Hello all my husband has just had the TACE procedure on the 2nd tumour, the 1st seems to be holding its own and no cancer ‘lighting up on Scans’. We have been told this is now palliative care husband also has Alzheimer’s, is there anyone out there who is in the same boat?
I am struggling with dealing with both these, anger, frustration, sadness, fear, feeling my life is over now which is incredibly selfish feeling for me to have I think. I wish I knew where all this is heading with the cancer and the Alzheimer’s. Although the Alzheimer’s isn’t at at terrible stage yet, it’s very wearing.
Thanks for reading
Julie
Written by
Campervan29
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We are sorry things are challenging at the moment. We facilitate a range of virtual support groups for people living with a liver condition (and their families and carers).
If you [are in the UK and] would find it helpful to speak to others with shared experience, you can register to join a group here
Chronic liver disease is an unpredictable condition. However, there are some symptoms that indicate the liver has become so badly damaged it can no longer work properly – this is known as ‘decompensated cirrhosis’. It’s important for patients with decompensated cirrhosis to have the opportunity to talk about the impact of their condition, and to think about their wishes for the future.
This information will help you talk to your hepatology team, GP, relatives and carers about how you would like your future care to progress, and encourage you to start those conversations early, so you can make your preferred care options clear.
Although these conversations can be difficult, patients and their families or carers often find that planning ahead brings them peace of mind. Your healthcare team and loved ones need to understand your wishes and be aware of your thoughts and preferences.
For more detailed information you can download our Thinking ahead booklet, which also covers end of life care in a separate section that can be looked at when you feel ready.
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Need some positivity 
Non-alcoholic fatty liver - Borderline FibroScan score F3, 11.4 kpa with quality study 12% (good quality), how long am I going to live?
Endoscopy
Hair loss
