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Officially on the lung transplant waiting list
Last Friday I made the decision to join the
lung
transplant
waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching.
Last Friday I made the decision to join the
lung
transplant
waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching.
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Hello there - any advice about Chemo (Carboplatin and Pemetrexed) and Immunotherapy (Pembrolizomab)?
Hi, so I was diagnosed just before Christmas (Is cancer the Christmas Grinch? š¤ It was in my case....) Anyway, having been diagnosed with NSCL cancer I've now been put on a treatment plan, and start on Monday next week. Has anyone got any top tips for getting through the next few months? It all sounds
Hi, so I was diagnosed just before Christmas (Is cancer the Christmas Grinch? š¤ It was in my case....) Anyway, having been diagnosed with NSCL cancer I've now been put on a treatment plan, and start on Monday next week. Has anyone got any top tips for getting through the next few months? It all sounds
Boo_Radley
in
The Roy Castle Lung Cancer Foundation
1 year ago
Transplant list waiting. Mgus57
This is Mgus57 I did another blood test at Mayo Clinic. This journey to be put on the kidney transplant,list has been emotional one. The feedback I received from the team, at Mayo has positive. They tell me I should be a candidate for a transplant. I hope I receive a kidney soon. I want to wish
This is Mgus57 I did another blood test at Mayo Clinic. This journey to be put on the kidney transplant,list has been emotional one. The feedback I received from the team, at Mayo has positive. They tell me I should be a candidate for a transplant. I hope I receive a kidney soon. I want to wish
Fsgs57
in
Kidney Disease
1 year ago
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No offer of treatment.
My dear friend and colleague was diagnosed with stage 4 lung cancer in December. She has had a biopsy and been told there is no treatment available for her. She is just being given pain relief. She did not want to know how long she might have left. She sleeps most of the day and can't walk from the
My dear friend and colleague was diagnosed with stage 4 lung cancer in December. She has had a biopsy and been told there is no treatment available for her. She is just being given pain relief. She did not want to know how long she might have left. She sleeps most of the day and can't walk from the
Loppydune
in
The Roy Castle Lung Cancer Foundation
1 year ago
Ureteral stricture surgery/Ureteral retransplantation, replacement of ureter w small intestines etc and specialists who do this
I have a third kidney transplant and a ureteral stricture. We have tried everything to fix the stricture but nothing has worked. So my transplant team decided that surgery was the option ,surgical retransplantation of the ureter using a piece of my small intestines where the stricture was ,in its place
I have a third kidney transplant and a ureteral stricture. We have tried everything to fix the stricture but nothing has worked. So my transplant team decided that surgery was the option ,surgical retransplantation of the ureter using a piece of my small intestines where the stricture was ,in its place
Calebzztop
in
Kidney Transplant
1 year ago
start of my SCT journey
Hi pawb Iām primary MF and Cal-r positive. Iāve been on Epo injections for 30 weeks which has kept my red cells in the high 90s. My platelets are in the low 40s. I have started to take Ruxolitinib but because of my low platelets 5mg 2 times a day. This will hopefully reduce my spleen. I have been told
Hi pawb Iām primary MF and Cal-r positive. Iāve been on Epo injections for 30 weeks which has kept my red cells in the high 90s. My platelets are in the low 40s. I have started to take Ruxolitinib but because of my low platelets 5mg 2 times a day. This will hopefully reduce my spleen. I have been told
Grizly
in
MPN Voice
10 months ago
Stem Cell Transplant update
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
I am now close to 6 months from my sct. I feel well in myself except for side affects from steroids which I should be off in a week. They make it difficult to sleep, make me hungry and over full of energy . Many of my blood counts are in normal range except for platelets. These keep yo-yoing around
Scaredy_cat
in
MPN Voice
10 months ago
What is yin yoga...and why it matters
For all the yang in the world, we need the softer yin to balance. To harmonise. To experience viscerally, our inner equipose. A sojourn to an old converted olive farm in Andalucia in 2012, was my first entry point into a formal yoga teacher training (YTT). As a woman then in my 30s, a healthy functioning
For all the yang in the world, we need the softer yin to balance. To harmonise. To experience viscerally, our inner equipose. A sojourn to an old converted olive farm in Andalucia in 2012, was my first entry point into a formal yoga teacher training (YTT). As a woman then in my 30s, a healthy functioning
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
1 year ago
Media Request: West Devon
Do you live in or near West Devon and would you be happy to share your story with local press? TheTavistock Times would like to speak to someone living with non alcohol related liver disease, alcohol related liver disease or viral hepatitis who has received a liver transplant. If you're able to help
Do you live in or near West Devon and would you be happy to share your story with local press? TheTavistock Times would like to speak to someone living with non alcohol related liver disease, alcohol related liver disease or viral hepatitis who has received a liver transplant. If you're able to help
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
jan16
anyone been diagnosed with
lung
cancer following liver
transplant
for pbc
anyone been diagnosed with
lung
cancer following liver
transplant
for pbc
jackk9
in
PBC Foundation
2 years ago
ļ»æHeart-lung transplant
ļ»æHi is there anyone that could share information or experience about a hear-
lung
transplant
. It is the last option for a family member with complex cyanotic heart disease any info would be appreciated . Thank you
ļ»æHi is there anyone that could share information or experience about a hear-
lung
transplant
. It is the last option for a family member with complex cyanotic heart disease any info would be appreciated . Thank you
John9912
in
British Heart Foundation
2 years ago
Holiday insurance
Anyone been going on holiday not sure about insurance answered as best I can but varices question stuck o now no acites swelling gone down one report from 2021 decsaid grade one varices but none now never had tied or tipped or whatever goes with varices no bleeding n no liver transplant mentioned not
Anyone been going on holiday not sure about insurance answered as best I can but varices question stuck o now no acites swelling gone down one report from 2021 decsaid grade one varices but none now never had tied or tipped or whatever goes with varices no bleeding n no liver transplant mentioned not
Morkmindy
in
British Liver Trust
1 year ago
COVID VACCINE MANDATE
My ex husband is in need of a kidney. He has been evaluated at 2 separate centers but they refuse to list him unless he gets the COVID vaccine. This seems an unreasonable requirement since the long term effects of the vaccine are unknown in kidney transplant patients. He will be looking into other
My ex husband is in need of a kidney. He has been evaluated at 2 separate centers but they refuse to list him unless he gets the COVID vaccine. This seems an unreasonable requirement since the long term effects of the vaccine are unknown in kidney transplant patients. He will be looking into other
green1981
in
Kidney Donation
1 year ago
Does Tacrolimus cause forgetfulness for anyone?
