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Re Introduction Hi everyone
Hi everyone My name is sara brown.I joined this community a long time ago because I was diagnosed with ILD in 2019 but havent posted for years so I thought Id better re-introduce myself A lot has happened to me -I have been put on Oxygen 24/7 at home which does limit my going out for example
Hi everyone My name is sara brown.I joined this community a long time ago because I was diagnosed with ILD in 2019 but havent posted for years so I thought Id better re-introduce myself A lot has happened to me -I have been put on Oxygen 24/7 at home which does limit my going out for example
horseygirl_0103
in
Living with Interstitial Lung Disease (ILD)
5 months ago
Lung Transplant appointment 28/11/23 Cancellled for the 2nd time due to Failure of Patient Transport
I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me. We had to explain we were waiting for the ambulance - he then cancelled the
I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me. We had to explain we were waiting for the ambulance - he then cancelled the
Sara_2611
in
Lung Conditions Community Forum
6 months ago
I really don’t want a liver transplant but do not know how to get of the list for good.
I done all my research on the survival rate of people having the
liver
transplant
. 75 people out of a hundred will survive for the first five years of the the
liver
transplant
and the rest will die.
I done all my research on the survival rate of people having the
liver
transplant
. 75 people out of a hundred will survive for the first five years of the the
liver
transplant
and the rest will die.
LucyBarrett
in
British Liver Trust
1 year ago
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What do you do and what support do you get if you really don’t want a liver transplant
I really don’t want a
liver
transplant
. Last year in December I was out on the
liver
transplant
list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run.
I really don’t want a
liver
transplant
. Last year in December I was out on the
liver
transplant
list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run.
LucyBarrett
in
British Liver Trust
1 year ago
Yellow patches on eyelids
Hi I developed yellow patches on my eyelids and under my eyes pre-
transplant
. Read it can be a sign of poor
liver
function so that makes sense, however it has got slightly worse post
transplant
.
Hi I developed yellow patches on my eyelids and under my eyes pre-
transplant
. Read it can be a sign of poor
liver
function so that makes sense, however it has got slightly worse post
transplant
.
Bantam2
in
British Liver Trust
1 year ago
Kidney transplant stage 4 20 percent kidney function but don't have symptoms.
Hi everyone I hope everyone is doing well . Well it's been 22 years years with my kidney transplant and unfortunately I'm already at stage 4 20 percent kidney function. I have was hoping that this second time going to the dr my percent will be a little higher but no 😔. I'm so worried and scare I don't
Hi everyone I hope everyone is doing well . Well it's been 22 years years with my kidney transplant and unfortunately I'm already at stage 4 20 percent kidney function. I have was hoping that this second time going to the dr my percent will be a little higher but no 😔. I'm so worried and scare I don't
jennifer24
in
Kidney Transplant
6 months ago
OK - got another question -
Again, I'm 7 months post kidney transplant. My GFR is all over the place. Just. checked today and it is the lowest it has been since 2 months ago. During this first year of transplant, is that normal. Has anyone else experienced this? If you have, what did you do to raise it. I try to eat healthy
Again, I'm 7 months post kidney transplant. My GFR is all over the place. Just. checked today and it is the lowest it has been since 2 months ago. During this first year of transplant, is that normal. Has anyone else experienced this? If you have, what did you do to raise it. I try to eat healthy
Tankjsl
in
Kidney Transplant
6 months ago
Bad news
Hi all, as some of you know I had a successful heart transplant in July 2020 and so far all has been good, more trouble from the rest of the old body but on Friday I received the devastating news that I have bowel cancer. It was picked up through the routine testing another thing I have to thank the
Hi all, as some of you know I had a successful heart transplant in July 2020 and so far all has been good, more trouble from the rest of the old body but on Friday I received the devastating news that I have bowel cancer. It was picked up through the routine testing another thing I have to thank the
Thanksnhs
in
British Heart Foundation
6 months ago
REFERRED
does any one know how quick it is to get to see
liver
transplant
team at QE hospital after being referred be
liver
DR at hospital
does any one know how quick it is to get to see
liver
transplant
team at QE hospital after being referred be
liver
DR at hospital
lonmallin50
in
British Liver Trust
2 years ago
1 Year Anniversary (Nov 16)
Good evening, Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very
Good evening, Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very
Jayhawker
in
Kidney Dialysis
6 months ago
GI issues post transplant
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
Tankjsl
in
Kidney Transplant
6 months ago
GFR levels post transplant
Can anyone tell me what the logic would be if having a
liver
transplant
only to result in stage 3b
liver
disease within 2 yrs. what sense does that make. It’s a genuine question and one that I’m truly shocked asking.
