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Update and meeting the team.
I’ve had lost of tests done over the past few months. I met up the the transplant team. I’m looking at 5-10 years for a bone marrow transplant, they said it could be earlier, as I’m still working and I’m well enough they don’t want to do it to early. I will need to take year off work, (when the time
I’ve had lost of tests done over the past few months. I met up the the transplant team. I’m looking at 5-10 years for a bone marrow transplant, they said it could be earlier, as I’m still working and I’m well enough they don’t want to do it to early. I will need to take year off work, (when the time
wendycu
in
MPN Voice
2 years ago
Join Us! May 10th, Gathering HOPE, a Social Hour
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE social hour, click here: http://gatheringhope05-2022.event.gatherly.io/ on Tuesday
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE social hour, click here: http://gatheringhope05-2022.event.gatherly.io/ on Tuesday
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
Happy to be here!
In many ways I guess I'm at a similar crossroads now with the potential
lung
transplant
as I was back in 2003 with the bone marrow transplant.
In many ways I guess I'm at a similar crossroads now with the potential
lung
transplant
as I was back in 2003 with the bone marrow transplant.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
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Has anyone been involved in a clinical trial with osmertinib? It’s an option for my dad or have chemo/radiotherapy concurrently.
My dad has stage 3b lung cancer with PDL1 positive and edfr, a rare mutation. He’s a non smoker and we need to choose between chemo/ radio then surgery or a clinical trial (computer randomly assigns either osmertinib tablets only or osimertinib + chemo or osimertinib + placebo) and then surgery to remove
My dad has stage 3b lung cancer with PDL1 positive and edfr, a rare mutation. He’s a non smoker and we need to choose between chemo/ radio then surgery or a clinical trial (computer randomly assigns either osmertinib tablets only or osimertinib + chemo or osimertinib + placebo) and then surgery to remove
Jaynelovestravel
in
The Roy Castle Lung Cancer Foundation
2 years ago
Stem Cell Transplant-update
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
ConniesDad
in
MPN Voice
2 years ago
Microneedle skin treatment for kidney transplant patient
Hello... My Husband is kidney transplant patient for 2 years. He has some acnes (maybe it because of methyl) and leave scars on his face. I'm thinking to go to Dermatologist for Microneedle. Is anyone experience the same treatment?.
Hello... My Husband is kidney transplant patient for 2 years. He has some acnes (maybe it because of methyl) and leave scars on his face. I'm thinking to go to Dermatologist for Microneedle. Is anyone experience the same treatment?.
Dheadome
in
Kidney Transplant
2 years ago
Transplant Lethargy
Hi everyone! This is my first question and I'm so excited I found this forum of other kidney transplant recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy. Some days are good, some days are okay, and some other days like today, I am very
Hi everyone! This is my first question and I'm so excited I found this forum of other kidney transplant recipients like myself. I was hoping you could help me: I am post transplant 19 years. My biggest issue is energy. Some days are good, some days are okay, and some other days like today, I am very
ksoccer45
in
Kidney Disease
2 years ago
Lost a jewel from my Crown
Last night I got news that the kidney transplant center I was planning on using, if I was approved, has voluntarily put their program on hold pending a review of a couple of their cases by UNOS. I was shocked and it left me feeling a little unsettled. Questions like why are they being reviewed? When
Last night I got news that the kidney transplant center I was planning on using, if I was approved, has voluntarily put their program on hold pending a review of a couple of their cases by UNOS. I was shocked and it left me feeling a little unsettled. Questions like why are they being reviewed? When
HipHopQueen
in
Kidney Dialysis
2 years ago
CBD OIL
Just read an article about an 80 year old lady who had stage 4 lung cancer and took liquid CBD oil daily, and refused all treatment. The tumour disappeared. Is this made up, surely the experts would have found that CBD is a cure. It's like diet, there's no diet that can cure cancer.
Just read an article about an 80 year old lady who had stage 4 lung cancer and took liquid CBD oil daily, and refused all treatment. The tumour disappeared. Is this made up, surely the experts would have found that CBD is a cure. It's like diet, there's no diet that can cure cancer.
Tike3
in
The Roy Castle Lung Cancer Foundation
2 years ago
MF high risk Mutations
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
EPguy
in
MPN Voice
2 years ago
Driving after transplant
Question for kidney transplant patients How long before you was able to drive again?