I recently was speaking with a recent kidney transplant recipient, and he has memory lapses, sometimes forgetting conversations he's had. His nephrologist said it can be the Tacro as it is one of the possible side effects. He's being switched to another medication. I had not heard this, and just
I recently was speaking with a recent kidney transplant recipient, and he has memory lapses, sometimes forgetting conversations he's had. His nephrologist said it can be the Tacro as it is one of the possible side effects. He's being switched to another medication. I had not heard this, and just
Kbristow
in
Kidney Transplant
1 year ago
NHS Blood and Transplant are seeking the views of patients on living donor liver transplantation
Living donor liver transplantation emerged across the world in the early 1990s in response to the shortfall in available donor organs for patients in need of a liver transplantation. Since 1998, paediatric centres in the UK have been offering living donor transplantation for children on the active waiting
Living donor liver transplantation emerged across the world in the early 1990s in response to the shortfall in available donor organs for patients in need of a liver transplantation. Since 1998, paediatric centres in the UK have been offering living donor transplantation for children on the active waiting
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Interesting transplant discussion tomorrow night
Sharing that I am hosting what I hope will be a great Zoom discussion tomorrow Jan. 23 featuring Robert Kolker ("Hidden Valley Road"), a New York Times Best-Selling author and Oprah's Book Club pick and the author of the viral 2021 New York Times Magazine article, "Who is the Bad Art Friend" (https:/
Sharing that I am hosting what I hope will be a great Zoom discussion tomorrow Jan. 23 featuring Robert Kolker ("Hidden Valley Road"), a New York Times Best-Selling author and Oprah's Book Club pick and the author of the viral 2021 New York Times Magazine article, "Who is the Bad Art Friend" (https:/
EmilyKidney
in
PKD Charity for Autosomal Dominant PKD
1 year ago
Different options?
Then I got a phone call from
lung
function department regarding a test for
transplant
!!!! Seriously wasn't expecting it n as scared me to deathš³ I no this site probably prefers pharmaceuticals n surgery but my question is......
Then I got a phone call from
lung
function department regarding a test for
transplant
!!!! Seriously wasn't expecting it n as scared me to deathš³ I no this site probably prefers pharmaceuticals n surgery but my question is......
Segy
in
British Liver Trust
2 months ago
Hand Sanitizer gel
Hi I am 2 weeks post liver transplant. Just had a thought that I am carry round Carex hand sanitiser gel which I use all the time, but just realised it contains 70% Alcohol. Is this okay to use as know you should not use mouth wash that has alcohol in it thanks
Hi I am 2 weeks post liver transplant. Just had a thought that I am carry round Carex hand sanitiser gel which I use all the time, but just realised it contains 70% Alcohol. Is this okay to use as know you should not use mouth wash that has alcohol in it thanks
Bantam2
in
British Liver Trust
1 year ago
GFR levels post transplant
hi, anyone got any idea as to what their GFR level, or creatinine or urea levels in blood were 2 years onwards post Tx. I was shocked today to find my GFR is 32 and until now no one has ever uttered chronic liver disease Stage 3b. That canāt just happen over night and GFR results hasnāt been listed
hi, anyone got any idea as to what their GFR level, or creatinine or urea levels in blood were 2 years onwards post Tx. I was shocked today to find my GFR is 32 and until now no one has ever uttered chronic liver disease Stage 3b. That canāt just happen over night and GFR results hasnāt been listed
Braveheart65
in
British Liver Trust
1 year ago
Liver transplant aborted
I was diagnosed in early April 22 as needing a liver transplant. The outward signs were yellow eyes and skin, lotās of weight loss, fluid on the legs from ankles to mid thighs, very extended abdomen with small veins extending out on top of the abdomen. My lower legs were red, itchy and āscalyā I was
I was diagnosed in early April 22 as needing a liver transplant. The outward signs were yellow eyes and skin, lotās of weight loss, fluid on the legs from ankles to mid thighs, very extended abdomen with small veins extending out on top of the abdomen. My lower legs were red, itchy and āscalyā I was
Shep666
in
British Liver Trust
1 year ago
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