered what i would have done
Hi i have just had a really scary experience, i was walking up stairs and both legs seized up, like cramp but much worse. I felt i had no control over them, i couldnt move. I have had leg cramps before but never anything like this. The reason i found it so upsetting is I wondered what i would have done
tmoxon
in
Gluten Free Guerrillas
12 years ago
home neb machine
Hi, I have a friend with a 9 year old with asthma due to XLP damage to his chest and they need to buy a home neb machine for him for when his chest is really bad. Recently he had to go into hospital overnight for saline neb which helped but his parents have never been offered advice re buying a machine
Hi, I have a friend with a 9 year old with asthma due to XLP damage to his chest and they need to buy a home neb machine for him for when his chest is really bad. Recently he had to go into hospital overnight for saline neb which helped but his parents have never been offered advice re buying a machine
Hidden
in
Asthma Community Forum
17 years ago
Bone Marrow Transplants
I know this is off topic, but I think it is something that is really important. Adrian Sudbury started a petition to make it compulsory for kids to learn about bone marrow and plateleys donation. He's trying to get to 10,000 signitures by the 23rd of this month! Give him a hand people! http://petitions.pm.gov.uk
I know this is off topic, but I think it is something that is really important. Adrian Sudbury started a petition to make it compulsory for kids to learn about bone marrow and plateleys donation. He's trying to get to 10,000 signitures by the 23rd of this month! Give him a hand people! http://petitions.pm.gov.uk
Hidden
in
Asthma Community Forum
16 years ago
Is it life changing?........
Cancer has touched a number of family members throughout my life - not that long at 44, but it really affected me most when my Mother was diagnosed at 50 and died at 51. I must admit, it had a pretty profound affect on me and my family and although it was over 15 years ago it still remains with
Cancer has touched a number of family members throughout my life - not that long at 44, but it really affected me most when my Mother was diagnosed at 50 and died at 51. I must admit, it had a pretty profound affect on me and my family and although it was over 15 years ago it still remains with
PeterThomas
in
Tenovus
13 years ago
Hi.I have had WG for just over 4 years now. I have been on Rhituximab for just
over a year and I have been told that I will probably need to have a bone marrow transplant. Has anyone else needed this procedure for WG. Any information would be greatly appreciated. Thanks.
over a year and I have been told that I will probably need to have a bone marrow transplant. Has anyone else needed this procedure for WG. Any information would be greatly appreciated. Thanks.
jimny
in
Vasculitis UK
13 years ago
Apologies,it's 50mg Dapsone not 25mg
I wrote yesterday in desperate mode as I was/am worried about my husband's tiredness & coping with DH.7 kind folk on here responded but I said that hubby was on 25mg when actually it is 5omg,which kind of alters the whole thing really.He is not the same sharp thinking person that he was prior to DH &
I wrote yesterday in desperate mode as I was/am worried about my husband's tiredness & coping with DH.7 kind folk on here responded but I said that hubby was on 25mg when actually it is 5omg,which kind of alters the whole thing really.He is not the same sharp thinking person that he was prior to DH &
angel1980
in
Gluten Free Guerrillas
13 years ago
The role of gluten in baking
Understanding the role gluten plays is often the key to finding ways of overcoming it's absence. For example in a cookie- the role of gluten is to keep the cookie from falling apart, but it also adds texture. Those crispy edges in a chocolate chip cookie and the snap in a ginger snap, come from gluten
Understanding the role gluten plays is often the key to finding ways of overcoming it's absence. For example in a cookie- the role of gluten is to keep the cookie from falling apart, but it also adds texture. Those crispy edges in a chocolate chip cookie and the snap in a ginger snap, come from gluten
Adriana
in
Gluten Free Guerrillas
13 years ago
Looking for info on Naltrexone please.
I have had the 'dreaded itch' for 7 months now, antihistamines give slight relief as does Aveeno moisturiser. I have tried Questran which didnt work, Rifampicin which worked but I suffered terrible side effects and my liver tests were really bad. I have been offered Naltrexone by my Consultant which
I have had the 'dreaded itch' for 7 months now, antihistamines give slight relief as does Aveeno moisturiser. I have tried Questran which didnt work, Rifampicin which worked but I suffered terrible side effects and my liver tests were really bad. I have been offered Naltrexone by my Consultant which
Jill68
in
PBC Foundation
13 years ago
Welcome to our new community!
Hi I'm Kate Gilbert and I'm the Chair of PMRGCAuk. We are delighted to be collaborating with HealthUnlocked on this new community This charity has only been going for a couple of years, but we are already making a difference to the lives of people with polymyalgia rheumatica and giant cell arteritis
Hi I'm Kate Gilbert and I'm the Chair of PMRGCAuk. We are delighted to be collaborating with HealthUnlocked on this new community This charity has only been going for a couple of years, but we are already making a difference to the lives of people with polymyalgia rheumatica and giant cell arteritis
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
13 years ago
1
...
83
84
85
Next page
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
CLL Support
555 results
PMRGCAuk
202 results
MPN Voice
130 results
View top 10 communities
Sort by
Most Relevant
Newest