Question for kidney transplant patients How long before you was able to drive again?
transplantwarrier
in
Kidney Transplant
2 years ago
My father has Peripheral t cell lymphoma
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
NikhilSantosh
in
CLL Support
2 years ago
update
Hello all. I haven't been here for long time as I am trying to avoid media for now. Little update (if anyone read it) my liver nurse says that I am doing very well, I managed to do some houseworks, workouts and eat well. We proceed my check ups from every 3 weeks to every 8 weeks as my blood tests
Hello all. I haven't been here for long time as I am trying to avoid media for now. Little update (if anyone read it) my liver nurse says that I am doing very well, I managed to do some houseworks, workouts and eat well. We proceed my check ups from every 3 weeks to every 8 weeks as my blood tests
Bazinga89
in
British Liver Trust
2 years ago
Please join us tomorrow,Tuesday April 19th for our Lung Cancer Living Room: "Treatment Options for Late-Stage Lung Cancer "
Hello Everyone! I wanted to send a reminder to please join our Lung Cancer Living Room Support group, tomorrow at 5:30pm PST/8:30pm EST. The Topic is: "Treatment Options for Late-Stage Lung Cancer " Dr. Gerber will be detailing treatment considerations for patients with late-stage lung cancer, including
Hello Everyone! I wanted to send a reminder to please join our Lung Cancer Living Room Support group, tomorrow at 5:30pm PST/8:30pm EST. The Topic is: "Treatment Options for Late-Stage Lung Cancer " Dr. Gerber will be detailing treatment considerations for patients with late-stage lung cancer, including
Michelezeh
Partner
in
Lung Cancer Support
2 years ago
My son has his first appointment with Vanderbilt Hepatologist this week, anything I need to be aware of?
My son finally has his first appointment with the hepatologist this week to just establish with them. We have been told he doesn't need a liver transplant yet from the GI physician. However, due to Covid and just how long it takes to get appointments for new patients, we wanted to get him established
My son finally has his first appointment with the hepatologist this week to just establish with them. We have been told he doesn't need a liver transplant yet from the GI physician. However, due to Covid and just how long it takes to get appointments for new patients, we wanted to get him established
Bloomwithgrace
in
Living with Fatty Liver and NASH
2 years ago
How long
Consultant is writing to Birmingham. Liver transplant team how long does it take from them receiving the letter will it take for us to hear anything 🙄
Consultant is writing to Birmingham. Liver transplant team how long does it take from them receiving the letter will it take for us to hear anything 🙄
Lippy42
in
British Liver Trust
2 years ago
Any young adults with kidney transplant?
Would like to exchange experience and how did you cope/adjust with life
Would like to exchange experience and how did you cope/adjust with life
vision22
in
Kidney Transplant
2 years ago
What a couple of weeks…😡
Following double
lung
transplant
assessments they have now discovered i have coronary stenosis but cannot make a final decision until a further report is prepared and discussed with the cardiologist. These tests are so thorough as only the fittest( ironic eh!) can be put forward.
Following double
lung
transplant
assessments they have now discovered i have coronary stenosis but cannot make a final decision until a further report is prepared and discussed with the cardiologist. These tests are so thorough as only the fittest( ironic eh!) can be put forward.
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Questions about post transplant surgery JP drain
Did anyone have a JP drain after kidney transplant surgery? I have had a drain for 6 weeks and it’s still collecting 100cc of fluid. My doctors want it to get to 25cc which seems like it’ll be awhile longer. If you had a drain how long did you have it? Just trying to get an idea of the longest time.
Did anyone have a JP drain after kidney transplant surgery? I have had a drain for 6 weeks and it’s still collecting 100cc of fluid. My doctors want it to get to 25cc which seems like it’ll be awhile longer. If you had a drain how long did you have it? Just trying to get an idea of the longest time.
Grammy820
in
Kidney Transplant
2 years ago
International Caregiver Survey
Calling all caregivers: Please help by completing this survey: https://www.connection.solutions.iqvia.com/Desktop/Portal/Signup?id=LungCancerRegistry&lang=en Anyone who has cared for a person with lung cancer, either now or in the past, is eligible to complete the survey, which is part of the global
Calling all caregivers: Please help by completing this survey: https://www.connection.solutions.iqvia.com/Desktop/Portal/Signup?id=LungCancerRegistry&lang=en Anyone who has cared for a person with lung cancer, either now or in the past, is eligible to complete the survey, which is part of the global
Miranda_GO2
Partner
in
Lung Cancer Support
2 years ago
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