Fibroscan worries

[Val690]

Hello

I wondered if anyone has had a Fibroscan result like mine - 349 CAP and 13.9 Kpa ? I’m very overweight but not much of a drinker and really worried the prognosis will be dire - I’ve a long wait before seeing a consultant.

Does anyone know of this is likely to be cirrhosis and irreversible or is there time for me to try and turn it around?

Any advice would be really welcome

- thanks

[Toby144]

Hi Val690

My FibroScan results in November 2023 were virtually identical to yours. I was told I had Cirrhosis and then sent on my way with no support, which resulted in me being absolutely terrified that I was going to die and paying for a private consultation with a liver specialist. The consultant was lovely and helped reassure me that whilst serious, this is by no means a death sentence. More like ‘you will die with it, not of it’. Now referred back into the NHS and awaiting a Gastroenterology consultation. My recommendation is not to think the worst, do not use Dr. Google - every person’s journey is different. This forum is a great source of support and the resources provided by the British Liver Trust are also super helpful.

I too am very overweight and have made a real effort to eat better and start very gentle exercise. I’ve lost around 4 stone so far with a long way to go. I have good days and bad days where I slip but am not beating myself up, just dusting myself off and getting back on it. The liver is a very resilient and forgiving organ and I figure the best thing to do is try to make manageable incremental changes and improve my overall level of health and activity in a slow and hopefully sustainable manner.

Hope this helps!

[Val690 in reply to Toby144]

Toby thanks so much for replying - the idea of cirrhosis just seems so awful and it feels like the end of the road but from what your consultant said is feels like there’s a chance to make things better or at least no worse! I’ll hang onto that for now!

Good luck with your plan too and I hope get some encouraging feedback when you see the NHS team

Thanks again

[jbrking]

it’s never too late, mine was nearly as high as yours (12.9) was was borderline, I don’t drink so it’s all to do with weight/fatty liver. I’ve lost some weight so I’m hoping my next scan will be better. I have a bowel condition and metabolic syndrome and it’s really hard to lose weight. I did it by calorie counting and took me 2 years to lose 10kg. But any weight loss is good. I put my scales away as I was becoming obsessed weighing twice a day and then being upset. Because of my bowels i struggle with certain healthy foods so my consultant basically said I don’t care what you eat, just eat less of it. So I got fitness pal app and logged every calorie.

[Val690 in reply to jbrking]

Thanks so much for replying - that’s really helpful - I’m aiming for 10kg just now as a first step. Really hope your next results are better too.

[BritishLiverTrust11 Moderator]

Hello

No one on this forum can diagnose you. Here is the link to information on our website explaining liver disease tests, diagnosis, and screening, which you may find useful

britishlivertrust.org.uk/in...

If you are in the UK and would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust