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Is there always a rash with vasculitis?
Hood morning everyone and thank you so much for your support so far. I’m still investigating how to try and get my my tested for vasculitis. She has a diagnosis of bronchocentric glanulomatosis currently but I would like her tested for vasculitis as she is currently just being treated with steroids
Hood morning everyone and thank you so much for your support so far. I’m still investigating how to try and get my my tested for vasculitis. She has a diagnosis of bronchocentric glanulomatosis currently but I would like her tested for vasculitis as she is currently just being treated with steroids
Muddywater100
in
Vasculitis UK
1 year ago
Transplant
Yes I had a liver transplant in October 2018 my liver decease which ended up stage 4 liver decease caused unfortunately by medication for another health issue, prior to my transplant I also had open heart heart surgery I was one of these fitness people who didn't know I had a severe heart condition
Yes I had a liver transplant in October 2018 my liver decease which ended up stage 4 liver decease caused unfortunately by medication for another health issue, prior to my transplant I also had open heart heart surgery I was one of these fitness people who didn't know I had a severe heart condition
Bellarman
in
British Liver Trust
1 year ago
Join Us! Tomorrow, May 9th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, May 9th, at 5pm PT/8pm ET. At this meeting
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, May 9th, at 5pm PT/8pm ET. At this meeting
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
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Celebrating International Clinical Trials Day.
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
Richard-Allen
in
British Liver Trust
1 year ago
6 month transplant anniversary!!! Whoo hoo
Today is the 6-month anniversary of my kidney transplant. All continues to go very well with the exception of low white blood cell count. This has improved some but still comes in between 3.0 and 3.75 with 4.0 being the bottom of the normal range. Inspite of my low WBC count and pulling of bactrim 7
Today is the 6-month anniversary of my kidney transplant. All continues to go very well with the exception of low white blood cell count. This has improved some but still comes in between 3.0 and 3.75 with 4.0 being the bottom of the normal range. Inspite of my low WBC count and pulling of bactrim 7
Jayhawker
in
Kidney Transplant
1 year ago
Transplant Surgeon
I was given a lot of information regarding a double
lung
transplant
, they was all very nice and thorough. I was allocated a transplant co ordinator then was informed a would be discussed at the weekly meeting. September this year I was admitted to the “Jim Quick” ward at wythenshawe .
I was given a lot of information regarding a double
lung
transplant
, they was all very nice and thorough. I was allocated a transplant co ordinator then was informed a would be discussed at the weekly meeting. September this year I was admitted to the “Jim Quick” ward at wythenshawe .
Northernsaul
in
Lung Conditions Community Forum
2 years ago
squamous cell lung cancer
I see many posts about adenocarcinoma but none on NSCLC Squamous cell. Can anyone share their experience with squamous cell lung cancer. Also if anyone has had PNI (peri neural invasion). After surgery I also have a lot of high grade dysplasia in bronchial margins. I had right upper lobe removed February
I see many posts about adenocarcinoma but none on NSCLC Squamous cell. Can anyone share their experience with squamous cell lung cancer. Also if anyone has had PNI (peri neural invasion). After surgery I also have a lot of high grade dysplasia in bronchial margins. I had right upper lobe removed February
Susie215
in
Lung Cancer Support
1 year ago
10 Year Anniversary
A few weeks ago I realized this is the ten-year anniversary of when I started dialysis. I started in August of 2013 in the days after I had a knee surgery. I was 14 years old. I'm now 24 years old. In the time since I started dialysis I started and finished high school, started and finished college,
A few weeks ago I realized this is the ten-year anniversary of when I started dialysis. I started in August of 2013 in the days after I had a knee surgery. I was 14 years old. I'm now 24 years old. In the time since I started dialysis I started and finished high school, started and finished college,
StormCl0ud
in
Kidney Dialysis
1 year ago
Need a rant
Last week I had some devastating news I have a rare liver condition and now because of the AF and bradycardia I have been told that I have no other options but to have a liver transplant because the AF complicates things I'm really upset and scared I really don't know what to do. I've got to have
Last week I had some devastating news I have a rare liver condition and now because of the AF and bradycardia I have been told that I have no other options but to have a liver transplant because the AF complicates things I'm really upset and scared I really don't know what to do. I've got to have
Corrie12
in
AF Association
1 year ago
Start of my stem cell journey 0.3.1 ambulatory care
I have been offered Ambulatory Care (treatment in a specialised day unit) for my stem cell transplant has anyone else gone through this process?
I have been offered Ambulatory Care (treatment in a specialised day unit) for my stem cell transplant has anyone else gone through this process?
