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Transplant.vs dialysis
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Jade1982
in
Kidney Transplant Patient Support
1 year ago
AXSL1 gene mutation
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
merlisa
in
MPN Voice
6 months ago
SCT journey update No.2
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
LFCLove
in
MPN Voice
6 months ago
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latest news on liver transplants fo4 young people
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
Harriet-sarah
in
British Liver Trust
1 year ago
Still on hold for stem cell transplant
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
dwolden
in
CLL Support
7 months ago
Please Join Us! Tuesday August 8th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tuesday, August 8th, at 5pm PT/8pm ET. At this
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tuesday, August 8th, at 5pm PT/8pm ET. At this
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
Kidney disease and inheritance.
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
nlee
in
Kidney Transplant
1 year ago
Kidney transplant and children
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
nlee
in
Kidney Transplant Patient Support
1 year ago
Lightheadedness and Knee heaviness/dull pain after kidney transplant
Hi everyone, My client developed lightheadedness after kidney transplant, he's 3 months post transplant now. Actually, he had dizziness and imbalance pre-transplant and it worsen after the transplant. Moreover, he complains of knee heaviness, sometimes with dull pain. His BP is quite stable, not taking
Hi everyone, My client developed lightheadedness after kidney transplant, he's 3 months post transplant now. Actually, he had dizziness and imbalance pre-transplant and it worsen after the transplant. Moreover, he complains of knee heaviness, sometimes with dull pain. His BP is quite stable, not taking
Jeeeemv
in
Kidney Transplant
1 year ago
HSCT early in MS
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
BettysMom
in
My MSAA Community
7 months ago
Stem Cell transplant register search goes on…
Unfortunately my next appointment with Consultant has been delayed until early April as they are no further advanced in their search for matches on transplant register. The Nuclear medicine tests that I have just had will be added to MyChart which Addenbrookes uses to show appointments, test results
Unfortunately my next appointment with Consultant has been delayed until early April as they are no further advanced in their search for matches on transplant register. The Nuclear medicine tests that I have just had will be added to MyChart which Addenbrookes uses to show appointments, test results
LFCLove
in
MPN Voice
7 months ago
SUPPORT GROUPS!
We are starting our next round of online support groups this week! If any of the groups sound like they would suit you then please get in touch. All the groups are held over Zoom, last for one hour and are hosted by a trained facilitator. The groups are a great way to give and recieve support whilst
We are starting our next round of online support groups this week! If any of the groups sound like they would suit you then please get in touch. All the groups are held over Zoom, last for one hour and are hosted by a trained facilitator. The groups are a great way to give and recieve support whilst
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
1 year ago
Glad to see more and more players are jumping into the stem cell therapy
A Phase 1/2a clinical trial evaluating TED-A9, a human stem cell-based therapy, in people with Parkinson’s disease has finished dosing with no safety concerns identified to date. Embryonic stem cell transplant showing safety in 12 patients The therapy, delivered as a cell transplant directly into
A Phase 1/2a clinical trial evaluating TED-A9, a human stem cell-based therapy, in people with Parkinson’s disease has finished dosing with no safety concerns identified to date. Embryonic stem cell transplant showing safety in 12 patients The therapy, delivered as a cell transplant directly into
Farooqji
in
Cure Parkinson's
7 months ago
Stem cell transplant
Hello, Has anyone woth AMN here ever had a stem cell transplant as a result of a diagnoses involving cerebral involvement? Please tell all! Is it a viable treatment option?
Hello, Has anyone woth AMN here ever had a stem cell transplant as a result of a diagnoses involving cerebral involvement? Please tell all! Is it a viable treatment option?
A7x1823eb
in
AMN EASIER
7 months ago
3 months post kidney transplant question
My husband is 3 months post kidney transplant. He is experiencing severe gut issues. Can he take probiotics, Vitamins like fish oil, Turmeric and add more fiber into diet? Regular doctors are not offering ANY assistance. H. pylori and BK came back negative. He is nauseous, gassy and has lost over
My husband is 3 months post kidney transplant. He is experiencing severe gut issues. Can he take probiotics, Vitamins like fish oil, Turmeric and add more fiber into diet? Regular doctors are not offering ANY assistance. H. pylori and BK came back negative. He is nauseous, gassy and has lost over
Loveoflife
in
Kidney Transplant
1 year ago
Dating and kissing for young adults with kidney transplant
Please answer only if you have gone through the same situation. How do you do to avoid rejection when meeting a potential romantic partner? I wear a mask in closed public places. All women I met when they know that I have a kidney transplant start to keep distance and do not give me a chance to
Please answer only if you have gone through the same situation. How do you do to avoid rejection when meeting a potential romantic partner? I wear a mask in closed public places. All women I met when they know that I have a kidney transplant start to keep distance and do not give me a chance to
vision22
in
Kidney Transplant
1 year ago
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis.
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
PhysAssist
in
MPN Voice
7 months ago
Heart Transplant
Good morning all, just wanted to know if any has or known some who has had a heart transplant. I have had a serious heart condition for 50 years and became seriously I’ll last year. I am now on the waiting list for a transplant since Jan 23. I suppose the question I’m asking is what it was like ? as
Good morning all, just wanted to know if any has or known some who has had a heart transplant. I have had a serious heart condition for 50 years and became seriously I’ll last year. I am now on the waiting list for a transplant since Jan 23. I suppose the question I’m asking is what it was like ? as
DW4019
in
British Heart Foundation
1 year ago
Have kidney transplant and dr found a intraduct mass on my breast is really small but im so worried
I going through a difficult time here I have a kidney transplant for 22 years just when to get a ultrasound and they found an intraductal mass which is really mass . I did a biopsy and I'm terrified that it could be cancerous. I don't want to know waiting for results is torture for me. I read and did
I going through a difficult time here I have a kidney transplant for 22 years just when to get a ultrasound and they found an intraductal mass which is really mass . I did a biopsy and I'm terrified that it could be cancerous. I don't want to know waiting for results is torture for me. I read and did
jennifer24
in
Kidney Transplant
1 year ago
Just wanted to share my Primary Myelofibrosis journey so far…….
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
LFCLove
in
MPN Voice
7 months ago
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