So many emotions : Hi, newly diagnosed... - British Liver Trust

British Liver Trust

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So many emotions

Mushroom2024 profile image
12 Replies

Hi, newly diagnosed NAFLD Cirrhosis severe F4, also type 2 diabetic.Saw consultant last week with results of fibroscan, he wasn't very helpful, told me Google for information, he's arranging for an endoscopy which I'm petrified about to check for bleeding and cancer and said I need to loose weight.

When asked what percentage of liver is damaged he refused to answer, I have no idea how long I've had cirrhosis so unsure what my prognosis could be.

Can't see GP for 2 weeks, I have a healthy diet and know I need to loose 3stone, is there anything else recommended?

Thanks

Mushroom 🍄

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Mushroom2024 profile image
Mushroom2024
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12 Replies
Tatzh63 profile image
Tatzh63

Hi Mushroom I had an awful shock gone from normal to just into F3 in two and a half years don't drink. too much chocolate whilst diabetic my own fault I'm dieting now 11_lb roughly must shed another 12lb scary stuff being scanned times 2 per year makes you worry hope you go on ok

Mushroom2024 profile image
Mushroom2024 in reply toTatzh63

Thanks Tatzh, need to get my diabetes sorted, after some research found I shouldn't be on Metformin🤔 anyway take care 😊

jbrking profile image
jbrking in reply toMushroom2024

I’m in metformin for type 2 and I have liver fibrosis and a bowel condition

BritishLiverTrust11 profile image
BritishLiverTrust11Moderator

Hello

Here is the link to information about non-alcoholic fatty liver disease (NAFLD) on our website, which you may find useful

britishlivertrust.org.uk/in...

Here are the links to information about cirrhosis on our website, which you may find useful

britishlivertrust.org.uk/in... (including a suite of publications towards the bottom that are downloadable or can be posted)

britishlivertrust.org.uk/in...

If you [are in the UK and] would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust

Mushroom2024 profile image
Mushroom2024 in reply toBritishLiverTrust11

Thank you I'll go through everything 😊

Blacklabrodor profile image
Blacklabrodor

All I can say that is appalling treatment from your consultant. I had an endoscopy which the procedure is OK and they told me the results there and then .Good luck with yours . Ps I was unhappy with my NHS treatment and decided to go private, not possible for everyone I know but I opted for the Gold Star treatment which was a liver biopsy. I now have exact diagnosis ..

Mushroom2024 profile image
Mushroom2024 in reply toBlacklabrodor

Is it very expensive to see consultant privately?

Blacklabrodor profile image
Blacklabrodor in reply toMushroom2024

In total with consultations, blood tests fibroscan, liver biopsy .£4,700 approx .Spire hospital.

Omm57 profile image
Omm57

Thank you for the inspiration. It gives me something to aim for & reminds me that where there is life there is hope & if I go down it'll be fighting!!

Mushroom2024 profile image
Mushroom2024

Thank you so much, this gives me hope and the desire to push and make better life decisions to kick this condition in the ass😊🤪🍄

Violet74 profile image
Violet74

Nothing to be scared of doesn’t hurt just sounds worse than it is. Ask for sedation helps you relax think of somewhere you like being and concentrate on being in the now. Better to know what you are up against than left to wonder and exaggerate your position. We have all been where you are you aren’t alone. Take care x

Not the most pleasant of things an endoscopy. I had the throat spray but most hospitals offer sedation as well.

Relax and focus on something else.

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