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Mantle cell lymphoma (MCL)
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Multiple autoimmune conditions. Lupus too?
Where to start!I've been quite poorly with scleroderma, and I also have PBC, Sjogrens, and hypothyroidism. I have osteoarthritis and hyper flexibility joint syndrome. I am ACA pos, AMA pos, Igm pos, gastric parietal cell antibody positive, and I have just found out that I'm anti ro pos, and anti sm pos
Where to start!I've been quite poorly with scleroderma, and I also have PBC, Sjogrens, and hypothyroidism. I have osteoarthritis and hyper flexibility joint syndrome. I am ACA pos, AMA pos, Igm pos, gastric parietal cell antibody positive, and I have just found out that I'm anti ro pos, and anti sm pos
MissusTee
in
LUPUS UK
6 years ago
Newly diagnosed – ET Jak2+ with added drama!
Hi everyone! I've been wanting to post here for some time, but it's taken me a couple of months to get a diagnosis and it's been a bit of a rollercoaster! Back in September 2017 I went to the doctor with weight loss and fatigue. Blood tests came back "normal" but a scan revealed I had a very enlarged
Hi everyone! I've been wanting to post here for some time, but it's taken me a couple of months to get a diagnosis and it's been a bit of a rollercoaster! Back in September 2017 I went to the doctor with weight loss and fatigue. Blood tests came back "normal" but a scan revealed I had a very enlarged
Timjonze
in
MPN Voice
6 years ago
CAR-T Clinical Trial for CLL
My wife (who has aggressive follicular lymphoma) received an NIH CAR-T infusion (NCT02659943) on March 2, 2016 - she has been in complete remission since the infusion. NCT02659943 is accepting new B-cell lymphoma and CLL patients.
My wife (who has aggressive follicular lymphoma) received an NIH CAR-T infusion (NCT02659943) on March 2, 2016 - she has been in complete remission since the infusion. NCT02659943 is accepting new B-cell lymphoma and CLL patients.
wmay13241
in
Non Hodgkin's Lymphoma Friends
6 years ago
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Advice for veno-occlusive/sinosoidal obstruction disease
Hi everyone, I’m new here. I’m 30 years old and I started having right upper abdomen pain about 18 months ago. To cut a very long story short I have now had a tentative diagnosis of VOD/SOD following many scans and liver biopsy. I am in pain every day but my LFTs are all normal and I don’t have ascites
Hi everyone, I’m new here. I’m 30 years old and I started having right upper abdomen pain about 18 months ago. To cut a very long story short I have now had a tentative diagnosis of VOD/SOD following many scans and liver biopsy. I am in pain every day but my LFTs are all normal and I don’t have ascites
Beedee87
in
British Liver Trust
6 years ago
Looks like I need to watch what I say
I like to share my experiences, what I do and how I feel. Whenever that happens it opens up a whole world of replies. It looks like my last post was a step to far for this forum. I am not sorry for what I said, but I will refrain from talking about my experiences in life with PMR. For those of us that
I like to share my experiences, what I do and how I feel. Whenever that happens it opens up a whole world of replies. It looks like my last post was a step to far for this forum. I am not sorry for what I said, but I will refrain from talking about my experiences in life with PMR. For those of us that
JulianJ
in
PMRGCAuk
6 years ago
Hilarious
Hi I been under the microscope again liver results are fine so I am happy,. But I have been diagnosed with severe anaemia (explains why I am knackered constantly) anyway they are now trying to figure out the cause of this and consistent low RBC, WBC and platelets there have been talk of bone marrow transplant
Hi I been under the microscope again liver results are fine so I am happy,. But I have been diagnosed with severe anaemia (explains why I am knackered constantly) anyway they are now trying to figure out the cause of this and consistent low RBC, WBC and platelets there have been talk of bone marrow transplant
jojokarak
in
British Liver Trust
6 years ago
My Mom has just been diagnosed with Lymphoma.... what should I expect?
I am new here. My mother has just been diagnosed with Lymphoma. Our first specialist appointment is Friday and just wondering what to expect. I am a bit overwhelmed right now and trying to be strong for her and inform my self so I know what I should ask when we go. Any help would be awesome.....
