Well, where do I start.
The transplant team wanted to increase my Rux to 10 mgs which has been really good for me. So much energy hardly any symptoms and overall feeling better. The fly in the ointment is my blood levels are dropping red cells were 80 and my platelets were in the 30’s. My Haematologist said the cut off for me to start blood transfusion was 80, but was happy to carry on the treatment and to have more bloods done in 3 weeks time. So fast forward my red cells have dropped to 76 and my platelets are 34. Haematologist told me to stop my Rux and made arrangements for me to have a transfusion.
Within a week, sadly my symptoms have returned. After my transfusion my red cells are 98 and my platelets are 30 started back on Rux 5 mgs to help with my symptoms.
The Good news is I have now been given a provisional date to start my stem cell transplant 17th November. Have to have another bone marrow biopsy and some tests on the 14th November ie Covid, flu etc, so things are moving on.