Grizly
in
MPN Voice
10 months ago
Start of my Stem Cell Journey 0.3
Well, where do I start. The transplant team wanted to increase my Rux to 10 mgs which has been really good for me. So much energy hardly any symptoms and overall feeling better. The fly in the ointment is my blood levels are dropping red cells were 80 and my platelets were in the 30’s. My Haematologist
Well, where do I start. The transplant team wanted to increase my Rux to 10 mgs which has been really good for me. So much energy hardly any symptoms and overall feeling better. The fly in the ointment is my blood levels are dropping red cells were 80 and my platelets were in the 30’s. My Haematologist
Grizly
in
MPN Voice
10 months ago
after effects of kidney transplant
Hi There, I am a 62 years old male, with CKD 4 , EGFR as 16 and creatinine 4.07 . I have been listed for Kidney Transplant. I need to talk to people who have already got the transplant done and what kind of experience they have after getting the transplant. Any complications they had, is it better or
Hi There, I am a 62 years old male, with CKD 4 , EGFR as 16 and creatinine 4.07 . I have been listed for Kidney Transplant. I need to talk to people who have already got the transplant done and what kind of experience they have after getting the transplant. Any complications they had, is it better or
asahdev
in
Kidney Transplant
1 year ago
Flying
Hi I was diagnosed with stage 4 nsclc 2 years ago now just had my 23rd round of immunotherapy treatment which is keeping Beryl the lung lodger stable…Has anybody found that they have problems flying, last time I flew to Malaga a short time after I got home I landed up with a chest infection which made
Hi I was diagnosed with stage 4 nsclc 2 years ago now just had my 23rd round of immunotherapy treatment which is keeping Beryl the lung lodger stable…Has anybody found that they have problems flying, last time I flew to Malaga a short time after I got home I landed up with a chest infection which made
Cosmic54
in
The Roy Castle Lung Cancer Foundation
1 year ago
one month post op
I am one month out from my liver transplant, and am still in horrible pain, have lost 40 pounds, of which I did not have to loose, still taking OxyContin regularly, can’t sleep, and can’t eat solid foods. Any suggestions? Feeling absolutely miserable, and NO energy.
I am one month out from my liver transplant, and am still in horrible pain, have lost 40 pounds, of which I did not have to loose, still taking OxyContin regularly, can’t sleep, and can’t eat solid foods. Any suggestions? Feeling absolutely miserable, and NO energy.
Rubyrebe
in
British Liver Trust
1 year ago
Lipstickandcrayons
Hello my name is lipsticandcrayons I am a previous kidney transplant Paitient. It lasted me a whole 7 years and trust me when I say I protect this kidney with my life because it came from my beautiful mother. My mother was getting tested she had done the round and I got a call to come in , I was so
Hello my name is lipsticandcrayons I am a previous kidney transplant Paitient. It lasted me a whole 7 years and trust me when I say I protect this kidney with my life because it came from my beautiful mother. My mother was getting tested she had done the round and I got a call to come in , I was so
Lipstickncrayons
in
Kidney Transplant
1 year ago
Adenocarcinoma lung cancer
Hi All thanks so much for the kind people who responded to my mothers diagnosis of Adenocarcinoma of the lungs. We’ve now had the oncology appointment and Mums PDL1 is 100% and immunotherapy is the recommended treatment. We are due to start pembroluzumab (keytruda) to start every 3 weeks in the next
Hi All thanks so much for the kind people who responded to my mothers diagnosis of Adenocarcinoma of the lungs. We’ve now had the oncology appointment and Mums PDL1 is 100% and immunotherapy is the recommended treatment. We are due to start pembroluzumab (keytruda) to start every 3 weeks in the next
SharonTan
in
The Roy Castle Lung Cancer Foundation
1 year ago
F4: cirrhosis
I was recently diagnosed with F4 Cirrhosis and I'm terrified. I found out by reading my medical record. I was first told that I had Autoimmune Hepatitis after my Fibro scan results and that I needed to start treatment with Imuran and prednisone. GI dr said that if treatment didn't work I would be put
I was recently diagnosed with F4 Cirrhosis and I'm terrified. I found out by reading my medical record. I was first told that I had Autoimmune Hepatitis after my Fibro scan results and that I needed to start treatment with Imuran and prednisone. GI dr said that if treatment didn't work I would be put
TrixieMami
in
Living with Fatty Liver and NASH
1 year ago
kidney transplant recipient.
hello everyone with a kidney transplant, congratulations to all. I received my new kidney about a year and a half ago. I still have pain at the site of the surgery. I drive for living what advice you guys can render?
hello everyone with a kidney transplant, congratulations to all. I received my new kidney about a year and a half ago. I still have pain at the site of the surgery. I drive for living what advice you guys can render?
ru7318
in
Kidney Transplant
1 year ago
Transplant and BKV Realities
I received my kidney transplant 8 1/2 months ago. The surgery went so well and the transplant has been a new lease on life in so many ways. As I have posted here, I have dealt with a near-constant onslaught of infections (C-dif x2, UTI, Sepsis, BKV, CMV), the most recent resulting in 2 weeks spent in
I received my kidney transplant 8 1/2 months ago. The surgery went so well and the transplant has been a new lease on life in so many ways. As I have posted here, I have dealt with a near-constant onslaught of infections (C-dif x2, UTI, Sepsis, BKV, CMV), the most recent resulting in 2 weeks spent in
Hidden
in
Kidney Transplant
1 year ago
Famous Kidney Transplant People
I am watching Modern Family (rerun and the series is now ended) and remembered that Sarah Hyland, the oldest daughter, Hailey, of Claire and Phil on the show, was transplanted with a kidney when she was younger by a donation from her father. It failed and she got another transplant.I read that she said
I am watching Modern Family (rerun and the series is now ended) and remembered that Sarah Hyland, the oldest daughter, Hailey, of Claire and Phil on the show, was transplanted with a kidney when she was younger by a donation from her father. It failed and she got another transplant.I read that she said
TaffyTwoshoes27
in
Kidney Transplant
1 year ago
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