I am new here. My mother has just been diagnosed with Lymphoma. Our first specialist appointment is Friday and just wondering what to expect. I am a bit overwhelmed right now and trying to be strong for her and inform my self so I know what I should ask when we go. Any help would be awesome.....
My-Mom-Lymphoma
in
Lymphoma Canada
7 years ago
11q, 17p deletion and Trisomy 12
Hi all..went to my Hematologist yesterday. Red cells holding. Found out I'm not 11q or 17p deletion but am Trisomy 12 and unmutated. Looked up Trisomy 12 and it made me a little nervous. Also, doctor said better to be mutated than unmutated. I told her I'm CD38 positive and zap-70 positive. She
Hi all..went to my Hematologist yesterday. Red cells holding. Found out I'm not 11q or 17p deletion but am Trisomy 12 and unmutated. Looked up Trisomy 12 and it made me a little nervous. Also, doctor said better to be mutated than unmutated. I told her I'm CD38 positive and zap-70 positive. She
Ladydi49
in
CLL Support
7 years ago
Hello From Nigel In Cornwall.
Diagnosed with early stage CLL in October 2017. The day my doctor telephoned me to advise of the 5th set of blood test results and confirmed it was CLL, happened to be the very day a very good friend of mine died of ovarian cancer. GP was pretty blunt and unhelpful. "Early stage. No need to worry
Diagnosed with early stage CLL in October 2017. The day my doctor telephoned me to advise of the 5th set of blood test results and confirmed it was CLL, happened to be the very day a very good friend of mine died of ovarian cancer. GP was pretty blunt and unhelpful. "Early stage. No need to worry
OwnedByCockerSpaniel
in
CLL Support
6 years ago
Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting by Stephen M. Ansell, MD, PhD & Laurie H. Sehn, MD, MP
Webinar: Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting, which took place on January 23. It is now available on telephone replay 24 hours a day, 7 days a week. Just call 1-800-625-5288 and give the code #1151498 or click here http://click.icptrack.com/icp/relay.php
Webinar: Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting, which took place on January 23. It is now available on telephone replay 24 hours a day, 7 days a week. Just call 1-800-625-5288 and give the code #1151498 or click here http://click.icptrack.com/icp/relay.php
lankisterguy
Volunteer
in
CLL Support
6 years ago
Websites - useful stuff, articles, resources
I've been keeping a Word doc on articles that I knew I'd want to refer back to. Not sure if anyone interested, but here it is. Please forgive the format, I didn't know how to add a Word doc so I copied and pasted. . Articles on: Few side effects due to PMR compared with an age-matched cohort not taking
I've been keeping a Word doc on articles that I knew I'd want to refer back to. Not sure if anyone interested, but here it is. Please forgive the format, I didn't know how to add a Word doc so I copied and pasted. . Articles on: Few side effects due to PMR compared with an age-matched cohort not taking
Insight329
in
PMRGCAuk
6 years ago
Do I have leukemia?
Hi, I got my blood work done last week and below are the reports. I am worried that I might have leukemia (I am a 23 year old male). Complete Blood Count Hemoglobin - 16.30 (14.0 - 17.50 g/dL) Total Leucocytes (pWBC) count - 9,800 (4000-10000/μL) Platelet count - 192,000 (150000 - 450000 /μL) Red blood
Hi, I got my blood work done last week and below are the reports. I am worried that I might have leukemia (I am a 23 year old male). Complete Blood Count Hemoglobin - 16.30 (14.0 - 17.50 g/dL) Total Leucocytes (pWBC) count - 9,800 (4000-10000/μL) Platelet count - 192,000 (150000 - 450000 /μL) Red blood
root55AA
in
CLL Support
7 years ago
Chemotherapy, a Trusty Weapon Against Cancer, Falls Out of Favor
Interesting read from the Wall Street Journal: some oncologists are no longer recommending chemotherapy as a treatment option. What are your thoughts? Does the article resonate with you in any way? Full article below and here: http://on.wsj.com/2DOOX5y "Chemotherapy, a Trusty Weapon Against Cancer,
Interesting read from the Wall Street Journal: some oncologists are no longer recommending chemotherapy as a treatment option. What are your thoughts? Does the article resonate with you in any way? Full article below and here: http://on.wsj.com/2DOOX5y "Chemotherapy, a Trusty Weapon Against Cancer,
joann86
in
SHARE Breast Cancer Support
6 years ago
Dark Urine with Imbruvica ?
Back in 09 learned I had stage 4 CLL & went through 6 mo of FCR chemo....all went well until Aug of 17 when my white count started rising 10k per month... in Nov I started Imbruvica & my swollen neck glands went down in the first week while my WBC rose 30k... for the last mo my WBC has been slowly
Back in 09 learned I had stage 4 CLL & went through 6 mo of FCR chemo....all went well until Aug of 17 when my white count started rising 10k per month... in Nov I started Imbruvica & my swollen neck glands went down in the first week while my WBC rose 30k... for the last mo my WBC has been slowly
emarine
in
CLL Support
7 years ago
Diet during chemotherapy for BC
hello doctors/experts, my mother is expected to start chemo process from late next week. Its stage two triple negative BC. lymph node positive.. just preparing for diet plan to follow during chemotherapy.. i read in internet (US cancer authorized websites) that say to restrict raw nuts and raw fruits
hello doctors/experts, my mother is expected to start chemo process from late next week. Its stage two triple negative BC. lymph node positive.. just preparing for diet plan to follow during chemotherapy.. i read in internet (US cancer authorized websites) that say to restrict raw nuts and raw fruits
jaiganesh156
in
Breast Cancer India
7 years ago
Losing my friends!
Lost another friend to sickle cell two days ago. I have lost over 10 friends now and I am angry, fed up and upset. It's a feeling of helplessness. I don't know who will go next and it's just too painful. I don't know if I did the right thing having kids because I dont want them to lose me. I don't want
Lost another friend to sickle cell two days ago. I have lost over 10 friends now and I am angry, fed up and upset. It's a feeling of helplessness. I don't know who will go next and it's just too painful. I don't know if I did the right thing having kids because I dont want them to lose me. I don't want
jo19
in
Sickle Cell Society
7 years ago
Steroid withdrawal symptoms
Hi, I'm new to this, came off steroids after three and a half years. I had giant cell arteritis and polymialgia have aching arms and sometimes legs very stiff, seen GP today who suggested it was probably "my age" I'm 72 - do they not accept that it could be withdrawal symptoms.? Anyone else has this
Hi, I'm new to this, came off steroids after three and a half years. I had giant cell arteritis and polymialgia have aching arms and sometimes legs very stiff, seen GP today who suggested it was probably "my age" I'm 72 - do they not accept that it could be withdrawal symptoms.? Anyone else has this
Jcmcd
in
PMRGCAuk
7 years ago
Ibrutinib and Mantle Cell Lymphoma
Why some patients develop resistance to ibrutinib https://www.sciencedaily.com/releases/2017/06/170614112849.htm
Why some patients develop resistance to ibrutinib https://www.sciencedaily.com/releases/2017/06/170614112849.htm
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
CLL/Lymphoma in second remission
Hello, I was diagnosed w/ CLL in 10/12 and was treated with BR for only 2 months because of suspected side effects. However, I responded well and went into remission for 5 years. I had a recurrence in 7/17 and received only Rituxin for 4 weeks, 1 day/week. I had another great response to Rituxan and
Hello, I was diagnosed w/ CLL in 10/12 and was treated with BR for only 2 months because of suspected side effects. However, I responded well and went into remission for 5 years. I had a recurrence in 7/17 and received only Rituxin for 4 weeks, 1 day/week. I had another great response to Rituxan and
BarbLorraine
in
CLL Support
7 years ago
Looking for answers.
Hi, I live in the UK and last week had a routine blood test which showed my Creatinine level was 92 (marker 40-84) my Doctor seemed concerned an asked me to do another blood test for full kidney function. I had a message left today to say satisfactory bloods and no further tests. However when I rang
Hi, I live in the UK and last week had a routine blood test which showed my Creatinine level was 92 (marker 40-84) my Doctor seemed concerned an asked me to do another blood test for full kidney function. I had a message left today to say satisfactory bloods and no further tests. However when I rang
Hidden
in
Hughes Syndrome APS Forum
7 years ago
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