Can anyone tell me what the logic would be if having a
liver
transplant
only to result in stage 3b
liver
disease within 2 yrs. what sense does that make. It’s a genuine question and one that I’m truly shocked asking.
Braveheart65
in
British Liver Trust
1 year ago
Reiki
does anyone know if Reiki works on liver disease , especially for cirrhosis which I’ve been diagnosed with 😩? I have read Reiki does but was hoping to get it clarified. Does Crohn’s affect the liver too?? Thank you all.
does anyone know if Reiki works on liver disease , especially for cirrhosis which I’ve been diagnosed with 😩? I have read Reiki does but was hoping to get it clarified. Does Crohn’s affect the liver too?? Thank you all.
Maggie153
in
British Liver Trust
10 hours ago
Decompensated liver
good morning, following on from my post a few weeks ago about my brother, a couple of weeks after I posted he was admitted into hospital again with fluid in the lungs, kept on critical care for a couple of weeks on a chest drain, It was decided by the doctors that the chest drain was serving no purpose
good morning, following on from my post a few weeks ago about my brother, a couple of weeks after I posted he was admitted into hospital again with fluid in the lungs, kept on critical care for a couple of weeks on a chest drain, It was decided by the doctors that the chest drain was serving no purpose
tomgill
in
British Liver Trust
23 hours ago
possible hep c infection
I wonder if anyone can advise me please. My wonderful 76 year old mum was given a blood transfusion after the birth of me 48 years ago. Over the years her blood test has shown slightly elevated bilirubin but no further action was taken, I think we hoped it would be Gilbert’s syndrome. I know she knows
I wonder if anyone can advise me please. My wonderful 76 year old mum was given a blood transfusion after the birth of me 48 years ago. Over the years her blood test has shown slightly elevated bilirubin but no further action was taken, I think we hoped it would be Gilbert’s syndrome. I know she knows
Worrylou
in
British Liver Trust
3 days ago
Fatty liver
Just had a scan because one of my blood test readings on my liver was high,, they tell me I have fatty liver What's best food to start eating to help, I've started diet now lots of walking and drinking lots of water,, they tell me to come back in 3 years ?
Just had a scan because one of my blood test readings on my liver was high,, they tell me I have fatty liver What's best food to start eating to help, I've started diet now lots of walking and drinking lots of water,, they tell me to come back in 3 years ?
AJ3959
in
British Liver Trust
4 days ago
offlaner56
I thought I was just a social drinker, and I have a few drinks after work or when I was playing soldiers. I've been recently diagnosis with fibrosis stage three and I'm coming to terms with how to live with the situation. And over the years it is caught up with me and my body is telling me I've been
I thought I was just a social drinker, and I have a few drinks after work or when I was playing soldiers. I've been recently diagnosis with fibrosis stage three and I'm coming to terms with how to live with the situation. And over the years it is caught up with me and my body is telling me I've been
Offlander56
in
British Liver Trust
4 days ago
Offlander56
I've been diagnosed with fibrosis stage three ,and I am trying to get my head round the whole thing. I've been told I've got a fatty liver plus using alcohol, I didn't think I drunk that much and I've learnt there is a stigma if you get a liver disease you're an alcoholic. Questions I would
I've been diagnosed with fibrosis stage three ,and I am trying to get my head round the whole thing. I've been told I've got a fatty liver plus using alcohol, I didn't think I drunk that much and I've learnt there is a stigma if you get a liver disease you're an alcoholic. Questions I would
Offlander56
in
British Liver Trust
4 days ago
The effect of a B complex on raised liver enzymes with discomfort/pain
As mad as it sounds, every time I re start a B complex the liver pain returns I’ve had mildly raised liver enzymes with early morning liver discomfort, every single day for years but recently both have worsened and the discomfort became actual pain. However, on rising, the pain dissipates immediately
As mad as it sounds, every time I re start a B complex the liver pain returns I’ve had mildly raised liver enzymes with early morning liver discomfort, every single day for years but recently both have worsened and the discomfort became actual pain. However, on rising, the pain dissipates immediately
Noelnoel
in
Thyroid UK
5 days ago
Assessing liver function and interpreting liver blood tests
From NHS England's Specialist Pharmacy Service: [i]
Assessing liver function and interpreting liver blood tests
[/i] [i]Published 1 May 2024[/i] [i]Topics: Liver disorders · Training and Development[/i] [i][/i] [i]We explain how to assess liver function including the purpose of liver blood
From NHS England's Specialist Pharmacy Service: [i]
Assessing liver function and interpreting liver blood tests
[/i] [i]Published 1 May 2024[/i] [i]Topics: Liver disorders · Training and Development[/i] [i][/i] [i]We explain how to assess liver function including the purpose of liver blood
helvella
Thyroid UK
in
Thyroid UK
5 days ago
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